#WeEOLC - Tuesday 2nd February 2016 8pm (GMT Standard Time)
PREFERRED PLACE OF DEATH: WHAT DOES THAT MEAN?
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Last year the National Institute for Health Research Dissemination centre (@NIHR_DC) published the Better Endings review of NIHR funded end of life studies. The review aimed to help those delivering, planning or using end of life services to ensure that the right care is delivered in the right place at the right time. You can read more about the review here http://www.ehospice.com/uk/Default/tabid/10697/ArticleId/17704/ and access the ‘Better Endings’ End of Life Themed Review here http://www.dc.nihr.ac.uk/highlights-and-reviews/end-of-life-care.
This got us thinking at @WeEOLC......
- What influences and enables people to discuss and die in their preferred place?
- Is home always the preferred place of death?
We are delighted that Wei Gao and Kristian Pollock, authors of two of the Better Endings studies will be sharing their thoughts on how they carried out their research as well as their findings. This tweet chat will therefore be of interest to patients, families, carers, clinicians, educators and researchers.
Geographical and Temporal Understanding In place of Death in England (Gao et al 2014)
Gao and colleagues (2014) carried out a large population based study which reviewed over 13 million deaths in England between 1984 and 2010. The study reported that there were marked inequalities in the pattern of where people die e.g.people over 75, those who were single, divorced or widowed and people living in more deprived areas were more likely to die in hospital. The study also highlighted that one should not always assume that preferred place of death was home as some people (e.g. older people or those with specific conditions) may prefer to die in hospital or residential home. You can read this study in full here www.journalslibrary.nihr.ac.uk/hsdr/volume-2/issue-42
Communication on advance care planning at end of life (Pollock and Wilson 2015)
Pollock and Wilson (2015) looked at how patients and health care professionals initiated discussions about advance care planning. They highlighted the provisional, shifting and provisional wishes of many patients about their future care, health care professionals’ reticence to start conversations, a focus on documentation but also other issues such as confusion of terminology and intent of advance care planning. Moreover, they highlighted that home as the preferred place of death has become the proxy marker for successful advance care planning and end of life care,despite evidence that situational factors underline such decisions including the desire to die at home decreases with age and severity of illness (Pollock andWilson 2015). You can read this study in full here www.journalslibrary.nihr.ac.uk/hsdr/volume-3/issue-31#abstract
These are important findings and discussions so....
Join us on Tuesday 2nd February 2016:8-9pm#WeEOLC
Preferred Place of Death: What does that mean?
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To access the ‘Better Endings’ End of Life Themed Review use this link:
http://www.dc.nihr.ac.uk/highlights-and-reviews/end-of-life-care
Chat Summary
Coming soon
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#WeEOLC transcript
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@heblau
02 February 2016 20:00
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Good evening all - Laura here in Hebden Bridge, waving not drowning #WeEOLC |
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@WeEOLC
02 February 2016 20:00
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Welcome all 2 tonight’s chat re PPD-preferred place of death – don’t forget #WeEOLC to chat & #EBP for resources https://t.co/6sLv2LlwoV |
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@Gao_Wei
02 February 2016 20:01
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Hello all #WeEolc |
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@GSFbay
02 February 2016 20:01
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#WeEOLC been looking forward to this chat, great topic |
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@WeEOLC
02 February 2016 20:01
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@WeEOLC team are raring to go #WeEOLC @learnhospice @heblau @BridgetJohnst @Gao_Wei @PollockKristian @NIHR_DC https://t.co/OZbjynwsYC |
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@kennygibsonnhs
02 February 2016 20:01
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@WeDistrictNurse @WeEOLC #WeEOLC preferred place of death? - Home when you can, every family counts https://t.co/ugnBTrycPO |
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@BridgetJohnst
02 February 2016 20:01
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RT @WeEOLC: Welcome all 2 tonight’s chat re PPD-preferred place of death – don’t forget #WeEOLC to chat & #EBP for resources https://t.co/6… |
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@WeEOLC
02 February 2016 20:01
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TY to @NIHR_DC @Gao_Wei and @PollockKristian 4 joining us – lets all say hello & who we are #WeEOLC |
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@LearnPEOLC
02 February 2016 20:02
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RT @WeEOLC: Welcome all 2 tonight’s chat re PPD-preferred place of death – don’t forget #WeEOLC to chat & #EBP for resources https://t.co/6… |
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@NursingTimes
02 February 2016 20:02
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#WeEOLC Twitter chat on end of life care just getting underway, hosted by @WeEOLC - find out about recent research findings with #WeEOLC |
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@LearnPEOLC
02 February 2016 20:02
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RT @Gao_Wei: Hello all #WeEolc |
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@ctsinclair
02 February 2016 20:02
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Hello #WeEOLC, Christian Sinclair palliative care doc in Kansas City (middle of the US), editor of @pallimed. 1st time at this chat #weeolc |
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@BridgetJohnst
02 February 2016 20:02
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#WeEOLC waving from Nottingham, wifi a bit slow |
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@LearnPEOLC
02 February 2016 20:02
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RT @GSFbay: #WeEOLC been looking forward to this chat, great topic |
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@LearnPEOLC
02 February 2016 20:02
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RT @WeEOLC: @WeEOLC team are raring to go #WeEOLC @learnhospice @heblau @BridgetJohnst @Gao_Wei @PollockKristian @NIHR_DC https://t.co/OZb… |
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@BridgetJohnst
02 February 2016 20:02
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RT @WeEOLC: @WeEOLC team are raring to go #WeEOLC @learnhospice @heblau @BridgetJohnst @Gao_Wei @PollockKristian @NIHR_DC https://t.co/OZb… |
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@PhilBallRN
02 February 2016 20:02
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Looking forward to the #weeolc chat @WeEOLC am ready, with #peppermintbarktea to refresh, *waves* #EveningAll ?? |
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@WeEOLC
02 February 2016 20:02
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@ctsinclair @pallimed Welcome from across the pond #WeEOLC |
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@heblau
02 February 2016 20:02
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@ctsinclair @pallimed Welcome from across the pond #WeEOLC |
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@Gao_Wei
02 February 2016 20:02
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Gao Wei here, Senior Lecturer in Statistics & Epidemiology @King's #WeEolc |
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@BridgetJohnst
02 February 2016 20:02
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@kennygibsonnhs @WeDistrictNurse @WeEOLC lovely picture, thank you #WeEOLC |
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@CElliumK
02 February 2016 20:02
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RT @WeEOLC: Welcome all 2 tonight’s chat re PPD-preferred place of death – don’t forget #WeEOLC to chat & #EBP for resources https://t.co/6… |
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@LearnPEOLC
02 February 2016 20:03
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Fab picture #WeEOLC @Gao_Wei @PollockKristian https://t.co/9U5FI3Uoy1 |
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@CElliumK
02 February 2016 20:03
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Evening all #WeEolc https://t.co/L3FXRSVMkW |
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@jayrcastillo24
02 February 2016 20:03
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@WeEOLC #WeEOLC I'm from Barchester Healthcare. We deal with people with Dementia and EOL too. |
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@dorcaselambert
02 February 2016 20:03
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Hello #WeEOLC ?????? Not been in a tweet chat for ages! |
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@elleysowerby
02 February 2016 20:03
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Hello @elleysowerby working on a European palliative care project for older adults #WeEOLC https://t.co/BFuuPHAqWp |
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@ctsinclair
02 February 2016 20:03
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@heblau glad to be here! Middle of the afternoon here in KC. #weeolc |
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@NIHRevidence
02 February 2016 20:03
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#WeEOLC Hi all - great to be supporting the tweet chat and hopefully chipping in with some useful links! |
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@WeEOLC
02 February 2016 20:03
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@ctsinclair @Pallimed #WeEOLC @PollockKristian @Gao_Wei good to see u Christian - we enjoy your chats +++ |
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@WeEOLC
02 February 2016 20:04
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RT @NursingTimes: #WeEOLC Twitter chat on end of life care just getting underway, hosted by @WeEOLC - find out about recent research findin… |
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@nxtstop1
02 February 2016 20:04
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hello all, Bernadette Keefe MD, joining from Chapel Hill NC ~ so delighted to be with the community, each one of you ~ #weeolc |
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@drlaurajane
02 February 2016 20:04
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Will dip in if poss! Doc in London interested in #eolc for patients with #COPD #weeolc |
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@Gao_Wei
02 February 2016 20:04
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#WeEOLC working on using routine data to improve EoLC |
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@WeEOLC
02 February 2016 20:04
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#WeEOLC good point and impt to understand why https://t.co/9wDeVMRXf7 |
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@ctsinclair
02 February 2016 20:04
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Glad to see a lot of new names and faces to follow who care about #palliative care. #weeolc |
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@vannapoulter
02 February 2016 20:04
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#WeEOLC I'm new to this looking forward to hearing your views on PPC/PPD @hospicemanager |
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@GSFbay
02 February 2016 20:05
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#WeEOLC Hi, this is @joywharton1 tweeting for our new joint account aimed at supporting our teams in their EOLC work @GSFbay |
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@hospicedoctor
02 February 2016 20:05
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@WeEOLC @NIHR_DC @Gao_Wei @PollockKristian Hi it's Ros at Euston Station - ironic as often told that it's my 'final destination' !! #WeEOLC |
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@BridgetJohnst
02 February 2016 20:05
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Welcome from @learnhospice @heblau and me from @WeEOLC #WeEOLC https://t.co/sDEMEjxfYB |
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@WeEOLC
02 February 2016 20:05
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Here is the link to @Gao_Wei @PollockKristian research #WeEOLC https://t.co/BCyPupfwiO |
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@Gao_Wei
02 February 2016 20:05
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#WeEOLC it is certainly important, thanks @WeEOLC hosting the discussion |
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@shizc1
02 February 2016 20:05
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@WeEOLC @NIHR_DC @Gao_Wei @PollockKristian #weeolc hi from cambs |
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@WeEOLC
02 February 2016 20:05
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@hospicedoctor @NIHR_DC @Gao_Wei @PollockKristian #WeEOLC Hello thanks for joining ! |
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@TaraJLamont
02 February 2016 20:06
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#WeEOLC Tara Lamont here, Southampton University, put together NIHR digest of research on EoL Care https://t.co/6Z5GZ9eos9 |
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@cewalshe
02 February 2016 20:06
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HI Catherine here from @ioelc and editor @PalliativeMedJ #WeEolc |
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@PhilBallRN
02 February 2016 20:06
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Welcome @vannapoulter #WeEolc and tonal, #firsttime chat participants @WeEOLC https://t.co/Gx5KmcByhn |
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@nxtstop1
02 February 2016 20:06
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RT @kennygibsonnhs: @WeDistrictNurse @WeEOLC #WeEOLC preferred place of death? - Home when you can, every family counts https://t.co/ugnBTr… |
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@WeEOLC
02 February 2016 20:06
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@Gao_Wei @BridgetJohnst @PollockKristian @NIHR_DC #weeolc good to see you! |
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@BridgetJohnst
02 February 2016 20:06
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@hospicedoctor @WeEOLC @NIHR_DC @Gao_Wei @PollockKristian not sure that would be my preferred place to die! #WeEolc |
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@WeEOLC
02 February 2016 20:06
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RT @kennygibsonnhs: @WeDistrictNurse @WeEOLC #WeEOLC preferred place of death? - Home when you can, every family counts https://t.co/ugnBTr… |
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@GSFbay
02 February 2016 20:06
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@WeEOLC @learnhospice @WeEOLC @heblau @BridgetJohnst @Gao_Wei @PollockKristian @NIHR_DC #weeolc which picture is you Sarah! |
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@CareHomeEd
02 February 2016 20:06
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#WeEOLC hello, interested to see what we take into the care homes. |
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@WeEOLC
02 February 2016 20:07
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@hospicemanager hello! #WeEOLC |
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@WeEOLC
02 February 2016 20:07
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Lets go Q1: so what's important about PPD-preferred place of death? #WeEOLC @Gao_Wei @PollockKristian |
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@WeEOLC
02 February 2016 20:07
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RT @BridgetJohnst: @kennygibsonnhs @WeDistrictNurse @WeEOLC lovely picture, thank you #WeEOLC |
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@WeEOLC
02 February 2016 20:07
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Evening Chris!! #WeEOLC https://t.co/AKms07TQb5 |
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@Pallimed
02 February 2016 20:08
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RT @WeEOLC: Here is the link to @Gao_Wei @PollockKristian research #WeEOLC https://t.co/BCyPupfwiO |
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@GSFbay
02 February 2016 20:08
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RT @NursingTimes: #WeEOLC Twitter chat on end of life care just getting underway, hosted by @WeEOLC - find out about recent research findin… |
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@Gao_Wei
02 February 2016 20:08
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#WeEOLC I definitely will choose home as my PPD |
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@WeEOLC
02 February 2016 20:08
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@jayrcastillo24 #WeEOLC good to see you! Our chat in March is in EOLC & dementia too! |
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@NIHRevidence
02 February 2016 20:08
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RT @WeEOLC: Lets go Q1: so what's important about PPD-preferred place of death? #WeEOLC @Gao_Wei @PollockKristian |
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@SachaLG
02 February 2016 20:08
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@WeEOLC #WeEOLC Children nearly always want 2 b @ home. We achieved #gooddeath via @GSFCentre @ GPs + MDT @UHSFT. #braintumour Mum |
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@hpmchat
02 February 2016 20:08
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RT @WeEOLC: Lets go Q1: so what's important about PPD-preferred place of death? #WeEOLC @Gao_Wei @PollockKristian |
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@WeEOLC
02 February 2016 20:08
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@elleysowerby @NIHR_DC @Gao_Wei @PollockKristian #WeEOLC hello! tY for joining! |
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@LetsTalkDeath
02 February 2016 20:08
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Q1 - Dying is a social & spritual and not just a medical event - whole family involved #WeEOLC |
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@Gao_Wei
02 February 2016 20:08
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#WeEoLC my family as well. |
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@BridgetJohnst
02 February 2016 20:09
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RT @Gao_Wei: #WeEOLC I definitely will choose home as my PPD |
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@kennygibsonnhs
02 February 2016 20:09
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@BridgetJohnst @WeDistrictNurse @WeEOLC #WeEOLC preferred place to die must be influenced by the dying person https://t.co/tz6myreLf4 |
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@WeEOLC
02 February 2016 20:09
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RT @BridgetJohnst: Welcome from @learnhospice @heblau and me from @WeEOLC #WeEOLC https://t.co/sDEMEjxfYB |
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@NIHRevidence
02 February 2016 20:09
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RT @WeEOLC: Lets go Q1: so what's important about PPD-preferred place of death? #WeEOLC @Gao_Wei @PollockKristian |
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@JillAnneWill
02 February 2016 20:09
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Hi All, #WeEOLC also interested to see what we can take to care homes from this work- anticipatory care planning & unscheduled care |
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@WeEOLC
02 February 2016 20:09
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@Gao_Wei good to have you and @PollockKristian expertise #WeEOLC |
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@heblau
02 February 2016 20:09
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@Gao_Wei For me it depends on what my diagnosis is & who is around me I think #WeEOLC |
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@WeEOLC
02 February 2016 20:09
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@shizc1 @NIHR_DC @Gao_Wei @PollockKristian #WeEOLC hello Shirley! |
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@nxtstop1
02 February 2016 20:09
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Q1 for #weEoLC chat RT @WeEOLC: Lets go Q1: so what's important about PPD-preferred place of death? #WeEOLC @Gao_Wei @PollockKristian |
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@Gao_Wei
02 February 2016 20:09
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#WeEOLC four component of needs @ the end of life: physical, psychological, social and spiritual |
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@WeEOLC
02 February 2016 20:09
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RT @hospicemanager: Welcome @vannapoulter #WeEolc and tonal, #firsttime chat participants @WeEOLC https://t.co/Gx5KmcByhn |
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@drlaurajane
02 February 2016 20:09
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@WeEOLC #weeolc getting preferred place right can facilitate important things to person eg family, own space, skilled nursing.... |
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@heblau
02 February 2016 20:09
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RT @nxtstop1: Q1 for #weEoLC chat RT @WeEOLC: Lets go Q1: so what's important about PPD-preferred place of death? #WeEOLC @Gao_Wei @Polloc… |
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@LetsTalkDeath
02 February 2016 20:09
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RT @nxtstop1: Q1 for #weEoLC chat RT @WeEOLC: Lets go Q1: so what's important about PPD-preferred place of death? #WeEOLC @Gao_Wei @Polloc… |
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@BridgetJohnst
02 February 2016 20:09
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@SachaLG @WeEOLC @GSFCentre @UHSFT thanks Sacha, it's really important to know what family/ parents wish #WeEOLC |
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@WeEOLC
02 February 2016 20:09
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RT @BridgetJohnst: @hospicedoctor @WeEOLC @NIHR_DC @Gao_Wei @PollockKristian not sure that would be my preferred place to die! #WeEolc |
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@BridgetJohnst
02 February 2016 20:10
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RT @kennygibsonnhs: @BridgetJohnst @WeDistrictNurse @WeEOLC #WeEOLC preferred place to die must be influenced by the dying person https://t… |
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@cewalshe
02 February 2016 20:10
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Q1 Not as important as preferred place of care I think? #weeolc |
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@dorcaselambert
02 February 2016 20:10
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@WeEOLC @Gao_Wei @PollockKristian That it's known to others (family, significant others, MDT etc) before the event! #WeEolc |
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@hospicedoctor
02 February 2016 20:10
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@WeEOLC @Gao_Wei @PollockKristian I guess it's less important than all the attention we give it ! #WeEOLC |
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@WeEOLC
02 February 2016 20:10
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@GSFbay @learnhospice @heblau @BridgetJohnst @Gao_Wei @PollockKristian @NIHR_DC we couldn't possibly comment #WeEOLC |
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@BridgetJohnst
02 February 2016 20:10
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RT @JillDelday: Hi All, #WeEOLC also interested to see what we can take to care homes from this work- anticipatory care planning & unschedu… |
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@heblau
02 February 2016 20:10
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The right place to be is the place you feel safest & most comfortable #WeEOLC |
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@PhilBallRN
02 February 2016 20:10
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Important? #WeEOLC PPD? Gives opportunity for discussion, or consideration of death preparation? @WeEOLC https://t.co/767BNTC0mW |
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@shizc1
02 February 2016 20:11
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#WeEOLC @Gao_Wei @PollockKristian important to have discussion with pt and family inform MDT of PPD |
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@CElliumK
02 February 2016 20:11
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This is spot on for me. The concept and reality of this is often different which is what makes it tricky #WeEolc https://t.co/O12o9VlseG |
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@mandayoung
02 February 2016 20:11
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#WeEOLC Place of death seems to have become worryingly synonymous with 'good death' in last few years. |
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@WeEOLC
02 February 2016 20:11
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RT @ndccharity: Home is not always the best place to die @Independent https://t.co/N9G3ZDAlqp by @cghgreen #GoodDeath #WeEolc #HomeDeath #P… |
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@lgoodbu
02 February 2016 20:11
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#WeEOLC we need to be aware that the PPD may change as the person gets closer to EOL and the conversation has to be responsive |
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@WeEOLC
02 February 2016 20:11
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#WeEOLC say more @cewalshe ? https://t.co/gAQMg9kViu |
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@eoldoulaUK
02 February 2016 20:11
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@kennygibsonnhs @BridgetJohnst @WeDistrictNurse @WeEOLC Yes #WeEoLC |
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@NIHRevidence
02 February 2016 20:11
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Q1: We interviewed #insidehealth’s @mgtmccartney to get her insight into place of death https://t.co/0UD6u35v9o #WeEOLC - what do you think? |
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@WeEOLC
02 February 2016 20:11
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RT @drlaurajane: @WeEOLC #weeolc getting preferred place right can facilitate important things to person eg family, own space, skilled nurs… |
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@Gao_Wei
02 February 2016 20:11
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#WeEOLC care quality needs, a good death should occur in a familiar surroundings EoLC Strategy |
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@PhilBallRN
02 February 2016 20:11
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RT @kennygibsonnhs: @BridgetJohnst @WeDistrictNurse @WeEOLC #WeEOLC preferred place to die must be influenced by the dying person https://t… |
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@nxtstop1
02 February 2016 20:11
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T1 Importance of 'place' (of death)=same as central influence(of place)on our lives. Where we R defines 'how' we R &,'what' happens. #weeolc |
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@GSFbay
02 February 2016 20:11
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RT @kennygibsonnhs: @BridgetJohnst @WeDistrictNurse @WeEOLC #WeEOLC preferred place to die must be influenced by the dying person https://t… |
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@CElliumK
02 February 2016 20:11
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RT @lgoodbu: #WeEOLC we need to be aware that the PPD may change as the person gets closer to EOL and the conversation has to be responsive |
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@lgoodbu
02 February 2016 20:11
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RT @heblau: The right place to be is the place you feel safest & most comfortable #WeEOLC |
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@ctsinclair
02 February 2016 20:11
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RT @cewalshe: Q1 Not as important as preferred place of care I think? #weeolc "Excellent point-Can be about location and/or quality of care" |
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@WeEOLC
02 February 2016 20:12
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@drlaurajane #WeEOLC good point - as a Dr what r your main challenges? |
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@BridgetJohnst
02 February 2016 20:12
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Thanks skilled nursing is key last days of life, the evidence is quite clear but do we achieve it? #WeEOLC https://t.co/kHCC6euGlb |
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@SachaLG
02 February 2016 20:12
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@BridgetJohnst @WeEOLC @GSFCentre You must hve confidence 2 b @ home & necessary support #WeEOLC #gooddeath #calmandcomfortable |
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@heblau
02 February 2016 20:12
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@mandayoung Indeed - part of the effort to quantify quality of care but can become reified and stuck if not assessed holistically #WeEOLC |
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@GSFbay
02 February 2016 20:12
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@kennygibsonnhs @BridgetJohnst @WeDistrictNurse @WeEOLC #weeolc absolutely, and the family too |
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@drlaurajane
02 February 2016 20:12
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@WeEOLC #weeolc How long have you got...? |
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@BridgetJohnst
02 February 2016 20:12
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RT @hospicedoctor: @WeEOLC @Gao_Wei @PollockKristian I guess it's less important than all the attention we give it ! #WeEOLC |
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@Gao_Wei
02 February 2016 20:12
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#WeEOLC by nature hospital best fulfil people's medical needs |
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@WeEOLC
02 February 2016 20:12
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@SachaLG @GSFCentre @UHSFT excellent point Sacha #WeEOLC |
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@GSFbay
02 February 2016 20:12
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RT @heblau: @Gao_Wei For me it depends on what my diagnosis is & who is around me I think #WeEOLC |
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@BridgetJohnst
02 February 2016 20:12
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RT @heblau: The right place to be is the place you feel safest & most comfortable #WeEOLC |
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@WeEOLC
02 February 2016 20:12
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RT @Gao_Wei: #WeEOLC four component of needs @ the end of life: physical, psychological, social and spiritual |
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@JillAnneWill
02 February 2016 20:13
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@drlaurajane #WeEOLC & relationship centred care |
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@WeEOLC
02 February 2016 20:13
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RT @nxtstop1: Q1 for #weEoLC chat RT @WeEOLC: Lets go Q1: so what's important about PPD-preferred place of death? #WeEOLC @Gao_Wei @Polloc… |
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@WLewisCordwell
02 February 2016 20:13
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RT @BridgetJohnst: Thanks skilled nursing is key last days of life, the evidence is quite clear but do we achieve it? #WeEOLC https://t.c… |
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@GSFbay
02 February 2016 20:13
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RT @drlaurajane: @WeEOLC #weeolc getting preferred place right can facilitate important things to person eg family, own space, skilled nurs… |
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@TaraJLamont
02 February 2016 20:13
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#weEoLC And how important is place of death anyway to dying people and their carers - compared with other things @PollockKristian ?? |
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@ctsinclair
02 February 2016 20:13
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Q1: To some, PPD may be weighted more towards safety/comfort, others towards meaning/family. Impt to understand driving factors #weeolc |
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@eoldoulaUK
02 February 2016 20:13
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Importance of Advance Care plan for PPD to be stated by Person #WeEoLC |
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@jayrcastillo24
02 February 2016 20:13
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#WeEOLC @WeEOLC more than a preferred place of death, it's the preferred place of care, it's their home. |
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@GSFbay
02 February 2016 20:13
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RT @BridgetJohnst: @SachaLG @WeEOLC @GSFCentre @UHSFT thanks Sacha, it's really important to know what family/ parents wish #WeEOLC |
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@WeEOLC
02 February 2016 20:13
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say more @heblau #WeEOLC? https://t.co/zEtXR5wzJI |
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@cewalshe
02 February 2016 20:13
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@WeEOLC Care is what is important to people, POD is what is easy to measure? #weeolc |
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@WeEOLC
02 February 2016 20:13
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RT @JillDelday: Hi All, #WeEOLC also interested to see what we can take to care homes from this work- anticipatory care planning & unschedu… |
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@helenfindlay
02 February 2016 20:13
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RT @Gao_Wei: #WeEOLC four component of needs @ the end of life: physical, psychological, social and spiritual |
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@GSFbay
02 February 2016 20:13
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RT @hospicedoctor: @WeEOLC @Gao_Wei @PollockKristian I guess it's less important than all the attention we give it ! #WeEOLC |
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@WLewisCordwell
02 February 2016 20:13
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RT @NIHR_DC: Q1: We interviewed #insidehealth’s @mgtmccartney to get her insight into place of death https://t.co/0UD6u35v9o #WeEOLC - what… |
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@helenfindlay
02 February 2016 20:13
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RT @nxtstop1: Q1 for #weEoLC chat RT @WeEOLC: Lets go Q1: so what's important about PPD-preferred place of death? #WeEOLC @Gao_Wei @Polloc… |
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@PhilBallRN
02 February 2016 20:13
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This interesting #WeEOLC @WeEOLC this because we've poor at outcome measures in past? https://t.co/wluASPthUj |
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@heblau
02 February 2016 20:13
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The French have an expression "bien dans sa peau" - to feel good in one's skin. This can happen anywhere with good care #WeEOLC |
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@WeEOLC
02 February 2016 20:14
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@JillDelday #WeEOLC excellent point - and is anticipatory different to advance care planning? @PollockKristian |
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@GSFbay
02 February 2016 20:14
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RT @hospicemanager: Important? #WeEOLC PPD? Gives opportunity for discussion, or consideration of death preparation? @WeEOLC https://t.co/… |
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@hospicedoctor
02 February 2016 20:14
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@nxtstop1 Agree - I think if 'place' more philosophically as I get older - more interested in environment of care #WeEOLC |
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@helenfindlay
02 February 2016 20:14
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RT @drlaurajane: @WeEOLC #weeolc getting preferred place right can facilitate important things to person eg family, own space, skilled nurs… |
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@GSFbay
02 February 2016 20:14
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RT @cmrwdk: This is spot on for me. The concept and reality of this is often different which is what makes it tricky #WeEolc https://t.co/… |
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@BridgetJohnst
02 February 2016 20:14
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My Doctoral research showed hospice is often perceived to be safest and secure place for patients #WeEOLC https://t.co/2bdUIh2wUm |
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@PollockKristian
02 February 2016 20:14
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@TaraJLamont I think focusing on POD deflects attention to other things that may be more important #WeEolc |
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@drlaurajane
02 February 2016 20:14
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@WeEOLC Not enough time. Starting convos late (as inpatient in crisis), w ppl don't have existing relationship. Focus on measurable #WeEolc |
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@helenfindlay
02 February 2016 20:14
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RT @JillDelday: @drlaurajane #WeEOLC & relationship centred care |
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@ctsinclair
02 February 2016 20:14
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RT @Gao_Wei: #WeEOLC by nature hospital best fulfill people's medical needs "Not in all cases. High medical use doesn't always meet needs" |
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@WeEOLC
02 February 2016 20:14
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@kennygibsonnhs @BridgetJohnst @WeDistrictNurse #WeEOLC nice infographic - TY |
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@Gao_Wei
02 February 2016 20:14
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#WeEOLC by REAL I mean the same high quality option |
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@heblau
02 February 2016 20:14
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@WeEOLC I would be thinking about my family, I would worry about being a burden, depends what age my children are etc #WeEOLC |
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@WeEOLC
02 February 2016 20:14
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RT @LetsTalkDeath: Q1 - Dying is a social & spritual and not just a medical event - whole family involved #WeEOLC |
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@WeEOLC
02 February 2016 20:14
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RT @Gao_Wei: #WeEOLC I definitely will choose home as my PPD |
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@WeEOLC
02 February 2016 20:14
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RT @cewalshe: HI Catherine here from @ioelc and editor @PalliativeMedJ #WeEolc |
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@helenfindlay
02 February 2016 20:14
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RT @ndccharity: Home is not always the best place to die @Independent https://t.co/N9G3ZDAlqp by @cghgreen #GoodDeath #WeEolc #HomeDeath #P… |
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@CRoseveare
02 February 2016 20:14
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Q1 it's important to consider the impact on other members of the family, when a loved one dies in their home #WeEOLC |
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@WeEOLC
02 February 2016 20:14
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RT @TaraJLamont: #WeEOLC Tara Lamont here, Southampton University, put together NIHR digest of research on EoL Care https://t.co/6Z5GZ9eos9 |
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@WeEOLC
02 February 2016 20:15
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@nxtstop1 nice to see you ! #WeEOLC |
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@TaraJLamont
02 February 2016 20:15
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RT @NIHR_DC: Q1: We interviewed #insidehealth’s @mgtmccartney to get her insight into place of death https://t.co/0UD6u35v9o #WeEOLC - what… |
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@rmcoplon
02 February 2016 20:15
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RT @LetsTalkDeath: Q1 - Dying is a social & spritual and not just a medical event - whole family involved #WeEOLC |
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@BridgetJohnst
02 February 2016 20:15
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I agree Amanda and not a good quality indicator imo #WeEOLC https://t.co/q2fLsf1QVq |
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@ctsinclair
02 February 2016 20:15
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RT @cewalshe: @WeEOLC Care is what is important to people, POD is what is easy to measure? #weeolc |
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@BridgetJohnst
02 February 2016 20:15
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RT @Gao_Wei: #WeEOLC care quality needs, a good death should occur in a familiar surroundings EoLC Strategy |
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@helenfindlay
02 February 2016 20:15
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RT @WeEOLC: Lets go Q1: so what's important about PPD-preferred place of death? #WeEOLC @Gao_Wei @PollockKristian |
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@lgoodbu
02 February 2016 20:15
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#WeEOLC a good death in an acute settings is in my expereince difficult to achieve, the person & the family get lost in process-procedures |
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@BridgetJohnst
02 February 2016 20:15
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RT @Gao_Wei: #WeEOLC by nature hospital best fulfil people's medical needs |
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@Gao_Wei
02 February 2016 20:15
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#WeEOLC can we really offer the same high quality across settings so to enable our patients have real choices? |
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@BridgetJohnst
02 February 2016 20:15
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RT @TaraJLamont: #weEoLC And how important is place of death anyway to dying people and their carers - compared with other things @PollockK… |
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@heblau
02 February 2016 20:15
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@BridgetJohnst I feel same about auditing DNACPR forms to evaluate quality of family involvement in decisions!! #WeEOLC |
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@WeEOLC
02 February 2016 20:15
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#WeEOLC wow we are busy tonight! Don't forget #WeEOLC ! |
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@helenfindlay
02 February 2016 20:15
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RT @Gao_Wei: #WeEOLC I definitely will choose home as my PPD |
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@lgoodbu
02 February 2016 20:15
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RT @CRoseveare: Q1 it's important to consider the impact on other members of the family, when a loved one dies in their home #WeEOLC |
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@BridgetJohnst
02 February 2016 20:15
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RT @cewalshe: @WeEOLC Care is what is important to people, POD is what is easy to measure? #weeolc |
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@WeEOLC
02 February 2016 20:15
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RT @heblau: @WeEOLC I would be thinking about my family, I would worry about being a burden, depends what age my children are etc #WeEOLC |
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@cewalshe
02 February 2016 20:15
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@Gao_Wei No. I don't think we do offer choice in any real sense. #weeolc |
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@helenfindlay
02 February 2016 20:16
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RT @LetsTalkDeath: Q1 - Dying is a social & spritual and not just a medical event - whole family involved #WeEOLC |
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@GSFbay
02 February 2016 20:16
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@cmrwdk #weeolc, yes, things can get messy at EOL, too much focus on place can leave folk with feelings of failure if it doesn't work out |
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@WeEOLC
02 February 2016 20:16
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RT @ctsinclair: RT @Gao_Wei: #WeEOLC by nature hospital best fulfill people's medical needs "Not in all cases. High medical use doesn't alw… |
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@nxtstop1
02 February 2016 20:16
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@hospicedoctor T1 Agree,believe the 'tenor', atmosphere, that palpable feeling of a place>>90% of experience & dying requires peace #weeolc |
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@hospicedoctor
02 February 2016 20:16
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@PollockKristian @WeEOLC @Gao_Wei Problem is that because it is a KPI, it can hijack conversations about more important things #WeEOLC |
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@WeEOLC
02 February 2016 20:16
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RT @BridgetJohnst: My Doctoral research showed hospice is often perceived to be safest and secure place for patients #WeEOLC https://t.co/… |
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@GSFbay
02 February 2016 20:16
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RT @mandayoung: #WeEOLC Place of death seems to have become worryingly synonymous with 'good death' in last few years. |
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@heblau
02 February 2016 20:16
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@lgoodbu Lesley can you share your experience here, think it would be v valuable #WeEOLC |
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@Pallimed
02 February 2016 20:16
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RT @CRoseveare: Q1 it's important to consider the impact on other members of the family, when a loved one dies in their home #WeEOLC |
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@drlaurajane
02 February 2016 20:16
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@WeEOLC #weeolc #hottopic |
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@lgoodbu
02 February 2016 20:16
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RT @BridgetJohnst: My Doctoral research showed hospice is often perceived to be safest and secure place for patients #WeEOLC https://t.co/… |
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@WeEOLC
02 February 2016 20:16
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@hospicedoctor @nxtstop1 @AileenCollier15 has interesting views about place and space at EOL #WeEOLC |
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@lgoodbu
02 February 2016 20:16
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RT @heblau: The French have an expression "bien dans sa peau" - to feel good in one's skin. This can happen anywhere with good care #WeEOLC |
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@dorcaselambert
02 February 2016 20:16
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@heblau @WeEOLC Agreed, I personally wouldn't like to die at home if my family then had to continue living there #WeEolc |
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@CElliumK
02 February 2016 20:16
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RT @CRoseveare: Q1 it's important to consider the impact on other members of the family, when a loved one dies in their home #WeEOLC |
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@helenfindlay
02 February 2016 20:16
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@LetsTalkDeath @WeEOLC T1 - But if no family & live on own, how ensure this approach? #WeEolc |
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@WeEOLC
02 February 2016 20:17
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@lgoodbu nice to see you Lesley #WeEOLC |
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@GSFbay
02 February 2016 20:17
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RT @lgoodbu: #WeEOLC we need to be aware that the PPD may change as the person gets closer to EOL and the conversation has to be responsive |
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@helenfindlay
02 February 2016 20:17
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RT @WeEOLC: say more @heblau #WeEOLC? https://t.co/zEtXR5wzJI |
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@nxtstop1
02 February 2016 20:17
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Huge~ RT @CRoseveare: Q1 it's important to consider the impact on other members of the family, when a loved one dies in their home #WeEOLC |
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@drlaurajane
02 February 2016 20:17
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@cewalshe @Gao_Wei Real #choice over-promised and under-delivered in many aspects of healthcare at present #weeolc |
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@heblau
02 February 2016 20:17
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@BridgetJohnst @WeEOLC Yes, but still hard to get to unless you're white and have cancer. Demands by far outstrips availability #WeEOLC |
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@MarieCurieEOLC
02 February 2016 20:17
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.@mandayounng Agree - access to high quality community care and support for carers need to be in place to make this the case #WeEOLC |
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@ctsinclair
02 February 2016 20:17
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RT @BridgetJohnst: My Doctoral research showed hospice is often perceived to be safest and secure place for patients #WeEOLC https://t.co/… |
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@SachaLG
02 February 2016 20:17
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@LetsTalkDeath @WeEOLC #WeEOLC Perfect. Felt like it was enabling continuance of family life 4 my child's death @ home. |
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@helenfindlay
02 February 2016 20:17
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RT @BridgetJohnst: My Doctoral research showed hospice is often perceived to be safest and secure place for patients #WeEOLC https://t.co/… |
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@Gao_Wei
02 February 2016 20:17
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#WeEOLC at the end of life the top concern of patients and family is good pain and other symptom management |
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@mandayoung
02 February 2016 20:17
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#weEolc It is often quoted that 3/4 of people would choose to die at home etc. But do they know what it might mean to die at home? |
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@vannapoulter
02 February 2016 20:17
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#WeEOLC how accurate are our PPC/ PPD statistics ???? I'm. It sure myself if they are very accurate ... Any thoughts ????? |
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@hospicedoctor
02 February 2016 20:17
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@nxtstop1 Yes .. Interested in what 'home" means - we often take it too literally #WeEOLC |
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@WeEOLC
02 February 2016 20:17
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so what's important about PPD-preferred place of death? #WeEOLC @Gao_Wei @PollockKristian - your top thoughts? |
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@ctsinclair
02 February 2016 20:17
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RT @mandayoung: #weEolc It is often quoted that 3/4 of people would choose to die at home etc. But do they know what it might mean to die a… |
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@RachelDoubleday
02 February 2016 20:18
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#WeEOLC I want to be sure my death is peaceful but not at the expense of my family @WeDistrictNurses |
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@Gao_Wei
02 February 2016 20:18
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#WeEOLC it is the need for high quality EoLC |
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@helenfindlay
02 February 2016 20:18
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RT @ctsinclair: RT @Gao_Wei: #WeEOLC by nature hospital best fulfill people's medical needs "Not in all cases. High medical use doesn't alw… |
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@WeEOLC
02 February 2016 20:18
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@vannapoulter @NIHR_DC @Gao_Wei @PollockKristian nice to see you ! #WeEOLC |
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@WeEOLC
02 February 2016 20:18
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RT @BridgetJohnst: @SachaLG @WeEOLC @GSFCentre @UHSFT thanks Sacha, it's really important to know what family/ parents wish #WeEOLC |
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@JulesLewis6
02 February 2016 20:18
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RT @ndccharity: Home is not always the best place to die @Independent https://t.co/N9G3ZDAlqp by @cghgreen #GoodDeath #WeEolc #HomeDeath #P… |
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@helenfindlay
02 February 2016 20:18
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RT @heblau: @WeEOLC I would be thinking about my family, I would worry about being a burden, depends what age my children are etc #WeEOLC |
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@WeEOLC
02 February 2016 20:18
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RT @hospicedoctor: @WeEOLC @Gao_Wei @PollockKristian I guess it's less important than all the attention we give it ! #WeEOLC |
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@nxtstop1
02 February 2016 20:18
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T1 Chris R. point about consideration of family's ability to handle ( in every way)>VERY important. Have successes & near tragedies. #weeolc |
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@helenfindlay
02 February 2016 20:18
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RT @dorcaselambert: @heblau @WeEOLC Agreed, I personally wouldn't like to die at home if my family then had to continue living there #WeEolc |
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@ctsinclair
02 February 2016 20:18
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@mandayoung it is a qualified answer with an assumption. PPD = home (if all my care needs are met w/o burden to family) #weeolc |
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@Gao_Wei
02 February 2016 20:18
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#WeEOLC personalised care, patient-centered care, the patients' last wish |
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@BridgetJohnst
02 February 2016 20:18
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Feeling a burden to others strong in @HMChochinov research. Harvey has some excellent data on this #WeEOLC https://t.co/uOZOp1kBbE |
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@CElliumK
02 February 2016 20:18
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@GSFbay we must always provide realistic hope to people which is often my worry with headlines about being able to die at home #WeEolc |
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@WeEOLC
02 February 2016 20:18
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@jayrcastillo24 #WeEOLC impt point that care homes can be GOOD places for care & dying |
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@BridgetJohnst
02 February 2016 20:19
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RT @cewalshe: @Gao_Wei No. I don't think we do offer choice in any real sense. #weeolc |
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@CRoseveare
02 February 2016 20:19
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Q1 my mum died in her own bed nearly 20yrs ago; I still find it hard to go into that room when I visit my dad. Memories live longer #WeEolc |
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@WeEOLC
02 February 2016 20:19
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RT @hospicemanager: Important? #WeEOLC PPD? Gives opportunity for discussion, or consideration of death preparation? @WeEOLC https://t.co/… |
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@lgoodbu
02 February 2016 20:19
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#WeEOLC @heblau my husband died 33 days after a diagnosis of pancreatic cancer he wanted to die at home but disease progressed too quickly |
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@cewalshe
02 February 2016 20:19
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@heblau @BridgetJohnst @WeEOLC Inequality in @kesleeman work: https://t.co/haF2HPXlpn in @palliativemedj #weeolc |
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@helenfindlay
02 February 2016 20:19
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RT @hospicedoctor: @WeEOLC @Gao_Wei @PollockKristian I guess it's less important than all the attention we give it ! #WeEOLC |
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@JillAnneWill
02 February 2016 20:19
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#WeEOLC sometimes important to people to consider dignity & care after death by people who know the person |
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@heblau
02 February 2016 20:19
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@mandayoung Role of professionals important here - painting a realistic picture and empowering families #WeEOLC |
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@nxtstop1
02 February 2016 20:19
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Re :@nxtstop1 tweet "have seen successes and near tragedies (re at home deaths) #weeolc |
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@BridgetJohnst
02 February 2016 20:19
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RT @PollockKristian: @TaraJLamont I think focusing on POD deflects attention to other things that may be more important #WeEolc |
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@WeEOLC
02 February 2016 20:19
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@RachelDoubleday @hpmchat @Gao_Wei @PollockKristian @ADNEuk #WeEOLC good point & that choices can change |
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@kennygibsonnhs
02 February 2016 20:19
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@livingwelldying @BridgetJohnst @WeEOLC #weEOLC preferred place of dying must allow real friends to visit any time https://t.co/p4z31zJh6Z |
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@NIHRevidence
02 February 2016 20:19
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Great question! What do you think are the key barriers to achieving this? #WeEOLC https://t.co/PXbes2Ur47 |
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@mjarmanhowe
02 February 2016 20:19
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@cewalshe @WeEOLC most people say it's their preference & also proxy for fact hospitals struggle to achieve consistent EOLC #WeEolc |
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@ctsinclair
02 February 2016 20:19
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@RachelDoubleday The issue of caregiver burden is often not addressed fully. Even if that role is desired by the CG. #weeolc |
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@SachaLG
02 February 2016 20:19
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@ctsinclair @WeEOLC @Gao_Wei #WeEOLC read hospitals cld do v little 40% of time - "Dying For Change" (Demos 2010). Who wants all those obs! |
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@heblau
02 February 2016 20:19
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RT @BridgetJohnst: Feeling a burden to others strong in @HMChochinov research. Harvey has some excellent data on this #WeEOLC https://t.co… |
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@WeEOLC
02 February 2016 20:19
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@PollockKristian @hospicedoctor @Gao_Wei say more? #WeEOLC |
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@CElliumK
02 February 2016 20:19
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RT @cewalshe: @heblau @BridgetJohnst @WeEOLC Inequality in @kesleeman work: https://t.co/haF2HPXlpn in @palliativemedj #weeolc |
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@WeEOLC
02 February 2016 20:19
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RT @livingwelldying: @kennygibsonnhs @BridgetJohnst @WeDistrictNurse @WeEOLC Yes #WeEoLC |
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@PollockKristian
02 February 2016 20:19
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@WeEOLC @Gao_Wei For many people POD is only one of many considerations, desirable but uncertain #WeEOLC |
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@GSFbay
02 February 2016 20:19
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@Gao_Wei #weeolc medical needs can run into EOLC. often patient/family prefer to remain in hospital Need to make hospital the best it can be |
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@PhilBallRN
02 February 2016 20:19
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Good question #WeEOLC what value the stats if no indicator of #quality of care @WeEOLC? https://t.co/qwYrT44wTZ |
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@mfallows1
02 February 2016 20:20
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@GSFbay @cmrwdk totally agree with this #WeEolc |
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@heblau
02 February 2016 20:20
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RT @lgoodbu: #WeEOLC @heblau my husband died 33 days after a diagnosis of pancreatic cancer he wanted to die at home but disease progressed… |
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@BridgetJohnst
02 February 2016 20:20
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Re what to ask #WeEOLC https://t.co/kixhfGJBhK |
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@Gao_Wei
02 February 2016 20:20
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#WeEOLC I agree, PPD = home or a home-like place, e.g. hospice |
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@WeEOLC
02 February 2016 20:20
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@drlaurajane @hospicedoctor #WeEOLC totally ... |
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@ctsinclair
02 February 2016 20:20
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RT @BridgetJohnst: Feeling a burden to others strong in @HMChochinov research. Harvey has some excellent data on this #WeEOLC https://t.co… |
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@TaraJLamont
02 February 2016 20:20
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@Gao_Wei #WeEOLC Your impt research highlights systemic inequalities re where people die - less about indiv choice https://t.co/wir85pTyZX |
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@hospicedoctor
02 February 2016 20:20
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@nxtstop1 T1 I often explore what 'home' means - usually means relationship, safety, control #WeEOLC |
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@WeEOLC
02 February 2016 20:20
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RT @SachaLG: @BridgetJohnst @WeEOLC @GSFCentre You must hve confidence 2 b @ home & necessary support #WeEOLC #gooddeath #calmandcomfortable |
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@elleysowerby
02 February 2016 20:20
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@Gao_Wei #WeEOLC plus kindness, compassion, being listened to and supported |
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@RachelDoubleday
02 February 2016 20:20
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#WeEOLC Complexity of meeting family needs as well as person when achieving PPC @WeDistrictNurses |
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@GSFbay
02 February 2016 20:20
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RT @TaraJLamont: #weEoLC And how important is place of death anyway to dying people and their carers - compared with other things @PollockK… |
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@heblau
02 February 2016 20:20
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@lgoodbu What would have made his experience in hospital less difficult? For him and for you? #WeEOLC |
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@shizc1
02 February 2016 20:20
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@ctsinclair @Gao_Wei #weeolc hospitals often too busy and medicalised may set up iv take bloods treat withabx or keep pt waiting in a + e |
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@mjarmanhowe
02 February 2016 20:20
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@kennygibsonnhs @BridgetJohnst @WeDistrictNurse @WeEOLC easier to achieve these at home or hospice than hospital #WeEolc |
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@WeEOLC
02 February 2016 20:20
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@drlaurajane #WeEOLC but u r so good at tweeting..... |
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@heblau
02 February 2016 20:20
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RT @cewalshe: @heblau @BridgetJohnst @WeEOLC Inequality in @kesleeman work: https://t.co/haF2HPXlpn in @palliativemedj #weeolc |
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@drlaurajane
02 February 2016 20:20
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@NIHR_DC #weeolc perhaps we can if take personalised approach since quality care means diff things to diff ppl - make trade-offs |
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@mfallows1
02 February 2016 20:20
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RT @heblau: The French have an expression "bien dans sa peau" - to feel good in one's skin. This can happen anywhere with good care #WeEOLC |
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@BridgetJohnst
02 February 2016 20:20
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RT @hospicedoctor: @nxtstop1 T1 I often explore what 'home' means - usually means relationship, safety, control #WeEOLC |
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@mfallows1
02 February 2016 20:20
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RT @heblau: The right place to be is the place you feel safest & most comfortable #WeEOLC |
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@WeEOLC
02 February 2016 20:20
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Q2 coming up shortly #WeEOLC @Gao_Wei @PollockKristian |
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@HMChochinov
02 February 2016 20:20
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RT @BridgetJohnst: Feeling a burden to others strong in @HMChochinov research. Harvey has some excellent data on this #WeEOLC https://t.co… |
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@jayrcastillo24
02 February 2016 20:20
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@WeEOLC #WeEoLC Hospices can't accommodate all, care homes have to step up. |
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@kennygibsonnhs
02 February 2016 20:21
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@BridgetJohnst @PollockKristian @hospicedoctor @WeEOLC @Gao_Wei #WeEOLC how do we afford care for everyone to die at home? |
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@heblau
02 February 2016 20:21
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@shizc1 @ctsinclair @Gao_Wei It's not the hospitals that do that per se. It's the people in them. This can change #WeEOLC |
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@WeEOLC
02 February 2016 20:21
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RT @jayrcastillo24: #WeEOLC @WeEOLC more than a preferred place of death, it's the preferred place of care, it's their home. |
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@GSFbay
02 February 2016 20:21
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RT @ndccharity: Home is not always the best place to die @Independent https://t.co/N9G3ZDAlqp by @cghgreen #GoodDeath #WeEolc #HomeDeath #P… |
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@CareHomeEd
02 February 2016 20:21
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RT @WeEOLC: @jayrcastillo24 #WeEOLC impt point that care homes can be GOOD places for care & dying |
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@TaraJLamont
02 February 2016 20:21
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RT @cewalshe: @heblau @BridgetJohnst @WeEOLC Inequality in @kesleeman work: https://t.co/haF2HPXlpn in @palliativemedj #weeolc |
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@DebraCowart
02 February 2016 20:21
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That vile groups such as DAESH https://t.co/8wh1MSZf4p https://t.co/sNkRmPzEAW #WeEOLC #Vote1DirectionUK #digileaders #iDebateLeeds #BTdown |
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@cewalshe
02 February 2016 20:21
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@jayrcastillo24 @WeEOLC VOICES survey shows not all equal at e.g. pain control at EOL. Needs work. #weeolc |
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@MarieCurieEOLC
02 February 2016 20:21
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.@CRoseveare Lack of help for family carers has real costs. They need support too https://t.co/XHeFc5NUda #WeEoLC https://t.co/klNX1q4U1I |
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@mjarmanhowe
02 February 2016 20:21
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@hospicemanager @WeEOLC @mandayoung also because too often hospital is rightly synonymous with 'bad' death #WeEolc |
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@ctsinclair
02 February 2016 20:21
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@shizc1 a + e? #WeEOLC |
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@drlaurajane
02 February 2016 20:21
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@GSFbay @Gao_Wei this is a real challenge. Often feel guilty cannot provide as good a death as I think is poss in hospital #WeEolc |
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@Gao_Wei
02 February 2016 20:21
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#WeEOLC to make home a mini-hospital to meet patient's medical needs at the EoL, 2 make a acute hospital home like, which one is feasible? |
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@nxtstop1
02 February 2016 20:21
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@hospicedoctor @nxtstop1 T1 A good point. Perhaps "I want to die at home"means a list of wishes, possibly fulfilled better elsewhere #weeolc |
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@BridgetJohnst
02 February 2016 20:22
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RT @cewalshe: @heblau @BridgetJohnst @WeEOLC Inequality in @kesleeman work: https://t.co/haF2HPXlpn in @palliativemedj #weeolc |
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@helenfindlay
02 February 2016 20:22
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T1- whatever the setting important to have access to specialist palliative care, more important than achieving preferred place #WeEolc |
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@drlaurajane
02 February 2016 20:22
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RT @TaraJLamont: @Gao_Wei #WeEOLC Your impt research highlights systemic inequalities re where people die - less about indiv choice https… |
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@WeEOLC
02 February 2016 20:22
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@cewalshe ahhh so the dying experience rather than just place? #WeEOLC @PollockKristian @Gao_Wei |
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@heblau
02 February 2016 20:22
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@kennygibsonnhs @BridgetJohnst @PollockKristian @hospicedoctor @WeEOLC @Gao_Wei Empower communities #WeEOLC |
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@JillAnneWill
02 February 2016 20:22
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@Gao_Wei #WeEOLC or care home where average person resides for 15 months- longer than any hospice or medical inpatient stay |
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@kennygibsonnhs
02 February 2016 20:22
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@mjarmanhowe @BridgetJohnst @WeDistrictNurse @WeEOLC #WeEOLC do we have sufficient hospice beds, especially at short notice? |
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@nxtstop1
02 February 2016 20:22
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RT @NIHR_DC: Q1: We interviewed #insidehealth’s @mgtmccartney to get her insight into place of death https://t.co/0UD6u35v9o #WeEOLC - what… |
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@dorcaselambert
02 February 2016 20:22
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@lgoodbu Seen this a lot lately - acute illness/hosp. admission at EoL = invasive treatment, panicked families & non-peaceful death #WeEolc |
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@hospicedoctor
02 February 2016 20:22
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RT @heblau: @kennygibsonnhs @BridgetJohnst @PollockKristian @hospicedoctor @WeEOLC @Gao_Wei Empower communities #WeEOLC |
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@WeEOLC
02 February 2016 20:22
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@kennygibsonnhs @BridgetJohnst @WeDistrictNurse nice ???? #WeEOLC |
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@cewalshe
02 February 2016 20:22
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Much comes down to excellent communication - but lacking from NICE scope document? #weeolc |
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@mandayoung
02 February 2016 20:22
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@ctsinclair #WeEolc Yes! As a DN if I explained what dying at home might mean in reality I doubt 3/4 would want it. Sadly. |
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@B_20rthelsenMba
02 February 2016 20:22
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A life nurtured in a pathologic culture… https://t.co/hWNJAzQNO3 #SugarFreeFarm #WeEOLC #TeaHour #GiveATVShowTheHorn https://t.co/ubufh2XQjA |
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@helenfindlay
02 February 2016 20:22
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RT @hospicemanager: This interesting #WeEOLC @WeEOLC this because we've poor at outcome measures in past? https://t.co/wluASPthUj |
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@SachaLG
02 February 2016 20:22
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@jayrcastillo24 @WeEOLC #WeEOLC It's more even than that - home IS your life, your heart (especially 4 a child). |
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@BridgetJohnst
02 February 2016 20:22
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RT @kennygibsonnhs: @BridgetJohnst @PollockKristian @hospicedoctor @WeEOLC @Gao_Wei #WeEOLC how do we afford care for everyone to die at ho… |
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@mjarmanhowe
02 February 2016 20:22
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@heblau although it is relatively easier to achieve in some strings than others #WeEolc |
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@ctsinclair
02 February 2016 20:22
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RT @JillDelday: @Gao_Wei #WeEOLC or care home where average person resides for 15 months- longer than any hospice or medical inpatient stay |
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@helenfindlay
02 February 2016 20:22
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RT @MarieCurieEOLC: .@CRoseveare Lack of help for family carers has real costs. They need support too https://t.co/XHeFc5NUda #WeEoLC http… |
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@nxtstop1
02 February 2016 20:22
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RT @drlaurajane: @WeEOLC #weeolc getting preferred place right can facilitate important things to person eg family, own space, skilled nurs… |
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@CElliumK
02 February 2016 20:22
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RT @jayrcastillo24: @WeEOLC #WeEoLC Hospices can't accommodate all, care homes have to step up. |
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@drlaurajane
02 February 2016 20:22
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RT @MarieCurieEOLC: .@CRoseveare Lack of help for family carers has real costs. They need support too https://t.co/XHeFc5NUda #WeEoLC http… |
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@GSFbay
02 February 2016 20:23
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@CRoseveare #weeolc agree, for some families it leaves the home 'contaminated'. |
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@jayrcastillo24
02 February 2016 20:23
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@cewalshe @WeEOLC #WeEOLC hence the need for care homes to up their game, improve training and up skill the staff. |
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@JillAnneWill
02 February 2016 20:23
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@hospicedoctor @nxtstop1 #WeEOLC being listened to, valued and the most important person |
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@WeEOLC
02 February 2016 20:23
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@hospicemanager @mandayoung @PollockKristian @Gao-Wei #WeEOLC thoughts? |
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@nxtstop1
02 February 2016 20:23
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RT @heblau: The French have an expression "bien dans sa peau" - to feel good in one's skin. This can happen anywhere with good care #WeEOLC |
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@lgoodbu
02 February 2016 20:23
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@heblau #WeEOLC to have been given a greater role in care planning to have conversations with the whole team involved in the care MDT input |
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@helenfindlay
02 February 2016 20:23
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RT @drlaurajane: @NIHR_DC #weeolc perhaps we can if take personalised approach since quality care means diff things to diff ppl - make tra… |
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@GSFbay
02 February 2016 20:23
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RT @cewalshe: @WeEOLC Care is what is important to people, POD is what is easy to measure? #weeolc |
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@heblau
02 February 2016 20:23
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@WeEOLC “Death... is nothing to us, seeing that, when we are, death is not come, and, when death is come, we are not.” Epicurus #WeEOLC |
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@BridgetJohnst
02 February 2016 20:23
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We need to resource community nursing appropriately and skill up home nursing on eolc #WeEOLC https://t.co/2j63YvtbcR |
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@shizc1
02 February 2016 20:23
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@BridgetJohnst #weeolc shame hospice 's so thin on the ground need more so that more patients have choice and get their ppd |
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@eoldoulaUK
02 February 2016 20:23
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RT @lgoodbu: @heblau #WeEOLC to have been given a greater role in care planning to have conversations with the whole team involved in the c… |
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@hospicedoctor
02 February 2016 20:23
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@heblau @kennygibsonnhs @ @PollockKristian @Gao_Wei That must be the future - key question - who else in your world can help #WeEOLC |
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@mjarmanhowe
02 February 2016 20:23
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@BridgetJohnst @heblau this is reflected in Voices & other patient & cater experience feedback also #WeEolc |
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@BridgetJohnst
02 February 2016 20:23
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RT @heblau: @kennygibsonnhs @BridgetJohnst @PollockKristian @hospicedoctor @WeEOLC @Gao_Wei Empower communities #WeEOLC |
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@WeEOLC
02 February 2016 20:23
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@hospicedoctor @PollockKristian @Gao_Wei #WeEOLC @learnhospice would agree with that... |
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@BridgetJohnst
02 February 2016 20:24
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RT @shizc1: @BridgetJohnst #weeolc shame hospice 's so thin on the ground need more so that more patients have choice and get their ppd |
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@WeEOLC
02 February 2016 20:24
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RT @drlaurajane: @WeEOLC #weeolc #hottopic |
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@Gao_Wei
02 February 2016 20:24
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#WeEOLC we need to quality assurance at home/usual residence setting, then they are comparable to hospital as a "safe heaven" |
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@GSFbay
02 February 2016 20:24
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RT @heblau: @WeEOLC I would be thinking about my family, I would worry about being a burden, depends what age my children are etc #WeEOLC |
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@odaoakley4vicy1
02 February 2016 20:24
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Mutual consultation… #WHUAVL #BTdown #WeEOLC #btnetsyhour #TeaHour #digileaders #SUNMCI #GIDC #AskGrace #LeiLiv https://t.co/ymFb55eulJ |
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@SocialistHealth
02 February 2016 20:24
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RT @jayrcastillo24: @WeEOLC #WeEoLC Hospices can't accommodate all, care homes have to step up. |
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@BridgetJohnst
02 February 2016 20:24
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RT @mjarmanhowe: @BridgetJohnst @heblau this is reflected in Voices & other patient & cater experience feedback also #WeEolc |
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@WeEOLC
02 February 2016 20:24
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@dorcaselambert @heblau #WeEOLC good point |
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@vannapoulter
02 February 2016 20:24
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@dorcaselambert @helenfindlay #WeEOLC we here this a lot and that is totally acceptable ... |
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@CElliumK
02 February 2016 20:24
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RT @MarieCurieEOLC: .@CRoseveare Lack of help for family carers has real costs. They need support too https://t.co/XHeFc5NUda #WeEoLC http… |
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@WeEOLC
02 February 2016 20:24
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Q2: what does @Gao_Wei @PollockKristian papers tell us about PPD ? #WeEOLC |
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@helenfindlay
02 February 2016 20:24
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@drlaurajane @NIHR_DC What's the difference between quality care and non-quality care? Shouldn't it all be quality? #WeEolc |
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@JillAnneWill
02 February 2016 20:24
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@jayrcastillo24 #WeEOLC care homes need resources and support from community teams- common practice in our area- PPD wishes in ACP |
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@lgoodbu
02 February 2016 20:24
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@heblau #WeEOLC to have had support for Seth and the family to deal with the psychological impact of short prognosis help with spirituality |
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@WeEOLC
02 February 2016 20:24
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RT @helenfindlay: @LetsTalkDeath @WeEOLC T1 - But if no family & live on own, how ensure this approach? #WeEolc |
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@drlaurajane
02 February 2016 20:24
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@hospicedoctor @heblau @kennygibsonnhs @PollockKristian @Gao_Wei Yes, absolutely. https://t.co/TpxuclTovg #WeEolc |
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@NIHRevidence
02 February 2016 20:25
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#WeEOLC RESOURCE: Sarah Hoare’s #NIHR place of death study https://t.co/x9rcpYsbc0 explores difficulties of surveying views on the subject |
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@GSFbay
02 February 2016 20:25
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RT @drlaurajane: @cewalshe @Gao_Wei Real #choice over-promised and under-delivered in many aspects of healthcare at present #weeolc |
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@Gao_Wei
02 February 2016 20:25
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#WeEOLC people change their mind for PPD as they are realistic for what reality can offer |
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@heblau
02 February 2016 20:25
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@mjarmanhowe Absolutely. And there's the challenge #WeEOLC |
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@hpmchat
02 February 2016 20:25
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RT @WeEOLC: Q2: what does @Gao_Wei @PollockKristian papers tell us about PPD ? #WeEOLC |
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@WeEOLC
02 February 2016 20:25
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@mfallows1 hello! Good to see you! #WeEOLC |
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@kesleeman
02 February 2016 20:25
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RT @cewalshe: @heblau @BridgetJohnst @WeEOLC Inequality in @kesleeman work: https://t.co/haF2HPXlpn in @palliativemedj #weeolc |
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@mjarmanhowe
02 February 2016 20:25
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@kennygibsonnhs @BridgetJohnst @WeDistrictNurse @WeEOLC not currently, need to look at different models such as hospice in care home #WeEolc |
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@elleysowerby
02 February 2016 20:25
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#WeEOLC my only concern is if the patients wishes aren't enabled at the EOL the impact left with nok -grief process https://t.co/gfYC8sXDyY |
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@helenfindlay
02 February 2016 20:25
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RT @lgoodbu: #WeEOLC @heblau my husband died 33 days after a diagnosis of pancreatic cancer he wanted to die at home but disease progressed… |
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@BridgetJohnst
02 February 2016 20:25
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RT @drlaurajane: @hospicedoctor @heblau @kennygibsonnhs @PollockKristian @Gao_Wei Yes, absolutely. https://t.co/TpxuclTovg #WeEolc |
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@PamStoney1
02 February 2016 20:25
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#WeEolc Pam from Burley-in-Wharfedale , Hi sorry for late entry... |
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@BridgetJohnst
02 February 2016 20:25
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RT @NIHR_DC: #WeEOLC RESOURCE: Sarah Hoare’s #NIHR place of death study https://t.co/x9rcpYsbc0 explores difficulties of surveying views on… |
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@PhilBallRN
02 February 2016 20:25
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We seen #hospiceathome support can alter #PPD at end of life #WeEolc @WeEOLC @vannapoulter increase #choice https://t.co/6ETB6yWi8Y |
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@WeEOLC
02 February 2016 20:25
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@cewalshe @heblau @BridgetJohnst @kesleeman @PalliativeMedJ @ShazzaHudson & #hpmJC tweet chat on 10/2/16:8pm #WeEOLC |
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@GSFbay
02 February 2016 20:26
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RT @MarieCurieEOLC: .@CRoseveare Lack of help for family carers has real costs. They need support too https://t.co/XHeFc5NUda #WeEoLC http… |
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@helenfindlay
02 February 2016 20:26
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RT @heblau: The French have an expression "bien dans sa peau" - to feel good in one's skin. This can happen anywhere with good care #WeEOLC |
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@CElliumK
02 February 2016 20:26
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seen amazing eolc in hospitals I've also seen poor care, won't change until training recognised as essential #weeolc https://t.co/9p8wXe1srr |
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@NBSaphierMD
02 February 2016 20:26
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RT @heblau: The French have an expression "bien dans sa peau" - to feel good in one's skin. This can happen anywhere with good care #WeEOLC |
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@drlaurajane
02 February 2016 20:26
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@helenfindlay @NIHR_DC Of course but what you think is most important to achieve quality might not be same as me #weeolc |
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@lgoodbu
02 February 2016 20:26
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@dorcaselambert #WeEOLC ppl seem to be lost in their illness and not treated as a person or family and supported to make the best decisions |
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@kennygibsonnhs
02 February 2016 20:26
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@StMWUEA14 @HeartMummy @gbutcher17 #WeEOLC @WeEOLC - mandatory training essentially, after all we are all going to get there ourselves |
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@Roaaary
02 February 2016 20:26
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@shizc1 @BridgetJohnst yes, a through some hospices are trying to get their ethos and knowledge into care homes e.g. @WL_Hospice #WeEolc |
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@heblau
02 February 2016 20:26
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"Caution should be exercised if asserting that most patients want to die at home" #WeEOLC https://t.co/drjLZTwMiD |
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@CElliumK
02 February 2016 20:26
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RT @NIHR_DC: #WeEOLC RESOURCE: Sarah Hoare’s #NIHR place of death study https://t.co/x9rcpYsbc0 explores difficulties of surveying views on… |
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@SachaLG
02 February 2016 20:26
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@drlaurajane @WeEOLC #WeEOLC "existing relationship" was unbelievably helpful as family 4 convos but know we were so lucky. Luck #notenough |
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@kesleeman
02 February 2016 20:26
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@WeEOLC #WeEOLC joining a bit late - hello :) |
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@Gao_Wei
02 February 2016 20:26
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#WeEOLC not enough support at home/residential home, people have to accept to go to hospital to "meet" there medical needs, the top concern |
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@IASP_MESISIG
02 February 2016 20:26
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RESOURCE: Top 10 priorities for palliative and end of life care research https://t.co/O5bspMEN3k #weeolc (Anna) |
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@WeEOLC
02 February 2016 20:26
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@kennygibsonnhs @livingwelldying @BridgetJohnst #WeEOLC think role of friendships is under researched in EOLC |
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@BridgetJohnst
02 February 2016 20:26
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@mjarmanhowe @kennygibsonnhs @WeDistrictNurse @WeEOLC exactly, thinking RE resource is important, doesn't always have to cost more #WeEOLC |
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@helenfindlay
02 February 2016 20:27
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@heblau Yes, important to provide good palliative care whatever the setting & access to it should be across the board-aspiration! #WeEolc |
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@BridgetJohnst
02 February 2016 20:27
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RT @hospicemanager: We seen #hospiceathome support can alter #PPD at end of life #WeEolc @WeEOLC @vannapoulter increase #choice https://t.c… |
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@WeEOLC
02 February 2016 20:27
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@mjarmanhowe @cewalshe #WeEOLC what's the answer Mark? ( gets out magic ball) |
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@nxtstop1
02 February 2016 20:27
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RT @CochranePaPaS: RESOURCE: Top 10 priorities for palliative and end of life care research https://t.co/O5bspMEN3k #weeolc (Anna) |
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@WeEOLC
02 February 2016 20:27
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RT @SachaLG: @ctsinclair @WeEOLC @Gao_Wei #WeEOLC read hospitals cld do v little 40% of time - "Dying For Change" (Demos 2010). Who wants a… |
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@nicolacullum
02 February 2016 20:27
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RT @CochranePaPaS: RESOURCE: Top 10 priorities for palliative and end of life care research https://t.co/O5bspMEN3k #weeolc (Anna) |
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@mjarmanhowe
02 February 2016 20:27
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@heblau focus on more out of hospital deaths appropriate given other priorities & financial challenges constrain good care there #WeEolc |
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@helenfindlay
02 February 2016 20:27
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RT @NIHR_DC: Q1: We interviewed #insidehealth’s @mgtmccartney to get her insight into place of death https://t.co/0UD6u35v9o #WeEOLC - what… |
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@MarieCurieEOLC
02 February 2016 20:27
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@jayrcastillo24 Good point. No matter where, #EoLC should be competent, compassionate and personalised #WeEoLC https://t.co/qZOqXhgT4B |
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@kennygibsonnhs
02 February 2016 20:27
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@hospicedoctor @heblau @PollockKristian @Gao_Wei #weEOLC family members want to give EOL & many will eventually have several loved-ones |
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@WeEOLC
02 February 2016 20:27
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@PollockKristian @Gao_Wei #WeEOLC what else is impt Kristian? |
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@NIHRevidence
02 February 2016 20:27
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@helenfindlay @drlaurajane worth checking out @kesleeman’s great blog on improving quality of care https://t.co/wvJikJ4isa #WeEOLC |
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@IASP_MESISIG
02 February 2016 20:27
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RESOURCE: database of published palliative care and end of life research as an annotated bibliography #WeEOLC (Anna) |
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@drlaurajane
02 February 2016 20:27
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So agree with this. For some breathless patients #hospital with team they know & nurses 24/7 is PPD #weeolc https://t.co/ceYf0crXR9 |
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@kennygibsonnhs
02 February 2016 20:28
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RT @WeEOLC: @kennygibsonnhs @livingwelldying @BridgetJohnst #WeEOLC think role of friendships is under researched in EOLC |
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@lgoodbu
02 February 2016 20:28
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@cmrwdk @mjarmanhowe @hospicemanager @WeEOLC @mandayoung #WeEOLC we need to hlp ppl think about the impact of their actions on pt & family |
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@PollockKristian
02 February 2016 20:28
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@kchums @nxtstop1 @heblau @WeEOLC @Gao_Wei what if people don't want to anticipate or talk about dying . Is that a choice? #WeEolc |
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@HeatherBain9
02 February 2016 20:28
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RT @BridgetJohnst: We need to resource community nursing appropriately and skill up home nursing on eolc #WeEOLC https://t.co/2j63YvtbcR |
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@WeEOLC
02 February 2016 20:28
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@hospicemanager @vannapoulter #WeEOLC excellent point |
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@heblau
02 February 2016 20:28
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Good point, I find this really interesting #WeEOLC https://t.co/Kol4V8hwRu |
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@WeEOLC
02 February 2016 20:28
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RT @mjarmanhowe: @kennygibsonnhs @BridgetJohnst @WeDistrictNurse @WeEOLC easier to achieve these at home or hospice than hospital #WeEolc |
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@GSFbay
02 February 2016 20:28
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RT @SachaLG: @ctsinclair @WeEOLC @Gao_Wei #WeEOLC read hospitals cld do v little 40% of time - "Dying For Change" (Demos 2010). Who wants a… |
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@Gao_Wei
02 February 2016 20:28
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#WeEOLC however, how many patients requir medical treatment in hospital at the end of life that can not be delivered in home setting? |
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@SachaLG
02 February 2016 20:28
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@helenfindlay @LetsTalkDeath @WeEOLC #WeEOLC I'm back 2 my obsession with right training @GSFCentre locally. Sorry! |
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@WeEOLC
02 February 2016 20:28
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RT @kennygibsonnhs: @BridgetJohnst @PollockKristian @hospicedoctor @WeEOLC @Gao_Wei #WeEOLC how do we afford care for everyone to die at ho… |
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@Roaaary
02 February 2016 20:28
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@shizc1 @BridgetJohnst yes, although some hospices are working to get their knowledge + ethos into care homes e.g. @WL_Hospice #WeEolc |
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@WeEOLC
02 February 2016 20:28
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RT @cewalshe: @jayrcastillo24 @WeEOLC VOICES survey shows not all equal at e.g. pain control at EOL. Needs work. #weeolc |
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@CElliumK
02 February 2016 20:28
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RT @CochranePaPaS: RESOURCE: Top 10 priorities for palliative and end of life care research https://t.co/O5bspMEN3k #weeolc (Anna) |
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@helenfindlay
02 February 2016 20:28
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RT @drlaurajane: @helenfindlay @NIHR_DC Of course but what you think is most important to achieve quality might not be same as me #weeolc |
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@mjarmanhowe
02 February 2016 20:28
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@cmrwdk @hospicemanager @WeEOLC @mandayoung agree, but this is about likelihood of good care not absolutes #WeEolc |
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@hospicedoctor
02 February 2016 20:28
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@PollockKristian @kennygibsonnhs @heblau @BridgetJohnst @WeEOLC @Gao_Wei And often dissonance between dying person and carer wishes #WeEOLC |
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@GSFbay
02 February 2016 20:28
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RT @MarieCurieEOLC: @jayrcastillo24 Good point. No matter where, #EoLC should be competent, compassionate and personalised #WeEoLC https://… |
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@oo2015_n
02 February 2016 20:28
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I genuinely believe that it is only you youth… #WeEOLC #TheChase #PEQF #askablogger #LeiLiv #AskGrace #hampshirehour https://t.co/Algkwxip3k |
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@shizc1
02 February 2016 20:28
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@vannapoulter @ndccharity #WeEOLC @Independent @cghgreen agree home/family situation can be unsuitable but often pt choice so we do our best |
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@BridgetJohnst
02 February 2016 20:28
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#WeEolc from family viewpoint what is most important in terms of resource at #eol @SachaLG @katemasters67 do you have a view? |
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@drlaurajane
02 February 2016 20:28
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RT @WeEOLC: @kennygibsonnhs @livingwelldying @BridgetJohnst #WeEOLC think role of friendships is under researched in EOLC |
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@GSFbay
02 February 2016 20:29
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RT @drlaurajane: So agree with this. For some breathless patients #hospital with team they know & nurses 24/7 is PPD #weeolc https://t.co/c… |
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@odaoakley4vicy1
02 February 2016 20:29
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contradictory western policies… #FSBWorldpayAwards #AskGrace #WeEOLC #digileaders #TheChase #SugarFreeFarm #TWUG https://t.co/mXNdfFd2LY |
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@hpmJC
02 February 2016 20:29
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@drlaurajane yes, people with respiratory conditions have highest hospital death % - it's often their 'safe' place. #weeolc |
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@drlaurajane
02 February 2016 20:29
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RT @hpmJC: @drlaurajane yes, people with respiratory conditions have highest hospital death % - it's often their 'safe' place. #weeolc |
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@GSFbay
02 February 2016 20:29
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RT @BridgetJohnst: We need to resource community nursing appropriately and skill up home nursing on eolc #WeEOLC https://t.co/2j63YvtbcR |
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@WaTruo
02 February 2016 20:29
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#WeEOLC however, how many patients requir medical treatment in hospital at the end of https://t.co/JXQn5vr00u |
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@WeEOLC
02 February 2016 20:29
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#WeEOLC well done everyone - some g8 thoughts being discussed - rmeber u can review after the tweet chat all the #WeEOLC |
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@BridgetJohnst
02 February 2016 20:29
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RT @heblau: Good point, I find this really interesting #WeEOLC https://t.co/Kol4V8hwRu |
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@WeEOLC
02 February 2016 20:29
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RT @mjarmanhowe: @hospicemanager @WeEOLC @mandayoung also because too often hospital is rightly synonymous with 'bad' death #WeEolc |
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@PamStoney1
02 February 2016 20:29
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#WeEolc Q1 for husband - PPD home, dislikes hospital, am happy for that, provided I have energy, Reassured by PHCT,SPC in area,#goldline |
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@NIHRevidence
02 February 2016 20:29
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RT @heblau: "Caution should be exercised if asserting that most patients want to die at home" #WeEOLC https://t.co/drjLZTwMiD |
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@WeEOLC
02 February 2016 20:29
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RT @heblau: @kennygibsonnhs @BridgetJohnst @PollockKristian @hospicedoctor @WeEOLC @Gao_Wei Empower communities #WeEOLC |
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@jayrcastillo24
02 February 2016 20:29
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@Gao_Wei #WeEolc many hospitals treat some unfortunately as bed blockers. Care homes tend to do better when it comes to focused care. |
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@SachaLG
02 February 2016 20:29
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@kennygibsonnhs @WeEOLC @BridgetJohnst @PollockKristian @Gao_Wei #WeEOLC How can we afford NOT 2. £30 daily@ home CR 2 £240 @ hospital 2 NHS |
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@kennygibsonnhs
02 February 2016 20:30
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@hospicedoctor @PollockKristian @heblau @BridgetJohnst @WeEOLC @Gao_Wei #WeEOLC needs flexible care space with respite at short notice |
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@NHSRes
02 February 2016 20:30
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RT @NIHR_DC: #WeEOLC RESOURCE: Sarah Hoare’s #NIHR place of death study https://t.co/x9rcpYsbc0 explores difficulties of surveying views on… |
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@WeEOLC
02 February 2016 20:30
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@kennygibsonnhs @mjarmanhowe @BridgetJohnst @WeDistrictNurse #WeEOLc but do we always need hospice beds? |
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@RMEngagement
02 February 2016 20:30
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RT @CochranePaPaS: RESOURCE: Top 10 priorities for palliative and end of life care research https://t.co/O5bspMEN3k #weeolc (Anna) |
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@heblau
02 February 2016 20:30
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@PollockKristian Recording PPC impt but can lead to ppl feeling pressurised to make a choice...esp when there is no real choice ...#WeEOLC |
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@HeatherBain9
02 February 2016 20:30
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Is this true throughout uk? I have experienced so much good #weeolc in the community https://t.co/KcQdp1EFZ6 |
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@nxtstop1
02 February 2016 20:30
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T1 What is so tragic is that significant % deaths are not surprises (tho timing not exact). Prep for dying doable, but avoided! #EOL #weeolc |
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@mjarmanhowe
02 February 2016 20:30
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@WeEOLC @cewalshe out of hospital death rate a fair proxy for good EoL care in a locality if balanced with outcome measures I.e POS #WeEolc |
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@IASP_MESISIG
02 February 2016 20:30
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RESOURCE: database of published palliative care and EOL research as an annotated bibliography - with link! https://t.co/a6rywUrVa4 #weeolc |
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@kennygibsonnhs
02 February 2016 20:30
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@SachaLG @WeEOLC @BridgetJohnst @PollockKristian @Gao_Wei #WeEOLC |
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@SachaLG
02 February 2016 20:30
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@drlaurajane @WeEOLC #WeEOLC Can well imagine how impossible 4 docs/nurses without. You're bloody marvellous.x |
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@heblau
02 February 2016 20:30
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@Gao_Wei I would say ... very few. Most interventions at the end of life can be done at home with the right team #WeEOLC |
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@PollockKristian
02 February 2016 20:31
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@WeEOLC @Gao_Wei One of the strongest themes is desire not to burden family, so people's 'choices' may be to protect others #WeEolc |
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@Gao_Wei
02 February 2016 20:31
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#WeEOLC a study observed 50 dying patients in their final days and found that they received only minimal attention https://t.co/QmdmvMQlpJ |
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@WeEOLC
02 February 2016 20:31
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@kennygibsonnhs @heblau @BridgetJohnst @PollockKristian @hospicedoctor @Gao_Wei don't forget #WeEOLC so everyone can see your thoughts! |
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@hospicedoctor
02 February 2016 20:31
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@ctsinclair @heblau @shizc1 @Gao_Wei Culture changes with nudges - saw hospice type care in acute hospital today - good to see #WeEOLC |
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@WeEOLC
02 February 2016 20:31
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Q2: what does @Gao_Wei @PollockKristian papers tell us about PPD ? #WeEOLC ... |
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@kchums
02 February 2016 20:31
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RT @CRoseveare: Q1 it's important to consider the impact on other members of the family, when a loved one dies in their home #WeEOLC |
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@mjarmanhowe
02 February 2016 20:31
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@cmrwdk @lgoodbu @hospicemanager @WeEOLC @mandayoung this needs to change. Access to Palliative Care Bill has good focus on educ #WeEolc |
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@PhilBallRN
02 February 2016 20:31
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Critical to #seektheperson as @lgoodbu says #WeEolc @WeEOLC #personcentred #flexibleresponses #changingsituations https://t.co/1W6H7W9fiI |
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@JoThomasRN
02 February 2016 20:31
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RT @NIHR_DC: #WeEOLC RESOURCE: Sarah Hoare’s #NIHR place of death study https://t.co/x9rcpYsbc0 explores difficulties of surveying views on… |
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@10chaselane
02 February 2016 20:31
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RT @CochranePaPaS: RESOURCE: Top 10 priorities for palliative and end of life care research https://t.co/O5bspMEN3k #weeolc (Anna) |
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@heblau
02 February 2016 20:31
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@Gao_Wei In my research I saw care often handed over from medics to nursing staff when dying diagnosed #WeEOLC |
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@helenfindlay
02 February 2016 20:32
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@drlaurajane @NIHR_DC P'raps possible to achieve personalised approach as flesh on the bones within a set standard across the board? #WeEolc |
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@WeEOLC
02 February 2016 20:32
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#WeEOLC https://t.co/Nl5JNCt6fc |
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@yaelizabethian1
02 February 2016 20:32
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Shooting down a woman… https://t.co/mfNZ5K4zgK #GIDC #SUNMCI #AskGrace #ancestryhour #CelebMixCharlie #WeEOLC #TWUG https://t.co/cqqnrVTe9H |
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@kennygibsonnhs
02 February 2016 20:32
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@WeEOLC @mjarmanhowe @BridgetJohnst @WeDistrictNurse #WeEOLC hospice mist be more than bed surely, what about early am, day care & late pm |
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@CElliumK
02 February 2016 20:32
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RT @Gao_Wei: #WeEOLC a study observed 50 dying patients in their final days and found that they received only minimal attention https://t.c… |
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@lgoodbu
02 February 2016 20:32
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@cmrwdk @mjarmanhowe @hospicemanager #WeEOLC @mandayoung maybe we need to be more convincing abt training & take a different approach |
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@eoldoulaUK
02 February 2016 20:32
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RT @hospicemanager: Critical to #seektheperson as @lgoodbu says #WeEolc @WeEOLC #personcentred #flexibleresponses #changingsituations https… |
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@ndccharity
02 February 2016 20:32
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A #HomeDeath more peaceful than in hospital and better for loved ones, research finds @abcnews https://t.co/9zbcRdBwMM @B_Gomes_ #WeEOLC |
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@WeEOLC
02 February 2016 20:32
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@ctsinclair @heblau @shizc1 @Gao_Wei say more? (& #WeEOLC ) |
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@nicolabell25
02 February 2016 20:32
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@mjarmanhowe @WeEOLC @hospicemanager @mandayoung often but not always #WeEolc |
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@heblau
02 February 2016 20:32
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@hospicedoctor @ctsinclair @shizc1 @Gao_Wei Hooray! Celebrating good practice needs to happen; there is lots #WeEOLC |
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@PollockKristian
02 February 2016 20:32
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@heblau Also may set people (patients and family) to feel they have failed if PPOD turns out to be unachievable #WeEolc |
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@drlaurajane
02 February 2016 20:32
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@Gao_Wei Wish could give more attention. Hospitals set up to deliver acute care. System works against holistic, non-medicalised care #WeEolc |
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@dorcaselambert
02 February 2016 20:32
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@lgoodbu Yes!Acute care focusses on acute illness. A "saving lives" mentality..even if the patient is clearly at the end of theirs.. #WeEolc |
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@WeEOLC
02 February 2016 20:32
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@jayrcastillo24 @TaraJLamont @kesleeman don't forget #WeEOLC guys! |
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@mjarmanhowe
02 February 2016 20:32
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@cmrwdk @hospicemanager @WeEOLC @mandayoung need to make sure resources targeted & protected for EoL care in hospital #WeEolc |
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@nxtstop1
02 February 2016 20:33
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T1 All fear death, it's natural to fear this unknown. But,as societies, must encourage each other to plan our mortality~#BeingMortal #weeolc |
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@WeEOLC
02 February 2016 20:33
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#WeEOLC https://t.co/uAn9wQG8Dp |
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@lgoodbu
02 February 2016 20:33
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RT @heblau: @Gao_Wei In my research I saw care often handed over from medics to nursing staff when dying diagnosed #WeEOLC |
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@katemasters67
02 February 2016 20:33
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RT @cmrwdk: seen amazing eolc in hospitals I've also seen poor care, won't change until training recognised as essential #weeolc https://t.… |
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@Gao_Wei
02 February 2016 20:33
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#WeEOLC PPD is shaped by Patient & carer perceptions of the reliability of services, &the degree of ‘safety’ they offer(Thomas, 2004 SSM) |
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@lgoodbu
02 February 2016 20:33
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RT @hospicemanager: Critical to #seektheperson as @lgoodbu says #WeEolc @WeEOLC #personcentred #flexibleresponses #changingsituations https… |
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@WeEOLC
02 February 2016 20:33
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#WeEOLC https://t.co/qkAE7tpTK6 |
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@drlaurajane
02 February 2016 20:33
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@helenfindlay @NIHR_DC that sounds sensible. Agree there are some common absolutes. #weeolc |
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@IASP_MESISIG
02 February 2016 20:33
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Impact of morphine, fentanyl, oxycodone or codeine on consciousness, appetite and thirst, for cancer pain https://t.co/j1qehR7eBO #weeolc |
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@heblau
02 February 2016 20:33
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@dorcaselambert @lgoodbu Good book: https://t.co/UXHUk8FaqV #WeEOLC |
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@elleysowerby
02 February 2016 20:33
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But where will the funding come more? #WeEolc https://t.co/d2dz1oZJoB |
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@SachaLG
02 February 2016 20:33
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@BridgetJohnst @katemasters67 #WeEOLC Specialist #palliative nurse coming 2 hse post understanding EOL 2 do planning #preventcrises #relief |
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@CElliumK
02 February 2016 20:33
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RT @lgoodbu: @cmrwdk @mjarmanhowe @hospicemanager #WeEOLC @mandayoung maybe we need to be more convincing abt training & take a different a… |
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@dorcaselambert
02 February 2016 20:33
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RT @heblau: @dorcaselambert @lgoodbu Good book: https://t.co/UXHUk8FaqV #WeEOLC |
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@BridgetJohnst
02 February 2016 20:34
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@WeEOLC @kennygibsonnhs @mjarmanhowe @WeDistrictNurse no but skilled nursing important #handsoncare #weeolc |
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@WeEOLC
02 February 2016 20:34
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RT @hospicemanager: We seen #hospiceathome support can alter #PPD at end of life #WeEolc @WeEOLC @vannapoulter increase #choice https://t.c… |
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@eoldoulaUK
02 February 2016 20:34
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RT @WeEOLC: #WeEOLC https://t.co/qkAE7tpTK6 |
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@heblau
02 February 2016 20:34
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@PollockKristian Yes, and guilt can make grief even messier than it already is #WeEOLC |
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@helenfindlay
02 February 2016 20:34
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RT @drlaurajane: @helenfindlay @NIHR_DC that sounds sensible. Agree there are some common absolutes. #weeolc |
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@WeEOLC
02 February 2016 20:34
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RT @drlaurajane: @helenfindlay @NIHR_DC that sounds sensible. Agree there are some common absolutes. #weeolc |
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@WeEOLC
02 February 2016 20:34
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RT @Gao_Wei: #WeEOLC PPD is shaped by Patient & carer perceptions of the reliability of services, &the degree of ‘safety’ they offer(Thomas… |
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@hospicedoctor
02 February 2016 20:34
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@heblau @ctsinclair @shizc1 @Gao_Wei Yes! Pyjama wedding, dog visiting, 16 visitors, take aways delivered, flowers - all in hospital #WeEOLC |
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@Gao_Wei
02 February 2016 20:34
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#WeEOLC a substantial gap of our current service to meet people's PPD https://t.co/4Ek7oVUuMd |
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@BridgetJohnst
02 February 2016 20:34
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@heblau @PollockKristian agree Laura #WeEolc |
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@HeatherBain9
02 February 2016 20:34
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RT @WeEOLC: #WeEOLC https://t.co/qkAE7tpTK6 |
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@cewalshe
02 February 2016 20:34
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Some evidence specialist palliative care may mitigate inequalities in POD? https://t.co/1Opgec2BNS #weeolc |
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@hospicedoctor
02 February 2016 20:34
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RT @heblau: @hospicedoctor @ctsinclair @shizc1 @Gao_Wei Hooray! Celebrating good practice needs to happen; there is lots #WeEOLC |
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@drlaurajane
02 February 2016 20:34
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I invite everyone to a @deathcafe Facing own mortality helps others face theirs in my experience #weeolc #deathcafe https://t.co/RNKGZjTh88 |
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@mjarmanhowe
02 February 2016 20:34
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@BridgetJohnst @WeEOLC @kennygibsonnhs @WeDistrictNurse yes & needs to be 24/7 in community #WeEOLC |
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@WeEOLC
02 February 2016 20:34
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RT @PollockKristian: @heblau Also may set people (patients and family) to feel they have failed if PPOD turns out to be unachievable #WeEolc |
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@helenfindlay
02 February 2016 20:34
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RT @SachaLG: @helenfindlay @LetsTalkDeath @WeEOLC #WeEOLC I'm back 2 my obsession with right training @GSFCentre locally. Sorry! |
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@WeEOLC
02 February 2016 20:35
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RT @heblau: @hospicedoctor @ctsinclair @shizc1 @Gao_Wei Hooray! Celebrating good practice needs to happen; there is lots #WeEOLC |
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@odaoakley4vicy1
02 February 2016 20:35
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One of the most human ethical and religious schools in the world... #WeEOLC #askablogger #Vote1DirectionUK #GIDC https://t.co/hXn79J271m |
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@WeEOLC
02 February 2016 20:35
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RT @lgoodbu: @cmrwdk @mjarmanhowe @hospicemanager #WeEOLC @mandayoung maybe we need to be more convincing abt training & take a different a… |
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@CElliumK
02 February 2016 20:35
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RT @WeEOLC: #WeEOLC https://t.co/uAn9wQG8Dp |
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@WeEOLC
02 February 2016 20:35
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RT @kennygibsonnhs: @WeEOLC @mjarmanhowe @BridgetJohnst @WeDistrictNurse #WeEOLC hospice mist be more than bed surely, what about early am,… |
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@PhilBallRN
02 February 2016 20:35
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Can we be sure #WeEolc care is good, best practice in hospices? @WeEOLC @hospicedoctor? https://t.co/jMAmaM5iyE |
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@SachaLG
02 February 2016 20:35
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@PollockKristian @kennygibsonnhs @heblau @BridgetJohnst @WeEOLC @Gao_Wei Oh God this is a BIG one but consolation of PPD bigger #WeEOLC |
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@BridgetJohnst
02 February 2016 20:35
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Yes Heather so have I but getting more fragmented with skill mix #WeEOLC https://t.co/5PLXq8iEgD |
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@WeEOLC
02 February 2016 20:35
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RT @heblau: @Gao_Wei In my research I saw care often handed over from medics to nursing staff when dying diagnosed #WeEOLC |
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@WeEOLC
02 February 2016 20:35
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RT @hospicemanager: Critical to #seektheperson as @lgoodbu says #WeEolc @WeEOLC #personcentred #flexibleresponses #changingsituations https… |
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@CRoseveare
02 February 2016 20:35
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RT @mandayoung: @ctsinclair #WeEolc Yes! As a DN if I explained what dying at home might mean in reality I doubt 3/4 would want it. Sadly. |
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@CElliumK
02 February 2016 20:35
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RT @Gao_Wei: #WeEOLC a substantial gap of our current service to meet people's PPD https://t.co/4Ek7oVUuMd |
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@GSFbay
02 February 2016 20:35
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RT @cewalshe: Some evidence specialist palliative care may mitigate inequalities in POD? https://t.co/1Opgec2BNS #weeolc |
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@drlaurajane
02 February 2016 20:36
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@hospicedoctor @heblau @ctsinclair @shizc1 @Gao_Wei Sounds wonderful. Should see this more often. Gives me hope! #weeolc |
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@cewalshe
02 February 2016 20:36
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Place of care not a euphamism for POD, and evidence of much change in preference: https://t.co/77E2a1fxRd #weeolc |
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@vannapoulter
02 February 2016 20:36
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@Gao_Wei #WeEOLC we need to be working together and facing these challenges in order for anything to change |
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@HeatherBain9
02 February 2016 20:36
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RT @BridgetJohnst: Yes Heather so have I but getting more fragmented with skill mix #WeEOLC https://t.co/5PLXq8iEgD |
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@WeEOLC
02 February 2016 20:36
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@mjarmanhowe @cmrwdk @lgoodbu @hospicemanager @mandayoung #WeEOLC link https://t.co/wKI9HdB33S |
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@Gao_Wei
02 February 2016 20:36
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#WeEOLC we also need to make patients receive sufficient level of support in home/usual residence settings |
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@BridgetJohnst
02 February 2016 20:36
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RT @SachaLG: @BridgetJohnst @katemasters67 #WeEOLC Specialist #palliative nurse coming 2 hse post understanding EOL 2 do planning #prevent… |
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@NIHRevidence
02 February 2016 20:36
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Q2: #WeEOLC RESOURCE links here https://t.co/ug6pEMEi9X and https://t.co/xU1J0bcuXB https://t.co/gYC6qbZ8DR |
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@WeEOLC
02 February 2016 20:36
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RT @Gao_Wei: #WeEOLC a study observed 50 dying patients in their final days and found that they received only minimal attention https://t.c… |
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@WeEOLC
02 February 2016 20:36
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RT @heblau: @Gao_Wei I would say ... very few. Most interventions at the end of life can be done at home with the right team #WeEOLC |
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@HeatherBain9
02 February 2016 20:36
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@BridgetJohnst #WeEolc so how do we change this |
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@heblau
02 February 2016 20:36
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RT @NIHR_DC: Q2: #WeEOLC RESOURCE links here https://t.co/ug6pEMEi9X and https://t.co/xU1J0bcuXB https://t.co/gYC6qbZ8DR |
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@JillAnneWill
02 February 2016 20:36
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@dorcaselambert @GSFbay @lgoodbu #WeEOLC looked @ experience of STNs- palliative patients in ITU for pre-reg dissertation 360change of focus |
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@ndccharity
02 February 2016 20:36
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RT @drlaurajane: I invite everyone to a @deathcafe Facing own mortality helps others face theirs in my experience #weeolc #deathcafe https… |
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@hepworth_becky
02 February 2016 20:36
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@mjarmanhowe @BridgetJohnst @WeEOLC @kennygibsonnhs @WeDistrictNurse not all Paediatric teams can facilitate this sadly #WeEolc |
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@WeEOLC
02 February 2016 20:36
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RT @SachaLG: @drlaurajane @WeEOLC #WeEOLC Can well imagine how impossible 4 docs/nurses without. You're bloody marvellous.x |
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@katemasters67
02 February 2016 20:37
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RT @SachaLG: @BridgetJohnst @katemasters67 #WeEOLC Specialist #palliative nurse coming 2 hse post understanding EOL 2 do planning #prevent… |
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@katemasters67
02 February 2016 20:37
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RT @BridgetJohnst: #WeEolc from family viewpoint what is most important in terms of resource at #eol @SachaLG @katemasters67 do you have a … |
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@helenfindlay
02 February 2016 20:37
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@NIHR_DC I should say so! No room for complacency-1 chance to get care at end of life right, for all concerned @drlaurajane #WeEolc |
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@trcywilcocks
02 February 2016 20:37
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RT @drlaurajane: I invite everyone to a @deathcafe Facing own mortality helps others face theirs in my experience #weeolc #deathcafe https… |
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@drlaurajane
02 February 2016 20:37
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@vannapoulter @Gao_Wei many of us are willing...! #weeolc |
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@WeEOLC
02 February 2016 20:37
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RT @HeatherBain9: Is this true throughout uk? I have experienced so much good #weeolc in the community https://t.co/KcQdp1EFZ6 |
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@shizc1
02 February 2016 20:37
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@kennygibsonnhs @BridgetJohnst @PollockKristian @hospicedoctor #WeEOLC agree our grandmothers knew how to care for dying need to educate |
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@GSFbay
02 February 2016 20:37
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RT @NIHR_DC: Q2: #WeEOLC RESOURCE links here https://t.co/ug6pEMEi9X and https://t.co/xU1J0bcuXB https://t.co/gYC6qbZ8DR |
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@WeEOLC
02 February 2016 20:37
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RT @kennygibsonnhs: @hospicedoctor @PollockKristian @heblau @BridgetJohnst @WeEOLC @Gao_Wei #WeEOLC needs flexible care space with respite … |
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@anna_eol_doula
02 February 2016 20:37
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RT @drlaurajane: I invite everyone to a @deathcafe Facing own mortality helps others face theirs in my experience #weeolc #deathcafe https… |
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@nxtstop1
02 February 2016 20:37
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@mandayoung @ctsinclair T1 That's FEAR speaking right there. Why not have #EOLC drills like we have #CPR? Bet it would do more good! #weeolc |
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@heblau
02 February 2016 20:37
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1st placement for healthcare professionals should be purely observational - no competencies to sign off - just watch. And learn. #WeEOLC |
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@WeEOLC
02 February 2016 20:37
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RT @jayrcastillo24: @Gao_Wei #WeEolc many hospitals treat some unfortunately as bed blockers. Care homes tend to do better when it comes to… |
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@hospicedoctor
02 February 2016 20:37
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@MikeAlphaOne @doctorcaldwell @ctsinclair @heblau @shizc1 @Gao_Wei Great to hear Mike - let @patientopinion know! #WeEOLC |
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@Gao_Wei
02 February 2016 20:37
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#WeEOLC Our report on a PPD survey in England found >89% of participants prefer to die at home or in a hospice (Gomes, et al, 2011) |
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@WeEOLC
02 February 2016 20:37
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RT @PamStoney1: #WeEolc Q1 for husband - PPD home, dislikes hospital, am happy for that, provided I have energy, Reassured by PHCT,SPC in a… |
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@WeEOLC
02 February 2016 20:37
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RT @WaTruo: #WeEOLC however, how many patients requir medical treatment in hospital at the end of https://t.co/JXQn5vr00u |
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@WeEOLC
02 February 2016 20:37
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RT @hpmJC: @drlaurajane yes, people with respiratory conditions have highest hospital death % - it's often their 'safe' place. #weeolc |
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@BridgetJohnst
02 February 2016 20:37
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@mjarmanhowe @WeEOLC @kennygibsonnhs @WeDistrictNurse I agree, not everyone does about this point!! #weeolc |
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@Gao_Wei
02 February 2016 20:37
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#WeEOLC As age increased, a PPD for home decreased, PPD in a hospice increased (except for the group aged 55-64)(Gomes, et al, 2011) |
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@WeEOLC
02 February 2016 20:38
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RT @shizc1: @vannapoulter @ndccharity #WeEOLC @Independent @cghgreen agree home/family situation can be unsuitable but often pt choice so w… |
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@CElliumK
02 February 2016 20:38
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As palliative care professionals it's so important we raise the profile of important bills #WeEolc https://t.co/HmsoiAvksF |
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@WeEOLC
02 February 2016 20:38
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RT @BridgetJohnst: #WeEolc from family viewpoint what is most important in terms of resource at #eol @SachaLG @katemasters67 do you have a … |
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@hepworth_becky
02 February 2016 20:38
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#weeolc sorry @WeEOLC arriving very late to the conversation |
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@heblau
02 February 2016 20:38
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@BridgetJohnst @mjarmanhowe @WeEOLC @kennygibsonnhs @WeDistrictNurse Including specialist palliative care care #WeEOLC |
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@heblau
02 February 2016 20:38
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@hepworth_becky @WeEOLC Welcome #WeEOLC |
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@Gao_Wei
02 February 2016 20:38
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#WeEOLC 48%hospital, 25%home &16% hospice. Home&hospice increased, Hospital declined since the NEoLC programme https://t.co/5APIbA7dkm |
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@SachaLG
02 February 2016 20:38
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@HeatherBain9 @WeEOLC #WeEOLC Wish I'd had video of ours 2 #reassure yr patients. Painful absolutely but #beautiful #homedeath |
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@GSFbay
02 February 2016 20:38
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RT @WaTruo: #WeEOLC however, how many patients requir medical treatment in hospital at the end of https://t.co/JXQn5vr00u |
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@yaelizabethian1
02 February 2016 20:38
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These calamities… https://t.co/mfNZ5K4zgK #MUNSTK #WeEOLC #iDebateLeeds #ThingsFoundInMyTL #GiveATVShowTheHorn #GIDC https://t.co/S99nGQfxNV |
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@WeEOLC
02 February 2016 20:38
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Q3 coming up shortly #WeEOLC @Gao_Wei @PollockKristian |
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@jayrcastillo24
02 February 2016 20:38
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#WeEOLC UK has to address its shortage of nurses first! ?? https://t.co/4G0DMEno3J |
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@PollockKristian
02 February 2016 20:39
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@SachaLG @kennygibsonnhs @heblau @BridgetJohnst @WeEOLC @Gao_Wei Evidence suggests bereaved carers tend to be content with actual P #WeEOLC |
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@DebraCowart
02 February 2016 20:39
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Disentangle the knots and resentments… https://t.co/8wh1MSZf4p https://t.co/y5qkw0jz88 #askablogger #PEQF #AFCvSFC #TWUG #WeEOLC #AskGrace |
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@vannapoulter
02 February 2016 20:39
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@drlaurajane #WeEOLC unfortunately we are in the minority?? but things changing so must keep positive #highqualityeolc |
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@heblau
02 February 2016 20:39
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@jayrcastillo24 and social care #WeEOLC |
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@helenfindlay
02 February 2016 20:39
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RT @lgoodbu: #WeEOLC a good death in an acute settings is in my expereince difficult to achieve, the person & the family get lost in proces… |
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@bill_russell3
02 February 2016 20:39
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RT @LetsTalkDeath: Q1 - Dying is a social & spritual and not just a medical event - whole family involved #WeEOLC |
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@hospicedoctor
02 February 2016 20:39
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@doctorcaldwell @ctsinclair @heblau @shizc1 @Gao_Wei Thanks Gordon - look forward to reading #WeEOLC |
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@helenfindlay
02 February 2016 20:39
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RT @lgoodbu: @dorcaselambert #WeEOLC ppl seem to be lost in their illness and not treated as a person or family and supported to make the b… |
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@drlaurajane
02 February 2016 20:39
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I found this interesting and reflected my experience. #weeolc Must be aware of diff priorities and wishes. https://t.co/m5HVRM4SsV |
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@WeEOLC
02 February 2016 20:39
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@kesleeman hello! Good to see you #WeEOLC will be signposting to your chat at the end @ShazzaHudson |
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@Gao_Wei
02 February 2016 20:39
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#WeEOLC yes integrated social care. |
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@Diealogforum
02 February 2016 20:40
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#WeEOLC @Gao_Wei If I have a strong caring network then I can be primarily supported by them.. even in hospital my last hours or days |
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@anna_eol_doula
02 February 2016 20:40
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Hello all #weeolc I'm very late too. Huge apologies https://t.co/K2kISoSgNU |
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@WeEOLC
02 February 2016 20:40
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@hepworth_becky lovely to see you Becky! #WeEOLC |
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@heblau
02 February 2016 20:40
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@drlaurajane Linked to support networks available? #WeEOLC |
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@BridgetJohnst
02 February 2016 20:40
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@HeatherBain9 making sure all community nurses are competent re eolc. My work may help #letstalk DM me! #WeEOLC |
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@anna_eol_doula
02 February 2016 20:40
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RT @drlaurajane: I found this interesting and reflected my experience. #weeolc Must be aware of diff priorities and wishes. https://t.co/m5… |
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@WeEOLC
02 February 2016 20:40
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Q3: Is home always the preferred place of death? #WeEOLC @Gao_Wei @PollockKristian |
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@BridgetJohnst
02 February 2016 20:40
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RT @Gao_Wei: #WeEOLC Our report on a PPD survey in England found >89% of participants prefer to die at home or in a hospice (Gomes, et al, … |
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@drlaurajane
02 February 2016 20:40
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@heblau again - I would say yes from my experience. #weeolc |
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@drlaurajane
02 February 2016 20:41
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@WeEOLC @Gao_Wei @PollockKristian NOOOOOO #weeolc |
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@SachaLG
02 February 2016 20:41
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@PollockKristian @kennygibsonnhs @heblau @BridgetJohnst @WeEOLC @Gao_Wei I'm more than content - add me in 2 that evidence! #WeEOLC |
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@Gao_Wei
02 February 2016 20:41
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#WeEOLC do we really need a piece of research to verify that (home is always preferred), if we offer real choice? |
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@MarieCurieEOLC
02 February 2016 20:41
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.@cmrwdk Absolutely. Education needs to start with undergrads, as well as CPD https://t.co/xvtF7rWVJi #WeEoLC https://t.co/isElM5m4sy |
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@lgoodbu
02 February 2016 20:41
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RT @JillDelday: @dorcaselambert @GSFbay @lgoodbu #WeEOLC looked @ experience of STNs- palliative patients in ITU for pre-reg dissertation 3… |
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@nicolabell25
02 February 2016 20:41
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@WeEOLC @Gao_Wei @PollockKristian not for those pts worried about how their families will cope #WeEOLC |
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@helenfindlay
02 February 2016 20:41
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@lgoodbu @dorcaselambert Can change if specialist palliative care nurse involved like w my dad in last 4 days-needed lot earlier #WeEOLC |
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@CElliumK
02 February 2016 20:41
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RT @MarieCurieEOLC: .@cmrwdk Absolutely. Education needs to start with undergrads, as well as CPD https://t.co/xvtF7rWVJi #WeEoLC https://… |
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@BridgetJohnst
02 February 2016 20:41
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RT @drlaurajane: I found this interesting and reflected my experience. #weeolc Must be aware of diff priorities and wishes. https://t.co/m5… |
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@heblau
02 February 2016 20:41
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@WeEOLC @Gao_Wei @PollockKristian Risks of sticking to person's preference no matter what: Family-centred assessment of "best" place #WeEOLC |
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@hepworth_becky
02 February 2016 20:41
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@WeEOLC @Gao_Wei @PollockKristian no. So important to be able to offer choice. #WeEOLC |
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@BridgetJohnst
02 February 2016 20:42
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RT @Diealogforum: #WeEOLC @Gao_Wei If I have a strong caring network then I can be primarily supported by them.. even in hospital my last h… |
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@WeEOLC
02 February 2016 20:42
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#WeEOLC absolutely fab tweets everyone TY @Gao_Wei @PollockKristian @NIHR_DC @TaraJLamont |
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@drlaurajane
02 February 2016 20:42
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@WeEOLC @Gao_Wei @PollockKristian evidence shows is diff for diff groups/ages. And changes for many. And often not a fair choice #weeolc |
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@Gao_Wei
02 February 2016 20:42
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#WeEOLC sure, we are talking about real choice |
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@Diealogforum
02 February 2016 20:42
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#weEOLC @hospicedoctor @Gao_Wei The beneficial and noxious forms of Managed Death run side by side |
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@nxtstop1
02 February 2016 20:42
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RT @Gao_Wei: #WeEOLC As age increased, a PPD for home decreased, PPD in a hospice increased (except for the group aged 55-64)(Gomes, et al,… |
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@eoldoulaUK
02 February 2016 20:42
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RT @lgoodbu: @dorcaselambert #WeEOLC ppl seem to be lost in their illness and not treated as a person or family and supported to make the b… |
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@shizc1
02 February 2016 20:42
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@BridgetJohnst @SachaLG @katemasters67 help with personal care/night sits if needed, someone to call if concerned 24/7 #weeolc |
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@WeEOLC
02 February 2016 20:42
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RT @nicolabell25: @WeEOLC @Gao_Wei @PollockKristian not for those pts worried about how their families will cope #WeEOLC |
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@TaraJLamont
02 February 2016 20:42
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#WeEOLC Worth checking out @Gao_Wei largest ever population study of where people die and how this changes over time https://t.co/48wuXBrKNc |
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@WeEOLC
02 February 2016 20:42
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RT @MarieCurieEOLC: .@cmrwdk Absolutely. Education needs to start with undergrads, as well as CPD https://t.co/xvtF7rWVJi #WeEoLC https://… |
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@Becbaines
02 February 2016 20:42
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#WeEOLC Joining in a bit late. Just catching up. |
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@kesleeman
02 February 2016 20:42
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@Gao_Wei can we ever offer *real* choice? #weeolc |
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@SachaLG
02 February 2016 20:42
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@WeEOLC @Gao_Wei @PollockKristian #WeEOLC YESYESYES 4 CHILDREN. (Ok 98% acc 2 r #specialist nurse @UHSFT ) |
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@WeEOLC
02 February 2016 20:42
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RT @Gao_Wei: #WeEOLC do we really need a piece of research to verify that (home is always preferred), if we offer real choice? |
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@PollockKristian
02 February 2016 20:42
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@TaraJLamont and that people may be reluctant to plan for an experience they cannot anticipate #WeEOLC |
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@JillAnneWill
02 February 2016 20:42
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@WeEOLC @Gao_Wei @PollockKristian #WeEOLC important for some cultures + those who have worked hard for care @ home |
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@WeEOLC
02 February 2016 20:42
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RT @drlaurajane: @WeEOLC @Gao_Wei @PollockKristian NOOOOOO #weeolc |
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@PaulineMPennin1
02 February 2016 20:42
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Mutual consultation… https://t.co/SDFED4iLtr https://t.co/gkSUTStvrc #NineTrackMind #iDebateLeeds #SugarFreeFarm #WeEOLC #caschat #MUNSTK |
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@WeEOLC
02 February 2016 20:43
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RT @BridgetJohnst: @HeatherBain9 making sure all community nurses are competent re eolc. My work may help #letstalk DM me! #WeEOLC |
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@thebigredkeith
02 February 2016 20:43
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RT @drlaurajane: @NIHR_DC #weeolc perhaps we can if take personalised approach since quality care means diff things to diff ppl - make tra… |
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@WeEOLC
02 February 2016 20:43
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RT @heblau: @drlaurajane Linked to support networks available? #WeEOLC |
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@oo2015_n
02 February 2016 20:43
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Until double-standards dominate western policies… #WeEOLC #UpcycledHour #TWUG #CelebMixCharlie #thezoo #SUNMCI #PEQF https://t.co/PADGEuqO0K |
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@anna_eol_doula
02 February 2016 20:43
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From experience, no. Many want the comforts of home but don't feel 'safe' enough out of medical environment #weeolc https://t.co/kX8T21niw0 |
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@nxtstop1
02 February 2016 20:43
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RT @MarieCurieEOLC: .@cmrwdk Absolutely. Education needs to start with undergrads, as well as CPD https://t.co/xvtF7rWVJi #WeEoLC https://… |
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@heblau
02 February 2016 20:43
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@helenfindlay @dorcaselambert Some research into early referral to specialist palliative care in Australia https://t.co/EUgcgUzJoo #WeEOLC |
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@WeEOLC
02 February 2016 20:43
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@anna_eol_doula lovely to see you ! #WeEOLC |
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@CElliumK
02 February 2016 20:43
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RT @NIHR_DC: Q2: #WeEOLC RESOURCE links here https://t.co/ug6pEMEi9X and https://t.co/xU1J0bcuXB https://t.co/gYC6qbZ8DR |
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@BridgetJohnst
02 February 2016 20:43
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RT @shizc1: @BridgetJohnst @SachaLG @katemasters67 help with personal care/night sits if needed, someone to call if concerned 24/7 #weeolc |
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@nxtstop1
02 February 2016 20:43
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RT @NIHR_DC: Q2: #WeEOLC RESOURCE links here https://t.co/ug6pEMEi9X and https://t.co/xU1J0bcuXB https://t.co/gYC6qbZ8DR |
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@BridgetJohnst
02 February 2016 20:43
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RT @TaraJLamont: #WeEOLC Worth checking out @Gao_Wei largest ever population study of where people die and how this changes over time https… |
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@BridgetJohnst
02 February 2016 20:43
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RT @PollockKristian: @TaraJLamont and that people may be reluctant to plan for an experience they cannot anticipate #WeEOLC |
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@Gao_Wei
02 February 2016 20:43
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#WeEOLC We are actually talking about different population we are serving |
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@WeEOLC
02 February 2016 20:43
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RT @hepworth_becky: @WeEOLC @Gao_Wei @PollockKristian no. So important to be able to offer choice. #WeEOLC |
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@jayrcastillo24
02 February 2016 20:44
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@WeEOLC #WeEOLC in my experience, yes. Care homes become their home and family. Relatives are more at ease with familiar environment. |
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@WeEOLC
02 February 2016 20:44
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#WeEOLC https://t.co/sQcD1QzZSu |
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@illingpig
02 February 2016 20:44
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@hospicedoctor Still a strong desire here to die at home despite practicalities and lack of actual integrated care #WeEOLC #bcmets |
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@NIHRevidence
02 February 2016 20:44
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#WeEOLC RESOURCE: Sarah Hoare’s #NIHR study https://t.co/x9rcpYsbc0 explores changing preferences and other isues https://t.co/oyrs27e96q |
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@IASP_MESISIG
02 February 2016 20:44
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RT @TaraJLamont: #WeEOLC Worth checking out @Gao_Wei largest ever population study of where people die and how this changes over time https… |
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@vannapoulter
02 February 2016 20:44
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#WeEOLC @hospicemanager what are people's views on patients having a second choice of PPC|PPD recorded in their notes ? |
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@WeEOLC
02 February 2016 20:44
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RT @drlaurajane: I found this interesting and reflected my experience. #weeolc Must be aware of diff priorities and wishes. https://t.co/m5… |
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@GSFbay
02 February 2016 20:44
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#WeEOLC for people with acute dying, choice is easier to achieve, but for people with months much more difficult |
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@anna_eol_doula
02 February 2016 20:44
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@WeEOLC hello! So sorry I'm late! #weeolc |
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@WeEOLC
02 February 2016 20:44
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RT @hospicedoctor: @doctorcaldwell @ctsinclair @heblau @shizc1 @Gao_Wei Thanks Gordon - look forward to reading #WeEOLC |
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@Diealogforum
02 February 2016 20:44
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#WeEOLC YES socialised dying by local people ready practically emotionally and spiritually for end of life |
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@shizc1
02 February 2016 20:44
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@heblau @PollockKristian #weeolc agree often there is not the choice if hospitals full, and no hospice beds |
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@WeEOLC
02 February 2016 20:44
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RT @Gao_Wei: #WeEOLC We are actually talking about different population we are serving |
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@Gao_Wei
02 February 2016 20:44
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#WeEOLC the majority of those who would want to die in home/usual residence, are we offer them enough support? |
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@heblau
02 February 2016 20:44
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@anna_eol_doula Have we created dependency on medicine & disempowered ppl? Similar story to midwifery #WeEOLC |
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@drlaurajane
02 February 2016 20:44
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@weeolc oh dear laptop battery is dying. And it has not told me it's PPD! Should have done #ACP! #weeolc |
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@SachaLG
02 February 2016 20:44
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@shizc1 @BridgetJohnst @katemasters67 #WeEOLC 100% true. We had friends, family, @MarieCurieEOLC, DN GP & pt contact @UHSFT 24/7 who knew us |
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@anna_eol_doula
02 February 2016 20:44
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RT @hepworth_becky: @WeEOLC @Gao_Wei @PollockKristian no. So important to be able to offer choice. #WeEOLC |
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@dorcaselambert
02 February 2016 20:44
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@nicolabell25 @WeEOLC @lgoodbu Agreed, there's certainly exceptions and there's some fantastic in-hospital EoL care out there too #WeEOLC |
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@WeEOLC
02 February 2016 20:45
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RT @anna_eol_doula: From experience, no. Many want the comforts of home but don't feel 'safe' enough out of medical environment #weeolc htt… |
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@CElliumK
02 February 2016 20:45
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RT @NIHR_DC: #WeEOLC RESOURCE: Sarah Hoare’s #NIHR study https://t.co/x9rcpYsbc0 explores changing preferences and other isues https://t.co… |
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@WeEOLC
02 February 2016 20:45
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RT @JillDelday: @WeEOLC @Gao_Wei @PollockKristian #WeEOLC important for some cultures + those who have worked hard for care @ home |
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@cewalshe
02 February 2016 20:45
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@kesleeman @Gao_Wei No. I don't think we do offer real choice at all. Information, consent, ££ ..... etc. #weeolc |
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@jayrcastillo24
02 February 2016 20:45
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@WeEOLC #WeEOLC i'm talking more of people with dementia and terminal illness like cancer. Yes, it's care home as PPD for most of them. |
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@WeEOLC
02 February 2016 20:45
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RT @PollockKristian: @TaraJLamont and that people may be reluctant to plan for an experience they cannot anticipate #WeEOLC |
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@WeEOLC
02 February 2016 20:45
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RT @kesleeman: @Gao_Wei can we ever offer *real* choice? #weeolc |
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@nxtstop1
02 February 2016 20:45
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+1 Plan B. MT @vannapoulter: #WeEOLC @hospicemanager What R people's views on patients having a 2nd choice of PPC|PPD recorded in mednotes ? |
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@WeEOLC
02 February 2016 20:45
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@Becbaines nice to see you ! #WeEOLC |
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@WeEOLC
02 February 2016 20:45
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RT @TaraJLamont: #WeEOLC Worth checking out @Gao_Wei largest ever population study of where people die and how this changes over time https… |
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@heblau
02 February 2016 20:45
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@drlaurajane @weeolc Sigh. ACP for that not complicated. "Stay home next to charger". #WeEOLC |
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@CElliumK
02 February 2016 20:45
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I always record a second preference as it's important to offer realistic choice #WeEOLC https://t.co/bBz4ApMAmv |
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@lgoodbu
02 February 2016 20:45
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@derekfisher2907 @helenfindlay @dorcaselambert #WeEOLC I agree but sometimes the system can get in the way |
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@CRoseveare
02 February 2016 20:45
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Q3: many families experience guilt at 'failing' to support loved one to die at home - can be much harder than they realise #WeEOLC |
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@Gao_Wei
02 February 2016 20:46
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#WeEOLC for patients with whatever reasons do not want to die in home/without a home, that should be other research topics |
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@helenfindlay
02 February 2016 20:46
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@heblau Thanks for this.Research needed too for people w neuro conditions&access to palliative care-my dad had #MND @dorcaselambert #WeEOLC |
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@WeEOLC
02 February 2016 20:46
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RT @jayrcastillo24: @WeEOLC #WeEOLC i'm talking more of people with dementia and terminal illness like cancer. Yes, it's care home as PPD f… |
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@cewalshe
02 February 2016 20:46
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@CRoseveare Similar to feelings about 'birth plans' which go awry. #weeolc |
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@nicolabell25
02 February 2016 20:46
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@JaneSinclair72 @WeEOLC @Gao_Wei @PollockKristian absolute key and having those conversations early rather than later #WeEOLC |
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@JillAnneWill
02 February 2016 20:46
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@GSFbay #WeEOLC challenges of dementia too- increasingly recognised as a palliative disease process |
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@SachaLG
02 February 2016 20:46
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@kesleeman @WeEOLC @Gao_Wei #WeEOLC If u keep communicating wonderfully, as u do, then people will know there IS choice. So, yes. #slog! |
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@drlaurajane
02 February 2016 20:47
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Family, friends, community, end of life doulas reclaiming role in #eolc alongside #HCPs. Need true partnership for quality care #weeolc |
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@mfallows1
02 February 2016 20:47
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@WeEOLC @Gao_Wei @PollockKristian this is far from true, but people still need the choice of home if that's what they want #WeEOLC |
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@heblau
02 February 2016 20:47
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Do we record preferred place of care for our benefit or patients? Thinking about how rarely a person stays with their initial wishes #WeEOLC |
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@shizc1
02 February 2016 20:47
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@heblau @Gao_Wei #weeolc totally agree if we have resources carers and night sits if needed there's not a lot that we can't manage |
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@WeEOLC
02 February 2016 20:47
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@drlaurajane oh nooooooooooooooooooooooooooooooooooooooo #WeEOLC https://t.co/DpM2ybtkHR |
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@illingpig
02 February 2016 20:47
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@heblau @NIHR_DC a lot of us do still want it tho' so don't ignore us #WeEOLC #bcmets |
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@jayrcastillo24
02 February 2016 20:47
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@Gao_Wei #WeEOLC we make the patient as comfortable as possible until the end. Support and guide the family in every step of theway. @WeEOLC |
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@PollockKristian
02 February 2016 20:47
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@SachaLG @WeEOLC @Gao_Wei @UHSFT But see Bluebond-Langner https://t.co/rkVxKchP2I #WeEOLC |
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@PhilBallRN
02 February 2016 20:47
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How do we record and respond to changes in PPD?#WeEOLC @WeEOLC do we have #nimbleservices? @vannapoulter https://t.co/15a6UlIKnt |
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@lgoodbu
02 February 2016 20:47
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@dorcaselambert @nicolabell25 #WeEOLC good and not so good practice everywhere need some consistency to hlp ppl know the difference |
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@WeEOLC
02 February 2016 20:47
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RT @cewalshe: @CRoseveare Similar to feelings about 'birth plans' which go awry. #weeolc |
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@heblau
02 February 2016 20:47
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Hear hear. Skill of DNs is wonderful & under-recognised #WeEOLC https://t.co/n22R9udAhK |
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@nxtstop1
02 February 2016 20:47
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@heblau So appreciate this sentiment. The value of quiet, reflective, UNjudged, observation in all learning > way under appreciated. #WeEOLC |
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@Sean_Hornby74
02 February 2016 20:48
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RT @drlaurajane: I invite everyone to a @deathcafe Facing own mortality helps others face theirs in my experience #weeolc #deathcafe https… |
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@GSFbay
02 February 2016 20:48
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RT @cmrwdk: I always record a second preference as it's important to offer realistic choice #WeEOLC https://t.co/bBz4ApMAmv |
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@WeEOLC
02 February 2016 20:48
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@cmrwdk good point #WeEOLC |
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@Becbaines
02 February 2016 20:48
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@cewalshe @WeEOLC I think that's right. It's become an overused proxy #WeEOLC |
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@wendyjpitt61
02 February 2016 20:48
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@WeEOLC @Gao_Wei @PollockKristian think it can be until reality of nurse visits equipment and unpredictable events #WeEOLC |
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@SachaLG
02 February 2016 20:48
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@jayrcastillo24 @WeEOLC #WeEOLC cannot tell u how imp. continuity of PLACE of care (home PPD) was 4 son with #dementia death #braintumour |
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@kesleeman
02 February 2016 20:48
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@cewalshe @kesleeman @Gao_Wei agree. Work with preferences? Yes. Menu of 'choices'? No. #weeolc |
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@hpmJC
02 February 2016 20:48
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@cewalshe @kesleeman @Gao_Wei agree. Work with preferences? Yes. Menu of 'choices'? No. #weeolc |
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@drlaurajane
02 February 2016 20:48
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RT @shizc1: @heblau @Gao_Wei #weeolc totally agree if we have resources carers and night sits if needed there's not a lot that we can't man… |
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@hospicedoctor
02 February 2016 20:48
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@MikeAlphaOne @ctsinclair @heblau @shizc1 @Gao_Wei In what way Mike - we live and learn! #WeEOLC |
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@heblau
02 February 2016 20:48
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@nxtstop1 Students often so stressed about getting a good grade that they just try to please...dangerous #WeEOLC |
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@BridgetJohnst
02 February 2016 20:48
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RT @PollockKristian: @SachaLG @WeEOLC @Gao_Wei @UHSFT But see Bluebond-Langner https://t.co/rkVxKchP2I #WeEOLC |
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@NHSRes
02 February 2016 20:48
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RT @NIHR_DC: #WeEOLC RESOURCE: Sarah Hoare’s #NIHR study https://t.co/x9rcpYsbc0 explores changing preferences and other isues https://t.co… |
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@WeEOLC
02 February 2016 20:48
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We are nearly at the end!!Last question: what are your take home messages from 2night? #WeEOLC @Gao_Wei @PollockKristian |
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@anna_eol_doula
02 February 2016 20:49
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Yes! We don't let people die & intervene at every turn. Need to empower/educate ppl abt death/dying process #weeolc https://t.co/AdPpjkIEs8 |
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@BridgetJohnst
02 February 2016 20:49
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RT @heblau: Hear hear. Skill of DNs is wonderful & under-recognised #WeEOLC https://t.co/n22R9udAhK |
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@heblau
02 February 2016 20:49
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RT @anna_eol_doula: Yes! We don't let people die & intervene at every turn. Need to empower/educate ppl abt death/dying process #weeolc htt… |
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@SachaLG
02 February 2016 20:49
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@PollockKristian @WeEOLC @Gao_Wei Thankyou. Will read tomorrow when not gaga! #WeEOLC |
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@Gao_Wei
02 February 2016 20:49
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#WeEOLC I can not imagine if a child and family can get the same level of quality assurance, why a child will choose 2 go 2 hospital to die |
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@helenfindlay
02 February 2016 20:49
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@lgoodbu Indeed.My dad died 7 wks after #MND diagnosis but our concerns not heeded nor when he asked to go hospice @dorcaselambert #WeEOLC |
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@DebraCowart
02 February 2016 20:49
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on correct understanding, deep insight… https://t.co/8wh1MSZf4p https://t.co/kRdFFADdOq #PEQF #iDebateLeeds #WeEOLC #RooftopBookClub #TWUG |
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@WeEOLC
02 February 2016 20:49
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@AileenCollier15 #WeEolc excellent! |
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@drlaurajane
02 February 2016 20:49
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RT @anna_eol_doula: Yes! We don't let people die & intervene at every turn. Need to empower/educate ppl abt death/dying process #weeolc htt… |
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@katemasters67
02 February 2016 20:49
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RT @ndccharity: Home is not always the best place to die @Independent https://t.co/N9G3ZDAlqp by @cghgreen #GoodDeath #WeEolc #HomeDeath #P… |
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@dorcaselambert
02 February 2016 20:49
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@gordonp_38858 @helenfindlay @lgoodbu No, I'm thinking more of those pts who "just want to go home" but treatment continues... #WeEOLC |
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@hepworth_becky
02 February 2016 20:49
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RT @heblau: @Gao_Wei I would say ... very few. Most interventions at the end of life can be done at home with the right team #WeEOLC |
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@WeEOLC
02 February 2016 20:49
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RT @SachaLG: @kesleeman @WeEOLC @Gao_Wei #WeEOLC If u keep communicating wonderfully, as u do, then people will know there IS choice. So, y… |
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@JillAnneWill
02 February 2016 20:49
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@ndccharity @Sean_Hornby74 @abcnews @B_Gomes_ #WeEOLC no buzzers, less equipment & no asking for permission |
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@jayrcastillo24
02 February 2016 20:49
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@SachaLG @WeEOLC #WeEOLC more than the intervention, it's the interaction,communication and support that matters in end of life. |
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@katemasters67
02 February 2016 20:49
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RT @anna_eol_doula: Yes! We don't let people die & intervene at every turn. Need to empower/educate ppl abt death/dying process #weeolc htt… |
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@WeEOLC
02 February 2016 20:50
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RT @jayrcastillo24: @Gao_Wei #WeEOLC we make the patient as comfortable as possible until the end. Support and guide the family in every st… |
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@WeEOLC
02 February 2016 20:50
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RT @PollockKristian: @SachaLG @WeEOLC @Gao_Wei @UHSFT But see Bluebond-Langner https://t.co/rkVxKchP2I #WeEOLC |
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@lgoodbu
02 February 2016 20:50
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RT @heblau: @nxtstop1 Students often so stressed about getting a good grade that they just try to please...dangerous #WeEOLC |
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@mfallows1
02 February 2016 20:50
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RT @Gao_Wei: #WeEOLC do we really need a piece of research to verify that (home is always preferred), if we offer real choice? |
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@hepworth_becky
02 February 2016 20:50
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@heblau @Gao_Wei 'can-do' attitude is so important. #WeEOLC |
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@nicolabell25
02 February 2016 20:50
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@dorcaselambert @WeEOLC @lgoodbu yes and pts need to feel it's OK for hosp to be ppd #weeolc |
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@heblau
02 February 2016 20:50
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@WeEOLC Metrics are limited. Choices are fluid. Dying is unpredictable. BUT the passion to change things is huge #WeEOLC |
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@WeEOLC
02 February 2016 20:50
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@hospicemanager @vannapoulter definitely a good idea #WeEolc |
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@drlaurajane
02 February 2016 20:50
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@WeEOLC almost made it to the end. THANKS! See you on the other side... #weeolc |
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@nxtstop1
02 February 2016 20:50
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@CRoseveare T3 Maybe real videos of at-home dying (volunteers & their families- bet a few might do this) do wonders for people's edu #weeolc |
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@hospicedoctor
02 February 2016 20:50
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@Diealogforum @Gao_Wei Hi Max - yes often but we need to look though many lens & am learning #WeEOLC |
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@helenfindlay
02 February 2016 20:50
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RT @lgoodbu: @derekfisher2907 @helenfindlay @dorcaselambert #WeEOLC I agree but sometimes the system can get in the way |
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@WeEOLC
02 February 2016 20:50
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RT @Becbaines: @cewalshe @WeEOLC I think that's right. It's become an overused proxy #WeEOLC |
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@kesleeman
02 February 2016 20:50
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@heblau or a CQUIN? #weeolc |
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@WeEOLC
02 February 2016 20:50
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RT @wendyjpitt61: @WeEOLC @Gao_Wei @PollockKristian think it can be until reality of nurse visits equipment and unpredictable events #WeEOLC |
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@WeEOLC
02 February 2016 20:50
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RT @SachaLG: @jayrcastillo24 @WeEOLC #WeEOLC cannot tell u how imp. continuity of PLACE of care (home PPD) was 4 son with #dementia death #… |
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@Becbaines
02 February 2016 20:50
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@GSFbay @CRoseveare So agree. "Won't be able to carry on living there if X dies at home" is something I hear relatively frequently #weeolc |
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@shizc1
02 February 2016 20:50
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@kesleeman @Gao_Wei #weeolc no often no choice but home, hospice beds a premium, no hospital or care home |
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@lgoodbu
02 February 2016 20:50
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RT @jayrcastillo24: @SachaLG @WeEOLC #WeEOLC more than the intervention, it's the interaction,communication and support that matters in end… |
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@lgoodbu
02 February 2016 20:51
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RT @JillDelday: @ndccharity @Sean_Hornby74 @abcnews @B_Gomes_ #WeEOLC no buzzers, less equipment & no asking for permission |
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@dorcaselambert
02 February 2016 20:51
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RT @lgoodbu: @dorcaselambert @nicolabell25 #WeEOLC good and not so good practice everywhere need some consistency to hlp ppl know the diffe… |
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@CElliumK
02 February 2016 20:51
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RT @heblau: @WeEOLC Metrics are limited. Choices are fluid. Dying is unpredictable. BUT the passion to change things is huge #WeEOLC |
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@Gao_Wei
02 February 2016 20:51
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#WeEOLC https://t.co/CV7KmYeG3T |
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@WeEOLC
02 February 2016 20:51
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#WeEolc lots of evidence that preferences do change.. https://t.co/PnazK96znK |
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@NIHRevidence
02 February 2016 20:51
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FYI #WeEOLC #NIHR is funding research into the organisation and quality of #eolc care. You can apply here https://t.co/gWL8XNQLV1 |
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@SachaLG
02 February 2016 20:51
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@cewalshe @CRoseveare #WeEOLC Know so many friends with guilt+recriminations frm all types of death. That's why talking so important |
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@WeEOLC
02 February 2016 20:51
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RT @jayrcastillo24: @SachaLG @WeEOLC #WeEOLC more than the intervention, it's the interaction,communication and support that matters in end… |
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@IASP_MESISIG
02 February 2016 20:51
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RT @NIHR_DC: FYI #WeEOLC #NIHR is funding research into the organisation and quality of #eolc care. You can apply here https://t.co/gWL8XNQ… |
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@nicolabell25
02 February 2016 20:51
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Absolutely #WeEOLC https://t.co/ltqxs2F5RT |
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@jayrcastillo24
02 February 2016 20:51
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@heblau #WeEOLC for both. Thru discussion of pros/cons, care home and family arrive on the same page in the end.Always what's best 4 patient |
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@hospicedoctor
02 February 2016 20:51
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@illingpig Fabulous - your mission and thinking will really help make it happen #WeEOLC |
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@lgoodbu
02 February 2016 20:51
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RT @heblau: @WeEOLC Metrics are limited. Choices are fluid. Dying is unpredictable. BUT the passion to change things is huge #WeEOLC |
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@elleysowerby
02 February 2016 20:51
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RT @hpmJC: @drlaurajane yes, people with respiratory conditions have highest hospital death % - it's often their 'safe' place. #weeolc |
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@eoldoulaUK
02 February 2016 20:51
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RT @WeEOLC: #WeEolc lots of evidence that preferences do change.. https://t.co/PnazK96znK |
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@helenfindlay
02 February 2016 20:51
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RT @CRoseveare: Q1 it's important to consider the impact on other members of the family, when a loved one dies in their home #WeEOLC |
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@AileenCollier15
02 February 2016 20:51
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RT @TaraJLamont: #WeEOLC Worth checking out @Gao_Wei largest ever population study of where people die and how this changes over time https… |
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@PhilBallRN
02 February 2016 20:51
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RT @heblau: @WeEOLC Metrics are limited. Choices are fluid. Dying is unpredictable. BUT the passion to change things is huge #WeEOLC |
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@Gao_Wei
02 February 2016 20:51
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#WeEOLC top concern for patients at the end of life is symptom management https://t.co/CV7KmYeG3T |
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@helenfindlay
02 February 2016 20:51
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RT @GSFbay: @CRoseveare #weeolc agree, for some families it leaves the home 'contaminated'. |
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@katemasters67
02 February 2016 20:52
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RT @jayrcastillo24: @SachaLG @WeEOLC #WeEOLC more than the intervention, it's the interaction,communication and support that matters in end… |
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@hospicedoctor
02 February 2016 20:52
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RT @Gao_Wei: #WeEOLC top concern for patients at the end of life is symptom management https://t.co/CV7KmYeG3T |
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@katemasters67
02 February 2016 20:52
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RT @WeEOLC: #WeEolc lots of evidence that preferences do change.. https://t.co/PnazK96znK |
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@helenfindlay
02 February 2016 20:52
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RT @Gao_Wei: #WeEOLC however, how many patients requir medical treatment in hospital at the end of life that can not be delivered in home s… |
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@katemasters67
02 February 2016 20:52
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RT @SachaLG: @jayrcastillo24 @WeEOLC #WeEOLC cannot tell u how imp. continuity of PLACE of care (home PPD) was 4 son with #dementia death #… |
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@CElliumK
02 February 2016 20:52
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The potential pit falls of echo chambers? #WeEOLC https://t.co/VXWwdErUKd |
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@helenfindlay
02 February 2016 20:52
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RT @hepworth_becky: @heblau @Gao_Wei 'can-do' attitude is so important. #WeEOLC |
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@vannapoulter
02 February 2016 20:52
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RT @heblau: @WeEOLC Metrics are limited. Choices are fluid. Dying is unpredictable. BUT the passion to change things is huge #WeEOLC |
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@BridgetJohnst
02 February 2016 20:52
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Thanks Kate #WeEOLC effective communication so important see @HMChochinov work re #caretenor the tone of care https://t.co/MuQPHaTiTP |
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@MarieCurieEOLC
02 February 2016 20:52
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@helenfindlay Agree - research shows barriers to access for MND & other conditions https://t.co/8kBy9Xf4k7 #WeEoLC https://t.co/R5w3SEFueA |
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@WeEOLC
02 February 2016 20:52
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.@Gao_Wei @PollockKristian @NIHR_DC #WeEOLC what are the take home messages from today? |
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@katemasters67
02 February 2016 20:52
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RT @jayrcastillo24: @Gao_Wei #WeEOLC we make the patient as comfortable as possible until the end. Support and guide the family in every st… |
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@AileenCollier15
02 February 2016 20:52
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RT @BridgetJohnst: We need to resource community nursing appropriately and skill up home nursing on eolc #WeEOLC https://t.co/2j63YvtbcR |
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@oo2015_n
02 February 2016 20:52
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backward political systems… #BTdown #RooftopBookClub #ThingsFoundInMyTL #WeEOLC #TheChase #HolbyCity #WHUAVL #MUNSTK https://t.co/rRArQGEAIu |
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@lgoodbu
02 February 2016 20:52
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RT @anna_eol_doula: Yes! We don't let people die & intervene at every turn. Need to empower/educate ppl abt death/dying process #weeolc htt… |
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@hospicedoctor
02 February 2016 20:52
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@Gao_Wei You can't focus on anything else if you are in pain and feeling sick ... #WeEOLC |
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@helenfindlay
02 February 2016 20:52
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RT @jayrcastillo24: @SachaLG @WeEOLC #WeEOLC more than the intervention, it's the interaction,communication and support that matters in end… |
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@WeEOLC
02 February 2016 20:52
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RT @Gao_Wei: #WeEOLC top concern for patients at the end of life is symptom management https://t.co/CV7KmYeG3T |
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@SachaLG
02 February 2016 20:52
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@Diealogforum @jayrcastillo24 @WeEOLC #WeEOLC I like this ALOT xxxxxx My son's last words: "I LOVE it here " #noplacelikehome #love |
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@hepworth_becky
02 February 2016 20:53
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@Gao_Wei sometimes it's where they feel safest with people they have built up trust. Not often though. Most choose home #WeEOLC |
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@WeEOLC
02 February 2016 20:53
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RT @hospicedoctor: @illingpig Fabulous - your mission and thinking will really help make it happen #WeEOLC |
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@helenfindlay
02 February 2016 20:53
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RT @SachaLG: @jayrcastillo24 @WeEOLC #WeEOLC cannot tell u how imp. continuity of PLACE of care (home PPD) was 4 son with #dementia death #… |
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@anna_eol_doula
02 February 2016 20:53
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@heblau #weeolc we're not honest with people abt what will happen. They panic because it can be scary & end up dying in hospital |
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@mfallows1
02 February 2016 20:53
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@heblau really interesting point, totally agree with this! #WeEOLC |
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@AileenCollier15
02 February 2016 20:53
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RT @hospicedoctor: @nxtstop1 T1 I often explore what 'home' means - usually means relationship, safety, control #WeEOLC |
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@WeEOLC
02 February 2016 20:53
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RT @jayrcastillo24: @heblau #WeEOLC for both. Thru discussion of pros/cons, care home and family arrive on the same page in the end.Always … |
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@mjarmanhowe
02 February 2016 20:53
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@katemasters67 @cmrwdk @lgoodbu @hospicemanager @WeEOLC @mandayoung that's shame. Change in cancer peer review measures didn't help #WeEOLC |
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@CElliumK
02 February 2016 20:53
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RT @NIHR_DC: FYI #WeEOLC #NIHR is funding research into the organisation and quality of #eolc care. You can apply here https://t.co/gWL8XNQ… |
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@illingpig
02 February 2016 20:53
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@hospicedoctor and a lot of planning and networking - not everyone able to do this #WeEOLC |
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@AileenCollier15
02 February 2016 20:53
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RT @heblau: The French have an expression "bien dans sa peau" - to feel good in one's skin. This can happen anywhere with good care #WeEOLC |
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@helenfindlay
02 February 2016 20:53
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RT @WeEOLC: Q3: Is home always the preferred place of death? #WeEOLC @Gao_Wei @PollockKristian |
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@WeEOLC
02 February 2016 20:53
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RT @SachaLG: @cewalshe @CRoseveare #WeEOLC Know so many friends with guilt+recriminations frm all types of death. That's why talking so imp… |
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@WeEOLC
02 February 2016 20:53
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RT @NIHR_DC: FYI #WeEOLC #NIHR is funding research into the organisation and quality of #eolc care. You can apply here https://t.co/gWL8XNQ… |
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@Gao_Wei
02 February 2016 20:53
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#WeEOLC children as well want to pain free https://t.co/pFqjescgfk |
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@CElliumK
02 February 2016 20:53
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RT @Gao_Wei: #WeEOLC top concern for patients at the end of life is symptom management https://t.co/CV7KmYeG3T |
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@DPCIC
02 February 2016 20:53
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RT @NIHR_DC: FYI #WeEOLC #NIHR is funding research into the organisation and quality of #eolc care. You can apply here https://t.co/gWL8XNQ… |
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@WeEOLC
02 February 2016 20:53
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RT @Gao_Wei: #WeEOLC https://t.co/CV7KmYeG3T |
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@heblau
02 February 2016 20:53
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@hospicedoctor @Gao_Wei And suffering is not just physical #WeEOLC |
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@AileenCollier15
02 February 2016 20:53
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RT @cewalshe: @WeEOLC Care is what is important to people, POD is what is easy to measure? #weeolc |
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@WeEOLC
02 February 2016 20:53
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RT @hospicedoctor: @Diealogforum @Gao_Wei Hi Max - yes often but we need to look though many lens & am learning #WeEOLC |
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@rmcoplon
02 February 2016 20:53
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RT @anna_eol_doula: @heblau #weeolc we're not honest with people abt what will happen. They panic because it can be scary & end up dying in… |
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@heblau
02 February 2016 20:53
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RT @SachaLG: @Diealogforum @jayrcastillo24 @WeEOLC #WeEOLC I like this ALOT xxxxxx My son's last words: "I LOVE it here " #noplacelikehome … |
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@mjarmanhowe
02 February 2016 20:54
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@BridgetJohnst @WeEOLC @kennygibsonnhs @WeDistrictNurse I'm lucky to work in area that has this & benefits are great #WeEOLC |
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@yaelizabethian1
02 February 2016 20:54
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The military invasions of the Islamic world in recent years… https://t.co/mfNZ5K4zgK #AskGrace #veganhour #WeEOLC https://t.co/LxUPQ799Yd |
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@Becbaines
02 February 2016 20:54
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@hospicedoctor @nxtstop1 Often end up saying something like "we'll bring home to you." It's often about people #WeEOLC |
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@helenfindlay
02 February 2016 20:54
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RT @Gao_Wei: #WeEOLC https://t.co/CV7KmYeG3T |
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@WeEOLC
02 February 2016 20:54
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RT @SachaLG: @Diealogforum @jayrcastillo24 @WeEOLC #WeEOLC I like this ALOT xxxxxx My son's last words: "I LOVE it here " #noplacelikehome … |
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@BridgetJohnst
02 February 2016 20:54
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Thank you this is v important #WeEOLC https://t.co/ydI9tQB7wh |
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@helenfindlay
02 February 2016 20:54
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RT @NIHR_DC: FYI #WeEOLC #NIHR is funding research into the organisation and quality of #eolc care. You can apply here https://t.co/gWL8XNQ… |
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@WeEOLC
02 February 2016 20:54
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RT @hospicedoctor: @Gao_Wei You can't focus on anything else if you are in pain and feeling sick ... #WeEOLC |
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@TaraJLamont
02 February 2016 20:54
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#WeEOLC Great discussion - liked the emphasis on raising quality of care in all settings https://t.co/wHGAYWePfw |
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@hospicedoctor
02 February 2016 20:54
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@illingpig You are right - and we need to unite social universe & professional universe #WeEOLC |
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@heblau
02 February 2016 20:54
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RT @mfallows1: @heblau really interesting point, totally agree with this! #WeEOLC |
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@katemasters67
02 February 2016 20:54
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@BridgetJohnst @HMChochinov @SachaLG 'if I knew then what I know now...' Just discussing this in the car. #WeEOLC |
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@WeEOLC
02 February 2016 20:54
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RT @MarieCurieEOLC: @helenfindlay Agree - research shows barriers to access for MND & other conditions https://t.co/8kBy9Xf4k7 #WeEoLC http… |
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@helenfindlay
02 February 2016 20:54
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RT @jayrcastillo24: @heblau #WeEOLC for both. Thru discussion of pros/cons, care home and family arrive on the same page in the end.Always … |
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@WeEOLC
02 February 2016 20:54
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RT @BridgetJohnst: Thanks Kate #WeEOLC effective communication so important see @HMChochinov work re #caretenor the tone of care https://t.… |
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@AileenCollier15
02 February 2016 20:54
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RT @nicolabell25: Absolutely #WeEOLC https://t.co/ltqxs2F5RT |
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@anna_eol_doula
02 February 2016 20:54
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I would say it often doesn't meet needs. Especially holistic needs at #eol #weeolc https://t.co/JFdVnAEPvj |
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@CElliumK
02 February 2016 20:55
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RT @BridgetJohnst: Thank you this is v important #WeEOLC https://t.co/ydI9tQB7wh |
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@mjarmanhowe
02 February 2016 20:55
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@hepworth_becky @BridgetJohnst @WeEOLC @kennygibsonnhs @WeDistrictNurse yes even more work to be done for children's services #WeEOLC |
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@WeEOLC
02 February 2016 20:55
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RT @heblau: @hospicedoctor @Gao_Wei And suffering is not just physical #WeEOLC |
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@mandayoung
02 February 2016 20:55
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@helenfindlay @lgoodbu @dorcaselambert It is an art to provide a good home death with #MND Sorry your dad didn't get his PPD #WeEOLC |
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@dorcaselambert
02 February 2016 20:55
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@nicolabell25 @WeEOLC @lgoodbu Absolutely- for many people hospital is the right place for them to be. I suppose the key is "choice" #WeEOLC |
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@dorcaselambert
02 February 2016 20:55
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RT @nicolabell25: @dorcaselambert @WeEOLC @lgoodbu yes and pts need to feel it's OK for hosp to be ppd #weeolc |
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@BridgetJohnst
02 February 2016 20:55
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RT @katemasters67: @BridgetJohnst @HMChochinov @SachaLG 'if I knew then what I know now...' Just discussing this in the car. #WeEOLC |
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@WeEOLC
02 February 2016 20:55
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Great points coming tonight everyone- TY #WeEOLC final thoughts?? |
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@TaraJLamont
02 February 2016 20:56
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@nxtstop1 @CRoseveare So many parallels with social movement around childbirth, as has been said before tonight! #WeEOLC |
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@paulawooparr
02 February 2016 20:56
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RT @Gao_Wei: #WeEOLC top concern for patients at the end of life is symptom management https://t.co/CV7KmYeG3T |
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@WeEOLC
02 February 2016 20:56
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RT @anna_eol_doula: I would say it often doesn't meet needs. Especially holistic needs at #eol #weeolc https://t.co/JFdVnAEPvj |
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@helenfindlay
02 February 2016 20:56
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RT @MarieCurieEOLC: @helenfindlay Agree - research shows barriers to access for MND & other conditions https://t.co/8kBy9Xf4k7 #WeEoLC http… |
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@WeEOLC
02 February 2016 20:56
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RT @katemasters67: @BridgetJohnst @HMChochinov @SachaLG 'if I knew then what I know now...' Just discussing this in the car. #WeEOLC |
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@heblau
02 February 2016 20:56
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@dorcaselambert @nicolabell25 @WeEOLC Perhaps ...STRONGLY recommend this by @EricaBorgstrom https://t.co/70ysnNeiLf #WeEOLC |
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@shizc1
02 February 2016 20:56
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@Gao_Wei #weeolc they fear the unkown often feel reassured when likely symptoms and management explained |
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@WeEOLC
02 February 2016 20:56
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RT @TaraJLamont: #WeEOLC Great discussion - liked the emphasis on raising quality of care in all settings https://t.co/wHGAYWePfw |
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@SachaLG
02 February 2016 20:56
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@heblau @WeEOLC @hospicedoctor @Gao_Wei #WeEOLC Weird how emotional TURNS into physical but processing grief is another whole conversation! |
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@WeEOLC
02 February 2016 20:56
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RT @BridgetJohnst: Thank you this is v important #WeEOLC https://t.co/ydI9tQB7wh |
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@anna_eol_doula
02 February 2016 20:56
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Choice is essential in #eolc #weeolc https://t.co/7pUp7nWa3R |
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@WeEOLC
02 February 2016 20:56
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RT @Becbaines: @hospicedoctor @nxtstop1 Often end up saying something like "we'll bring home to you." It's often about people #WeEOLC |
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@oo2015_n
02 February 2016 20:56
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the roots of violence … #GiveATVShowTheHorn #WeEOLC #NineTrackMind #TWUG #MUNSTK #BTdown #LeiLiv #CRYBOU #veganhour https://t.co/kgByWPS3lM |
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@NIHRevidence
02 February 2016 20:56
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@WeEOLC engage with research & share relevant findings with colleagues! Lots of great work summarised here https://t.co/6PgD8BdSCe #WeEOLC |
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@mjarmanhowe
02 February 2016 20:56
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@hospicemanager @WeEOLC @hospicedoctor @cmrwdk @mandayoung recent CQC reports for some hospices show no room for complacency #WeEOLC |
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@WeEOLC
02 February 2016 20:56
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RT @illingpig: @hospicedoctor and a lot of planning and networking - not everyone able to do this #WeEOLC |
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@Gao_Wei
02 February 2016 20:56
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#WeEOLC EoLC strategy focusing on enabling people to die at a place of their choice worked https://t.co/iAjRozsmYR |
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@PhilBallRN
02 February 2016 20:57
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Is best place #PPD where we feel #safe and confident in #care provided? #WeEOLC @WeEOLC @vannapoulter https://t.co/X3ZvxjN1s1 |
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@vannapoulter
02 February 2016 20:57
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RT @anna_eol_doula: Choice is essential in #eolc #weeolc https://t.co/7pUp7nWa3R |
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@NIHRevidence
02 February 2016 20:57
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RT @TaraJLamont: #WeEOLC Great discussion - liked the emphasis on raising quality of care in all settings https://t.co/wHGAYWePfw |
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@GSFbay
02 February 2016 20:57
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#WeEOLC do we change people's home too much in the name of safety, hospital beds, commodes, other equipment, 'strangers' calling to care? |
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@TaraJLamont
02 February 2016 20:57
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#WeEOLC Some great practical takehomes too eg an EoL lead in every local Healthwatch. We haven't talked much about role of CCGs tonight?? |
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@WeEOLC
02 February 2016 20:57
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RT @heblau: @dorcaselambert @nicolabell25 @WeEOLC Perhaps ...STRONGLY recommend this by @EricaBorgstrom https://t.co/70ysnNeiLf #WeEOLC |
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@vannapoulter
02 February 2016 20:57
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RT @hospicemanager: Is best place #PPD where we feel #safe and confident in #care provided? #WeEOLC @WeEOLC @vannapoulter https://t.co/X3Z… |
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@WeEOLC
02 February 2016 20:57
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RT @TaraJLamont: @nxtstop1 @CRoseveare So many parallels with social movement around childbirth, as has been said before tonight! #WeEOLC |
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@BridgetJohnst
02 February 2016 20:57
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@mjarmanhowe @hepworth_becky @WeEOLC @kennygibsonnhs @WeDistrictNurse see @MariaCEOCHAS work in Scotland @SupportCHAS #WeEOLC |
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@lgoodbu
02 February 2016 20:57
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RT @anna_eol_doula: I would say it often doesn't meet needs. Especially holistic needs at #eol #weeolc https://t.co/JFdVnAEPvj |
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@AileenCollier15
02 February 2016 20:57
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RT @hospicemanager: Can we be sure #WeEolc care is good, best practice in hospices? @WeEOLC @hospicedoctor? https://t.co/jMAmaM5iyE |
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@JillAnneWill
02 February 2016 20:57
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@WeEOLC @helenfindlay @Gao_Wei @PollockKristian #WeEOLC closest to aspirations for a quick natural death, familiar place with those we love |
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@nxtstop1
02 February 2016 20:57
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CT Dying is natural, but the care should be skilled (skilled-up family ,or professional), and the wishes of the dying central. #weeolc |
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@AileenCollier15
02 February 2016 20:57
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RT @Becbaines: @hospicedoctor @nxtstop1 Often end up saying something like "we'll bring home to you." It's often about people #WeEOLC |
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@WeEOLC
02 February 2016 20:57
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RT @hospicedoctor: @illingpig You are right - and we need to unite social universe & professional universe #WeEOLC |
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@Diealogforum
02 February 2016 20:57
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#WeEOLC yes my top wish last 2 mins 2 hours 2 days etc is symptom control but that is NOT my top wish for living well as I am longer dying |
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@PhilBallRN
02 February 2016 20:58
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RT @anna_eol_doula: Choice is essential in #eolc #weeolc https://t.co/7pUp7nWa3R |
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@Gao_Wei
02 February 2016 20:58
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#WeEOLC for most people, PPD = home evidence repeatedly showing us that https://t.co/4Ek7oVUuMd |
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@NHSRes
02 February 2016 20:58
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RT @NIHR_DC: FYI #WeEOLC #NIHR is funding research into the organisation and quality of #eolc care. You can apply here https://t.co/gWL8XNQ… |
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@heblau
02 February 2016 20:58
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Beware of bureaucracy & over-regulation. Good quality care is like rain;you know when you're standing in it but it's hard to measure #WeEOLC |
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@WeEOLC
02 February 2016 20:58
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RT @hospicemanager: Is best place #PPD where we feel #safe and confident in #care provided? #WeEOLC @WeEOLC @vannapoulter https://t.co/X3Z… |
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@nxtstop1
02 February 2016 20:58
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RT @TaraJLamont: @nxtstop1 @CRoseveare So many parallels with social movement around childbirth, as has been said before tonight! #WeEOLC |
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@dorcaselambert
02 February 2016 20:58
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@gordonp_38858 @helenfindlay @lgoodbu should always be a joint decision with whoever is able & appropriate to make it, surely? #WeEOLC |
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@kesleeman
02 February 2016 20:58
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@WeEOLC as a final thought, can I remind everyone that #hpmJC will be discussing who dies in hospice 10th Feb 8pm #weeolc with @ShazzaHudson |
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@WeEOLC
02 February 2016 20:58
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RT @Gao_Wei: #WeEOLC EoLC strategy focusing on enabling people to die at a place of their choice worked https://t.co/iAjRozsmYR |
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@JennyKeaneNHS
02 February 2016 20:58
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RT @anna_eol_doula: I would say it often doesn't meet needs. Especially holistic needs at #eol #weeolc https://t.co/JFdVnAEPvj |
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@helenfindlay
02 February 2016 20:58
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@paulawooparr Yes, important especially for the night hours @Gao_Wei #WeEOLC |
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@rayment_sue
02 February 2016 20:58
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RT @BridgetJohnst: We need to resource community nursing appropriately and skill up home nursing on eolc #WeEOLC https://t.co/2j63YvtbcR |
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@Gao_Wei
02 February 2016 20:59
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#WeEOLC we are investigating how service factors affect where people die https://t.co/XK7SCFYsoh thanks for NIHR HS&DR support |
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@dorcaselambert
02 February 2016 20:59
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RT @heblau: @dorcaselambert @nicolabell25 @WeEOLC Perhaps ...STRONGLY recommend this by @EricaBorgstrom https://t.co/70ysnNeiLf #WeEOLC |
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@heblau
02 February 2016 20:59
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@TaraJLamont We have an important role in painting accurate picture of local demographics and needs for CCGs #engagement #WeEOLC |
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@AileenCollier15
02 February 2016 20:59
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RT @hospicedoctor: @illingpig You are right - and we need to unite social universe & professional universe #WeEOLC |
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@Becbaines
02 February 2016 20:59
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@cewalshe Yes. Thought it was strange that communication was specifically excluded #WeEOLC |
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@hospicedoctor
02 February 2016 20:59
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We need to ask braver more relevant questions and listen hard to what matters - their agenda, not our targets #WeEOLC Thanks for fab chat! |
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@PhilBallRN
02 February 2016 20:59
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RT @kesleeman: @WeEOLC as a final thought, can I remind everyone that #hpmJC will be discussing who dies in hospice 10th Feb 8pm #weeolc wi… |
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@lgoodbu
02 February 2016 20:59
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RT @SachaLG: @heblau @WeEOLC @hospicedoctor @Gao_Wei #WeEOLC Weird how emotional TURNS into physical but processing grief is another whole … |
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@100anne
02 February 2016 20:59
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RT @heblau: @WeEOLC Metrics are limited. Choices are fluid. Dying is unpredictable. BUT the passion to change things is huge #WeEOLC |
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@JillAnneWill
02 February 2016 20:59
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@GSFbay #WeEOLC not alway- great experience for us personally, last offices was natural as unpaid carers for great aunty= closure |
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@AileenCollier15
02 February 2016 20:59
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RT @kesleeman: @WeEOLC as a final thought, can I remind everyone that #hpmJC will be discussing who dies in hospice 10th Feb 8pm #weeolc wi… |
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@nxtstop1
02 February 2016 20:59
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RT @kesleeman: @WeEOLC as a final thought, can I remind everyone that #hpmJC will be discussing who dies in hospice 10th Feb 8pm #weeolc wi… |
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@mjarmanhowe
02 February 2016 20:59
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@anna_eol_doula @heblau need effective care plans with pt & family involvement plus community crisis support #WeEOLC |
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@anna_eol_doula
02 February 2016 20:59
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@WeEOLC let's not wait until end of life to talk about end of life #weeolc |
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@GSFbay
02 February 2016 20:59
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RT @kesleeman: @WeEOLC as a final thought, can I remind everyone that #hpmJC will be discussing who dies in hospice 10th Feb 8pm #weeolc wi… |
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@heblau
02 February 2016 20:59
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RT @anna_eol_doula: @WeEOLC let's not wait until end of life to talk about end of life #weeolc |
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@TaraJLamont
02 February 2016 20:59
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#WeEOLC Yes, some great NIHR EoL research (and more to do - check out funding opportunities https://t.co/FHIZEg2T2M https://t.co/e9gkySwNlf |
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@IASP_MESISIG
02 February 2016 20:59
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RT @kesleeman: @WeEOLC as a final thought, can I remind everyone that #hpmJC will be discussing who dies in hospice 10th Feb 8pm #weeolc wi… |
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@cewalshe
02 February 2016 20:59
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RT @kesleeman: @WeEOLC as a final thought, can I remind everyone that #hpmJC will be discussing who dies in hospice 10th Feb 8pm #weeolc wi… |
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@CElliumK
02 February 2016 20:59
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RT @kesleeman: @WeEOLC as a final thought, can I remind everyone that #hpmJC will be discussing who dies in hospice 10th Feb 8pm #weeolc wi… |
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@LetsTalkDeath
02 February 2016 20:59
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RT @anna_eol_doula: @WeEOLC let's not wait until end of life to talk about end of life #weeolc |
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@elleysowerby
02 February 2016 20:59
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RT @nicolabell25: @WeEOLC @Gao_Wei @PollockKristian not for those pts worried about how their families will cope #WeEOLC |
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@BridgetJohnst
02 February 2016 20:59
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RT @Gao_Wei: #WeEOLC we are investigating how service factors affect where people die https://t.co/XK7SCFYsoh thanks for NIHR HS&DR support |
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@Diealogforum
02 February 2016 20:59
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RT @anna_eol_doula: @WeEOLC let's not wait until end of life to talk about end of life #weeolc |
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