#WeDocs - Wednesday 16th December 2015 8pm (GMT Standard Time) Patients as Partners

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Introduction 

No one doubts that the NHS needs to change the way we deliver care. The greatest healthcare resource the NHS has is our patients, their families and communities. We don’t currently harness patients own resources effectively (Blunt and Harris 2009, The Human Factor). There is an inadequate focus on people’s assets and focus on their illness and symptoms with little emphasis on building resilience and resourcefulness in people and their communities.
Innovative approaches involving collaborating with patients, carers and third sector organisations are required. Service providers need to develop more equal partnerships with the people who use their services, together with their families and carers. We must remove the barriers between those who deliver services and those who receive. In the UK, co-production in healthcare and social services has gone beyond models of service user consultation towards developing a model of service delivery intended to?impact on service users and on wider social systems.
 Transformative co-production enables and recognises patients as not only ‘experts’ in their own health and particular circumstances, fully capable of making decisions but also in possession of skills and assets in addition to their “lived experience”. For this to occur professionals need to move away from being a ‘fixers’ to ‘facilitators’ and patients/service users from “users and choosers” to “shapers and makers” of services (Renedo et al 2014. Patient and Public Involvement in Healthcare Quality Improvement: How organizations can help patients and professionals to collaborate). 
The reality may be far away from the vision which requires a paradigm change which is transformative so that practitioners devolve ‘power’ from themselves to their patients for co-production to occur. This requires a change in both the professional and the patient and their carers. The Department of Health ‘Human Rights in Healthcare’ programme has a wealth of learning resources to draw upon, in particular the work that took place at Mersey Care NHS Trust up to 2011. The adoption of a human rights based (HRB) approach to healthcare, specifically in the context of mental health and learning disability, led to co-production taking place.FREDA: is a human rights biased approach to healthcare which provides a good summary and in conclusion encourages healthcare professionals to think about how they might demonstrate the FREDA principles within their daily practice. See below for more information.
This chat will be led by @AlysColeKing and @OlwenOlwen on behalf of @WeDocs and they are both very grateful for the support, guidance and contribution from @Irisbenson100 @roz_davies and @luckockp @fran_ohara Thanks @allyc375 for advice and resources

 Tweetchat questions

1. What co-production is and what it is not? ( ie How can we make sure we have a shared understanding of important words and what they mean?)
2. Why is co-production important and how can we engage doctors and the wider system to embrace the mindset of co-production
3. What has worked well and how we achieved it? Led by @Irisbenson1004. 
4. What barriers and enablers are there to unleashing the resources in yr local citizens/communities to improve health & wellbeing? Led by @roz_davies
5. How can we overcome the barriers and some ‘top tips’ to take away and implement tomorrow 


 Really helpful to read pre-chat 


What is co-production? http://personcentredcare.health.org.uk/sites/default/files/resources/what_is_co-production.pdf 
Co-producing services Co-creating health http://www.1000livesplus.wales.nhs.uk/sitesplus/documents/1011/T4I%20%288%29%20Co-production.pdf 
http://www.neweconomics.org/blog/entry/co-production-in-mental-health-why-everybody-wins 
Resources collated by Roz Davies exploring coproduction and other approaches to active partnership working across citizens, patients and staff https://welovelifeblog.wordpress.com/2014/05/21/health-and-well-being-citizenship-resources/ 
The Parable of the Blob and Squares animation based on No More Throwaway People, the Co Production Imperative” by Edgar Cahn
https://youtu.be/egav5xjb-lg From Patient Voice to Patient Leader. Keynote Speech by Alison Cameron to NHS Confederation Conference 2015
https://youtu.be/dnhjgYGbEpk 


 Suggested reading/viewing 


FREDA: a human rights biased approach to healthcare
The Department of Health has identified five key aims of a human rights-based approach to healthcare:
• Putting human rights principles and standards at the heart of policy and planning;
• Empowering staff and patients with knowledge, skills and organisational Leadership and commitment to achieve human rights-based approach;
• Enabling meaningful involvement and participation of all key stakeholders;
• Ensuring clear accountability throughout the organisation;
• Non-discrimination and attention to vulnerable groups.
The DVD from the FREDA Fighters: http://www.humanrightsinhealthcare.nhs.uk/Library/advice_and_support/events/FREDA_FINAL_COLOUR.pdf

Public health england guide to community centred approacheshttps://www.gov.uk/government/publications/health-and-wellbeing-a-guide-to-community-centred-approaches 

NHS guidance https://www.england.nhs.uk/wp-content/uploads/2015/11/item4-board-20-11-15.pdhttp://www.nhs.uk/choiceintheNHS/Rightsandpledges/NHSConstitution/Pages/Overview.aspx 

The Challenge of Co Production, Boyle and Harris 2009http://www.neweconomics.org/publications/entry/the-challenge-of-co-production 

Coproduction of healthcare service Batalden Et al 2015 http://qualitysafety.bmj.com/content/early/2015/09/16/bmjqs-2015-004315.full 

Asset based community development http://www.abcdinstitute.org/ Aboriginal definition of wellbeing http://www.ahmrc.org.au/index.php?option=com_content&view=article&id=35&Itemid=37 

Social determinants of health - refer to Marmot review http://www.instituteofhealthequity.org/projects/fair-society-healthy-lives-the-marmot-review 



Really great background reading 


http://www.scie.org.uk/publications/guides/guide51/
http://www.goodpractice.wales/co-production-catalogue-from-wales
http://www.neweconomics.org/publications/entry/co-production
http://www.nesta.org.uk/publications/co-production-cataloguehttp://coproductionnetwork.com/page/about-coproductionhttp://pb.rcpsych.org/content/34/4/150 


Additional information 


An example of a shared understanding can be gained from Tony Bovaird who demonstrates with the essence of coproduction, the HOW is important!Tony Bovaird @tonybovaird Dec 9Claire Wightman #wmcoprodnet - #coproduction NOT set of activities but a way of doing things: trust, protected space, humility, peer support http://qualitysafety.bmj.com/content/early/2015/09/16/bmjqs-2015-004315.full 
Human Rights in healthcare report 2010-2011http://www.humanrightsinhealthcare.nhs.uk/Library/whats_new/humanrights_in_health_and_socialcare_event_october_15th_london/human_rights_november_event_aintree/human_rights_report.pdf 
 Mersey Care dementiahttp://www.humanrightsinhealthcare.nhs.uk/Library/whats_new/humanrights_in_health_and_socialcare_event_october_15th_london/human_rights_november_event_aintree/dementia_presentationNo12.pdf 
http://www.nets.nihr.ac.uk/__data/assets/pdf_file/0006/129795/PRO-12-209-53.pdf NIHR Evaluation, Trials and Studies | 12/209/53






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 Chat Summary

 

Patients as Partners postchat blog

Firstly a huge thank you to our guest partnersin this chat @Irisbenson1004@roz_davies

@luckockpand @fran_ohara and the ‘WeDocs team. Thanks too @allyc375for her invaluable advice and suggested resources to include in the pre-chatblog. We are also very grateful that so many of you (113 contributors) joinedour chat and contributed to the 803Tweets which provided a reach of 2,603,443 !

The prechat blog for@WeDocs was the begining of the learning process . We wanted to ‘walk the walk’and do this properly so we co-wrote the blog and questions with all the guests.. An initial challenge is that there is no ‘snappy’ internationally agreeddefinition of co-production which doesn’t help. Also just because someone saysthey engage in co-production absolutely doesn’t mean they do. We would alsourge you to read the excellent blog via @dr_shibley where he beautifully sumsthis up http://dementia-wellbeing.org/policy/i-fail-to-get-excited-about-co-production/

We had a great range tocontributors including representation from people who identified themselves apatient, professionals, academics, pharmacists, managers and some as bothpatient and professional

If we had to sum up thechat in a few words it would be ‘co-productionis vital and we need to ensure that everyone has the requited will, attitudes,competences and resources to enable it to happen’. For some people this mayinvolve training or coaching. The evidence for the need to co-produce is nowoverwhelming but sadly like other areas of healthcare there is a delay or‘decay’ between evidence, implementation and practice in the NHS. There aresome wonderful beacons of ‘proper co-production’ but this is not the norm. Everyoneagreed that getting co-production right is absolutely vital and that tokenismis even worse than not engaging at all. 


The themes thatemerged  are summarised below.

   fearof new ideas / different ways of doing / change/

   needencouragement to help grow understanding of why Co-production works - NB: thisis hard work!!

   keypoints to note:

   there’s lots of work ahead

   its not easy work

   it will take time (a long time)

   think of it as a marathon not a sprint

   get going


TopTips

  practice humility

  be a learner

  Work with people who have relationships of trust with people andcommunities

  Create spaces where all voices can be heard, hospitable spacesfor conversations that matter, more information via http://www.theworldcafe.com

  Share and learn from and with others

  Ask- “how can I help”

  ensure all feel valued and listened to

  mutual respect

  no more “us & them” cultures


Remember…. Its ok to havefun! 














































































































































Overcoming barriers

  • Build trust,practice active listening, work as equal partners, respect boundaries,training, learning and personal development.
  • Humility and listening instead of telling (coaching mentioned)
  • Be aware of language we use



Twitter lesson:                                                                          

Trust yourselfand your instincts &  (via@sammajundar) Go with the flow !



Additional suggested resources



http://www.specialneedsjungle.com/what-does-participation-look-like-a-circle-or-a-ladder/

Wise words fromHelen Sanderson & Lorraine Gradwell  https://coproductionforchange.wordpress.com/2015/09/22/a-new-ladder/

PipHardy recommended digital stories at http://www.patientvoices.org.uk

Different peoplereact differently to change (this reminded me of John Kotters book - a fable -Our iceberg is melting http://www.kotterinternational.com/book/our-iceberg-is-melting/ )





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 #WeDocs transcript

 
@luckockp
16 December 2015 20:00
#wedocs Hello, I'm looking forward to tonights chat, about to start:-) https://t.co/rC24RtPMTP
@PPsoup
16 December 2015 20:00
Really pleased #wedocs are discussing #patientsaspartners tonight, nobody understands the issues of my illness affecting me more than me
@luckockp
16 December 2015 20:00
RT @OlwenOlwen: It's nearly time for #WeDocs chat ??
@WeDocs
16 December 2015 20:01
Hello everyone! Delighted welcome you to our chat on 'Patients as partners' with @AlysColeKing & @OlwenOlwen as your @WeDocs hosts #wedocs
@luckockp
16 December 2015 20:02
RT @notjustaheadach: #wedocs #patientsaspartners I'm Katie, a multiple #LTC patient striving for the NHS to use their greatest asset! The p…
@gbrgsy
16 December 2015 20:02
#WeDocs relevant to tonight's tweet chat on coproduction: 'democratising public services or a race to the bottom?' https://t.co/43OKjzUnSu
@ndccharity
16 December 2015 20:02
Doctors should not make snap decisions on #EndOfLifeCare, says health watchdog @guardian https://t.co/xMrkAJIRNM #WeEoLC #palliative #WeDocs
@lizcharalambou
16 December 2015 20:02
RT @luckockp: #wedocs Hello, I'm looking forward to tonights chat, about to start:-) https://t.co/rC24RtPMTP
@Patient_Leader
16 December 2015 20:02
Hello #WeDocs ??
@nxtstop1
16 December 2015 20:02
hello everyone, in the UK, and wider world, Bernadette Keefe MD~ so delighted to join #wedocs chat today from Chapel Hill NC USA ~
@lizcharalambou
16 December 2015 20:02
RT @OlwenOlwen: It's nearly time for #WeDocs chat ??
@WeDocs
16 December 2015 20:02
#WeDocs Wellcome everyone Please introduce self ????????????????????
@madeofbeauty
16 December 2015 20:03
.@WeDocs @AlysColeKing @OlwenOlwen Hello, will try to keep up via an aging iPad #WeDocs
@dockeithwales
16 December 2015 20:03
@dr_shibley What is moral panic #WeDocs
@roz_davies
16 December 2015 20:03
@irisbenson100 @WeDocs @AlysColeKing @OlwenOlwen @luckockp @fran_ohara #wedocs hello, looking forward to some open debate on coproduction
@WeDocs
16 December 2015 20:03
RT @gbrgsy: #WeDocs relevant to tonight's tweet chat on coproduction: 'democratising public services or a race to the bottom?' https://t.co…
@dr_shibley
16 December 2015 20:03
For sake of clarity, I am definitely not opposed to #coproduction, or "working with people". Aunt Sally-isms are offensive. #WeDocs
@lizcharalambou
16 December 2015 20:03
Hello! #Wedocs
@irisbenson100
16 December 2015 20:03
RT @roz_davies: @irisbenson100 @WeDocs @AlysColeKing @OlwenOlwen @luckockp @fran_ohara #wedocs hello, looking forward to some open debate o…
@LynneBowers2
16 December 2015 20:03
RT @WeDocs: Today's the DAY! ?? #WeDocs chat 'Patients as Partners' 8-9pm ALL invited! https://t.co/Gj9nMySeym Pls spread the word!
@Nicki_Haywood
16 December 2015 20:04
@WeDocs @AlysColeKing @OlwenOlwen Hello everyone, looking forward to following your chat this evening #WeDocs
@WeDocs
16 December 2015 20:04
Really delighted have expert input @irisbenson100 & @roz_davies @luckockp + @fran_ohara #Wedocs Pls introduce yourself + remember #WeDocs !
@Imonlyslightly
16 December 2015 20:04
@notjustaheadach Hi Katie; #LTC patient here. I am sure they are not (is paternalistic). Better both in centre with co-production; #WeDocs
@WeDocs
16 December 2015 20:04
RT @Nicki_Haywood: @WeDocs @AlysColeKing @OlwenOlwen Hello everyone, looking forward to following your chat this evening #WeDocs
@LouLei20735035
16 December 2015 20:04
@WeDocs hiya, @KathEvans2 shared with me happy to join chat #WeDocs
@GleefulKaz
16 December 2015 20:04
#WeDocs looking forward to some lively debate
@sm_partnership
16 December 2015 20:04
I'm Lynne part time patient full time person . I worked on phase 1 of co-creating health patient programme #WeDocs
@lizcharalambou
16 December 2015 20:04
Hi I'm a staff nurse hcop phd student & have interest in getting public involved in services #Wedocs
@OlwenOlwen
16 December 2015 20:05
#coproduction #WeDocs Patients as Partners Olwen here from N Wales https://t.co/OG5nsX3oav
@WeDocs
16 December 2015 20:05
@irisbenson100 @roz_davies @AlysColeKing @OlwenOlwen @luckockp @fran_ohara So delighted to welcome you Iris! :) #WeDocs
@HelenWBTeam
16 December 2015 20:05
#wedocs hello! I am Helen working with @co4cc and @TLAP1 coproduction groups and blog with @logr24 on this subject too
@dr_shibley
16 December 2015 20:05
For sake of clarity, I am both a registered Dr + living with four long term conditions. So bound to be interested in #coproduction #WeDocs
@ANKHEmpress
16 December 2015 20:05
#wedocs Hi its Mavis; a patient pushing for a Health and Well Being service rather than a Health Sickness Service
@Laconic_doc
16 December 2015 20:05
Hello - Kit from Hereford here (geriatrician). Co-production ignoramus, but keen to learn! #wedocs
@WeDocs
16 December 2015 20:05
RT @roz_davies: @irisbenson100 @WeDocs @AlysColeKing @OlwenOlwen @luckockp @fran_ohara #wedocs hello, looking forward to some open debate o…
@pauljebb1
16 December 2015 20:05
@WeDocs @AlysColeKing @OlwenOlwen @irisbenson100 @roz_davies @luckockp @fran_ohara evening! Will be loitering as busy #WeDocs
@pharmerfour
16 December 2015 20:05
@WeDocs #WeDocs pharmacist from Australia. Very interested in Australian health centring on the patient and making collaboration the norm
@WeDocs
16 December 2015 20:05
@roz_davies @irisbenson100 @AlysColeKing @OlwenOlwen @luckockp @fran_ohara hello & delighted to welcome you! #WeDocs
@Chris5anne
16 December 2015 20:06
@WeDocs @irisbenson100 @roz_davies @luckockp @fran_ohara Hi I'm a person with LTCs & member of coproduction group with @Co4CC #WeDocs
@WeDocs
16 December 2015 20:06
RT @louiseravenscro: @WeDocs hiya, @KathEvans2 shared with me happy to join chat #WeDocs
@KarenPharm
16 December 2015 20:06
@WeDocs Hello, Karen here. Mental health / E&T pharmacist. Interested in #coproduction #WeDocs
@HelenWBTeam
16 December 2015 20:06
@OlwenOlwen hi - I love this graphic but some found it old hat #wedocs
@WeDocs
16 December 2015 20:06
RT @pharmerfour: @WeDocs #WeDocs pharmacist from Australia. Very interested in Australian health centring on the patient and making collabo…
@WeDocs
16 December 2015 20:06
OOPS don't forget tonight's #WeDocs You'll be left out of the story....... https://t.co/53vH0WpTdy
@Imonlyslightly
16 December 2015 20:06
RT @PPsoup: Really pleased #wedocs are discussing #patientsaspartners tonight, nobody understands the issues of my illness affecting me mor…
@luckockp
16 December 2015 20:06
#wedocs Pam here from North Wales
@gbrgsy
16 December 2015 20:06
#WeDocs looking forward to critical reflection on true meaning of coproduction/codesign tonight - & how relates to science of improvement
@WeDocs
16 December 2015 20:06
@pharmerfour great hope to hear more #WeDocs
@WeDocs
16 December 2015 20:07
Q1. What is co-production + what it is not? How can we make sure we have a shared understanding of important words + what they mean? #WeDocs
@annedraya
16 December 2015 20:07
#wedocs *waves* student nurse & mental health patient here, interesting seeing things from both sides!
@pauljebb1
16 December 2015 20:07
@WeDocs @AlysColeKing @OlwenOlwen @irisbenson100 @roz_davies @luckockp @fran_ohara lead on #alwaysevebts where coproduction integral #wedocs
@WeDocs
16 December 2015 20:07
RT @KarenPharm: @WeDocs Hello, Karen here. Mental health / E&T pharmacist. Interested in #coproduction #WeDocs
@Chris5anne
16 December 2015 20:07
RT @HelenHSAUK: #wedocs hello! I am Helen working with @co4cc and @TLAP1 coproduction groups and blog with @logr24 on this subject too
@pauljebb1
16 December 2015 20:07
@WeDocs @AlysColeKing @OlwenOlwen @irisbenson100 @roz_davies @luckockp @fran_ohara lead on #alwaysevents where coproduction integral #wedocs
@WeDocs
16 December 2015 20:08
RT @madeofbeauty: .@WeDocs @AlysColeKing @OlwenOlwen Hello, will try to keep up via an aging iPad #WeDocs
@HelenWBTeam
16 December 2015 20:08
@WeDocs not partnership working or consultation - much deeper than that - sharing power #wedocs
@WeDocs
16 December 2015 20:08
@madeofbeauty @AlysColeKing @OlwenOlwen look forward to your contribution #WeDocs
@WeDocs
16 December 2015 20:08
RT @HelenHSAUK: @WeDocs not partnership working or consultation - much deeper than that - sharing power #wedocs
@gbrgsy
16 December 2015 20:08
#WeDocs particularly interested in place of design thinking/codesign within coproduction work & role of designers https://t.co/WwbkYgZgLU
@GleefulKaz
16 December 2015 20:08
Sorry I should introduce myself I'm Karen, I live with a rare LTC & I'm also Lay Member for Patient Public Involvement @BandA_CCG #WeDocs
@sm_partnership
16 December 2015 20:08
@OlwenOlwen think we can go further than this diagram! It's more about being equals shift in locus of control #WeDocs
@WeDocs
16 December 2015 20:08
@HelenHSAUK like to share more pls? #wedocs
@Chris5anne
16 December 2015 20:08
@WeDocs In essence coproduction is people working together with equal value to a common goal #wedocs
@lizcharalambou
16 December 2015 20:08
#wedocs lots of global representation tonight!
@Patient_Leader
16 December 2015 20:09
RT @HelenHSAUK: @WeDocs not partnership working or consultation - much deeper than that - sharing power #wedocs
@WeNurses
16 December 2015 20:09
Join @WeDocs to explore "Patients as Co-production Partners" Chatting NOW https://t.co/S3I5PXxqfR via #WeDocs https://t.co/9jGNrZSsVA
@WeAHPs
16 December 2015 20:09
Join @WeDocs to explore "Patients as Co-production Partners" Chatting NOW https://t.co/5TDwuclbOC via #WeDocs https://t.co/UhsksLm7W9
@WeCommissioners
16 December 2015 20:09
Join @WeDocs to explore "Patients as Co-production Partners" Chatting NOW https://t.co/BeVGqepOqE via #WeDocs https://t.co/gyY9rPVtpk
@WeGPNs
16 December 2015 20:09
Join @WeDocs to explore "Patients as Co-production Partners" Chatting NOW https://t.co/zyDkjKHESu via #WeDocs https://t.co/ic48AYZSod
@WeCYPnurses
16 December 2015 20:09
Join @WeDocs to explore "Patients as Co-production Partners" Chatting NOW https://t.co/o01afnPQmI via #WeDocs https://t.co/iUv761DNhz
@WeFinance_
16 December 2015 20:09
Join @WeDocs to explore "Patients as Co-production Partners" Chatting NOW https://t.co/qCtMNbUXmz via #WeDocs https://t.co/MWF70ZadAx
@WePharmacists
16 December 2015 20:09
Join @WeDocs to explore "Patients as Co-production Partners" Chatting NOW https://t.co/5dW2nYfvK6 via #WeDocs https://t.co/IHNBo6thXb
@WeEOLC
16 December 2015 20:09
Join @WeDocs to explore "Patients as Co-production Partners" Chatting NOW https://t.co/agSoge6P9c via #WeDocs https://t.co/TjpEq363pg
@WeMidwives
16 December 2015 20:09
Join @WeDocs to explore "Patients as Co-production Partners" Chatting NOW https://t.co/43mNBCoxBY via #WeDocs https://t.co/ChklihROCW
@WeSchoolNurses
16 December 2015 20:09
Join @WeDocs to explore "Patients as Co-production Partners" Chatting NOW https://t.co/reXsJc9JTz via #WeDocs https://t.co/Pdkbfn4c6S
@WeLDnurses
16 December 2015 20:09
Join @WeDocs to explore "Patients as Co-production Partners" Chatting NOW https://t.co/sVENtPGI1t via #WeDocs https://t.co/RqfHomzc4z
@WeMHNurses
16 December 2015 20:09
Join @WeDocs to explore "Patients as Co-production Partners" Chatting NOW https://t.co/C9ePmXZC55 via #WeDocs https://t.co/9XwV1d5fxr
@WeHealthVisitor
16 December 2015 20:09
Join @WeDocs to explore "Patients as Co-production Partners" Chatting NOW https://t.co/ktMd6X0B23 via #WeDocs https://t.co/CBJNDn1Qqk
@WeCommNurses
16 December 2015 20:09
Join @WeDocs to explore "Patients as Co-production Partners" Chatting NOW https://t.co/OGhLAy6Fqg via #WeDocs https://t.co/j7YeHf3zJx
@roz_davies
16 December 2015 20:09
As with other pts/ppl with lived experience of LTC's I also bring other rel exp incl as MD of @RecoverySheff @WeLLWeLoveLife #wedocs
@WeDocs
16 December 2015 20:09
@HelenHSAUK tell us more #WeDocs
@WeDocs
16 December 2015 20:09
@irisbenson100 Iris pls can you give us an example? #wedocs
@WeDocs
16 December 2015 20:09
RT @WeDistrictNurse: Join @WeDocs to explore "Patients as Co-production Partners" Chatting NOW https://t.co/OGhLAy6Fqg via #WeDocs https:/…
@gcwFFF
16 December 2015 20:09
RT @WeFinance_: Join @WeDocs to explore "Patients as Co-production Partners" Chatting NOW https://t.co/qCtMNbUXmz via #WeDocs https://t.co…
@WeDocs
16 December 2015 20:09
RT @WeLDnurses: Join @WeDocs to explore "Patients as Co-production Partners" Chatting NOW https://t.co/sVENtPGI1t via #WeDocs https://t.co…
@WeDocs
16 December 2015 20:09
RT @WeFinance_: Join @WeDocs to explore "Patients as Co-production Partners" Chatting NOW https://t.co/qCtMNbUXmz via #WeDocs https://t.co…
@helenfindlay
16 December 2015 20:10
RT @WeEOLC: Join @WeDocs to explore "Patients as Co-production Partners" Chatting NOW https://t.co/agSoge6P9c via #WeDocs https://t.co/Tjp…
@pauljebb1
16 December 2015 20:10
@WeDocs to me, all involved at onset in improvement (or whatever you work on) 'power' equal, and all valued #wedocs
@HelenWBTeam
16 December 2015 20:10
@WeDocs it is where expertise of person meets expertise of professional to code sign support that works for person - at every level #WeDocs
@OCDTrudy
16 December 2015 20:10
@WeDocs Hi I'm Trudy member of SU research group ResearchNet. We use #EBCD Experience Based Co-Design #WeDocs
@dr_shibley
16 December 2015 20:10
@dockeithwales Sorry Keith. Had a really awful evening. Was unfair to you. But am keen on #coproduction. but not its misuse #WeDocs
@LouLei20735035
16 December 2015 20:10
@WeDocs work everyday towards co-production for parent carers in services for #SEND #WeDocs
@WeDocs
16 December 2015 20:10
@OCDTrudy ooh please share more? #wedocs
@luckockp
16 December 2015 20:10
RT @HelenHSAUK: @WeDocs not partnership working or consultation - much deeper than that - sharing power #wedocs
@annedraya
16 December 2015 20:10
@WeDocs to me co-production means that professionals and patients have equal voices & status #wedocs
@WeDocs
16 December 2015 20:10
RT @annedraya: @WeDocs to me co-production means that professionals and patients have equal voices & status #wedocs
@OlwenOlwen
16 December 2015 20:10
@sm_partnership @OlwenOlwen Are we at the beginning or middle of the #coproduction journey #WeDocs
@PilgrimPip
16 December 2015 20:10
Sorry forgot #wedocs on last attempt at introduction. 1/2 of @PatientVoicesUK here, trying to make healthcare better by sharing stories
@sm_partnership
16 December 2015 20:11
@HelenHSAUK @OlwenOlwen I think it's because sometimes I'm the expert in ms eg when seeing GP- need them to problem solve with me #WeDocs
@MaryOToole10
16 December 2015 20:11
RT @HelenHSAUK: @WeDocs not partnership working or consultation - much deeper than that - sharing power #wedocs
@WeDocs
16 December 2015 20:11
RT @OCDTrudy: @WeDocs Hi I'm Trudy member of SU research group ResearchNet. We use #EBCD Experience Based Co-Design #WeDocs
@ANKHEmpress
16 December 2015 20:11
#wedocs what does 'patient' mean for me in good health & using GP & Secondary Services infrequently & complementary medicines routinely
@fran_ohara
16 December 2015 20:11
To enable #coproduction people need to have better conversations, feedback focus groups- docs & patients need training for to happen #wedocs
@KathEvans2
16 December 2015 20:11
hi #WeDocs Kath here - coproduction with CYP = Children & Young People is how we do business @NHSYouthForum @RCPCH_and_Us @YPHealth @yphsig
@WeDocs
16 December 2015 20:11
RT @pauljebb1: @WeDocs to me, all involved at onset in improvement (or whatever you work on) 'power' equal, and all valued #wedocs
@madeofbeauty
16 December 2015 20:11
.@HelenHSAUK @OlwenOlwen #coproduction is not just the doctor patient domain but also strategic, political and economic ones too #WeDocs
@roz_davies
16 December 2015 20:11
#wedocs Q1. Coproduction is fundamentally about relationships of integrity, equality and shared purpose. You can't fake it!
@Chris5anne
16 December 2015 20:11
@WeDocs In essence coproduction is people working together with equal value to a common goal #WeDocs
@luckockp
16 December 2015 20:11
RT @pauljebb1: @WeDocs to me, all involved at onset in improvement (or whatever you work on) 'power' equal, and all valued #wedocs
@WeDocs
16 December 2015 20:11
RT @WeHealthVisitor: Join @WeDocs to explore "Patients as Co-production Partners" Chatting NOW https://t.co/ktMd6X0B23 via #WeDocs https:/…
@helenfindlay
16 December 2015 20:11
RT @pauljebb1: @WeDocs to me, all involved at onset in improvement (or whatever you work on) 'power' equal, and all valued #wedocs
@WeDocs
16 December 2015 20:11
RT @Chris5anne: @WeDocs In essence coproduction is people working together with equal value to a common goal #WeDocs
@ANKHEmpress
16 December 2015 20:11
RT @sm_partnership: I'm Lynne part time patient full time person . I worked on phase 1 of co-creating health patient programme #WeDocs
@notjustaheadach
16 December 2015 20:11
RT @HelenHSAUK: @WeDocs not partnership working or consultation - much deeper than that - sharing power #wedocs
@gbrgsy
16 December 2015 20:11
#WeDocs re definitions these helpful (in sea of misrepresentations & muddled thinking): https://t.co/LiFrqkffcV https://t.co/AH5VpaYan2
@roz_davies
16 December 2015 20:12
RT @annedraya: @WeDocs to me co-production means that professionals and patients have equal voices & status #wedocs
@Jodi_M_Brown
16 December 2015 20:12
RT @roz_davies: #wedocs Q1. Coproduction is fundamentally about relationships of integrity, equality and shared purpose. You can't fake it!
@helenfindlay
16 December 2015 20:12
RT @annedraya: @WeDocs to me co-production means that professionals and patients have equal voices & status #wedocs
@Chris5anne
16 December 2015 20:12
RT @annedraya: @WeDocs to me co-production means that professionals and patients have equal voices & status #wedocs
@lizcharalambou
16 December 2015 20:12
#wedocs twitchat on now about coproduction & democratising services, vital for @JohnCampaign @GoldenDuck_ltd @wendy
@helenfindlay
16 December 2015 20:12
RT @WeLDnurses: Join @WeDocs to explore "Patients as Co-production Partners" Chatting NOW https://t.co/sVENtPGI1t via #WeDocs https://t.co…
@WeDocs
16 December 2015 20:12
RT @PilgrimPip: Sorry forgot #wedocs on last attempt at introduction. 1/2 of @PatientVoicesUK here, trying to make healthcare better by sha…
@WeDocs
16 December 2015 20:12
RT @louiseravenscro: @WeDocs work everyday towards co-production for parent carers in services for #SEND #WeDocs
@sm_partnership
16 December 2015 20:12
@WeDocs it's having the locus of control in the centre? #WeDocs
@helenfindlay
16 December 2015 20:12
RT @HelenHSAUK: @WeDocs not partnership working or consultation - much deeper than that - sharing power #wedocs
@Jodi_M_Brown
16 December 2015 20:12
RT @Chris5anne: @WeDocs In essence coproduction is people working together with equal value to a common goal #WeDocs
@WeDocs
16 December 2015 20:12
RT @sm_partnership: @WeDocs it's having the locus of control in the centre? #WeDocs
@Laconic_doc
16 December 2015 20:13
At diff times ea has diff stuff to offer, no? MT @annedraya: to me coproduction means that prof's and pts have equal voices & status #wedocs
@fran_ohara
16 December 2015 20:13
@annedraya @WeDocs agree, to achieve in short app slots people good communication is key, as new type of conversations #wedocs
@RichardRecover
16 December 2015 20:13
Patients as Partners via #WeDocs 16/12/2015 https://t.co/5c2tQKssEh via @WeDocs
@nxtstop1
16 December 2015 20:13
RT @gbrgsy: #WeDocs re definitions these helpful (in sea of misrepresentations & muddled thinking): https://t.co/LiFrqkffcV https://t.c…
@PilgrimPip
16 December 2015 20:13
@fran_ohara We try to model better communication, feedback, reflection through co-producing stories of healthcare #storycircles #wedocs
@NRCUK
16 December 2015 20:13
sometimes easier maybe to point out when things evidently aren't co-produced? #WeDocs clearly this isnt https://t.co/1aldQXQd89 watch later!
@Chris5anne
16 December 2015 20:13
@OlwenOlwen @sm_partnership Beginning- the door is open but sometimes can be tokenistic or patronising #WeDocs
@WeDocs
16 December 2015 20:13
@sm_partnership really like that comment - pls can you expand? #WeDocs
@GleefulKaz
16 December 2015 20:13
@madeofbeauty very true - should be embedded in every aspect of Health & care #WeDocs @HelenHSAUK @OlwenOlwen
@HelenWBTeam
16 December 2015 20:13
Some thoughts on what it is @wedocs #wedocs https://t.co/PC93RMdbpz
@OlwenOlwen
16 December 2015 20:13
@sm_partnership @HelenHSAUK @OlwenOlwen do you think that is because you are the expert? Shoe on other foot situation #WeDocs
@KathEvans2
16 December 2015 20:14
Fab example of true co-production led by @NHSYouthForum posters on consent feedback & confidentiality https://t.co/flgCDB9PGX #wedocs
@helenfindlay
16 December 2015 20:14
RT @Chris5anne: @WeDocs In essence coproduction is people working together with equal value to a common goal #WeDocs
@dockeithwales
16 December 2015 20:14
@annedraya @WeDocs Andrea, any suggestions how current professionals and retired with experience work together #WeDocs
@WeDocs
16 December 2015 20:14
@nav_doc welcome! #WeDocs
@fran_ohara
16 December 2015 20:14
@WeDocs @workingwithnot2 def: group of people working with each other as equals from the start to achieve a goal- we coproduced this #wedocs
@dr_shibley
16 December 2015 20:14
RT @HelenHSAUK: Some thoughts on what it is @wedocs #wedocs https://t.co/PC93RMdbpz
@WeDocs
16 December 2015 20:14
RT @dockeithwales: @annedraya @WeDocs Andrea, any suggestions how current professionals and retired with experience work together #WeDocs
@GleefulKaz
16 December 2015 20:14
@roz_davies totally agree - though many try ! #wedocs
@KathEvans2
16 December 2015 20:14
RT @louiseravenscro: @WeDocs work everyday towards co-production for parent carers in services for #SEND #WeDocs
@PilgrimPip
16 December 2015 20:14
RT @roz_davies: #wedocs Q1. Coproduction is fundamentally about relationships of integrity, equality and shared purpose. You can't fake it!
@LynneBowers2
16 December 2015 20:14
#WeDocs agreed! Social Care hat this evening. Co-production person centred, empowerment. Shrinking state ??community https://t.co/amGS03lb00
@Laconic_doc
16 December 2015 20:14
That's how I see 'medicine'! MT @roz_davies: #wedocs Q1. Coproduction is about relationships of integrity, equality and shared purpose.
@Nicki_Haywood
16 December 2015 20:14
RT @Chris5anne: @WeDocs In essence coproduction is people working together with equal value to a common goal #WeDocs
@NRCUK
16 December 2015 20:14
Is it the common goal that is the issue @Chris5anne care outcome, patient need, contractual boundaries...is it ever common goal? #WeDocs
@sm_partnership
16 December 2015 20:15
@WeDocs and it's also about helping the person decide what outcomes are important for them & offering return of responsibility #WeDocs
@annedraya
16 December 2015 20:15
@dockeithwales @WeDocs engaging through forums such as Twitter is a good start! But a good intriguing question #WeDocs
@WeDocs
16 December 2015 20:15
Widening the definition #coproduction #WeDocs https://t.co/lgqAVBkuX8
@KSS_PSC
16 December 2015 20:15
#WeDocs @ksspsc @ksslc we want pts to co produce improvement work on our focus areas how do we open the air space in prof CRG meetings ?
@LauraCRUKNurse
16 December 2015 20:15
RT @annedraya: @WeDocs to me co-production means that professionals and patients have equal voices & status #wedocs
@KarenPharm
16 December 2015 20:15
RT @HelenHSAUK: Some thoughts on what it is @wedocs #wedocs https://t.co/PC93RMdbpz
@WeDocs
16 December 2015 20:15
Really helpful blog thanks @HelenHSAUK for sharing #WeDocs https://t.co/sMMbLExGzo
@KSS_PSC
16 December 2015 20:15
RT @roz_davies: #wedocs Q1. Coproduction is fundamentally about relationships of integrity, equality and shared purpose. You can't fake it!
@KathEvans2
16 December 2015 20:15
@louiseravenscro @WeDocs and you do it brilliantly Louise, what are the ingredients for success? #wedocs
@WeDocs
16 December 2015 20:15
RT @RichardRecover: Patients as Partners via #WeDocs 16/12/2015 https://t.co/5c2tQKssEh via @WeDocs
@ANKHEmpress
16 December 2015 20:15
#wedocs Equal voice & status includes financial aspects too such as a participatory budgeting approach as well as leadership & management?
@WeDocs
16 December 2015 20:15
RT @gbrgsy: #WeDocs re definitions these helpful (in sea of misrepresentations & muddled thinking): https://t.co/LiFrqkffcV https://t.c…
@fran_ohara
16 December 2015 20:15
@WeDocs Q1 don't use this term corproduction citizens think sounds like filmset! We use term 'working WITH'- more equal relationship #wedocs
@OCDTrudy
16 December 2015 20:16
@WeDocs @gbrgsy @OxleasNHS Ha ha you beat me to it #WeDocs https://t.co/MMgjjJZzBc
@WeDocs
16 December 2015 20:16
@irisbenson100 really keen to learn more #wedocs
@sm_partnership
16 December 2015 20:16
@fran_ohara definitely better conversations! And training on both sides #WeDocs
@WeDocs
16 December 2015 20:16
Q2. Why is co-production important and how can we engage doctors and the wider system to embrace the mindset of co-production #WeDocs
@Laconic_doc
16 December 2015 20:16
Is 'Co-production' somehow more than 'working constructively together'? The latter is what I try to do (with multidiscteam plus pt) #wedocs
@WeDocs
16 December 2015 20:16
RT @annedraya: @dockeithwales @WeDocs engaging through forums such as Twitter is a good start! But a good intriguing question #WeDocs
@WeDocs
16 December 2015 20:16
Watch later #WeDocs https://t.co/sOqQfMcoEu
@roz_davies
16 December 2015 20:16
#wedocs Q1 think it is important to bring the humanity back into healthcare. Often pts are viewed as a set of conditions, e.g. 'Diabetics'
@pharmerfour
16 December 2015 20:16
@notjustaheadach @WeDocs #WeDocs Oz has 2 main doctor organisations. Both see doctors as central, patients led by doctors. #Paternalistic
@nxtstop1
16 December 2015 20:17
T1 Co-production-a good word, but devil is in details. A great 'healthcare professional - patient' relationship is based on trust. #wedocs
@WeDocs
16 December 2015 20:17
RT @KathEvans2: @louiseravenscro @WeDocs and you do it brilliantly Louise, what are the ingredients for success? #wedocs
@LynneBowers2
16 December 2015 20:17
#WeDocs Societal assets https://t.co/IUVuuVyI1N
@annedraya
16 December 2015 20:17
@LynneBowers2 @madeofbeauty @HelenHSAUK @OlwenOlwen but need to ensure that community isn't used as a replacement for NHS services #WeDocs
@sm_partnership
16 December 2015 20:17
@GleefulKaz @roz_davies and trust on both sides #WeDocs
@HelenWBTeam
16 December 2015 20:17
@fran_ohara @WeDocs I don't think it is strong enough to say 'working with' does not say enough about power relationships #wedocs
@roz_davies
16 December 2015 20:17
@GleefulKaz I sometimes wonder if this is ignorance or deliberate...#wedocs
@LynneBowers2
16 December 2015 20:17
RT @Laconic_doc: That's how I see 'medicine'! MT @roz_davies: #wedocs Q1. Coproduction is about relationships of integrity, equality and sh…
@BPDFFS
16 December 2015 20:17
#wedocs if someone asks me to give my views on something they've created that's one sure sign of 'uncollaboration' I tend to walk away
@WeDocs
16 December 2015 20:17
@ksspsc @madeofbeauty @HelenHSAUK @OlwenOlwen Is that not the biggest challenge? #WeDocs
@Patient_Leader
16 December 2015 20:17
#coproduction is about building relationships and persuading the person with power, to share that power with you otherwise it fails #WeDocs
@KathEvans2
16 December 2015 20:17
RT @HelenHSAUK: Some thoughts on what it is @wedocs #wedocs https://t.co/PC93RMdbpz
@Laconic_doc
16 December 2015 20:18
Q2 sometimes jargon puts people off - both health care professionals & pts! #wedocs
@WeDocs
16 December 2015 20:18
RT @HelenHSAUK: Some thoughts on what it is @wedocs #wedocs https://t.co/PC93RMdbpz
@lizcharalambou
16 December 2015 20:18
#wedocs power dynamics can sometimes be skewed in favour of healthcare professionals, can be tokenistic & most marginalised get left behind
@luckockp
16 December 2015 20:18
#wedocs coproduction- each one of us has something of value to contribute and recognition we are all equal partners,reciprocal relationship
@Chris5anne
16 December 2015 20:18
@madeofbeauty @HelenHSAUK @OlwenOlwen Strategic-how many boards have lived patient/carer experience as essential for anyone? #WeDocs
@Nicki_Haywood
16 December 2015 20:18
RT @HelenHSAUK: Some thoughts on what it is @wedocs #wedocs https://t.co/PC93RMdbpz
@fran_ohara
16 December 2015 20:18
@WeDocs we coproduced film 'what matters to you matters to us' w @ssiacymru put persons wishes at start of convo, then coproduce how #wedocs
@Chris5anne
16 December 2015 20:18
RT @GleefulKaz: @madeofbeauty very true - should be embedded in every aspect of Health & care #WeDocs @HelenHSAUK @OlwenOlwen
@nxtstop1
16 December 2015 20:18
T1 To amplify: if one resorts to 'power' speech, I see a problem. Why is power part of this? One w/health issues, the other helps. #wedocs
@fran_ohara
16 December 2015 20:18
RT @luckockp: #wedocs coproduction- each one of us has something of value to contribute and recognition we are all equal partners,reciproca…
@OCDTrudy
16 December 2015 20:18
@fran_ohara @WeDocs We use co-design and are treated as equals and respected by the staff #WeDocs @OxleasNHS
@roz_davies
16 December 2015 20:18
@sm_partnership @GleefulKaz yes trust really crucial and that doesn't usually happen in one quick meeting or any forced timescale. #wedocs
@sm_partnership
16 December 2015 20:18
RT @WeDocs: Really helpful blog thanks @HelenHSAUK for sharing #WeDocs https://t.co/sMMbLExGzo
@luybenans
16 December 2015 20:18
RT @WeMidwives: Join @WeDocs to explore "Patients as Co-production Partners" Chatting NOW https://t.co/43mNBCoxBY via #WeDocs https://t.co…
@Patient_Leader
16 December 2015 20:18
RT @BPDFFS: #wedocs if someone asks me to give my views on something they've created that's one sure sign of 'uncollaboration' I tend to wa…
@luybenans
16 December 2015 20:19
RT @WeDocs: 5 mins to go till our tweetchat 'Patients as Partners' See you there! #WeDocs https://t.co/Gj9nMySeym via @WeDocs
@Chris5anne
16 December 2015 20:19
RT @sm_partnership: @fran_ohara definitely better conversations! And training on both sides #WeDocs
@dockeithwales
16 December 2015 20:19
@MalcolmPayne @LynRomeo_CSW #WeDocs
@WeDocs
16 December 2015 20:19
Some fanatsic comments all but pls don't forget to add #WeDocs hashtag or the others wo't see your great tweets :)
@nxtstop1
16 December 2015 20:19
RT @NRCUK: sometimes easier maybe to point out when things evidently aren't co-produced? #WeDocs clearly this isnt https://t.co/1aldQXQd89 …
@ANKHEmpress
16 December 2015 20:19
RT @BPDFFS: #wedocs if someone asks me to give my views on something they've created that's one sure sign of 'uncollaboration' I tend to wa…
@sm_partnership
16 December 2015 20:19
@roz_davies @GleefulKaz takes time and patience to develop #WeDocs
@helenfindlay
16 December 2015 20:19
RT @HelenHSAUK: Some thoughts on what it is @wedocs #wedocs https://t.co/PC93RMdbpz
@nxtstop1
16 December 2015 20:19
RT @HelenHSAUK: Some thoughts on what it is @wedocs #wedocs https://t.co/PC93RMdbpz
@KarenPharm
16 December 2015 20:19
RT @luckockp: #wedocs coproduction- each one of us has something of value to contribute and recognition we are all equal partners,reciproca…
@madeofbeauty
16 December 2015 20:19
Here's my particular take on #coproduction: https://t.co/GVxis6CTri #WeDocs
@HelenWBTeam
16 December 2015 20:19
@roz_davies @sm_partnership @GleefulKaz agree! described as long term relationship not a one night stand #wedocs
@EmilyHSA
16 December 2015 20:20
@HelenHSAUK @WeDocs @sm_partnership and outcomes that a person has ownership of more likely to be reached #wedocs
@Chris5anne
16 December 2015 20:20
@WeDocs Having lived experience as essential grounds discussions in reality & adds value to proposed outcomes #WeDocs
@HelenWBTeam
16 December 2015 20:20
RT @EmilyHSAUK: @HelenHSAUK @WeDocs @sm_partnership and outcomes that a person has ownership of more likely to be reached #wedocs
@WeDocs
16 December 2015 20:20
Agree https://t.co/yBZWlnUQ3D #WeDocs
@PPsoup
16 December 2015 20:20
@fran_ohara & support too, can b v hard to tell personal stories but big part of recovery. Stigma plays a part, need to feel safe #wedocs
@KSEllis67
16 December 2015 20:20
RT @roz_davies: #wedocs Q1 think it is important to bring the humanity back into healthcare. Often pts are viewed as a set of conditions, e…
@KathEvans2
16 December 2015 20:20
@HelenHSAUK @WeDocs ladders or wheels fab blog by @SpcialNdsJungle https://t.co/C8P0VTeZgq #wedocs
@helenfindlay
16 December 2015 20:20
RT @EmilyHSAUK: @HelenHSAUK @WeDocs @sm_partnership and outcomes that a person has ownership of more likely to be reached #wedocs
@OCDTrudy
16 December 2015 20:21
@lizcharalambou We don't have that problem, in fact we lead on the projects and work closely with the staff. Respect by all #WeDocs
@LouLei20735035
16 December 2015 20:21
@RichardRecover @WeDocs @KathEvans2 think we are working well with our @CambsPboroCCG for #CAMHs work, round the table work #WeDocs
@PilgrimPip
16 December 2015 20:21
I keep forgetting #wedocs ! https://t.co/xhte4D6G3w
@Imonlyslightly
16 December 2015 20:21
Q1 It is not all about the ‘good to haves’ based on positive history because they will not always be ‘the best to have’. #WeDocs
@Chris5anne
16 December 2015 20:21
@Laconic_doc Yes, as gives understanding that all views equally valued - more than consultation #WeDocs
@RichardRecover
16 December 2015 20:21
#weDocs trusts talk about co production but in my experience it is rare. my trust ceo refused to meet with me https://t.co/Z5oMs9BhG6
@WeDocs
16 December 2015 20:21
Thanks @irisbenson100 a really great comment! #WeDocs https://t.co/CGBB1iLKYa
@pauljebb1
16 December 2015 20:21
@WeDocs this shows some coproduction work https://t.co/QYqLKnXHDs #wedocs
@LynneBowers2
16 December 2015 20:21
#WeDocs opportunities around Personal Health Budgets. Also wider issue re understanding costs https://t.co/Z663qyPZrp
@bpdvideo
16 December 2015 20:21
RT @WeDocs: Lets build rich & effective interactions -"Patients as Partners" #Wedocs 8-9pm Wed 16/12/15 https://t.co/Gj9nMySeym https://t.c…
@WeDocs
16 December 2015 20:21
Getting some fantastic articles on #coproduction #WeDocs https://t.co/eIfhpTUWAR
@lizcharalambou
16 December 2015 20:22
@OCDTrudy excellent news! doesn't always happen #wedocs
@GleefulKaz
16 December 2015 20:22
@sm_partnership @roz_davies absolutely a marathon not a sprint ! Build relationships & communicate - at personal & community level #WeDocs
@RNeilABlack
16 December 2015 20:22
RT @madeofbeauty: Here's my particular take on #coproduction: https://t.co/GVxis6CTri #WeDocs
@gbrgsy
16 December 2015 20:22
#WeDocs @WeDocs create new, open democratic spaces for diff't conversations to trigger creativity in orgns; flatten power differentials
@WeDocs
16 December 2015 20:22
@RichardRecover in next part we share how pple have managed to engage #WeDocs
@helenfindlay
16 December 2015 20:22
RT @WeDocs: Agree https://t.co/yBZWlnUQ3D #WeDocs
@gosia_bal
16 December 2015 20:22
Agree @madeofbeauty- care does not happen in isolation #coproduction #WeDocs https://t.co/HDoTRouykF
@sm_partnership
16 December 2015 20:22
@WeDocs it's like the control does not lay with either the patient or the HCP -I hate consultations where I feel unheard &impotent #WeDocs
@Laconic_doc
16 December 2015 20:22
Some docs are pts too - some powerful stuff from this direction (see @GrangerKate or @liz_oriordan for examples) #wedocs
@roz_davies
16 December 2015 20:22
#WeDocs Q2 we talk about lots abt scarce resource in health/care & then keep locked up the most abundant resource there is >ppl/communities
@keymn1
16 December 2015 20:22
RT @HelenHSAUK: @WeDocs not partnership working or consultation - much deeper than that - sharing power #wedocs
@WeDocs
16 December 2015 20:22
RT @HelenHSAUK: @roz_davies @sm_partnership @GleefulKaz agree! described as long term relationship not a one night stand #wedocs
@TinyTonyH
16 December 2015 20:22
#wedocs why is it that as a citizen I know more about my bank account than I do my health record? In "Co-Production" i'm disadvantaged?
@drpritpalsingh
16 December 2015 20:22
#WeDocs co-production is tuning in - Pritpal signing in from Newport
@Patient_Leader
16 December 2015 20:22
@madeofbeauty Will be reading this later & then retweet. Good to see you Phil ?? #WeDocs
@dockeithwales
16 December 2015 20:22
@luckockp Pam, the whole point of coproduction is combining our skills #wedocs
@WeDocs
16 December 2015 20:22
RT @EmilyHSAUK: @HelenHSAUK @WeDocs @sm_partnership and outcomes that a person has ownership of more likely to be reached #wedocs
@KathEvans2
16 December 2015 20:22
#wedocs does it need great leadership from fab peeps like u @louiseravenscro who stick at it & challenge the system? https://t.co/dwph7ZyT9w
@fran_ohara
16 December 2015 20:22
@Chris5anne @WeDocs how do we get people w lived experience in room & being compensated for time/exp often they donate time free #wedocs
@WeDocs
16 December 2015 20:22
RT @KathEvans2: @HelenHSAUK @WeDocs ladders or wheels fab blog by @SpcialNdsJungle https://t.co/C8P0VTeZgq #wedocs
@Nicki_Haywood
16 December 2015 20:22
@WeDocs engage through existing networks, patient groups, expert patients/carers, community groups.....benefits for all. #WeDocs
@BPDFFS
16 December 2015 20:22
#wedocs another sign of uncollaboration is telling someone what's good for them without listening to what they know too
@RNeilABlack
16 December 2015 20:22
@madeofbeauty Well said! Great blog post! #WeDocs
@nxtstop1
16 December 2015 20:22
T1 Maybe,but if so must b addressed/removed. MDs have more training, patients know themselves. On same side! #wedocs https://t.co/43yfjMb4W2
@nav_doc
16 December 2015 20:23
@WeDocs to understand the patient perspective and empower them to make decision that matter to them #WeDocs
@WeDocs
16 December 2015 20:23
Great comment pls keep sharing it with #WeDocs https://t.co/G9pnkJ7fIK
@Laconic_doc
16 December 2015 20:23
Is it not about trust & mutual respect (over ego!)? #wedocs
@LynneBowers2
16 December 2015 20:23
#WeDocs People are less risk averse than professionals. What people want v different to what provided https://t.co/sXhVElgQgK
@WeDocs
16 December 2015 20:23
RT @pauljebb1: @WeDocs this shows some coproduction work https://t.co/QYqLKnXHDs #wedocs
@notjustaheadach
16 December 2015 20:23
#WeDocs Q2. It's important as patients are the biggest a untapped asset of a financially crippled NHS, we can improve efficacy and save £
@annedraya
16 December 2015 20:23
@RichardRecover @louiseravenscro @WeDocs co-production entails a certain set of values, you *have* to walk the talk with this one #WeDocs
@WeDocs
16 December 2015 20:23
RT @Chris5anne: @WeDocs Having lived experience as essential grounds discussions in reality & adds value to proposed outcomes #WeDocs
@KathEvans2
16 December 2015 20:23
#wedocs have to dip out oops ?? apols x
@EmilyHSA
16 December 2015 20:23
RT @HelenHSAUK: @roz_davies @sm_partnership @GleefulKaz agree! described as long term relationship not a one night stand #wedocs
@KarenPharm
16 December 2015 20:23
@WeDocs seeing the fantastic work of our peer trainers first hand has inspired me to embrace #coproduction #WeDocs
@HelenWBTeam
16 December 2015 20:23
@sm_partnership @WeDocs coproduction requires very different conversations #wedocs
@dr_shibley
16 December 2015 20:23
@fran_ohara @WeDocs hahahahahaha #WeDocs #coproduction
@keymn1
16 December 2015 20:23
RT @HelenHSAUK: #wedocs hello! I am Helen working with @co4cc and @TLAP1 coproduction groups and blog with @logr24 on this subject too
@OCDTrudy
16 December 2015 20:23
RT @roz_davies: #wedocs Q1. Coproduction is fundamentally about relationships of integrity, equality and shared purpose. You can't fake it!
@RNeilABlack
16 December 2015 20:23
RT @pauljebb1: @WeDocs this shows some coproduction work https://t.co/QYqLKnXHDs #wedocs
@gbrgsy
16 December 2015 20:23
#wedocs agree - power dynamics absolutely crucial https://t.co/zsPrXzKvEu must find new 'common spaces'; takes time https://t.co/k0tOz6frQe
@dr_shibley
16 December 2015 20:24
#wedocs https://t.co/luTt5ghSPm
@WeDocs
16 December 2015 20:24
RT @gbrgsy: #WeDocs @WeDocs create new, open democratic spaces for diff't conversations to trigger creativity in orgns; flatten power diffe…
@WeDocs
16 December 2015 20:24
@RichardRecover @louiseravenscro Interesting #WeDocs
@smwilson45
16 December 2015 20:24
RT @TinyTonyH: #wedocs why is it that as a citizen I know more about my bank account than I do my health record? In "Co-Production" i'm dis…
@fran_ohara
16 December 2015 20:24
@gbrgsy @WeDocs agree we created 'meetups' format hospitable space, this is ideal - how docs engage in 10min slot? build trust fast? #wedocs
@madeofbeauty
16 December 2015 20:24
.@Patient_Leader Hey Dominic, good to see you here #WeDocs
@Imonlyslightly
16 December 2015 20:24
@nxtstop1 Use of language itself can cause problems-'power' gives impression of taking over- which is not, should not be, the case #WeDocs
@WeDocs
16 December 2015 20:24
@irisbenson100 hi Iris you need to view by looking at #wedocs tweets
@Chris5anne
16 December 2015 20:24
@fran_ohara @WeDocs Use existing structures- make it a requirement for at least Non Exec/Lay member, include on programme boards ..#WeDocs
@nav_doc
16 December 2015 20:24
@WeDocs I work with Breathe easy group locally, wonderful to meet them in a diff setting away from hospital #WeDocs
@LynneBowers2
16 December 2015 20:24
#WeDocs ? Have we much choice? #austerity https://t.co/1RAdfr0ogF
@Laconic_doc
16 December 2015 20:24
Some great blogs, too! MT @Nicki_Haywood: engage through existing networks, pt groups, expert patients/carers,.benefits for all. #WeDocs
@roz_davies
16 December 2015 20:24
#wedocs Q2 if we really want to create conditions where ppl can self care, sense of control is key #salutogenisis https://t.co/K1HUTcAG72
@LouLei20735035
16 December 2015 20:25
@KathEvans2 @WeDocs we are all the same & at some point will all need to use services so start from that & shape dialogue together #WeDocs
@LynneBowers2
16 December 2015 20:25
RT @EmilyHSAUK: @HelenHSAUK @WeDocs @sm_partnership and outcomes that a person has ownership of more likely to be reached #wedocs
@WeDocs
16 December 2015 20:25
Fab comment but pls can you add #WeDocs so all can see? https://t.co/ari2uhVJU1
@dr_shibley
16 December 2015 20:25
RT @roz_davies: #wedocs Q2 if we really want to create conditions where ppl can self care, sense of control is key #salutogenisis https://…
@Imonlyslightly
16 December 2015 20:25
RT @TinyTonyH: #wedocs why is it that as a citizen I know more about my bank account than I do my health record? In "Co-Production" i'm dis…
@OCDTrudy
16 December 2015 20:25
RT @Laconic_doc: Is it not about trust & mutual respect (over ego!)? #wedocs
@RNeilABlack
16 December 2015 20:25
@sm_partnership @WeDocs The doctor is powerless without the patient in diabetes care. #coproduction is the only way #WeDocs #DiabetesWest
@WeDocs
16 December 2015 20:25
RT @nav_doc: @WeDocs to understand the patient perspective and empower them to make decision that matter to them #WeDocs
@GleefulKaz
16 December 2015 20:25
RT @notjustaheadach: #WeDocs Q2. It's important as patients are the biggest a untapped asset of a financially crippled NHS, we can improve …
@Patient_Leader
16 December 2015 20:25
@fran_ohara @Chris5anne @WeDocs Can b harder enough just getting expenses covered so @NHSEngland nd dedicated budget so all included #WeDocs
@WeDocs
16 December 2015 20:25
RT @LynneBowers2: #WeDocs People are less risk averse than professionals. What people want v different to what provided https://t.co/sXhVE…
@WeDocs
16 December 2015 20:26
RT @KarenPharm: @WeDocs seeing the fantastic work of our peer trainers first hand has inspired me to embrace #coproduction #WeDocs
@WeDocs
16 December 2015 20:26
RT @HelenHSAUK: @sm_partnership @WeDocs coproduction requires very different conversations #wedocs
@WeDocs
16 December 2015 20:26
RT @dr_shibley: @fran_ohara @WeDocs hahahahahaha #WeDocs #coproduction
@PilgrimPip
16 December 2015 20:26
@WeDocs @nxtstop1 #wedocs We have nearly 1000 authentic digital stories created/co-produced by patients, carers, staff: experiences shared.
@Chris5anne
16 December 2015 20:26
@fran_ohara @WeDocs I work with @Co4CC as a coproduction member so join different organisation's to bring experience to issues #WeDocs
@WeDocs
16 December 2015 20:26
Agree #coproduction #WeDocs #hellomynameis https://t.co/lcAkOCd43S
@WeDocs
16 December 2015 20:26
@dr_shibley @fran_ohara like to share more pls? #WeDocs
@Laconic_doc
16 December 2015 20:26
For some docs, 'power dynamic' is the coping mechanism for insecurity, I believe #wedocs
@LynneBowers2
16 December 2015 20:26
RT @roz_davies: #WeDocs Q2 we talk about lots abt scarce resource in health/care & then keep locked up the most abundant resource there is …
@helenfindlay
16 December 2015 20:27
@pharmerfour @WeDocs @notjustaheadach Mindset change needed.Some doctors think they already put patient at centre in paternal way #WeDocs
@KSS_PSC
16 December 2015 20:27
@WeDocs #wedocs Soz new to Twitter and over excited??
@WeDocs
16 December 2015 20:27
An interesting observation Thoughts #WeDocs https://t.co/Iq3VhSVeuX
@sm_partnership
16 December 2015 20:27
@WeDocs @roz_davies it's important because it's the right thing to do! and it will probably save money for NHS #WeDocs
@GleefulKaz
16 December 2015 20:27
@WeDocs largely Dr's in clinical leadership positions 'get' this but long standing NHS managers struggle reliquishing power! #wedocs
@fran_ohara
16 December 2015 20:27
@Chris5anne @WeDocs we did focus groups on coproduction across Wales people with range of conditions some none, we need all in convo #wedocs
@helenfindlay
16 December 2015 20:27
RT @WeDocs: Agree #coproduction #WeDocs #hellomynameis https://t.co/lcAkOCd43S
@BPDFFS
16 December 2015 20:27
#wedocs I spend time listening to my peers we collaborate coproduce everyday on here it's about mutual respect not necessarily with a HCP
@HelenWBTeam
16 December 2015 20:27
@RNeilABlack #wedocs @WeDocs that is how we should be - we need to understand it is impossible to deliver effective healthcare without it
@WeDocs
16 December 2015 20:27
@GleefulKaz @fran_ohara is that even worse - the tokenism which is inauthentic? #WeDocs
@Nicki_Haywood
16 December 2015 20:27
RT @HelenHSAUK: @sm_partnership @WeDocs coproduction requires very different conversations #wedocs
@LynneBowers2
16 December 2015 20:27
RT @KathEvans2: #wedocs does it need great leadership from fab peeps like u @louiseravenscro who stick at it & challenge the system? https:…
@nxtstop1
16 December 2015 20:27
@Imonlyslightly @nxtstop1 T1 Yes,esp if history of mistrust, unmet needs, chronicity of symptoms unanswered> sensitive, words matter #wedocs
@WeDocs
16 December 2015 20:27
RT @nav_doc: @WeDocs I work with Breathe easy group locally, wonderful to meet them in a diff setting away from hospital #WeDocs
@gbrgsy
16 December 2015 20:27
#wedocs true coproduction shifts power to the process and away from formal hierarchy; design thinking can help https://t.co/al8QJm6hRD
@Chris5anne
16 December 2015 20:27
@Patient_Leader @fran_ohara @WeDocs @NHSEngland And need structure with access to training & development #WeDocs
@RichardRecover
16 December 2015 20:27
#WeDocs I agree and that means to let go of the political angle of management https://t.co/oUciq6MN9e
@NorthWalesDaily
16 December 2015 20:27
RT @OlwenOlwen: #coproduction #WeDocs Patients as Partners Olwen here from N Wales https://t.co/OG5nsX3oav
@WeDocs
16 December 2015 20:27
RT @nxtstop1: T1 Maybe,but if so must b addressed/removed. MDs have more training, patients know themselves. On same side! #wedocs https://…
@nxtstop1
16 December 2015 20:27
RT @PilgrimPip: @WeDocs @nxtstop1 #wedocs We have nearly 1000 authentic digital stories created/co-produced by patients, carers, staff: exp…
@olliehart7
16 December 2015 20:28
#WeDocs - sorry late in. I'm a GP in Sheffield and lead for Person Centred Care program in Sheffield. Some great stuff already
@Pen_CRU
16 December 2015 20:28
RT @HelenHSAUK: Some thoughts on what it is @wedocs #wedocs https://t.co/PC93RMdbpz
@KSS_PSC
16 December 2015 20:28
@WeDocs @madeofbeauty @HelenHSAUK @OlwenOlwen @ksslc #wedocs Hahahaha skulking was meant to be skilling!
@WeDocs
16 December 2015 20:28
This is so great to hear #WeDocs https://t.co/5snbRDt1Wl
@PatientVoicesUK
16 December 2015 20:28
@LynneBowers2 will #coproduction of Personal Health Budgets mean that #wedocs end up becoming financial advisors as well?
@Laconic_doc
16 December 2015 20:28
Trouble is, £££! RT @RichardRecover: #WeDocs I agree and that means to let go of the political angle of management https://t.co/nrZVmXgD1n
@Imonlyslightly
16 December 2015 20:28
@Laconic_doc Wouldn't disagree with that #WeDocs
@HelenWBTeam
16 December 2015 20:28
#wedocs sorry have to dip out but look forward to write up excellent chat thanks
@Jneildwy
16 December 2015 20:28
@helenfindlay @pharmerfour @WeDocs @notjustaheadach Is gradual transition possible/desirable as culture change is a long process? #WeDocs
@LouLei20735035
16 December 2015 20:28
@KathEvans2 @WeDocs @HelenHSAUK @SpcialNdsJungle teach the ladder as a basic way of understanding but no place is wrong place #WeDocs
@OCDTrudy
16 December 2015 20:28
RT @gbrgsy: #wedocs true coproduction shifts power to the process and away from formal hierarchy; design thinking can help https://t.co/al8…
@roz_davies
16 December 2015 20:28
#wedocs q2 some interesting stuff here https://t.co/DLW8lkP43l
@Imonlyslightly
16 December 2015 20:28
RT @Laconic_doc: For some docs, 'power dynamic' is the coping mechanism for insecurity, I believe #wedocs
@WeDocs
16 December 2015 20:28
RT @PilgrimPip: @WeDocs @nxtstop1 #wedocs We have nearly 1000 authentic digital stories created/co-produced by patients, carers, staff: exp…
@Nicki_Haywood
16 December 2015 20:28
RT @nav_doc: @WeDocs to understand the patient perspective and empower them to make decision that matter to them #WeDocs
@adhorstrebor
16 December 2015 20:28
RT @BPDFFS: #wedocs another sign of uncollaboration is telling someone what's good for them without listening to what they know too
@nav_doc
16 December 2015 20:29
@roz_davies completely agree with the principle, however worry about the motivation factor which IMO is a key determinant to SM #WeDocs
@Patient_Leader
16 December 2015 20:29
RT @Chris5anne: @Patient_Leader @fran_ohara @WeDocs @NHSEngland And need structure with access to training & development #WeDocs
@Chris5anne
16 December 2015 20:29
@fran_ohara @WeDocs That can work but still condition/siloed working rather than being embedded in holistic way #WeDocs
@lizcharalambou
16 December 2015 20:29
#wedocs I worry about people with #dementia getting left behind in coproduction, may be overlooked. Need to guard against this
@sm_partnership
16 December 2015 20:29
@LynneBowers2 @WeDocs and sometimes cheaper! #WeDocs
@fran_ohara
16 December 2015 20:29
@WeDocs if people see coproduction in action, they understand is 1 solution to budget cuts etc sharing case studies will communicate #wedocs
@WeDocs
16 December 2015 20:29
@ksspsc so pleased you join chat though ?? #WeDocs
@WeDocs
16 December 2015 20:29
RT @sm_partnership: @WeDocs @roz_davies it's important because it's the right thing to do! and it will probably save money for NHS #WeDocs
@Patient_Leader
16 December 2015 20:29
@Chris5anne Absolutely ?? #WeDocs @fran_ohara @WeDocs @NHSEngland
@WeDocs
16 December 2015 20:29
Tokenism? #WeDocs https://t.co/TUUar1OCZc
@RichardRecover
16 December 2015 20:30
#WeDocs im here predominantly as a prient and i get the ££ angle, but a lot of patients dont, they need hearing too https://t.co/XDJsddIZHK
@WeDocs
16 December 2015 20:30
@GleefulKaz yes &q3 starts on solutions #WeDocs
@Localdatang
16 December 2015 20:30
RT @LynneBowers2: #WeDocs ? Have we much choice? #austerity https://t.co/1RAdfr0ogF
@RNeilABlack
16 December 2015 20:30
RT @roz_davies: #wedocs q2 some interesting stuff here https://t.co/DLW8lkP43l
@Nicki_Haywood
16 December 2015 20:30
RT @PilgrimPip: @WeDocs @nxtstop1 #wedocs We have nearly 1000 authentic digital stories created/co-produced by patients, carers, staff: exp…
@WeDocs
16 December 2015 20:30
RT @roz_davies: #wedocs Q2 if we really want to create conditions where ppl can self care, sense of control is key #salutogenisis https://…
@Chris5anne
16 December 2015 20:30
@nav_doc @roz_davies Whose motivation-clinician, patient, carer? #WeDocs
@WeDocs
16 December 2015 20:30
RT @HelenHSAUK: @RNeilABlack #wedocs @WeDocs that is how we should be - we need to understand it is impossible to deliver effective healthc…
@LynneBowers2
16 December 2015 20:30
RT @PilgrimPip: @WeDocs @nxtstop1 #wedocs We have nearly 1000 authentic digital stories created/co-produced by patients, carers, staff: exp…
@pharmerfour
16 December 2015 20:30
@WeDocs #WeDocs what's the most effective way to empower patients in health so that we cater their choices, not tell them what to do
@WeDocs
16 December 2015 20:30
RT @Chris5anne: @Patient_Leader @fran_ohara @WeDocs @NHSEngland And need structure with access to training & development #WeDocs
@annedraya
16 December 2015 20:30
@nav_doc @roz_davies and also need to understand/respect the fact that some patients aren't ready or don't want to be that involved #WeDocs
@WeDocs
16 December 2015 20:30
RT @ksspsc: @WeDocs @madeofbeauty @HelenHSAUK @OlwenOlwen @ksslc #wedocs Hahahaha skulking was meant to be skilling!
@SP_Duckworth
16 December 2015 20:31
Any relationship is based on trust. Talking co-production & not seeing it through is more harmful than not doing it at all. @WeDocs #WeDocs
@nxtstop1
16 December 2015 20:31
@lizcharalambou yes, & aging (older old) individuals in general #wedocs.
@RNeilABlack
16 December 2015 20:31
RT @pharmerfour: @WeDocs #WeDocs what's the most effective way to empower patients in health so that we cater their choices, not tell them …
@Jneildwy
16 December 2015 20:31
@lizcharalambou Working with families with new babies, is huge variety in level of self determinism they want at a vulnerable time #WeDocs
@WeGPNs
16 December 2015 20:31
RT @roz_davies: #wedocs Q2 if we really want to create conditions where ppl can self care, sense of control is key #salutogenisis https://…
@LeighAKendall
16 December 2015 20:31
RT @KathEvans2: @HelenHSAUK @WeDocs ladders or wheels fab blog by @SpcialNdsJungle https://t.co/C8P0VTeZgq #wedocs
@helenfindlay
16 December 2015 20:31
@HelenHSAUK @WeDocs @sm_partnership Co-prod:mutually assured care,respect,equality & jt decision-making to find right path for indiv #WeDocs
@fran_ohara
16 December 2015 20:31
@WeDocs Good events, we often see 'health talking to itself' - get real people in events, let them have a voice & tell their story #wedocs
@Laconic_doc
16 December 2015 20:31
and other mental h probs? MT @lizcharalambou: #wedocs worry re people with #dementia getting left behind in coproduction, may be overlooked
@WeDocs
16 December 2015 20:31
Hello Iris love what you are saying but pls can you include #wedocs so all can see? ???? https://t.co/K8mx5qUuTm
@lizcharalambou
16 December 2015 20:31
how do we marry up coproduction with organisational culture and sub cultures if they don't match? #wedocs
@sm_partnership
16 December 2015 20:31
@OlwenOlwen @HelenHSAUK it's because I do know more about MS than GP ..really and good GP will say so! I've lived w it for 20Yrs! #WeDocs
@WeGPNs
16 December 2015 20:31
RT @Chris5anne: @Patient_Leader @fran_ohara @WeDocs @NHSEngland And need structure with access to training & development #WeDocs
@roz_davies
16 December 2015 20:32
Exactly what I was thinking! #wedocs same for HCP's! https://t.co/YkfuH5zGoE
@LouLei20735035
16 December 2015 20:32
@GleefulKaz @WeDocs get commissioners, patients, clinicians in joint discussions from get go, no hierarchy only shared outcomes #WeDocs
@nchadborn
16 December 2015 20:32
RT @lizcharalambou: #wedocs I worry about people with #dementia getting left behind in coproduction, may be overlooked. Need to guard again…
@gbrgsy
16 December 2015 20:32
#wedocs tokenism = 'race to the bottom'; radical roots of coproduction = 'democratising public services' Fotaki https://t.co/43OKjzUnSu
@fran_ohara
16 December 2015 20:32
@pharmerfour @WeDocs Create a hospitable space. Listen. Learn. Talk. Work out how they can get clost to 'what matters to them' #wedocs
@ANKHEmpress
16 December 2015 20:32
#wedocs Need to understand that systems have created and encouraged dependency & so new systems need to take time to foster independence
@Nicki_Haywood
16 December 2015 20:32
RT @WeDocs: Tokenism? #WeDocs https://t.co/TUUar1OCZc
@Imonlyslightly
16 December 2015 20:32
@lizcharalambou Many patients/ carers left out because their illness/ caring responsibilities prevent attendance #WeDocs Lost resources.
@annedraya
16 December 2015 20:32
@FoxHedgehog @WeDocs yes & to maintain trust don't promise more than we can deliver #austerity #wedocs
@charlottesween
16 December 2015 20:32
RT @HelenHSAUK: Some thoughts on what it is @wedocs #wedocs https://t.co/PC93RMdbpz
@WeDocs
16 December 2015 20:32
Q3. What has worked well and how we achieved it? This Q will be led by @Irisbenson1004 #WeDocs
@helenfindlay
16 December 2015 20:32
@Jneildwy @pharmerfour @WeDocs @notjustaheadach Journey of 1,000 miles begins with first step, to coin a phrase. Worth the effort #WeDocs
@WeDocs
16 December 2015 20:32
RT @Laconic_doc: Trouble is, £££! RT @RichardRecover: #WeDocs I agree and that means to let go of the political angle of management https:/…
@WeDocs
16 December 2015 20:33
RT @annedraya: @FoxHedgehog @WeDocs yes & to maintain trust don't promise more than we can deliver #austerity #wedocs
@LeighAKendall
16 December 2015 20:33
@FoxHedgehog @WeDocs yes, it's disrespectful of people's time and energy, damages trust for future coproduction too #wedocs
@Nicki_Haywood
16 December 2015 20:33
RT @gbrgsy: #WeDocs @WeDocs create new, open democratic spaces for diff't conversations to trigger creativity in orgns; flatten power diffe…
@WeDocs
16 December 2015 20:33
RT @roz_davies: #wedocs q2 some interesting stuff here https://t.co/DLW8lkP43l
@OCDTrudy
16 December 2015 20:33
@lizcharalambou We have a ResearchNet group that is for older adults espec those with dementia and are a productive group #WeDocs
@olliehart7
16 December 2015 20:33
@notjustaheadach. agree++ patient resource. But system + consciousness of patient and doc mostly not set for it yet- will take time #WeDocs
@JohnCampaign
16 December 2015 20:33
RT @lizcharalambou: #wedocs I worry about people with #dementia getting left behind in coproduction, may be overlooked. Need to guard again…
@sm_partnership
16 December 2015 20:33
@EmilyHSAUK @HelenHSAUK @WeDocs definitely. If I've said I'll do it and it's important to me the I keep my side of bargain #WeDocs
@GleefulKaz
16 December 2015 20:33
@WeDocs but on personal care level many Dr's struggle to act as equal partners in my care ! Which is a diff facet of co production #wedocs
@OCDTrudy
16 December 2015 20:33
RT @Laconic_doc: and other mental h probs? MT @lizcharalambou: #wedocs worry re people with #dementia getting left behind in coproduction, …
@TinyTonyH
16 December 2015 20:33
@pharmerfour @WeDocs "most effective way to empower patients"? Write your notes to the patient for the patient #WeDocs
@nxtstop1
16 December 2015 20:34
T1 Both US & UK embarking on these new ways of thinking re healthcare(self managing,self care etc) Ppl need more health literacy imo #wedocs
@Chris5anne
16 December 2015 20:34
@pharmerfour @WeDocs Ensure you have empowered professionals who understand partnership working & assisting in decision making #WeDocs
@roz_davies
16 December 2015 20:34
RT @WeDocs: Q3. What has worked well and how we achieved it? This Q will be led by @Irisbenson1004 #WeDocs
@annedraya
16 December 2015 20:34
@lizcharalambou work on hearts and minds, one at a time. We *are* the culture #wedocs
@Jneildwy
16 December 2015 20:34
@helenfindlay @HelenHSAUK @WeDocs @sm_partnership Does HCP or patient really want 'control’ other,or do both want to control disease?#WeDocs
@acutemed2
16 December 2015 20:34
Coproduction and shared care essential for vast majority of patients but don't marginalise few who want paternalistic care #wedocs
@KarenPharm
16 December 2015 20:34
RT @WeDocs: Q3. What has worked well and how we achieved it? This Q will be led by @Irisbenson1004 #WeDocs
@BPDFFS
16 December 2015 20:34
#wedocs I'm on the PD strategy team for my Trust @SHSCFT that's where collaboration begins at the top not the bottom
@pshepherdBU
16 December 2015 20:34
RT @lizcharalambou: #wedocs I worry about people with #dementia getting left behind in coproduction, may be overlooked. Need to guard again…
@LeighAKendall
16 December 2015 20:34
@pharmerfour @WeDocs ask them! Create ways for pts to feedback - listen when 1-1, graffiti boards, tops & pants - be innovative #WeDocs
@MelissaSweetDr
16 December 2015 20:34
RT @RichardRecover: Patients as Partners via #WeDocs 16/12/2015 https://t.co/5c2tQKssEh via @WeDocs
@gone_2_get_help
16 December 2015 20:34
RT @HelenHSAUK: Some thoughts on what it is @wedocs #wedocs https://t.co/PC93RMdbpz
@gbrgsy
16 December 2015 20:34
#WeDocs recent systematic review here may be of interest. Cocreation/coproduction & social innovation: https://t.co/Mo9lGGVxBj
@WeDocs
16 December 2015 20:34
Thoughts on this #WeDocs https://t.co/tNKDMIOdZk
@fran_ohara
16 December 2015 20:34
@lizcharalambou & their family, carers, our meetup hosted by person w dementia, coproduced & delivered @dr_shibley #dementianwales #wedocs
@Nicki_Haywood
16 December 2015 20:34
RT @WeDocs: Q3. What has worked well and how we achieved it? This Q will be led by @Irisbenson1004 #WeDocs
@LeighAKendall
16 December 2015 20:34
RT @TinyTonyH: @pharmerfour @WeDocs "most effective way to empower patients"? Write your notes to the patient for the patient #WeDocs
@LynneBowers2
16 December 2015 20:34
RT @gbrgsy: #wedocs tokenism = 'race to the bottom'; radical roots of coproduction = 'democratising public services' Fotaki https://t.co/43…
@Chris5anne
16 December 2015 20:34
RT @lizcharalambou: #wedocs I worry about people with #dementia getting left behind in coproduction, may be overlooked. Need to guard again…
@Diabetics_Tips
16 December 2015 20:34
RT @roz_davies: #wedocs q2 some interesting stuff here https://t.co/DLW8lkP43l
@notjustaheadach
16 December 2015 20:34
@olliehart7 there are more opportunities than we think... Not all formal routes #wedocs
@GoJefferies
16 December 2015 20:34
RT @lizcharalambou: #wedocs I worry about people with #dementia getting left behind in coproduction, may be overlooked. Need to guard again…
@RichardRecover
16 December 2015 20:34
#WeDocs or bring patients into that angle because its here to stay https://t.co/XDJsddIZHK
@WeDocs
16 December 2015 20:35
@leighakendall @FoxHedgehog yes totally agree & to be avoided at all costs as so disrespectful for a start... #WeDocs
@dr_shibley
16 December 2015 20:35
@WeDocs #wedocs being a patient is a process, so fran is right not to call #coproduction an event - it's a process engaging with a process
@Laconic_doc
16 December 2015 20:35
Get them to set agenda? MT @TinyTonyH: "most effective way to empower patients"? Write your notes to the pt for the pt #WeDocs #wedocs
@WeGPNs
16 December 2015 20:35
RT @WeDocs: Thoughts on this #WeDocs https://t.co/tNKDMIOdZk
@WeDocs
16 December 2015 20:35
RT @dr_shibley: @WeDocs #wedocs being a patient is a process, so fran is right not to call #coproduction an event - it's a process engaging…
@fran_ohara
16 December 2015 20:35
@Chris5anne @pharmerfour @WeDocs trained professionals, who've been given time & opportunity to learn the new skills needed #wedocs good eg?
@LeighAKendall
16 December 2015 20:35
@acutemed2 yes, need to be respectful of all needs #WeDocs
@gosia_bal
16 December 2015 20:35
As long as we all know what is the endpoint of that 'Journey' #wedocs https://t.co/XH6DbADGcb
@luckockp
16 December 2015 20:35
RT @roz_davies: #wedocs q2 some interesting stuff here https://t.co/DLW8lkP43l
@GleefulKaz
16 December 2015 20:35
In CCG LM role I advocate for strategic level PPI- but it's like banging my head against a brick wall at wider system level #wedocs
@LeighAKendall
16 December 2015 20:36
RT @WeDocs: @leighakendall @FoxHedgehog yes totally agree & to be avoided at all costs as so disrespectful for a start... #WeDocs
@LouLei20735035
16 December 2015 20:36
@Laconic_doc @WeDocs @RichardRecover co-production starting from co-developed outcomes can save £££. open discussion shared goals #WeDocs
@Jneildwy
16 December 2015 20:36
@helenfindlay @HelenHSAUK @WeDocs @sm_partnership Do consultations risk becoming conflict?#WeDocs
@fran_ohara
16 December 2015 20:36
RT @dr_shibley: @WeDocs #wedocs being a patient is a process, so fran is right not to call #coproduction an event - it's a process engaging…
@KarenPharm
16 December 2015 20:36
@WeDocs Recovery college's where peer & practitioner trainers work together to deliver courses to service users, carers & staff #WeDocs
@WeDocs
16 December 2015 20:36
RT @gbrgsy: #wedocs tokenism = 'race to the bottom'; radical roots of coproduction = 'democratising public services' Fotaki https://t.co/43…
@WeDocs
16 December 2015 20:36
@Jneildwy @helenfindlay @HelenHSAUK @sm_partnership ooh interesting point #WeDocs
@BPDFFS
16 December 2015 20:36
#wedocs talking about empowering patients how do we empower HCP's so that they feel able to collaborate? Giving up power is difficult ..
@annedraya
16 December 2015 20:36
@Imonlyslightly @lizcharalambou yes! I find it extremely difficult to get involved locally due to anxiety disorder, Twitter helps #wedocs
@roz_davies
16 December 2015 20:36
#wedocs Q3 We put coproduction at heart of what we do @RecoverySheff listen to radical vision on https://t.co/mTR1NMcnwP #sheffieldflourish
@WeGPNs
16 December 2015 20:36
RT @roz_davies: #wedocs Q3 We put coproduction at heart of what we do @RecoverySheff listen to radical vision on https://t.co/mTR1NMcnwP #s…
@PPsoup
16 December 2015 20:36
@pharmerfour @WeDocs to take time to really listen without judgement, to respect views+understand. Wanting 2b heard jst human nature #WeDocs
@notjustaheadach
16 December 2015 20:36
@dr_shibley @WeDocs like running along side a fast moving train and trying to jump on! Not always easy! Lol #wedocs
@dr_shibley
16 December 2015 20:36
RT @WeDocs: Q3. What has worked well and how we achieved it? This Q will be led by @Irisbenson1004 #WeDocs
@irisbenson100
16 December 2015 20:36
@LynneBowers2 @WeDocs #WeDocs co production really is a new way of working but you have to trust in our skill and strengths
@pauljebb1
16 December 2015 20:37
@annedraya @lizcharalambou and of course challenge the culture! Look at what can be a tool to change that, start small, build up #wedocs
@helenfindlay
16 December 2015 20:37
@Jneildwy @HelenHSAUK @WeDocs @sm_partnership Work tog to control disease - in #palliative care, work together for quality of life #WeDocs
@notjustaheadach
16 December 2015 20:37
RT @WeDocs: Thoughts on this #WeDocs https://t.co/tNKDMIOdZk
@RNeilABlack
16 December 2015 20:37
@flippper1 @pharmerfour @WeDocs Exactly. HCPs that don't tho may lack insight 2 realise they r ineffective and then blame the person #WeDocs
@GleefulKaz
16 December 2015 20:37
@dockeithwales @WeDocs - they need to be there from all levels - each has a value & perception to bring to the table! #wedocs
@Laconic_doc
16 December 2015 20:37
In hospital, open visiting (& encouraging relatives' presence on ward round) = small step twrds coproduction? We've just started it! #wedocs
@ANKHEmpress
16 December 2015 20:37
#wedocs @Irisbenson1004 QIC Newham had LTC pts leading & challenging & presenting as 'people' and then working with other pts in practices
@LynneBowers2
16 December 2015 20:37
RT @gbrgsy: #WeDocs recent systematic review here may be of interest. Cocreation/coproduction & social innovation: https://t.co/Mo9lGGVxBj
@healthsociology
16 December 2015 20:37
RT @roz_davies: #wedocs Q2 if we really want to create conditions where ppl can self care, sense of control is key #salutogenisis https://…
@Chris5anne
16 December 2015 20:37
@WeDocs It's vital to get full picture of any potential change to see through the eyes of patient/carer for quality & cost effective #WeDocs
@Anna__Ludvigsen
16 December 2015 20:37
.@Laconic_doc @TinyTonyH #WeDocs yes! Seems obvious but have found great resistance to this among some psych Dr's
@RNeilABlack
16 December 2015 20:37
RT @roz_davies: #wedocs Q3 We put coproduction at heart of what we do @RecoverySheff listen to radical vision on https://t.co/mTR1NMcnwP #s…
@sm_partnership
16 December 2015 20:37
@Jneildwy @helenfindlay @HelenHSAUK @WeDocs I don't want control I want to manage so I feel in control of my life with MS #WeDocs
@WeDocs
16 December 2015 20:37
How do we prevent this? @irisbenson100 can tell us how she did #WeDocs https://t.co/E6HpfdCGkh
@allyc375
16 December 2015 20:37
RT @dr_shibley: @allyc375 @hayology @ermintrude2 @KateSwaffer #WeDocs https://t.co/eVMCP04NQq
@WeDocs
16 December 2015 20:37
RT @Jneildwy: @helenfindlay @HelenHSAUK @WeDocs @sm_partnership Do consultations risk becoming conflict?#WeDocs
@LeighAKendall
16 December 2015 20:37
RT @irisbenson100: @LynneBowers2 @WeDocs #WeDocs co production really is a new way of working but you have to trust in our skill and streng…
@fran_ohara
16 December 2015 20:37
Ask them to invite people choose venue, involved in all, their connections & their connections connections #wedocs https://t.co/OlKIfbHKiy
@helenfindlay
16 December 2015 20:37
RT @gosia_bal: As long as we all know what is the endpoint of that 'Journey' #wedocs https://t.co/XH6DbADGcb
@WeDocs
16 December 2015 20:38
@TinyTonyH @pharmerfour Would being sent the clinic / OPD summary be sufficient? #WeDocs
@Jneildwy
16 December 2015 20:38
@helenfindlay @pharmerfour @WeDocs @notjustaheadach Trying to reach out at moment, sometimes families at birth just want me to tell #WeDocs
@DavidGilbert43
16 December 2015 20:38
Which is why patients need real (executive) power in orgs #WeDocs otherwise window dressing https://t.co/8zFgJDEYyc https://t.co/O0Ca3u44LD
@roz_davies
16 December 2015 20:38
Another one for my Christmas list Santa #wedocs https://t.co/IA7poYhytJ
@luckockp
16 December 2015 20:38
RT @roz_davies: #wedocs Q2 if we really want to create conditions where ppl can self care, sense of control is key #salutogenisis https://…
@WeDocs
16 December 2015 20:38
RT @notjustaheadach: @dr_shibley @WeDocs like running along side a fast moving train and trying to jump on! Not always easy! Lol #wedocs
@Imonlyslightly
16 December 2015 20:38
@Laconic_doc @TinyTonyH Respect patients' understanding too & knowledge of their own health conditions #WeDocs
@Chris5anne
16 December 2015 20:38
RT @ANKHEmpress: #wedocs @Irisbenson1004 QIC Newham had LTC pts leading & challenging & presenting as 'people' and then working with other …
@WeDocs
16 December 2015 20:38
RT @irisbenson100: @LynneBowers2 @WeDocs #WeDocs co production really is a new way of working but you have to trust in our skill and streng…
@gbrgsy
16 December 2015 20:38
#wedocs not a zero sum game! Convince through robust evidence that everyone benefits; evidence base currently weak https://t.co/7PNGnBnkfJ
@notjustaheadach
16 December 2015 20:38
#wedocs I want to be involved, I want to have the forum to talk, but if I'm not listened 2&my path doesn't change... https://t.co/MrPNFll7HC
@fran_ohara
16 December 2015 20:38
And patients see so many people, including different doctors, hard for them to get consistency & build trust #wedocs https://t.co/KGYg2KDgji
@sm_partnership
16 December 2015 20:38
@Jneildwy @helenfindlay @HelenHSAUK @WeDocs to feel in control I need support to self-manage from HCPs of all kinds #WeDocs
@Patient_Leader
16 December 2015 20:38
RT @DavidGilbert43: Which is why patients need real (executive) power in orgs #WeDocs otherwise window dressing https://t.co/8zFgJDEYyc htt…
@PilgrimPip
16 December 2015 20:38
@DavidGilbert43 Was wondering when you would join - good to see you here! #WeDocs
@madeofbeauty
16 December 2015 20:39
.@GleefulKaz This is where the 'culture' begins and ends with key drivers determining eventual outcomes #coproductive or not #WeDocs
@olliehart7
16 December 2015 20:39
#WeDocs Q2 recognise this is a big shift in docs value system. We were trained as problem solvers. Co-P requires us redefine value set
@TinyTonyH
16 December 2015 20:39
@Laconic_doc I think you know more about your patients health than you do your own health.. unless you look at them yourself #wedocs
@WeDocs
16 December 2015 20:39
@RNeilABlack @flippper1 @pharmerfour pls can you expand? #WeDocs
@roz_davies
16 December 2015 20:39
RT @DavidGilbert43: Which is why patients need real (executive) power in orgs #WeDocs otherwise window dressing https://t.co/8zFgJDEYyc htt…
@OCDTrudy
16 December 2015 20:39
@BPDFFS Having the backing of the trust is a first step. We have that and staff are therefore comfortable working using co-design #WeDocs
@Chris5anne
16 December 2015 20:39
@Laconic_doc Different I think- need to clearly define the aims for professional and patient/carer for clarity #WeDocs
@WeDocs
16 December 2015 20:39
RT @gosia_bal: As long as we all know what is the endpoint of that 'Journey' #wedocs https://t.co/XH6DbADGcb
@RichardRecover
16 December 2015 20:39
#WeDocs i love it - we have had recvovery colleges in york just for patients -joint is best https://t.co/vTCcZkxLQQ
@helenfindlay
16 December 2015 20:39
@gosia_bal Possibly get to know endpoint on individual level if not collectively but also can develop & evolve over time - flexible #WeDocs
@dr_shibley
16 December 2015 20:39
RT @fran_ohara: And patients see so many people, including different doctors, hard for them to get consistency & build trust #wedocs https:…
@Laconic_doc
16 December 2015 20:39
NB with relatives incl can be several agendas: pt's, relative's, therapist's, consultant's, &GP's!! Try reconciling that: need ACAS! #wedocs
@RNeilABlack
16 December 2015 20:39
RT @fran_ohara: And patients see so many people, including different doctors, hard for them to get consistency & build trust #wedocs https:…
@helenfindlay
16 December 2015 20:39
RT @Jneildwy: @helenfindlay @HelenHSAUK @WeDocs @sm_partnership Do consultations risk becoming conflict?#WeDocs
@RNeilABlack
16 December 2015 20:39
RT @dr_shibley: @WeDocs #wedocs being a patient is a process, so fran is right not to call #coproduction an event - it's a process engaging…
@WeGPNs
16 December 2015 20:39
RT @DavidGilbert43: Which is why patients need real (executive) power in orgs #WeDocs otherwise window dressing https://t.co/8zFgJDEYyc htt…
@KSS_PSC
16 December 2015 20:39
@fran_ohara @WeDocs #WeDocs but we also want to move feom listening to the story &into using their perspective and expertise to drive Imprmt
@nxtstop1
16 December 2015 20:39
@RNeilABlack @flippper1 @pharmerfour @WeDocs Rec>Have educational programs/ tools to address gaps in insight, empathy, other issues #wedocs
@LynneBowers2
16 December 2015 20:39
#WeDocs I do Iris! I am a Carer too https://t.co/DClSe6WkIM
@sm_partnership
16 December 2015 20:40
@Jneildwy @helenfindlay @HelenHSAUK @WeDocs sometimes there is conflict however I prefer to work together 2minds better than 1 #WeDocs
@Mark_Sheldon
16 December 2015 20:40
RT @dr_shibley: My blogpost about #coproduction https://t.co/S4dzFNN7so #Wedocs
@WeGPNs
16 December 2015 20:40
RT @olliehart7: #WeDocs Q2 recognise this is a big shift in docs value system. We were trained as problem solvers. Co-P requires us redefin…
@Chris5anne
16 December 2015 20:40
RT @DavidGilbert43: Which is why patients need real (executive) power in orgs #WeDocs otherwise window dressing https://t.co/8zFgJDEYyc htt…
@KarenPharm
16 December 2015 20:40
RT @DavidGilbert43: Which is why patients need real (executive) power in orgs #WeDocs otherwise window dressing https://t.co/8zFgJDEYyc htt…
@WeDocs
16 December 2015 20:40
view from Sheffield #coproduction #WeDocs https://t.co/OBz2teiWrR
@roz_davies
16 December 2015 20:40
@WeDocs I'm going to enjoy picking up all the links being share on #coproduction via #wedocs later! Brilliant!
@Jneildwy
16 December 2015 20:40
We encourage in paediatric care, even parents in local anaesthetic operations. Very positive#WeDocs https://t.co/HbeRGXfmq7
@pauljebb1
16 December 2015 20:40
@Jneildwy @WeDocs @helenfindlay @HelenHSAUK @sm_partnership yes, need to ascertain what is expected at start #wedocs
@Chris5anne
16 December 2015 20:40
RT @Imonlyslightly: @Laconic_doc @TinyTonyH Respect patients' understanding too & knowledge of their own health conditions #WeDocs
@olliehart7
16 December 2015 20:40
#WeDocs. Q2. from my experience it is right thing to do. It offers lasting sustainable futures. Will take all our effort to shift paradigm
@OCDTrudy
16 December 2015 20:40
@sm_partnership @WeDocs We work as a team with staff there is no us and them #WeDocs
@Imonlyslightly
16 December 2015 20:40
@annedraya @lizcharalambou Meetings have uses but also limitations. Need better use of communication tools SM/ e-mail focus groups #WeDocs
@Chris5anne
16 December 2015 20:40
RT @notjustaheadach: #wedocs I want to be involved, I want to have the forum to talk, but if I'm not listened 2&my path doesn't change... h…
@WeDocs
16 December 2015 20:40
RT @ksspsc: @fran_ohara @WeDocs #WeDocs but we also want to move feom listening to the story &into using their perspective and expertise to…
@WeDocs
16 December 2015 20:41
RT @roz_davies: @WeDocs I'm going to enjoy picking up all the links being share on #coproduction via #wedocs later! Brilliant!
@WeDocs
16 December 2015 20:41
RT @pauljebb1: @Jneildwy @WeDocs @helenfindlay @HelenHSAUK @sm_partnership yes, need to ascertain what is expected at start #wedocs
@helenfindlay
16 December 2015 20:41
@Jneildwy @HelenHSAUK @WeDocs @sm_partnership Some of them are already & can add to upset-communications skills needed by HCPs esp #WeDocs
@WeDocs
16 December 2015 20:41
RT @OCDTrudy: @sm_partnership @WeDocs We work as a team with staff there is no us and them #WeDocs
@dr_shibley
16 December 2015 20:41
@fran_ohara a huge part of it - continuity of care and systems depends on building long-lasting relationships of **people** #WeDocs
@JohnCampaign
16 December 2015 20:41
RT @WeDocs: An interesting observation Thoughts #WeDocs https://t.co/Iq3VhSVeuX
@helenfindlay
16 December 2015 20:41
RT @WeDocs: @Jneildwy @helenfindlay @HelenHSAUK @sm_partnership ooh interesting point #WeDocs
@sm_partnership
16 December 2015 20:41
@pauljebb1 @Jneildwy @WeDocs @helenfindlay @HelenHSAUK shared agenda setting skill both sides could do with training in #WeDocs
@Laconic_doc
16 December 2015 20:41
This is *key*! MT @fran_ohara: And pts see so many people, including different drs, hard for them to get consistency & build trust #wedocs
@nxtstop1
16 December 2015 20:41
RT @DavidGilbert43: Which is why patients need real (executive) power in orgs #WeDocs otherwise window dressing https://t.co/8zFgJDEYyc htt…
@KarenPharm
16 December 2015 20:41
RT @RichardRecover: #WeDocs i love it - we have had recvovery colleges in york just for patients -joint is best https://t.co/vTCcZkxLQQ
@WeGPNs
16 December 2015 20:41
RT @ksspsc: @fran_ohara @WeDocs #WeDocs but we also want to move feom listening to the story &into using their perspective and expertise to…
@BPDFFS
16 December 2015 20:41
@OCDTrudy that sounds really positive #wedocs our trust backs collaboration too but many find it difficult still
@GleefulKaz
16 December 2015 20:41
RT @DavidGilbert43: Which is why patients need real (executive) power in orgs #WeDocs otherwise window dressing https://t.co/8zFgJDEYyc htt…
@Patient_Leader
16 December 2015 20:42
I'm noticing 2 themes Dr/patient relationships developing personal care & strategic working with system leaders. Different approach? #wedocs
@annedraya
16 December 2015 20:42
@RichardRecover @KarenPharm @WeDocs problem with recovery colleges is that not all patients are the same, risk of being patronising #wedocs
@fran_ohara
16 December 2015 20:42
@olliehart7 Trained to solve problems solo, in short space of time often, coproduction's a different conversation, solving together #wedocs
@Chris5anne
16 December 2015 20:42
RT @LynneBowers2: #WeDocs I do Iris! I am a Carer too https://t.co/DClSe6WkIM
@KSS_PSC
16 December 2015 20:42
@WeDocs #wedocs I am creating prog for PTs with joint session to understand 2gether how get to dialogue, have 2 think of PTs like non execs
@Jneildwy
16 December 2015 20:42
@sm_partnership @helenfindlay @HelenHSAUK @WeDocs I agree you should be. You live it, we should listen, coach not tell #WeDocs
@Chris5anne
16 December 2015 20:42
RT @WeDocs: view from Sheffield #coproduction #WeDocs https://t.co/OBz2teiWrR
@Imonlyslightly
16 December 2015 20:42
@annedraya @lizcharalambou Shoving a few people into a room a few times a year cannot lead to effective co-production anyway #WeDocs
@gbrgsy
16 December 2015 20:42
#WeDocs Absolutely!! https://t.co/WwbkYgZgLU patients as partners in implementing & evaluating quality improvements https://t.co/FPFQbCLhjE
@healthsociology
16 December 2015 20:42
RT @roz_davies: Another one for my Christmas list Santa #wedocs https://t.co/IA7poYhytJ
@TinyTonyH
16 December 2015 20:42
@WeDocs @pharmerfour Yes..& everything else, results, xrays, 12 lead ECG, vital signs. Would help us to take more ownership #WeDocs
@OCDTrudy
16 December 2015 20:42
@Jneildwy @helenfindlay @HelenHSAUK @WeDocs @sm_partnership We've never had conflict because we're working with a common aim #WeDocs
@nxtstop1
16 December 2015 20:42
@DavidGilbert43 That really should be the case anyway. The patient voice is valuable in administrative settings.. both MDs & pts #wedocs
@WeGPNs
16 December 2015 20:42
RT @Jneildwy: @sm_partnership @helenfindlay @HelenHSAUK @WeDocs I agree you should be. You live it, we should listen, coach not tell #WeDocs
@roz_davies
16 December 2015 20:42
@WeDocs #wedocs must also make the point that the value of #coproduction is not just offline. Should also be applied online!
@fran_ohara
16 December 2015 20:43
@dr_shibley Q3 what has worked and how achieved - any suggestions? #wedocs
@WeDocs
16 December 2015 20:43
Do we need to change Doctors training? #WeDocs https://t.co/UwhHy53r62
@sm_partnership
16 December 2015 20:43
@OCDTrudy @WeDocs I like that! #WeDocs we're in this together
@gbrgsy
16 December 2015 20:43
RT @OCDTrudy: @sm_partnership @WeDocs We work as a team with staff there is no us and them #WeDocs
@WeDocs
16 December 2015 20:43
Q4 What are barriers+enablers >unleash the resources in yr local citizens/communities to improve health & wellbeing? Led @roz_davies #WeDocs
@logr24
16 December 2015 20:43
RT @HelenHSAUK: Some thoughts on what it is @wedocs #wedocs https://t.co/PC93RMdbpz
@Laconic_doc
16 December 2015 20:43
With kindness, concern, respect, good comms, & some technical knowledge, we can move mountains!! #wedocs
@PilgrimPip
16 December 2015 20:43
One of the first steps towards co-production #WeDocs https://t.co/wyOxe06Z7f
@BPDFFS
16 December 2015 20:43
@gbrgsy need more evidence then which is always difficult it costs money and takes time #WeDocs
@JohnCampaign
16 December 2015 20:43
@Laconic_doc @fran_ohara Best advice to patients - keep a diary. Those who can't need someone to do this for them #WeDocs
@LynneBowers2
16 December 2015 20:43
#WeDocs yes the person experiences a pathway across the system vs org silos https://t.co/fwrVbmbFSE
@SP_Duckworth
16 December 2015 20:43
This is great. So I'm assuming we'll be moving swiftly to personal health budgets? :) @wedocs #WeDocs
@anna_eol_doula
16 December 2015 20:43
RT @Laconic_doc: With kindness, concern, respect, good comms, & some technical knowledge, we can move mountains!! #wedocs
@Anna__Ludvigsen
16 December 2015 20:43
#wedocs exactly - we r calibrated to spot problems good if Dxing MI bad if trying to understand pt perspective! https://t.co/o0RrF5pnuB
@drpritpalsingh
16 December 2015 20:44
#WeDocs the GPS-and a Driver
@helenfindlay
16 December 2015 20:44
RT @pauljebb1: @Jneildwy @WeDocs @helenfindlay @HelenHSAUK @sm_partnership yes, need to ascertain what is expected at start #wedocs
@Chris5anne
16 December 2015 20:44
@Patient_Leader You're right-need to define purpose & aims #WeDocs
@RichardRecover
16 December 2015 20:44
#WeDocs we will not bring every body into discussions anyway - we can have different styles of groups\never reachal https://t.co/Xq4D2elRx6
@WeDocs
16 December 2015 20:44
RT @FoxHedgehog: This is great. So I'm assuming we'll be moving swiftly to personal health budgets? :) @wedocs #WeDocs
@Imonlyslightly
16 December 2015 20:44
RT @WeDocs: Do we need to change Doctors training? #WeDocs https://t.co/UwhHy53r62
@Jneildwy
16 December 2015 20:44
@WeDocs @TinyTonyH @pharmerfour We docs should all be writing to patient with no jargon after any visit. I have always done this #WeDocs
@roz_davies
16 December 2015 20:44
RT @olliehart7: #WeDocs Q2 recognise this is a big shift in docs value system. We were trained as problem solvers. Co-P requires us redefin…
@Chris5anne
16 December 2015 20:44
RT @Jneildwy: @sm_partnership @helenfindlay @HelenHSAUK @WeDocs I agree you should be. You live it, we should listen, coach not tell #WeDocs
@WeDocs
16 December 2015 20:44
RT @gbrgsy: #WeDocs Absolutely!! https://t.co/WwbkYgZgLU patients as partners in implementing & evaluating quality improvements https://t.…
@KSS_PSC
16 December 2015 20:44
RT @olliehart7: #WeDocs. Q2. from my experience it is right thing to do. It offers lasting sustainable futures. Will take all our effort to…
@Laconic_doc
16 December 2015 20:44
Q4 silos, discontinuity, lack of relationship, lack of data, lack of staff/money? #wedocs
@sm_partnership
16 December 2015 20:44
@Jneildwy @helenfindlay @HelenHSAUK @WeDocs you can tell me if I ask you to! Sometimes I need that! #WeDocs not easy is it?!
@OCDTrudy
16 December 2015 20:44
@sm_partnership @WeDocs Staff come to us with a problem, we do the research, then meet to decide goals, then we suggest prototypes #WeDocs
@cristin_lind
16 December 2015 20:44
RT @gbrgsy: #WeDocs Absolutely!! https://t.co/WwbkYgZgLU patients as partners in implementing & evaluating quality improvements https://t.…
@WeDocs
16 December 2015 20:44
@FoxHedgehog do you think this is a critical part? Keen hear more #wedocs
@madeofbeauty
16 December 2015 20:44
.@Patient_Leader Suggest on the same gradient. Values must remain the same regardless of level or we have the same ol' disconect #WeDocs
@annedraya
16 December 2015 20:45
@ANKHEmpress @RichardRecover @KarenPharm @WeDocs risk reduced maybe but needs to be a flexible offer! #wedocs
@Jneildwy
16 December 2015 20:45
@sm_partnership @pauljebb1 @WeDocs @helenfindlay @HelenHSAUK How do we deliver this to patients and when?#WeDocs
@dr_shibley
16 December 2015 20:45
@fran_ohara slight conflict of interest, but the event I took part in N Wales worked really well: https://t.co/ODXanj0atr #Wedocs @luckockp
@maddogmcardle
16 December 2015 20:45
Absolutely and important that we actively listen to the story- not just tokenism #wedocs https://t.co/sL4tgAnSbI
@LeighAKendall
16 December 2015 20:45
RT @PilgrimPip: One of the first steps towards co-production #WeDocs https://t.co/wyOxe06Z7f
@WeDocs
16 December 2015 20:45
RT @Jneildwy: @sm_partnership @pauljebb1 @WeDocs @helenfindlay @HelenHSAUK How do we deliver this to patients and when?#WeDocs
@Imonlyslightly
16 December 2015 20:45
Q4 Words like being positive are used in a way that prevent positive learning & outcomes from negative experiences #WeDocs
@LeighAKendall
16 December 2015 20:45
RT @Laconic_doc: With kindness, concern, respect, good comms, & some technical knowledge, we can move mountains!! #wedocs
@helenfindlay
16 December 2015 20:45
RT @Jneildwy: @sm_partnership @helenfindlay @HelenHSAUK @WeDocs I agree you should be. You live it, we should listen, coach not tell #WeDocs
@WeDocs
16 December 2015 20:45
RT @annedraya: @ANKHEmpress @RichardRecover @KarenPharm @WeDocs risk reduced maybe but needs to be a flexible offer! #wedocs
@dr_shibley
16 December 2015 20:45
RT @fran_ohara: @dr_shibley Q3 what has worked and how achieved - any suggestions? #wedocs
@Chris5anne
16 December 2015 20:45
@Jneildwy @sm_partnership @helenfindlay @HelenHSAUK @WeDocs Listening to each other & being respectful of views is key-two way #WeDocs
@helenfindlay
16 December 2015 20:45
RT @sm_partnership: @Jneildwy @helenfindlay @HelenHSAUK @WeDocs you can tell me if I ask you to! Sometimes I need that! #WeDocs not easy is…
@WeDocs
16 December 2015 20:45
RT @sm_partnership: @Jneildwy @helenfindlay @HelenHSAUK @WeDocs you can tell me if I ask you to! Sometimes I need that! #WeDocs not easy is…
@sm_partnership
16 December 2015 20:45
@OCDTrudy @Jneildwy @helenfindlay @HelenHSAUK @WeDocs it's how the conflict is managed that's important #WeDocs
@helenfindlay
16 December 2015 20:46
RT @sm_partnership: @OCDTrudy @Jneildwy @helenfindlay @HelenHSAUK @WeDocs it's how the conflict is managed that's important #WeDocs
@WeDocs
16 December 2015 20:46
RT @sm_partnership: @OCDTrudy @Jneildwy @helenfindlay @HelenHSAUK @WeDocs it's how the conflict is managed that's important #WeDocs
@WeDocs
16 December 2015 20:46
@irisbenson100 @olliehart7 there is some mileage in embedding #coproduction principles in course #WeDocs
@RichardRecover
16 December 2015 20:46
#WeDocs thats a model that leads the way iit intends to stay. coproduction from the outset https://t.co/vTCcZkxLQQ
@fran_ohara
16 December 2015 20:46
#wedocs Q3 whats worked well? putting people at centre,doc & patient & anyone else who they wish to support them https://t.co/3WIojcZL5x
@WeDocs
16 December 2015 20:46
RT @Laconic_doc: With kindness, concern, respect, good comms, & some technical knowledge, we can move mountains!! #wedocs
@fran_ohara
16 December 2015 20:46
RT @JohnCampaign: @Laconic_doc @fran_ohara Best advice to patients - keep a diary. Those who can't need someone to do this for them #WeDocs
@LeighAKendall
16 December 2015 20:46
@Laconic_doc very true - and nothing meaningful for pt engagement can happen if any one of those is not in place #WeDocs
@Imonlyslightly
16 December 2015 20:46
RT @Laconic_doc: Q4 silos, discontinuity, lack of relationship, lack of data, lack of staff/money? #wedocs
@WeDocs
16 December 2015 20:46
RT @PilgrimPip: One of the first steps towards co-production #WeDocs https://t.co/wyOxe06Z7f
@gbrgsy
16 December 2015 20:46
@BPDFFS #wedocs getting there; recent feasibility trials & ongoing RCTs of coproduced/codesigned interventions. Evidence framed 4 clinicians
@HealthUKTD
16 December 2015 20:46
RT @DavidGilbert43: Which is why patients need real (executive) power in orgs #WeDocs otherwise window dressing https://t.co/8zFgJDEYyc htt…
@gosia_bal
16 December 2015 20:46
Those have to work together:good dr/pt relationship plus strategic/leadership crucial for #coproduction #WeDocs https://t.co/qwb58ogVUy
@helenfindlay
16 December 2015 20:46
RT @Jneildwy: @sm_partnership @pauljebb1 @WeDocs @helenfindlay @HelenHSAUK How do we deliver this to patients and when?#WeDocs
@sm_partnership
16 December 2015 20:46
@OCDTrudy @WeDocs explain prototypes please not sure I understand #wedocs
@LeighAKendall
16 December 2015 20:46
RT @roz_davies: @WeDocs #wedocs must also make the point that the value of #coproduction is not just offline. Should also be applied online!
@KarenPharm
16 December 2015 20:46
@ANKHEmpress @annedraya @RichardRecover @WeDocs hopefully reduced & with constant feedback, adapt / amend content to help overcome? #WeDocs
@Nicki_Haywood
16 December 2015 20:46
RT @gbrgsy: #WeDocs Absolutely!! https://t.co/WwbkYgZgLU patients as partners in implementing & evaluating quality improvements https://t.…
@roz_davies
16 December 2015 20:46
@Laconic_doc do you really believe these are barriers or are the fundamental issue cultural/power based/fear? #wedocs q4
@Chris5anne
16 December 2015 20:46
@ksspsc @fran_ohara @WeDocs Recruit for skills & experience so person becomes embedded in strategic view #WeDocs
@Laconic_doc
16 December 2015 20:46
Q4 when LTCs cross agencies (eg mental/physical; health/social; 1°/2°, &c) it gets *really* complex!! #wedocs
@dr_shibley
16 December 2015 20:47
@WeDocs @roz_davies i'd like to see more of a steer from health and wellbeing boards promoting wellbeing s.1 Care Act 2014 #WeDocs
@Chris5anne
16 December 2015 20:47
RT @gbrgsy: #WeDocs Absolutely!! https://t.co/WwbkYgZgLU patients as partners in implementing & evaluating quality improvements https://t.…
@Jneildwy
16 December 2015 20:47
@helenfindlay @HelenHSAUK @WeDocs @sm_partnership I am sorry about that, current training too hospital bed focussed. Paternalistic #WeDocs
@griffglen
16 December 2015 20:47
Hi @roz_davies what is the best real example of co-production you're aware of and is it repeatable #Wedocs
@WeDocs
16 December 2015 20:47
Agree #WeDocs https://t.co/RcjKUiqbWM
@helenfindlay
16 December 2015 20:47
RT @WeDocs: Do we need to change Doctors training? #WeDocs https://t.co/UwhHy53r62
@LeighAKendall
16 December 2015 20:47
@roz_davies @WeDocs definitely, social media offers such incredible opportunities for networking, breaks down barriers #WeDocs
@BPDFFS
16 December 2015 20:47
@WeDocs @roz_davies we need more #patientleaders they enable they give voice also need to listen better to people who have no voice #WeDocs
@irisbenson100
16 December 2015 20:47
@WeDocs @roz_davies @RecoverySheff #WeDocs really agree putting co production and our patients and carers at the heart of everything we do
@skipperwales
16 December 2015 20:47
#WeDocs does strict adherence to guidelines eg NICE prejudice negotiation and agreeing a shared approach?
@GleefulKaz
16 December 2015 20:47
#WeDocs I can be partner 1) in own care as a supported self manager. 2) with other Pts in peer support, 3) in strategy 4) in co design
@roz_davies
16 December 2015 20:47
A fair and good challenge here #wedocs https://t.co/ymTQJHoc9B
@helenfindlay
16 December 2015 20:47
RT @PilgrimPip: One of the first steps towards co-production #WeDocs https://t.co/wyOxe06Z7f
@WeDocs
16 December 2015 20:47
#WeDocs 'Patients as Partners' currently chatting very very chatty https://t.co/l6t2ZCAiYL
@Nicki_Haywood
16 December 2015 20:47
RT @Laconic_doc: With kindness, concern, respect, good comms, & some technical knowledge, we can move mountains!! #wedocs
@helenfindlay
16 December 2015 20:47
RT @Laconic_doc: With kindness, concern, respect, good comms, & some technical knowledge, we can move mountains!! #wedocs
@Laconic_doc
16 December 2015 20:48
Just my starter for 10! RT @roz_davies: @Laconic_doc do you really believe these are barriers or cultural/power based/fear? #wedocs q4
@RichardRecover
16 December 2015 20:48
#WeDocs totally because we all have different functioning style, so types of inclusion events cover a broader base https://t.co/mod27jDF3M
@sm_partnership
16 December 2015 20:48
@Jneildwy @pauljebb1 @WeDocs @helenfindlay @HelenHSAUK who delivers it to patients? How abt other pts ? Ask @GleefulKaz #WeDocs
@annedraya
16 December 2015 20:48
@Anna__Ludvigsen @olliehart7 use your nurses as a resource in making the shift- this is how we are trained! #wedocs
@SP_Duckworth
16 December 2015 20:48
@WeDocs It was slightly in jest and the evidence of benefit is mixed. But a key test of medics willingness to give power away. #WeDocs
@RNeilABlack
16 December 2015 20:48
RT @GleefulKaz: #WeDocs I can be partner 1) in own care as a supported self manager. 2) with other Pts in peer support, 3) in strategy 4) i…
@dr_shibley
16 December 2015 20:48
RT @roz_davies: A fair and good challenge here #wedocs https://t.co/ymTQJHoc9B
@Petra_OB
16 December 2015 20:48
RT @gbrgsy: #WeDocs Absolutely!! https://t.co/WwbkYgZgLU patients as partners in implementing & evaluating quality improvements https://t.…
@PilgrimPip
16 December 2015 20:48
@gbrgsy Maybe some evidence of benefits of co-production here?https://t.co/sk2vkSR3rs #WeDocs
@Jneildwy
16 December 2015 20:48
@helenfindlay @HelenHSAUK @WeDocs @sm_partnership Send trainee to support group outside hospital.Humbling,reverse power relationship #WeDocs
@LeighAKendall
16 December 2015 20:49
@Imonlyslightly @annedraya @lizcharalambou no that's more likely to be tokenism ????? #WeDocs
@BPDFFS
16 December 2015 20:49
@gbrgsy I would be interested in seeing that it's really important work #wedocs
@roz_davies
16 December 2015 20:49
@griffglen I think @amirhannan and @ingridbrindle have #coproduction running thru the bloodstream of what they do! #WeDocs
@WeDocs
16 December 2015 20:49
#patientleaders #coproduction #WeDocs https://t.co/kYFEbc7yjR
@TinyTonyH
16 December 2015 20:49
@Jneildwy I congratulate you & "writing to patient with no jargon after any visit" @WeDocs @pharmerfour #WeDocs
@madeofbeauty
16 December 2015 20:49
RT @GleefulKaz: #WeDocs I can be partner 1) in own care as a supported self manager. 2) with other Pts in peer support, 3) in strategy 4) i…
@WeDocs
16 December 2015 20:49
RT @irisbenson100: @WeDocs @roz_davies @RecoverySheff #WeDocs really agree putting co production and our patients and carers at the heart o…
@roz_davies
16 December 2015 20:49
RT @irisbenson100: @WeDocs @roz_davies @RecoverySheff #WeDocs really agree putting co production and our patients and carers at the heart o…
@WeDocs
16 December 2015 20:49
Love what you are saying but please use #wedocs or only @wedocs ( aka @AlysColeKing & @OlwenOlwen ) can see! #WeDocs
@Chris5anne
16 December 2015 20:49
@fran_ohara I don't really want to be 'put' anywhere just be an equal member taking valued part in shared conversation #WeDocs
@davidcragg
16 December 2015 20:49
Finally back from my hospital appointment so I can catch up on the #wedocs chat!
@sm_partnership
16 December 2015 20:49
@Jneildwy @helenfindlay @HelenHSAUK @WeDocs is that because seen as easier to be paternalistic? Hopefully they'll do as I say! #WeDocs
@gbrgsy
16 December 2015 20:49
#wedocs & funders now look to fund coproduction/codesign as key 2 successful implementation https://t.co/zcckf7wWrf https://t.co/SHYLGEzigY
@Chris5anne
16 December 2015 20:49
RT @gbrgsy: @BPDFFS #wedocs getting there; recent feasibility trials & ongoing RCTs of coproduced/codesigned interventions. Evidence framed…
@Laconic_doc
16 December 2015 20:49
Happy chatty pts suggest coproduction happening! MT @WeDocs: #WeDocs 'Pts as Partners' currently chatting very very chatty
@LeighAKendall
16 December 2015 20:49
RT @TinyTonyH: @Jneildwy I congratulate you & "writing to patient with no jargon after any visit" @WeDocs @pharmerfour #WeDocs
@scampbellgray
16 December 2015 20:50
RT @roz_davies: @WeDocs #wedocs must also make the point that the value of #coproduction is not just offline. Should also be applied online!
@DrLynneStobbart
16 December 2015 20:50
RT @gbrgsy: #wedocs & funders now look to fund coproduction/codesign as key 2 successful implementation https://t.co/zcckf7wWrf https://t.c…
@Chris5anne
16 December 2015 20:50
RT @roz_davies: @Laconic_doc do you really believe these are barriers or are the fundamental issue cultural/power based/fear? #wedocs q4
@LeighAKendall
16 December 2015 20:50
RT @WeDocs: #patientleaders #coproduction #WeDocs https://t.co/kYFEbc7yjR
@fran_ohara
16 December 2015 20:50
@Chris5anne good point, bad language choice, inviting people to be part of a conversation #wedocs
@WeGPNs
16 December 2015 20:50
Exactly.... #WeDocs https://t.co/OhBOO3ZA7Z
@helenfindlay
16 December 2015 20:50
@WeDocs Yes! More emphasis & time on comms training - it's a skill & can be learnt - so imp in relationships w other HCPs & patients #WeDocs
@OCDTrudy
16 December 2015 20:50
@sm_partnership @WeDocs We come up with workable suggestions for ways to resolve the issue after doing our research. #WeDocs
@RNeilABlack
16 December 2015 20:50
RT @TinyTonyH: @pharmerfour @WeDocs "most effective way to empower patients"? Write your notes to the patient for the patient #WeDocs
@notjustaheadach
16 December 2015 20:51
RT @annedraya: @Anna__Ludvigsen @olliehart7 use your nurses as a resource in making the shift- this is how we are trained! #wedocs
@annedraya
16 December 2015 20:51
@Laconic_doc @WeDocs Twitter is a fantastic example of coproduction in action #wedocs
@RNeilABlack
16 December 2015 20:51
RT @Laconic_doc: With kindness, concern, respect, good comms, & some technical knowledge, we can move mountains!! #wedocs
@Chris5anne
16 December 2015 20:51
@fran_ohara It's used frequently I would just question what do we really mean? #WeDocs
@gosia_bal
16 December 2015 20:51
#WeDocs Q3 what works well? Active listening,mutual respect,trusting relationship!
@fran_ohara
16 December 2015 20:51
& a model process perhaps designed with non-health professionals to create spaces for people to have a voice #wedocs https://t.co/d3tHNGEcgX
@WeDocs
16 December 2015 20:51
Q5. Great chat! Lets finish on a high note! How can we overcome the barriers + some ‘top tips’ to take away and implement tomorrow #WeDocs
@sm_partnership
16 December 2015 20:51
@Jneildwy @helenfindlay @HelenHSAUK @WeDocs I have trained many docs/nurses..not all like it! Definitely power shift #WeDocs
@WeDocs
16 December 2015 20:51
RT @PilgrimPip: @gbrgsy Maybe some evidence of benefits of co-production here?https://t.co/sk2vkSR3rs #WeDocs
@OCDTrudy
16 December 2015 20:51
@maddogmcardle We interview both staff and SUs and views of both are taken into account #WeDocs
@LeighAKendall
16 December 2015 20:51
@WeDocs @BPDFFS @roz_davies I'm vocal on behalf of bereaved parents who feel they have no voice #WeDocs #patientleaders #HugosLegacy
@Chris5anne
16 December 2015 20:51
RT @annedraya: @Laconic_doc @WeDocs Twitter is a fantastic example of coproduction in action #wedocs
@roz_davies
16 December 2015 20:52
@griffglen also I notice @RNeilABlack is tweeting on #WeDocs he has done some brilliant work here as has @AlexYLDiabetes
@Laconic_doc
16 December 2015 20:52
I imagine it's diff as pt to be involved with coproduction if anxious/frightened/shy - many pts are one or more of these... #wedocs
@RichardRecover
16 December 2015 20:52
#wedocs different views must always be heard everyone matters so the broader the base of inclusion the better https://t.co/fqX3nFeRtB
@Jneildwy
16 December 2015 20:52
@WeDocs SoMe can create community HCP and patients. Conversations develop then as trust develops, partnership starts. Early days.#WeDocs
@WeDocs
16 December 2015 20:52
Why not send the consultant? #WeDocs https://t.co/xIsOdMzX4b
@WeDocs
16 December 2015 20:52
RT @fran_ohara: & a model process perhaps designed with non-health professionals to create spaces for people to have a voice #wedocs https:…
@nickisnpdx
16 December 2015 20:52
RT @DavidGilbert43: Which is why patients need real (executive) power in orgs #WeDocs otherwise window dressing https://t.co/8zFgJDEYyc htt…
@roz_davies
16 December 2015 20:52
RT @leighakendall: @WeDocs @BPDFFS @roz_davies I'm vocal on behalf of bereaved parents who feel they have no voice #WeDocs #patientleaders …
@KSS_PSC
16 December 2015 20:52
@GleefulKaz #wedocs that's excellent and we owe it to PTs to support development to enable that
@notjustaheadach
16 December 2015 20:52
RT @WeDocs: Agree #WeDocs https://t.co/RcjKUiqbWM
@T1Sweetie
16 December 2015 20:52
RT @leighakendall: @WeDocs @BPDFFS @roz_davies I'm vocal on behalf of bereaved parents who feel they have no voice #WeDocs #patientleaders …
@RCPCH_and_Us
16 December 2015 20:52
@WeDocs great comments everyone! For us co-production with CYP = working with as opposed for, reinforcing the concept of co-creators #WeDocs
@gosia_bal
16 December 2015 20:53
@FoxHedgehog @WeDocs power shift can be difficult???#WeDocs
@fran_ohara
16 December 2015 20:53
Y & people to have right tools to communicate well, we see this actually happening https://t.co/nHeQ1vnVDO #wedocs https://t.co/gw93zFPhHF
@sm_partnership
16 December 2015 20:53
@OCDTrudy @WeDocs so it's what I call problem solving? Who decides it's a workable solution? #WeDocs
@WeDocs
16 December 2015 20:53
RT @Jneildwy: @sm_partnership @helenfindlay @HelenHSAUK @WeDocs I agree you should be. You live it, we should listen, coach not tell #WeDocs
@WeDocs
16 December 2015 20:53
RT @Jneildwy: We encourage in paediatric care, even parents in local anaesthetic operations. Very positive#WeDocs https://t.co/HbeRGXfmq7
@LeighAKendall
16 December 2015 20:53
@helenfindlay @WeDocs comms skills - eg active listening crucial, helps build trust, rapport, understanding between pt/HCP #WeDocs
@Anna__Ludvigsen
16 December 2015 20:53
#wedocs yes! But only if nurses/MDT viewed with parity of esteem as well! Suggest combined training when poss https://t.co/4CvpZPsIDr
@khelmioskoui
16 December 2015 20:53
RT @WeDocs: #patientleaders #coproduction #WeDocs https://t.co/kYFEbc7yjR
@OCDTrudy
16 December 2015 20:53
@WeDocs Get the backing of the trust and use #EBCD Experience Based Co-Design working together as a team. No them & us #WeDocs
@Jneildwy
16 December 2015 20:53
@sm_partnership @helenfindlay @HelenHSAUK @WeDocs A lot is fear. Fear of getting it wrong, of exposing lack knowledge, failing. #WeDocs
@gbrgsy
16 December 2015 20:53
See https://t.co/h3R2M2EEt5 and https://t.co/r20WAM606I for two examples #WeDocs https://t.co/GqDdtGnscJ
@nickisnpdx
16 December 2015 20:53
@nxtstop1 #EINpower #wedocs
@WeGPNs
16 December 2015 20:53
@irisbenson100 @WeDocs @roz_davies @RecoverySheff 1/ not just spectators in Care..#wedocs
@nickisnpdx
16 December 2015 20:54
RT @nxtstop1: T1 Maybe,but if so must b addressed/removed. MDs have more training, patients know themselves. On same side! #wedocs https://…
@annedraya
16 December 2015 20:54
@Laconic_doc yep. Anxiety can be a huge barrier. I think it would help if patients were explicitly invited- raise the subject! #wedocs
@Laconic_doc
16 December 2015 20:54
Q5 as a doc, imagine the pt as your mum/sister/daughter etc - how would they want to be approached/involved? #wedocs
@Patient_Leader
16 December 2015 20:54
Longing for an event that brings HCP & Patients together to showcase what's already happening & build new working relationships ?? #wedocs
@DaveRossd
16 December 2015 20:54
RT @TinyTonyH: @Jneildwy I congratulate you & "writing to patient with no jargon after any visit" @WeDocs @pharmerfour #WeDocs
@Jneildwy
16 December 2015 20:54
RT @Laconic_doc: Happy chatty pts suggest coproduction happening! MT @WeDocs: #WeDocs 'Pts as Partners' currently chatting very very chat…
@WeDocs
16 December 2015 20:54
RT @Laconic_doc: Happy chatty pts suggest coproduction happening! MT @WeDocs: #WeDocs 'Pts as Partners' currently chatting very very chat…
@ANKHEmpress
16 December 2015 20:54
#wedocs @RichardRecover Absolutely agree as every can be an 'active' patient at some point
@gbrgsy
16 December 2015 20:54
RT @PilgrimPip: @gbrgsy Maybe some evidence of benefits of co-production here?https://t.co/sk2vkSR3rs #WeDocs
@helenfindlay
16 December 2015 20:54
@Jneildwy @HelenHSAUK @WeDocs @sm_partnership And involve patients in training of HCPs - don't be frightened to ask them! #WeDocs
@olliehart7
16 December 2015 20:54
#WeDocs q4. Measures that capture successful person centred care help- PAM, Collaborate, CARE etc- measurement implies value
@WeDocs
16 December 2015 20:54
@TinyTonyH @pharmerfour would you be concerned re: info via mail or prefer e-mail #security #WeDocs
@LeighAKendall
16 December 2015 20:54
@Laconic_doc yes being in a room of HCPs, esp if we're all talking fluent NHS can be intimidating, need to be mindful of mindset #WeDocs
@WeGPNs
16 December 2015 20:54
@irisbenson100 @WeDocs @roz_davies @RecoverySheff 2/ patients will take & make decisions 2 influence fellow citizens #wedocs
@roz_davies
16 December 2015 20:54
@Laconic_doc it's difficult but not impossible to lift barriers with thought, time and effort. #wedocs
@RichardRecover
16 December 2015 20:54
#wedocs im recovering because the four of us worked as a team. We all listened. We all set boundaries. we were all respectful
@LeighAKendall
16 December 2015 20:54
RT @RichardRecover: #wedocs different views must always be heard everyone matters so the broader the base of inclusion the better https://…
@helenfindlay
16 December 2015 20:54
RT @WeDocs: How do we prevent this? @irisbenson100 can tell us how she did #WeDocs https://t.co/E6HpfdCGkh
@DaveRossd
16 December 2015 20:54
RT @RichardRecover: #wedocs im recovering because the four of us worked as a team. We all listened. We all set boundaries. we were all resp…
@WeDocs
16 December 2015 20:54
RT @OCDTrudy: @WeDocs Get the backing of the trust and use #EBCD Experience Based Co-Design working together as a team. No them & us #WeDocs
@fran_ohara
16 December 2015 20:54
Q5 Involve non-health people - commissioning process needs to change, make easier to work with right people #wedocs https://t.co/Mg68YunWDO
@gbrgsy
16 December 2015 20:55
RT @OCDTrudy: @WeDocs Get the backing of the trust and use #EBCD Experience Based Co-Design working together as a team. No them & us #WeDocs
@Chris5anne
16 December 2015 20:55
@WeDocs Check organisation for where patient/ carer voice is heard from board to on the ground #WeDocs
@BinitaKane
16 December 2015 20:55
@gbrgsy #WeDocs Absolutely the way forward but takes time & resource to do properly. All too often pt involvement seen as 'tick box' ex.
@maddogmcardle
16 December 2015 20:55
Lots of great examples to learn from! #adopt&spread #wedocs https://t.co/WxNDb5aeex
@WeDocs
16 December 2015 20:55
Fantastic comment #wedocs need support https://t.co/Wz1re3ZkaV
@sm_partnership
16 December 2015 20:55
@Patient_Leader we did this in co-creating health...a project ahead of its time! #WeDocs
@LeighAKendall
16 December 2015 20:55
@helenfindlay @Jneildwy @HelenHSAUK @WeDocs @sm_partnership yes it can be enlightening for both sides #WeDocs
@4AdsthePoet
16 December 2015 20:55
RT @Jneildwy: We encourage in paediatric care, even parents in local anaesthetic operations. Very positive#WeDocs https://t.co/HbeRGXfmq7
@OCDTrudy
16 December 2015 20:55
@sm_partnership @WeDocs It's like designing in industry, we come up with a workable model that can be tested Joint decision #WeDocs
@BPDFFS
16 December 2015 20:55
@gbrgsy thank you for the links #wedocs : )
@WeDocs
16 December 2015 20:56
#WeDocs phew only 5 minutes left - certainly some brilliant #coproduction conversations going on.
@madeofbeauty
16 December 2015 20:56
.@WeDocs It about who does the talking and who does the listening. #coproduction from the clinic, bedside, boardroom , etc. #WeDocs
@merryvarney
16 December 2015 20:56
Really interesting reading the #WeDocs chat tonight @WeDocs
@WeDocs
16 December 2015 20:56
Yes need to learn from each other #WeDocs https://t.co/GJbXSaOXBi
@OCDTrudy
16 December 2015 20:56
RT @maddogmcardle: Lots of great examples to learn from! #adopt&spread #wedocs https://t.co/WxNDb5aeex
@WeDocs
16 December 2015 20:56
RT @gbrgsy: See https://t.co/h3R2M2EEt5 and https://t.co/r20WAM606I for two examples #WeDocs https://t.co/GqDdtGnscJ
@PilgrimPip
16 December 2015 20:56
Listening, respect, boundaries, working together all essential to co-production #wedocs https://t.co/iwKbh3dcaL
@fran_ohara
16 December 2015 20:56
We work with many LHB to do, it can be done, you need people with budget to be up for trying it #wedocs https://t.co/vrBKQaEyzJ
@Chris5anne
16 December 2015 20:56
@WeDocs What meetings, events are planned re patients/carers - are they invited too? If not why not? #WeDocs
@helenfindlay
16 December 2015 20:56
RT @fran_ohara: Y & people to have right tools to communicate well, we see this actually happening https://t.co/nHeQ1vnVDO #wedocs https://…
@Jneildwy
16 December 2015 20:56
@sm_partnership @helenfindlay @HelenHSAUK @WeDocs Requires a level of self confidence and social maturity that many do not have..yet #WeDocs
@Laconic_doc
16 December 2015 20:56
Laughter is a great tool for breaking down barriers... MT @WeGPNs: patients will take & make decisions 2 influence fellow citizens #wedocs
@LeighAKendall
16 December 2015 20:56
RT @olliehart7: #WeDocs q4. Measures that capture successful person centred care help- PAM, Collaborate, CARE etc- measurement implies value
@Chris5anne
16 December 2015 20:56
RT @Anna__Ludvigsen: #wedocs yes! But only if nurses/MDT viewed with parity of esteem as well! Suggest combined training when poss https://…
@LeighAKendall
16 December 2015 20:57
RT @ANKHEmpress: #wedocs @RichardRecover Absolutely agree as every can be an 'active' patient at some point
@luckockp
16 December 2015 20:57
RT @roz_davies: @griffglen I think @amirhannan and @ingridbrindle have #coproduction running thru the bloodstream of what they do! #WeDocs
@Chris5anne
16 December 2015 20:57
RT @OCDTrudy: @WeDocs Get the backing of the trust and use #EBCD Experience Based Co-Design working together as a team. No them & us #WeDocs
@WeDocs
16 December 2015 20:57
Yes 'stop 'them & us' culture #WeDocs https://t.co/F4EM0a4HaF
@roz_davies
16 December 2015 20:57
@WeDocs #wedocs Q5. Work with ppl/organisations who already have relationships of trust with ppl/communities
@KSS_PSC
16 December 2015 20:57
@WeDocs @olliehart7 #wedocs it shld be in training, as pers exp as carer my recent exp felt like was behind 6" glass, no one heard me
@DavidGilbert43
16 December 2015 20:57
Bottom line: A patient-centred NHS without patients as partners running it is akin to a women-centred organisation run by men. #WeDocs
@WeDocs
16 December 2015 20:57
RT @PilgrimPip: Listening, respect, boundaries, working together all essential to co-production #wedocs https://t.co/iwKbh3dcaL
@SarahNeill7
16 December 2015 20:57
RT @KathEvans2: @HelenHSAUK @WeDocs ladders or wheels fab blog by @SpcialNdsJungle https://t.co/C8P0VTeZgq #wedocs
@drpritpalsingh
16 December 2015 20:57
#WeDocs co-production is a mindset / attitude
@Jneildwy
16 December 2015 20:57
RT @RichardRecover: #wedocs different views must always be heard everyone matters so the broader the base of inclusion the better https://…
@nxtstop1
16 December 2015 20:57
RT @PilgrimPip: Listening, respect, boundaries, working together all essential to co-production #wedocs https://t.co/iwKbh3dcaL
@annedraya
16 December 2015 20:57
@WeDocs @irisbenson100 raises important point- to co-produce you need 2 sides! But many are being left without any support in MH #wedocs
@TinyTonyH
16 December 2015 20:57
@WeDocs @pharmerfour e-mail, upload direct to my own health data record. Having transparency more important to me than #security #WeDocs
@OCDTrudy
16 December 2015 20:57
@sm_partnership @WeDocs We do extensive research with both staff & SUs so are aware of what is & isn't possible. Need 2 b realistic #WeDocs
@RebeccaCrossle2
16 December 2015 20:57
RT @Laconic_doc: With kindness, concern, respect, good comms, & some technical knowledge, we can move mountains!! #wedocs
@notjustaheadach
16 December 2015 20:57
RT @Chris5anne: @WeDocs What meetings, events are planned re patients/carers - are they invited too? If not why not? #WeDocs
@olliehart7
16 December 2015 20:57
#WeDocs Q5- patient voice most powerful- make effort to hear all - loud and quiet- in both planning and direct care.
@gbrgsy
16 December 2015 20:57
@BinitaKane #WeDocs in our experience once done well once then leads to wider adoption, bottom up rather than top down and locally led
@merryvarney
16 December 2015 20:58
RT @OlwenOlwen: #coproduction #WeDocs Patients as Partners Olwen here from N Wales https://t.co/OG5nsX3oav
@WeDocs
16 December 2015 20:58
Vital provide the correct support + coaching to ptients - do Drs need support & coaching too? #WeDocs https://t.co/Wz1re3ZkaV
@roz_davies
16 December 2015 20:58
@WeDocs #wedocs Q5 Treat all people with equal respect and act with thoughtful purpose
@myers3411
16 December 2015 20:58
RT @roz_davies: @WeDocs #wedocs must also make the point that the value of #coproduction is not just offline. Should also be applied online!
@gosia_bal
16 December 2015 20:58
@Anna__Ludvigsen @annedraya @olliehart7 fair point! Intetprofessional education could be answer towards #coproduction,power shift #WeDocs
@RNeilABlack
16 December 2015 20:58
RT @WeDocs: Yes 'stop 'them & us' culture #WeDocs https://t.co/F4EM0a4HaF
@OlwenOlwen
16 December 2015 20:58
@fran_ohara @Patient_Leader I've gained so much from #coproduction meet ups #WeDocs
@LeighAKendall
16 December 2015 20:58
@Patient_Leader I spoke at an RSM event in October - patients as new educators re working with docs - happens in pockets #WeDocs
@Chris5anne
16 December 2015 20:58
RT @RichardRecover: #wedocs im recovering because the four of us worked as a team. We all listened. We all set boundaries. we were all resp…
@RebeccaCrossle2
16 December 2015 20:58
RT @PilgrimPip: One of the first steps towards co-production #WeDocs https://t.co/wyOxe06Z7f
@Chris5anne
16 December 2015 20:58
RT @fran_ohara: Q5 Involve non-health people - commissioning process needs to change, make easier to work with right people #wedocs https:/…
@Laconic_doc
16 December 2015 20:58
Need more listening & less talking! MT @madeofbeauty: .@WeDocs It about who does the talking and who does the listening. #WeDocs
@nxtstop1
16 December 2015 20:58
RT @olliehart7: #WeDocs Q2 recognise this is a big shift in docs value system. We were trained as problem solvers. Co-P requires us redefin…
@pharmerfour
16 December 2015 20:58
@WeDocs @BPDFFS @roz_davies a good example of a patient leader is @RenzaS #WeDocs
@LeighAKendall
16 December 2015 20:58
RT @PilgrimPip: Listening, respect, boundaries, working together all essential to co-production #wedocs https://t.co/iwKbh3dcaL
@fran_ohara
16 December 2015 20:58
@OCDTrudy @sm_partnership @WeDocs Y use bus approach to create space, communicate well & invite right people #wedocs https://t.co/U3EPiSTCjB
@Imonlyslightly
16 December 2015 20:58
@Jneildwy @helenfindlay @HelenHSAUK @WeDocs @sm_partnership To have best life possible; not just control disease- needs partnership #WeDocs
@RichardRecover
16 December 2015 20:58
#wedocs its about doing the same from the top down, https://t.co/sR95Pj1AWL
@RNeilABlack
16 December 2015 20:58
@DavidGilbert43 Thank you: my favourite tweet of the night! #WeDocs
@ANKHEmpress
16 December 2015 20:58
#wedocs @BinitaKane @gbrgsy sometimes it is about reordering and recreating more efficiently with the resources we have?
@sm_partnership
16 December 2015 20:58
@Laconic_doc @TinyTonyH yes elicit their agenda! If they're unsure support them to do this-and don't forget your own agenda #wedocs
@helenfindlay
16 December 2015 20:58
RT @leighakendall: @helenfindlay @Jneildwy @HelenHSAUK @WeDocs @sm_partnership yes it can be enlightening for both sides #WeDocs
@notjustaheadach
16 December 2015 20:58
Indeed they do; but will they admit it? #wedocs https://t.co/sI8BFn4TY2
@KukkaVanska
16 December 2015 20:59
RT @HelenHSAUK: Some thoughts on what it is @wedocs #wedocs https://t.co/PC93RMdbpz
@KSS_PSC
16 December 2015 20:59
Has anyone done any pt co production on safety? Any other PSCs on here? #WeDocs
@DavidGilbert43
16 December 2015 20:59
£Millions invested in clinical and managerial leadership. Zilch for patient leadership. #WeDocs
@roz_davies
16 December 2015 20:59
@WeDocs #wedocs Q5. Most importantly ensure all people feel valued and listened too.
@olliehart7
16 December 2015 20:59
#WeDocs q5- reorganise system- using IT and proactive planning to allow true priorities of patients to be prioritised and solutions co-P
@RNeilABlack
16 December 2015 20:59
RT @roz_davies: @WeDocs #wedocs Q5 Treat all people with equal respect and act with thoughtful purpose
@Chris5anne
16 December 2015 20:59
RT @fran_ohara: We work with many LHB to do, it can be done, you need people with budget to be up for trying it #wedocs https://t.co/vrBKQa…
@luckockp
16 December 2015 20:59
RT @leighakendall: @WeDocs @BPDFFS @roz_davies I'm vocal on behalf of bereaved parents who feel they have no voice #WeDocs #patientleaders …
@Chris5anne
16 December 2015 20:59
RT @WeDocs: Yes 'stop 'them & us' culture #WeDocs https://t.co/F4EM0a4HaF
@OlwenOlwen
16 December 2015 20:59
@Chris5anne patients ,partners, carers all welcome #coproduction changes perspective & dynamic #humbling #WeDocs
@Anna__Ludvigsen
16 December 2015 20:59
Always asking 'how can I help' aiming to serve the pt while respecting boundaries (pofess/personal/ethical) #wedocs https://t.co/r1OA1GJs2I
@davidcragg
16 December 2015 20:59
Trust, honesty and respect - from there anything is possible #wedocs
@RNeilABlack
16 December 2015 20:59
RT @fran_ohara: @OCDTrudy @sm_partnership @WeDocs Y use bus approach to create space, communicate well & invite right people #wedocs https:…
@Nicki_Haywood
16 December 2015 20:59
@WeDocs co-production useful were there is little know about a rare condition i.e. MND, working together, learning together #WeDocs




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