#WeEOLC - Tuesday 10th May 2016 8pm (GMT Standard Time) #BigConversation – to be or not to be that is the question

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Hosted by WeEOLC using #WeEOLC

This chat is guest hosted by @LearnPEOLC @PubHealth_Rach

The #BigConversation – to be or not to be that is the question

Hosted by @Rachel_EOLP and @CompassionateCP and @learnhospice

In the midst of Dying Matters week, our @WeEOLCchat aims to be a reflective and contemplative space.

The need for and value of early conversations about future care, how their condition might affect people in the future, treatment, preferences and opportunities to record wishes and decisions for people with incurable illness is well reported in the literature. There is also evidence that conversations about the end of life do not increase patient distress or remove hope.

However, what does it mean if people do not want to talk about their dying or future wishes?

Is it a sign of denial of their illness, a lack of awareness of dying, evidence of poor communication from doctors, nurses and other health care professionals or their own individual way to live with and face dying?

What do you think?

What are your experiences?

What does a compassionate community mean?

Whether we talk or not talk about the #BigConversation how can we be a caring compassionate community? A Compassionate Community involves families, friends and other community members supporting each other to live well, age well, grieve well and die well.

Have a look at

https://youtu.be/GR1StBdMltk from Milford Care Centre or

http://eolp.org.uk/  from End of Life Partnership in Cheshire


What else have you found helpful and want to share?

Join us to reflect, discuss and share in our tweet chat on

Tuesday 10th May 2016 8-9pm #WeEOLC #BigConversation

 The #BigConversation – to be or not to be that is the question









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 #WeEOLC transcript

 
@WeEOLC
10 May 2016 20:00
Welcome 2 @WeEOLC #WeEOLC #BigConversation with @Rachel_EOLP @CompassionateCP @learnhospice 4 @DyingMatters week: To be or not to be!
@WeEOLC
10 May 2016 20:00
RT @learnhospice: @WeEOLC #WeEOLC looking forward to it https://t.co/4L3i0kQx5e
@WeEOLC
10 May 2016 20:01
Say ‘hello’ & don’t forget #WeEOLC #BigConversation so we can see your tweets! TY @CompassionateCP @Rachel_EOLP @learnhospice 4 hosting
@LearnPEOLC
10 May 2016 20:02
RT @WeEOLC: Welcome 2 @WeEOLC #WeEOLC #BigConversation with @Rachel_EOLP @CompassionateCP @learnhospice 4 @DyingMatters week: To be or not…
@PhilBallRN
10 May 2016 20:02
Evening all Philip here at home in MK, #weeolc looking forward to the chat @WeEOLC
@katemasters67
10 May 2016 20:02
@WeEOLC @CompassionateCP @Rachel_EOLP @learnhospice hello! #WeEOLC
@WeEOLC
10 May 2016 20:02
@westirelandgirl @CompassionateCP great to see you !!! #WeEOLC
@PubHealth_Rach
10 May 2016 20:03
You're very welcome! Looking forward to the discussions! #WeEOLC https://twitter.com/WeEOLC/status/730110597673693184
@WeEOLC
10 May 2016 20:03
@EveRCNi @Rachel_EOLP @CompassionateCP @learnhospice @DyingMatters Hello Eve #WeEOLC
@lgoodbu
10 May 2016 20:03
#WeEOLC hello from Lesley in Exeter
@AmyProffitt5
10 May 2016 20:03
@WeEOLC #WeEOLC #BigConversation hello from a palliative medicine trainee
@WeEOLC
10 May 2016 20:03
@hospicemanager #WeEOLC hello Philip!
@Laconic_doc
10 May 2016 20:03
Hello all, Kit here - geriatrician from Hereford... #weeolc
@CSNAT_
10 May 2016 20:03
Hi everyone. Janet joining on behalf of the #csnat team #WeEOLC #BigConversation
@markhawker
10 May 2016 20:03
Hey. Mark here. Information Analyst involved in telemedicine support at the end of life. #WeEOLC #BigConversation
@WeEOLC
10 May 2016 20:03
RT @Rachel_EOLP: You're very welcome! Looking forward to the discussions! #WeEOLC https://twitter.com/WeEOLC/status/730110597673693184
@PubHealth_Rach
10 May 2016 20:03
RT @WeEOLC: Welcome 2 @WeEOLC #WeEOLC #BigConversation with @Rachel_EOLP @CompassionateCP @learnhospice 4 @DyingMatters week: To be or not…
@WeEOLC
10 May 2016 20:03
@AmyProffitt5 Hi Amy good to see you #WeEOLC
@PhilBallRN
10 May 2016 20:04
RT @WeEOLC: Say ‘hello’ & don’t forget #WeEOLC #BigConversation so we can see your tweets! TY @CompassionateCP @Rachel_EOLP @learnhospice 4…
@PamStoney1
10 May 2016 20:04
@WeEOLC @CompassionateCP @Rachel_EOLP @learnhospice #WeEOLC #BigConversation Hi Pam from West Yorkshire here, SpDr #carer
@lgoodbu
10 May 2016 20:04
#WeEOLC #BigConversation hello from Lesley In Exeter
@WeEOLC
10 May 2016 20:04
@markhawker Hello!! #WeEOLC
@WeEOLC
10 May 2016 20:04
@CSNAT_CAS Hello! #WeEOLC 1st question coming soon
@StchMed
10 May 2016 20:04
Hi all, Patricia here, Pall Med Cons & Med Director of @StCHospice in Crawley #WeEOLC
@WeEOLC
10 May 2016 20:04
RT @Laconic_doc: Hello all, Kit here - geriatrician from Hereford... #weeolc
@ZacMaunder1
10 May 2016 20:05
@zacmaunder1evening all. What is the debate topic please on my first ever Twitter debate? #WeEOLC
@PubHealth_Rach
10 May 2016 20:05
@PamStoney1 @WeEOLC @CompassionateCP @learnhospice Hi Pam! #WeEOLC
@heblau
10 May 2016 20:05
@WeEOLC Are we using #WeEOLC or #BigConversation or both??
@WeEOLC
10 May 2016 20:05
@lgoodbu Hello!! #WeEOLC
@WeEOLC
10 May 2016 20:05
@PamStoney1 @CompassionateCP @Rachel_EOLP @learnhospice Hi Pam! #WeEOLC
@JoyWharton1
10 May 2016 20:05
#BigConversation Hi Joy here, looking forward to our chat tonight ?? #WeEOLC
@lizzythemule
10 May 2016 20:06
RT @learnhospice: @WeEOLC #WeEOLC looking forward to it https://t.co/4L3i0kQx5e
@helenfindlay
10 May 2016 20:06
@WeEOLC @CompassionateCP @Rachel_EOLP @learnhospice Hello! PhD palliative care researcher here & campaigner #WeEOLC #BigConversation
@WeEOLC
10 May 2016 20:06
@ZacMaunder1 nice to see you Zac #WeEOLC
@JoyWharton1
10 May 2016 20:06
RT @heblau: @WeEOLC Are we using #WeEOLC or #BigConversation or both??
@WeEOLC
10 May 2016 20:06
Lets start! what does it mean if ppl don’t want to talk about dying or future wishes? #WeEOLC #BigConversation
@heblau
10 May 2016 20:06
RT @WeEOLC: Lets start! what does it mean if ppl don’t want to talk about dying or future wishes? #WeEOLC #BigConversation
@WeEOLC
10 May 2016 20:06
@JoyWharton1 Hello! #WeEOLC
@LearnPEOLC
10 May 2016 20:07
@PamStoney1 @WeEOLC @CompassionateCP @Rachel_EOLP #WeEOLC hello! We are in Leeds this evening
@WeEOLC
10 May 2016 20:07
@helenfindlay @CompassionateCP @Rachel_EOLP @learnhospice #WeEOLC nice to see you
@Laconic_doc
10 May 2016 20:07
As many reasons as people? MT @WeEOLC: what does it mean if ppl don’t want to talk about dying or future wishes? #WeEOLC #BigConversation
@PubHealth_Rach
10 May 2016 20:07
@heblau @WeEOLC Both wherever possible Laura :) #WeEOLC #BigConversation
@WeEOLC
10 May 2016 20:07
What does it mean if ppl don’t want to talk about dying or future wishes? #WeEOLC #BigConversation
@LetsTalkDeath
10 May 2016 20:07
May be not ready, still processing the news, adjusting .... #WeEOLC #BigConversation
@PubHealth_Rach
10 May 2016 20:07
RT @WeEOLC: Lets start! what does it mean if ppl don’t want to talk about dying or future wishes? #WeEOLC #BigConversation
@WeEOLC
10 May 2016 20:07
RT @learnhospice: @PamStoney1 @WeEOLC @CompassionateCP @Rachel_EOLP #WeEOLC hello! We are in Leeds this evening
@JoyWharton1
10 May 2016 20:07
#BigConversation can mean there are more pressing things for them at the moment, need it to be the right time #WeEOLC
@WeEOLC
10 May 2016 20:08
@JonnoSheridan @CompassionateCP @Rachel_EOLP @learnhospice Hello! #WeEOLC
@anna_eol_doula
10 May 2016 20:08
RT @WeEOLC: Lets start! what does it mean if ppl don’t want to talk about dying or future wishes? #WeEOLC #BigConversation
@WeEOLC
10 May 2016 20:08
RT @Rachel_EOLP: @heblau @WeEOLC Both wherever possible Laura :) #WeEOLC #BigConversation
@heblau
10 May 2016 20:08
Ppl often fatalistic. Not everyone wants to plan or believes that planning can make a difference #WeEOLC #BigConversation
@AmyProffitt5
10 May 2016 20:08
@WeEOLC #WeEOLC #BigConversation ppl still think it's taboo or not relevant to them. Let's break taboo wide open
@PubHealth_Rach
10 May 2016 20:08
@mjarmanhowe @WeEOLC @CompassionateCP @learnhospice Hi Mark! #WeEOLC #BigConversation
@WeEOLC
10 May 2016 20:09
@Laconic_doc say more? #WeEOLC
@Laconic_doc
10 May 2016 20:09
Denial is a well-used coping strategy... MT: what does it mean if ppl don’t want to talk about dying/future wishes? #WeEOLC #BigConversation
@LearnPEOLC
10 May 2016 20:09
RT @WeEOLC: Lets start! what does it mean if ppl don’t want to talk about dying or future wishes? #WeEOLC #BigConversation
@SueF65
10 May 2016 20:09
@WeEOLC @CompassionateCP @Rachel_EOLP @learnhospice hello Sue Senior Sister Hospice Hull #WeEOLC #BigConversation
@EveRGNDN
10 May 2016 20:09
We talk about the things they can. We build rapport. #WeEOLC https://twitter.com/weeolc/status/730112069152985088
@WeEOLC
10 May 2016 20:09
@PamStoney1 @learnhospice @CompassionateCP @Rachel_EOLP @researchospice catch up with you another time? #WeEOLC
@vannapoulter
10 May 2016 20:09
@WeEOLC #weeolc good evening ... I think it's all about been brave enough and confident to start those conversations #BigConversation
@WeEOLC
10 May 2016 20:09
RT @AmyProffitt5: @WeEOLC #WeEOLC #BigConversation ppl still think it's taboo or not relevant to them. Let's break taboo wide open
@Laconic_doc
10 May 2016 20:09
We can't *really* know what anyone else truly thinks, unless they're willing to share... RT @WeEOLC: @Laconic_doc say more? #WeEOLC
@fionaDmurphy
10 May 2016 20:09
@WeEOLC often timing not right #BigConversation #WeEOLC
@WeEOLC
10 May 2016 20:10
@AmyProffitt5 say more Amy? #WeEOLC
@helenfindlay
10 May 2016 20:10
RT @Rachel_EOLP: @heblau @WeEOLC Both wherever possible Laura :) #WeEOLC #BigConversation
@JoyWharton1
10 May 2016 20:10
#BigConversation I always wait until I've got a rapport, and follow their lead, follow cues. For some they prefer to take things 1/2 #WeEOLC
@EveRGNDN
10 May 2016 20:10
RT @heblau: Ppl often fatalistic. Not everyone wants to plan or believes that planning can make a difference #WeEOLC #BigConversation
@lgoodbu
10 May 2016 20:10
#WeEOLC #BigConversation ppl might want to talk but not to professionals or families they will often talk with pts/impartial 3rd parties
@EveRGNDN
10 May 2016 20:10
RT @WeEOLC: What does it mean if ppl don’t want to talk about dying or future wishes? #WeEOLC #BigConversation
@helenfindlay
10 May 2016 20:10
RT @AmyProffitt5: @WeEOLC #WeEOLC #BigConversation ppl still think it's taboo or not relevant to them. Let's break taboo wide open
@heblau
10 May 2016 20:10
@AmyProffitt5 @WeEOLC Reluctant to abandon hope http://theconversation.com/before-you-go-are-you-in-denial-about-death-34056 #WeEOLC #BigConversation
@WeEOLC
10 May 2016 20:10
@vannapoulter great point! #WeEOLC -should everyone want to talk about dying?
@PubHealth_Rach
10 May 2016 20:10
RT @AmyProffitt5: @WeEOLC #WeEOLC #BigConversation ppl still think it's taboo or not relevant to them. Let's break taboo wide open
@EveRGNDN
10 May 2016 20:10
RT @vannapoulter: @WeEOLC #weeolc good evening ... I think it's all about been brave enough and confident to start those conversations #Big…
@helenfindlay
10 May 2016 20:11
RT @heblau: @AmyProffitt5 @WeEOLC Reluctant to abandon hope http://theconversation.com/before-you-go-are-you-in-denial-about-death-34056 #WeEOLC #BigConversation
@westirelandgirl
10 May 2016 20:11
RT @WeEOLC: Welcome 2 @WeEOLC #WeEOLC #BigConversation with @Rachel_EOLP @CompassionateCP @learnhospice 4 @DyingMatters week: To be or not…
@PubHealth_Rach
10 May 2016 20:11
RT @learnhospice: @WeEOLC #WeEOLC looking forward to it https://t.co/4L3i0kQx5e
@EveRGNDN
10 May 2016 20:11
RT @lgoodbu: #WeEOLC #BigConversation ppl might want to talk but not to professionals or families they will often talk with pts/impartial 3…
@JoyWharton1
10 May 2016 20:11
#BigConversation2/2/ one day at a time, facing their mortality can be too much, patient choice is paramount (& family) #WeEOLC
@WeEOLC
10 May 2016 20:11
@Laconic_doc #WeEOLC - what tips do you have from your practice/experience - is it diff to hospice doctors?
@JoyWharton1
10 May 2016 20:11
RT @heblau: Ppl often fatalistic. Not everyone wants to plan or believes that planning can make a difference #WeEOLC #BigConversation
@AmyProffitt5
10 May 2016 20:12
@WeEOLC #WeEOLC #BigConversation some feel it's not yet, why https://t.co/icpPc45IIP discuss before too late. Open conversation It's life
@markhawker
10 May 2016 20:12
@WeEOLC @vannapoulter Wouldn’t have thought so. Bit wrong to make it a 'moral failing' for not wanting to talk? #WeEOLC
@WeEOLC
10 May 2016 20:12
@EveRCNi #WeEOLC g8 point what are your top tips to build rapport?
@StchMed
10 May 2016 20:12
@WeEOLC Can mean they are unaware that talking about it can give more choice? #WeEOLC
@mjarmanhowe
10 May 2016 20:12
@lgoodbu #BigConversation #WeEOLC good to create different opportunities in variety of environments
@PhilBallRN
10 May 2016 20:12
Seems we using both #bigconversation #WeEOLC q1 not discussing death, can mean fearful, and unable to tolerate the theme @WeEOLC
@lgoodbu
10 May 2016 20:12
@WeEOLC @vannapoulter #WeEOLC we are all dying now if we were brave enough to admit it might make it easier to talk
@heblau
10 May 2016 20:12
@JoyWharton1 Yes, when convo forced it might mean being done for professional rather than patient benefit #WeEOLC #BigConversation
@WeEOLC
10 May 2016 20:12
@SueF65 @CompassionateCP @Rachel_EOLP @learnhospice hello Sue - g8 to see you #WeEOLC -
@helenfindlay
10 May 2016 20:12
@WeEOLC T1: Possibly that scared of dying process rather than death itself eg pain, suffering towards end #weEOLC #BigConversation
@JoyWharton1
10 May 2016 20:12
#WeEOLC #BigConversation and some hold belief that talking about it will make it happen, don't want to tempt fate https://twitter.com/amyproffitt5/status/730112406710566912
@SachaLG
10 May 2016 20:13
@WeEOLC #Bigconversation #WeEOLC 2 me it =opening up yr family 2 avoidable crises&panic instead of being able 2 focus on enjoying life 2 end
@fionaDmurphy
10 May 2016 20:13
@WeEOLC build up rapport- get background- find out other things - the pt will then lead you when they trust you = time ~non verbal #WeEOLC
@helenfindlay
10 May 2016 20:13
RT @heblau: Ppl often fatalistic. Not everyone wants to plan or believes that planning can make a difference #WeEOLC #BigConversation
@WeEOLC
10 May 2016 20:13
#WeEOLC what do others think about denial as a coping mechanism @heblau https://twitter.com/Laconic_doc/status/730112444304076802
@EveRGNDN
10 May 2016 20:13
@WeEOLC I ask them what their illness means to them now. What they understand. #WeEOLC
@JoyWharton1
10 May 2016 20:13
@Laconic_doc #WeEOLC #BigConversation and avoidance
@Laconic_doc
10 May 2016 20:13
I don't think one can generalise about *groups* of people (drs, nurses, &c). Suspect a highly individual, person/person matter... #weeolc
@katemasters67
10 May 2016 20:13
Not wanting to talk 'now' doesn't mean not wanting to talk 'ever' : #WeEOLC https://twitter.com/weeolc/status/730111804085547008
@ZacMaunder1
10 May 2016 20:13
Zacmaunder1 #WeEOLC
@fionaDmurphy
10 May 2016 20:13
RT @WeEOLC: #WeEOLC what do others think about denial as a coping mechanism @heblau https://twitter.com/Laconic_doc/status/730112444304076802
@WeEOLC
10 May 2016 20:13
@vannapoulter #WeEOLC - do you mean clinicans or pts/families?
@markhawker
10 May 2016 20:13
@AmyProffitt5 Do some think it’s ‘not ever’ because when they’re dead then they’re dead? #WeEOLC
@WeEOLC
10 May 2016 20:14
@fionaDmurphy #WeEOLC say more Fiona about timing?
@Laconic_doc
10 May 2016 20:14
Q1 massive cultural influence - some (eg Brits!) often v relectant to chat re death... #weeolc
@helenfindlay
10 May 2016 20:14
RT @WeEOLC: #WeEOLC what do others think about denial as a coping mechanism @heblau https://t.co/XpNJKsUgk5
@JoyWharton1
10 May 2016 20:14
RT @StchMed: @WeEOLC Can mean they are unaware that talking about it can give more choice? #WeEOLC
@lgoodbu
10 May 2016 20:14
@fionaDmurphy @WeEOLC #WeEOLC its abt seeing the person & not the terminal dying label just talk to ppl don't have a conversation with pts
@JoyWharton1
10 May 2016 20:15
RT @hospicemanager: Seems we using both #bigconversation #WeEOLC q1 not discussing death, can mean fearful, and unable to tolerate the the…
@WeEOLC
10 May 2016 20:15
@katemasters67 good point Kate ! #WeEOLC - talking should be ongoing and continous
@fionaDmurphy
10 May 2016 20:15
@WeEOLC @heblau @Laconic_doc Commonplace - time -listen BUT hear the clues often fear #BigConversation #WeEOLC
@WeEOLC
10 May 2016 20:15
RT @EveRCNi: @WeEOLC I ask them what their illness means to them now. What they understand. #WeEOLC
@JoyWharton1
10 May 2016 20:15
RT @helenfindlay: @WeEOLC T1: Possibly that scared of dying process rather than death itself eg pain, suffering towards end #weEOLC #BigCon…
@AmyProffitt5
10 May 2016 20:15
@EveRCNi @WeEOLC #WeEOLC #BigConversation "what do I need to know about you that would help me look after you ?"
@WeEOLC
10 May 2016 20:15
@fionaDmurphy can you say ore about 'other things' and why? #WeEOLC
@helenfindlay
10 May 2016 20:15
@Laconic_doc @WeEOLC & willing to sharing will depend on how they are approached for this kind of conversation #WeEOLC #BigConversation
@WeEOLC
10 May 2016 20:15
RT @SachaLG: @WeEOLC #Bigconversation #WeEOLC 2 me it =opening up yr family 2 avoidable crises&panic instead of being able 2 focus on enjoy…
@EveRGNDN
10 May 2016 20:15
RT @AmyProffitt5: @EveRCNi @WeEOLC #WeEOLC #BigConversation "what do I need to know about you that would help me look after you ?"
@lgoodbu
10 May 2016 20:15
RT @AmyProffitt5: @EveRCNi @WeEOLC #WeEOLC #BigConversation "what do I need to know about you that would help me look after you ?"
@WeEOLC
10 May 2016 20:15
RT @helenfindlay: @WeEOLC T1: Possibly that scared of dying process rather than death itself eg pain, suffering towards end #weEOLC #BigCon…
@WeEOLC
10 May 2016 20:16
RT @lgoodbu: @WeEOLC @vannapoulter #WeEOLC we are all dying now if we were brave enough to admit it might make it easier to talk
@mjarmanhowe
10 May 2016 20:16
#BigConversation #WeEOLC encouraging people to think about practicalities & what they'd want in place for loved ones might be a start
@helenfindlay
10 May 2016 20:16
RT @SachaLG: @WeEOLC #Bigconversation #WeEOLC 2 me it =opening up yr family 2 avoidable crises&panic instead of being able 2 focus on enjoy…
@Laconic_doc
10 May 2016 20:16
Great Q!! RT @AmyProffitt5: @EveRCNi @WeEOLC #WeEOLC #BigConversation "what do I need to know about you that would help me look after you ?"
@WeEOLC
10 May 2016 20:16
RT @hospicemanager: Seems we using both #bigconversation #WeEOLC q1 not discussing death, can mean fearful, and unable to tolerate the the…
@helenfindlay
10 May 2016 20:16
RT @EveRCNi: @WeEOLC I ask them what their illness means to them now. What they understand. #WeEOLC
@vannapoulter
10 May 2016 20:16
@WeEOLC #WeEOLC was thinking more of us that are clinicians... Should never judge anyone for not talking #PersonCentered at all time
@heblau
10 May 2016 20:16
@WeEOLC Becker suggests denial is society (not just an individual) coping mechanism #WeEOLC #BigConversation http://tinyurl.com/h39etxr
@WeEOLC
10 May 2016 20:16
RT @StchMed: @WeEOLC Can mean they are unaware that talking about it can give more choice? #WeEOLC
@PhilBallRN
10 May 2016 20:16
Denial can shield #WeEolc @WeEOLC #BigConversation though at final hours can give rise to increased distress https://twitter.com/weeolc/status/730113513323139072
@WeEOLC
10 May 2016 20:16
@markhawker @vannapoulter say more Mark? #WeEOLC
@helenfindlay
10 May 2016 20:16
RT @mjarmanhowe: #BigConversation #WeEOLC encouraging people to think about practicalities & what they'd want in place for loved ones might…
@Laconic_doc
10 May 2016 20:16
'Are there any Qs that I haven't asked you, that you think I should have?' #weeolc
@Becbaines
10 May 2016 20:16
Hi all. Just got home. Starving! Becky from Exeter. Pall Care Consultant. #WeEOLC #BigConversation
@helenfindlay
10 May 2016 20:16
RT @AmyProffitt5: @EveRCNi @WeEOLC #WeEOLC #BigConversation "what do I need to know about you that would help me look after you ?"
@WeEOLC
10 May 2016 20:16
RT @heblau: @AmyProffitt5 @WeEOLC Reluctant to abandon hope https://t.co/CjqJ5baaFG #WeEOLC #BigConversation
@katemasters67
10 May 2016 20:17
@WeEOLC @heblau @Laconic_doc denial is natural reaction and may or may not be permanent-leave offer of conversation on table #WeEOLC
@PubHealth_Rach
10 May 2016 20:17
@WeEOLC @heblau Denial is the choice for some ppl - imp to respect that but equally support those who would like to have convo #WeEOLC
@helenfindlay
10 May 2016 20:17
RT @fionaDmurphy: @WeEOLC @heblau @Laconic_doc Commonplace - time -listen BUT hear the clues often fear #BigConversation #WeEOLC
@helenfindlay
10 May 2016 20:17
RT @lgoodbu: @fionaDmurphy @WeEOLC #WeEOLC its abt seeing the person & not the terminal dying label just talk to ppl don't have a conversat…
@markhawker
10 May 2016 20:17
@WeEOLC @vannapoulter Wondered whether some don’t discuss what will happen after death because they’re not there to experience it. #WeEOLC
@heblau
10 May 2016 20:17
@markhawker Agree! Patient-centred care means just that, everyone differs in how much/little they want to talk #WeEOLC #BigConversation 1/2
@VickiJNurse
10 May 2016 20:17
@WeEOLC if they don't talk about it might not happen #WeEOLC
@lgoodbu
10 May 2016 20:17
@helenfindlay @WeEOLC #WeEOLC maybe ppl don't understand what death is if they did maybe wouldn't be so reluctant
@fionaDmurphy
10 May 2016 20:17
@WeEOLC don't rush - take the patient at there pace often a few face to face coffee / chats / trust hear the fears - explore #WeEOLC
@WeEOLC
10 May 2016 20:17
@heblau mainly #WeEOLC but both if you can fit in
@AmyProffitt5
10 May 2016 20:17
RT @heblau: @AmyProffitt5 @WeEOLC Reluctant to abandon hope https://t.co/CjqJ5baaFG #WeEOLC #BigConversation
@fionaDmurphy
10 May 2016 20:17
RT @lgoodbu: @fionaDmurphy @WeEOLC #WeEOLC its abt seeing the person & not the terminal dying label just talk to ppl don't have a conversat…
@ZacMaunder1
10 May 2016 20:18
Perhaps we try too hard to encourage people to talk when perhaps they just want to hear the birds or smell freshly mown grass #WeEOLC
@StchMed
10 May 2016 20:18
@AmyProffitt5 @EveRCNi @WeEOLC yes @HMChochinov 's dignity question - v useful #WeEOLC #BigConversation
@PillingMichelle
10 May 2016 20:18
RT @mjarmanhowe: #BigConversation #WeEOLC encouraging people to think about practicalities & what they'd want in place for loved ones might…
@PubHealth_Rach
10 May 2016 20:18
RT @StchMed: @WeEOLC Can mean they are unaware that talking about it can give more choice? #WeEOLC
@katemasters67
10 May 2016 20:18
@WeEOLC one of the major issues I see with ECTP form - I don't think it encourages ongoing dialogue.. . #WeEOLC
@WeEOLC
10 May 2016 20:18
@EveRCNi @Rachel_EOLP @CompassionateCP @learnhospice @DyingMatters #WeEOLC how you getting on Eve in your first chat?
@PubHealth_Rach
10 May 2016 20:18
RT @lgoodbu: @WeEOLC @vannapoulter #WeEOLC we are all dying now if we were brave enough to admit it might make it easier to talk
@heblau
10 May 2016 20:18
.@markhawker BUT important that it's not attitudes of health/ social care professionals forming the obstacle to #BigConversation #WeEOLC
@PubHealth_Rach
10 May 2016 20:18
RT @helenfindlay: @WeEOLC T1: Possibly that scared of dying process rather than death itself eg pain, suffering towards end #weEOLC #BigCon…
@lgoodbu
10 May 2016 20:18
RT @hospicemanager: Denial can shield #WeEolc @WeEOLC #BigConversation though at final hours can give rise to increased distress https://t.…
@PubHealth_Rach
10 May 2016 20:18
RT @SachaLG: @WeEOLC #Bigconversation #WeEOLC 2 me it =opening up yr family 2 avoidable crises&panic instead of being able 2 focus on enjoy…
@LearnPEOLC
10 May 2016 20:18
@mjarmanhowe #WeEOLC yes, a good starting point
@markhawker
10 May 2016 20:18
For bedtime reading, a perspective on ‘dependency anxiety’ from an Indian perspective. Recommended. https://books.google.co.uk/books?id=y3HEvGsKflwC&lpg=PP1&pg=PA64#v=onepage&q&f=false #WeEOLC
@SachaLG
10 May 2016 20:18
@helenfindlay @WeEOLC #WeEOLC =exactly what I was scared of so forced my self 2 #namefears so #palliativepaeds nurse cld address them=RELIEF
@BridgetJohnst
10 May 2016 20:18
Sorry, joining late, just in door.. Will try and catch up #WeEOLC
@AmyProffitt5
10 May 2016 20:19
@heblau @WeEOLC @ConversationEDU #WeEOLC #BigConversation considered conversation usually our patients are ahead of us in illness process
@JoyWharton1
10 May 2016 20:19
@WeEOLC @heblau @Laconic_doc #WeEOLC #BigConversation 2/2 also professionals keep checking pt. understands, or try to force info on them
@vannapoulter
10 May 2016 20:19
RT @hospicemanager: Seems we using both #bigconversation #WeEOLC q1 not discussing death, can mean fearful, and unable to tolerate the the…
@fionaDmurphy
10 May 2016 20:19
@WeEOLC don't rush - space - see the person not the illness #WeEOLC
@WeEOLC
10 May 2016 20:19
@katemasters67 say more Kate? #WeEOLC
@PaulRJebaraj
10 May 2016 20:19
RT @heblau: @AmyProffitt5 @WeEOLC Reluctant to abandon hope http://theconversation.com/before-you-go-are-you-in-denial-about-death-34056 #WeEOLC #BigConversation
@markhawker
10 May 2016 20:19
@heblau Very true! Meet people where they’re at while not imposing but also stressing the importance. Balancing act! #weeolc
@WeEOLC
10 May 2016 20:19
@StchMed @AmyProffitt5 @EveRCNi @HMChochinov do you have a link? #WeEOLC
@KarinaKTC
10 May 2016 20:19
@lgoodbu @helenfindlay @WeEOLC but death so often seen as failure rather than natural/inevitable #WeEOLC #BigConversation
@JoyWharton1
10 May 2016 20:19
RT @mjarmanhowe: #BigConversation #WeEOLC encouraging people to think about practicalities & what they'd want in place for loved ones might…
@JoyWharton1
10 May 2016 20:19
RT @Laconic_doc: Great Q!! RT @AmyProffitt5: @EveRCNi @WeEOLC #WeEOLC #BigConversation "what do I need to know about you that would help me…
@JoyWharton1
10 May 2016 20:19
RT @hospicemanager: Denial can shield #WeEolc @WeEOLC #BigConversation though at final hours can give rise to increased distress https://t.…
@CSNAT_
10 May 2016 20:20
How do you involve family carers/loved ones in the #Bigconversation if patient reluctant? Tricky? #WeEOLC
@AmyProffitt5
10 May 2016 20:20
RT @StchMed: @WeEOLC Can mean they are unaware that talking about it can give more choice? #WeEOLC
@JoyWharton1
10 May 2016 20:20
RT @Laconic_doc: 'Are there any Qs that I haven't asked you, that you think I should have?' #weeolc
@helenfindlay
10 May 2016 20:20
@lgoodbu @fionaDmurphy @WeEOLC Yes,seeing the person&circumstances eg family/carers there or not &their involvement #weEOLC #BigConversation
@lgoodbu
10 May 2016 20:20
@carriep100 but also at the clinic, In the ward at chemo or treatment the chat with someone else experiencing the same thing #weeolc
@PubHealth_Rach
10 May 2016 20:20
@StchMed @WeEOLC So important...enabling people to engage in #BigConversation if and when they want to is key. #WeEOLC
@WeEOLC
10 May 2016 20:20
@ZacMaunder1 great point Zac! #WeEOLC - how you getting on in your first chat?
@katemasters67
10 May 2016 20:20
@fionaDmurphy @WeEOLC asking who and what is important to someone might be a great way to start..I do like the Max EoL ethos. #WeEOLC
@Laconic_doc
10 May 2016 20:20
Ability to revisit without forcing = valuable! MT @katemasters67: denial is natural reaction - leave offer of conversation on table #WeEOLC
@PubHealth_Rach
10 May 2016 20:20
RT @mjarmanhowe: #BigConversation #WeEOLC encouraging people to think about practicalities & what they'd want in place for loved ones might…
@WeEOLC
10 May 2016 20:20
This challenges always talking about dying #WeEOLC #BigConversation http://www.ncbi.nlm.nih.gov/books/NBK305818/
@heblau
10 May 2016 20:20
.@BlightyCoffee @DyingMatters Looks great. U may be interested in blog by @LindseyBuster https://letstalkdeath.wordpress.com #WeEOLC #BigConversation
@WeEOLC
10 May 2016 20:20
RT @lgoodbu: @helenfindlay @WeEOLC #WeEOLC maybe ppl don't understand what death is if they did maybe wouldn't be so reluctant
@BridgetJohnst
10 May 2016 20:21
See my work on #PDQ http://bmcpalliatcare.biomedcentral.com/articles/10.1186/s12904-015-0013-3 #WeEOLC https://twitter.com/stchmed/status/730114735690100736
@heblau
10 May 2016 20:21
@katemasters67 @WeEOLC Can you say more about why? Process vs outcome? #WeEOLC #BigConversation
@juli3marshall
10 May 2016 20:21
RT @CSNAT_CAS: How do you involve family carers/loved ones in the #Bigconversation if patient reluctant? Tricky? #WeEOLC
@helenfindlay
10 May 2016 20:21
@katemasters67 Receiving news of terminal illness enuff to contend with, but then need to broach what happens next #weEOLC #BigConversation
@WeEOLC
10 May 2016 20:21
RT @heblau: @markhawker Agree! Patient-centred care means just that, everyone differs in how much/little they want to talk #WeEOLC #BigConv…
@SachaLG
10 May 2016 20:21
@Laconic_doc @WeEOLC #WeEOLC Idea that any poor doc/nurse cld poss know what the EOL wishes of my mad family were unless we spoke =hilarious
@PhilBallRN
10 May 2016 20:21
Maybe times that distress in pre death hours is something to be accepted by some, like pain, because of beliefs? #WeEOLC @WeEOLC
@Laconic_doc
10 May 2016 20:21
Q1 'Where do you think that you are in your illness?' Atul Gawande's suggested opening gambit... #weeolc
@EveRGNDN
10 May 2016 20:21
#WeEOLC Words are important. 'Passed on' is not the same as 'died'. We often have to be brave, bold in the language we use.
@StchMed
10 May 2016 20:22
@WeEOLC @AmyProffitt5 @EveRCNi @HMChochinov Sorry broadband died briefly.. But yes http://dignityincare.ca/en/toolkit.html #WeEOLC #BigConversation
@fionaDmurphy
10 May 2016 20:22
@helenfindlay @lgoodbu @WeEOLC check pt is ok with others hearing sharing at that point - big 4 them if they being open 4 1st time #WeEOLC
@PubHealth_Rach
10 May 2016 20:22
RT @WeEOLC: This challenges always talking about dying #WeEOLC #BigConversation http://www.ncbi.nlm.nih.gov/books/NBK305818/
@LetsTalkDeath
10 May 2016 20:22
.@helenfindlay @katemasters67 Must be hard to imagine what happens next if you've never died before... #WeEOLC #BigConversation
@ZacMaunder1
10 May 2016 20:22
When faced with own mortality people may need space away from facing end of life - they know and want to focus on life #WeEOLC@zacmaunder1
@helenfindlay
10 May 2016 20:22
RT @SachaLG: @helenfindlay @WeEOLC #WeEOLC =exactly what I was scared of so forced my self 2 #namefears so #palliativepaeds nurse cld addre…
@EveRGNDN
10 May 2016 20:22
RT @StchMed: @WeEOLC @AmyProffitt5 @EveRCNi @HMChochinov Sorry broadband died briefly.. But yes http://dignityincare.ca/en/toolkit.html #WeEOLC #BigConvers…
@WeEOLC
10 May 2016 20:22
@markhawker @vannapoulter good point #WeEOLC have you looked at @philosophybites thoughts
@helenfindlay
10 May 2016 20:22
RT @lgoodbu: @helenfindlay @WeEOLC #WeEOLC maybe ppl don't understand what death is if they did maybe wouldn't be so reluctant
@PaulRJebaraj
10 May 2016 20:22
RT @WeEOLC: Lets start! what does it mean if ppl don’t want to talk about dying or future wishes? #WeEOLC #BigConversation
@lgoodbu
10 May 2016 20:22
@mjarmanhowe #weeolc we need to have conversations with all youngsters in school normalise death and make it a celebration of a life
@helenfindlay
10 May 2016 20:22
RT @KarinaKTC: @lgoodbu @helenfindlay @WeEOLC but death so often seen as failure rather than natural/inevitable #WeEOLC #BigConversation
@fionaDmurphy
10 May 2016 20:22
@katemasters67 @WeEOLC opp brilliant we use all time #WeEOLC
@Laconic_doc
10 May 2016 20:22
THIS!! MT @SachaLG: #WeEOLC Idea that any poor doc/nurse cld poss know what the EOL wishes of my mad family were unless we spoke =hilarious
@markhawker
10 May 2016 20:22
@westirelandgirl @heblau Very true! Try to reduce the medical narrative although medics (in all forms) a key actor in the narrative. #WeEOLC
@WeEOLC
10 May 2016 20:23
@EveRCNi #WeEOLC yes language has value and meanings attached to it
@StchMed
10 May 2016 20:23
RT @BridgetJohnst: See my work on #PDQ http://bmcpalliatcare.biomedcentral.com/articles/10.1186/s12904-015-0013-3 #WeEOLC https://twitter.com/stchmed/status/730114735690100736
@EveRGNDN
10 May 2016 20:23
RT @WeEOLC: @EveRCNi #WeEOLC yes language has value and meanings attached to it
@katemasters67
10 May 2016 20:23
@WeEOLC no pointers to revisit anything on it including discussion. #WeEOLC
@WeEOLC
10 May 2016 20:23
#WeEOLC @Atul_Gawande https://twitter.com/Laconic_doc/status/730115677684633601
@WeEOLC
10 May 2016 20:24
RT @Laconic_doc: THIS!! MT @SachaLG: #WeEOLC Idea that any poor doc/nurse cld poss know what the EOL wishes of my mad family were unless we…
@PubHealth_Rach
10 May 2016 20:24
RT @WeEOLC: #WeEOLC @Atul_Gawande https://twitter.com/Laconic_doc/status/730115677684633601
@markhawker
10 May 2016 20:24
@WeEOLC Haven’t caught up w/ @philosophybites in a while but will do. A participant for my PhD spoke in frank terms: stuck with me. #WeEOLC
@JoyWharton1
10 May 2016 20:24
RT @WeEOLC: #WeEOLC @Atul_Gawande https://twitter.com/Laconic_doc/status/730115677684633601
@Laconic_doc
10 May 2016 20:24
Clincian shd move to pt's territory, not vice versa! MT @markhawker: Very true! medics (in all forms) key actor in narrative. #WeEOLC
@WeEOLC
10 May 2016 20:24
can you say more how you are using? #WeEOLC https://twitter.com/fionaDmurphy/status/730115866684211200
@EveRGNDN
10 May 2016 20:24
Culture can also divide understanding and therefore our assessment of need is crucial. #WeEOLC
@StchMed
10 May 2016 20:24
Yes, I think we forget how familiar we are with the unfamiliar #WeEOLC #BigConversation https://twitter.com/letstalkdeath/status/730115704486297605
@BridgetJohnst
10 May 2016 20:24
Exactly but key is unambiguous, died is therefore impt #WeEOLC #BigConversation https://twitter.com/evercni/status/730115685095985154
@fionaDmurphy
10 May 2016 20:24
@Becbaines @WeEOLC be real take away to different space can help garden - time biggest factor - no rush kind #WeEOLC
@WeEOLC
10 May 2016 20:24
This is a good resource #WeEOLC #BigConversation http://www.ncbi.nlm.nih.gov/pubmed/27129790
@LearnPEOLC
10 May 2016 20:25
@lgoodbu @mjarmanhowe #WeEOLC Yes, there are hospices doing great work on this
@WeEOLC
10 May 2016 20:25
RT @katemasters67: @WeEOLC no pointers to revisit anything on it including discussion. #WeEOLC
@helenfindlay
10 May 2016 20:25
@lgoodbu @KarinaKTC @WeEOLC Death inevitable for all so manner of death ie as good as poss, be indicator of success #WeEOLC #BigConversation
@heblau
10 May 2016 20:25
RT @StchMed: Yes, I think we forget how familiar we are with the unfamiliar #WeEOLC #BigConversation https://twitter.com/letstalkdeath/status/730115704486297605
@lgoodbu
10 May 2016 20:25
@EveRCNi #weeolc passed on suggests something less permanent died has permanence death is permanent let's not deny it
@katemasters67
10 May 2016 20:25
@helenfindlay there's so much to take in.. I took notes for mum. So much oncology info but none about palliative care #WeEOLC
@vannapoulter
10 May 2016 20:25
RT @mjarmanhowe: #BigConversation #WeEOLC encouraging people to think about practicalities & what they'd want in place for loved ones might…
@markhawker
10 May 2016 20:25
@westirelandgirl Wonder whether ‘we’ means all cultures or just specific ones? I did some research cross-culture but been a while. #WeEOLC
@mjarmanhowe
10 May 2016 20:25
RT @WeEOLC: This is a good resource #WeEOLC #BigConversation http://www.ncbi.nlm.nih.gov/pubmed/27129790
@lgoodbu
10 May 2016 20:25
RT @BridgetJohnst: Exactly but key is unambiguous, died is therefore impt #WeEOLC #BigConversation https://twitter.com/evercni/status/730115685095985154
@PubHealth_Rach
10 May 2016 20:25
RT @StchMed: Yes, I think we forget how familiar we are with the unfamiliar #WeEOLC #BigConversation https://twitter.com/letstalkdeath/status/730115704486297605
@Becbaines
10 May 2016 20:25
@WeEOLC @fionaDmurphy Sorry! Have completely forgotten the hashtags #BigConversation #WeEOLC
@lgoodbu
10 May 2016 20:25
RT @StchMed: Yes, I think we forget how familiar we are with the unfamiliar #WeEOLC #BigConversation https://twitter.com/letstalkdeath/status/730115704486297605
@EveRGNDN
10 May 2016 20:25
RT @BridgetJohnst: Exactly but key is unambiguous, died is therefore impt #WeEOLC #BigConversation https://twitter.com/evercni/status/730115685095985154
@WeEOLC
10 May 2016 20:25
@helenfindlay @lgoodbu @KarinaKTC #WeEOLC do you mean good dying rather than death event ?
@EveRGNDN
10 May 2016 20:25
RT @lgoodbu: @EveRCNi #weeolc passed on suggests something less permanent died has permanence death is permanent let's not deny it
@WeEOLC
10 May 2016 20:25
RT @fionaDmurphy: @Becbaines @WeEOLC be real take away to different space can help garden - time biggest factor - no rush kind #WeEOLC
@PubHealth_Rach
10 May 2016 20:26
RT @WeEOLC: This is a good resource #WeEOLC #BigConversation http://www.ncbi.nlm.nih.gov/pubmed/27129790
@WeEOLC
10 May 2016 20:26
@amaranwosu #WeEOLC hello good to see you!
@JoyWharton1
10 May 2016 20:26
@WeEOLC @Atul_Gawande @Laconic_doc #WeEOLC #BigConversation pt said about his illness, it's overtaken me and is heading on down the road!
@helenfindlay
10 May 2016 20:26
@LetsTalkDeath @katemasters67 There are other necessary things eg sorting financial affairs, advanced directives #weEOLC #BigConversation
@JoyWharton1
10 May 2016 20:26
RT @StchMed: Yes, I think we forget how familiar we are with the unfamiliar #WeEOLC #BigConversation https://twitter.com/letstalkdeath/status/730115704486297605
@mjarmanhowe
10 May 2016 20:26
@learnhospice @lgoodbu our family support team @StHelenaHospice doing great school outreach work on this #BigConversation #WeEOLC
@ZacMaunder1
10 May 2016 20:26
We can learn a lot from the example of young people who turn their grief into positive goals creating community support #WeEOLC
@WeEOLC
10 May 2016 20:26
@markhawker @philosophybites #WeEOLC look at @BrumYODO have Nigel in conversation with @hospicedoctor
@helenfindlay
10 May 2016 20:26
RT @LetsTalkDeath: .@helenfindlay @katemasters67 Must be hard to imagine what happens next if you've never died before... #WeEOLC #BigConve…
@heblau
10 May 2016 20:27
@learnhospice @lgoodbu @mjarmanhowe And community groups e.g. https://www.facebook.com/pushingupdasies/photos_stream #WeEOLC #BigConversation
@Laconic_doc
10 May 2016 20:27
Interesting, tho 'Very low to low quality evidence' :-( RT @WeEOLC: This is a good resource #WeEOLC #BigConversation http://www.ncbi.nlm.nih.gov/pubmed/27129790
@AmyProffitt5
10 May 2016 20:27
RT @heblau: @markhawker Agree! Patient-centred care means just that, everyone differs in how much/little they want to talk #WeEOLC #BigConv…
@SachaLG
10 May 2016 20:27
@WeEOLC @Atul_Gawande I can just imagine my late father or late son's response 2 this: f****d! #BigConversation #WeEOLC
@vannapoulter
10 May 2016 20:27
@mjarmanhowe @Rachel_EOLP #WeEOLC this is why education of our students and junior members of staff is so vital #BigConversation
@markhawker
10 May 2016 20:27
@westirelandgirl In Hinduism, nearing death can be experienced as a withdrawal from community for peace: https://en.wikipedia.org/wiki/Ashrama_(stage) #WeEOLC
@WeEOLC
10 May 2016 20:27
#WeEOLC brilliant https://twitter.com/fionaDmurphy/status/730116796028735488
@PhilBallRN
10 May 2016 20:27
.@helenfindlay @lgoodbu @KarinaKTC @WeEOLC #WeEOLC I have come across those who feel need to suffer, so defy our 'good death' intentions
@Laconic_doc
10 May 2016 20:27
Q1 I don't have personal experience, but children [incl pts] seem to be *far* more open about death & dying... #weeolc
@mjarmanhowe
10 May 2016 20:27
@heblau @learnhospice @lgoodbu death cafes seem to be taking off very well #BigConversation #WeEOLC
@lgoodbu
10 May 2016 20:28
RT @learnhospice: @lgoodbu @mjarmanhowe #WeEOLC Yes, there are hospices doing great work on this
@katemasters67
10 May 2016 20:28
@JFr4ser I walk out of any appointment thinking 'should have asked that' - when it's that life changing your mind just whirrs #WeEOLC
@helenfindlay
10 May 2016 20:28
@westirelandgirl @lgoodbu @WeEOLC Or they died because they didn't 'battle' hard enough against the disease #weEOLC #BigConversation
@WeEOLC
10 May 2016 20:28
RT @hospicemanager: .@helenfindlay @lgoodbu @KarinaKTC @WeEOLC #WeEOLC I have come across those who feel need to suffer, so defy our 'good…
@WeEOLC
10 May 2016 20:28
This is a g8 resource #WeEOLC #BigConversation http://www.ncbi.nlm.nih.gov/pubmed/26443662
@katemasters67
10 May 2016 20:28
@JFr4ser what do you think about recording? #WeEOLC
@Laconic_doc
10 May 2016 20:28
LOL! RT @SachaLG: @WeEOLC @Atul_Gawande I can just imagine my late father or late son's response 2 this: f****d! #BigConversation #WeEOLC
@lgoodbu
10 May 2016 20:28
@heblau @learnhospice @mjarmanhowe #weeolc all great work
@VickiJNurse
10 May 2016 20:29
@Becbaines @WeEOLC @fionaDmurphy the life of a District Nurse #WeEOLC
@EveRGNDN
10 May 2016 20:29
RT @vannapoulter: @mjarmanhowe @Rachel_EOLP #WeEOLC this is why education of our students and junior members of staff is so vital #BigConve…
@westirelandgirl
10 May 2016 20:29
@markhawker correct, the western cult we hide from death We need to celebrate those who are old, frail, dying we have much to learn #WeEOLC
@EveRGNDN
10 May 2016 20:29
RT @WeEOLC: This is a g8 resource #WeEOLC #BigConversation http://www.ncbi.nlm.nih.gov/pubmed/26443662
@markhawker
10 May 2016 20:29
@amaranwosu Hey! :) #WeEOLC
@heblau
10 May 2016 20:29
.@mjarmanhowe Yes, amazing spaces. But often attended by interested professionals, less by public. Work to do #WeEOLC #BigConversation
@EveRGNDN
10 May 2016 20:29
RT @mjarmanhowe: @heblau @learnhospice @lgoodbu death cafes seem to be taking off very well #BigConversation #WeEOLC
@WeEOLC
10 May 2016 20:29
@Laconic_doc true but still worth a look at #WeEOLC
@nursemaiden
10 May 2016 20:29
RT @WeEOLC: This is a g8 resource #WeEOLC #BigConversation http://www.ncbi.nlm.nih.gov/pubmed/26443662
@PubHealth_Rach
10 May 2016 20:29
@heblau @learnhospice @lgoodbu @mjarmanhowe Most definitely. Engaging w our communities & wider public health workforce is crucial! #WeEOLC
@katemasters67
10 May 2016 20:29
RT @helenfindlay: @LetsTalkDeath @katemasters67 There are other necessary things eg sorting financial affairs, advanced directives #weEOLC…
@PamStoney1
10 May 2016 20:29
@fionaDmurphy #WeEOLC I say 'it really helps me to understand your support systems' as I draw family tree & record significant friends
@StchMed
10 May 2016 20:29
@mjarmanhowe @learnhospice @lgoodbu @StHelenaHospice We are doing same at @StCHospice #WeEOLC #BigConversation
@fionaDmurphy
10 May 2016 20:29
@WeEOLC @katemasters67 we use them for expected & the sudden unexpected deaths they work so well with others & families #WeEOLC
@lgoodbu
10 May 2016 20:29
@mjarmanhowe @learnhospice @StHelenaHospice #weeolc all great work
@fionaDmurphy
10 May 2016 20:29
RT @VickiJNurse: @Becbaines @WeEOLC @fionaDmurphy the life of a District Nurse #WeEOLC
@fionaDmurphy
10 May 2016 20:30
RT @PamStoney1: @fionaDmurphy #WeEOLC I say 'it really helps me to understand your support systems' as I draw family tree & record signific…
@EveRGNDN
10 May 2016 20:30
RT @VickiJNurse: @Becbaines @WeEOLC @fionaDmurphy the life of a District Nurse #WeEOLC
@mjarmanhowe
10 May 2016 20:30
RT @StchMed: @mjarmanhowe @learnhospice @lgoodbu @StHelenaHospice We are doing same at @StCHospice #WeEOLC #BigConversation
@BridgetJohnst
10 May 2016 20:30
@katemasters67 @JFr4ser good evidence (will hunt for the papers!) #WeEOLC
@WeEOLC
10 May 2016 20:30
@Laconic_doc #WeEOLC I think it tells us the challenge of more evidence is needed of higher quality
@fionaDmurphy
10 May 2016 20:30
@PamStoney1 love that idea #WeEOLC
@katemasters67
10 May 2016 20:30
@helenfindlay @LetsTalkDeath who will look after the cat, plants..life still goes on, little things 'now' also matter #weEOLC
@JoyWharton1
10 May 2016 20:30
#WeEOLC #BigConversation yes, eg Buddhist ideal of avoiding sedation as death nears, difficult to witness distress https://twitter.com/hospicemanager/status/730117101067882496
@lgoodbu
10 May 2016 20:30
@PamStoney1 @fionaDmurphy #weeolc taking time to get know person is the most important ... The value of time is often lost
@ZacMaunder1
10 May 2016 20:30
No one can predict how they will respond and 'breaking bad news just doesn't capture the emotion - devastating life changing news' #WeEOLC
@helenfindlay
10 May 2016 20:30
@WeEOLC @lgoodbu @KarinaKTC Good palliative care really leading up to death event #WeEOLC #BigConversation
@CSNAT_
10 May 2016 20:31
RT @PamStoney1: @fionaDmurphy #WeEOLC I say 'it really helps me to understand your support systems' as I draw family tree & record signific…
@WeEOLC
10 May 2016 20:31
@BridgetJohnst @katemasters67 @JFr4ser Ty Bridget be good to see #WeEOLC
@PubHealth_Rach
10 May 2016 20:31
@heblau @learnhospice @lgoodbu @mjarmanhowe We are fortunate 2have dedicated public health &Wellbeing programme in Cheshire @_CLWDW #WeEOLC
@EmmaCClare
10 May 2016 20:31
@WeEOLC Death is romanticised by media. People sometimes unaware of realities & so not as motivated to discuss and plan #weEOLC
@helenfindlay
10 May 2016 20:31
RT @hospicemanager: .@helenfindlay @lgoodbu @KarinaKTC @WeEOLC #WeEOLC I have come across those who feel need to suffer, so defy our 'good…
@Laconic_doc
10 May 2016 20:31
Just lamenting the lack of good research - needs @researchospice!! RT @WeEOLC: @Laconic_doc true but still worth a look at #WeEOLC
@WeEOLC
10 May 2016 20:31
we are going to move onto another question about compassionate communities soon #WeEOLC @CompassionateCP @Rachel_EOLP
@fionaDmurphy
10 May 2016 20:32
@lgoodbu @PamStoney1 that makes me sad ... Not on my watch #WeEOLC
@helenfindlay
10 May 2016 20:32
@hospicemanager @lgoodbu @KarinaKTC @WeEOLC Highlights how everyone different & why person-centred care imp #WeEOLC #BigConversation
@StchMed
10 May 2016 20:32
@katemasters67 @JFr4ser Anything which helps people process has to be good #WeEOLC #BigConversation
@katemasters67
10 May 2016 20:32
@helenfindlay @LetsTalkDeath I've heard friends take meal to someone who's bereaved..this would be welcome when facing bad news #WeEOLC
@PubHealth_Rach
10 May 2016 20:32
RT @WeEOLC: we are going to move onto another question about compassionate communities soon #WeEOLC @CompassionateCP @Rachel_EOLP
@ZacMaunder1
10 May 2016 20:32
Knowing your patient and facilitating a sense of support that makes sense #WeEOLC
@LearnPEOLC
10 May 2016 20:32
RT @WeEOLC: we are going to move onto another question about compassionate communities soon #WeEOLC @CompassionateCP @Rachel_EOLP
@WeEOLC
10 May 2016 20:32
What does a compassionate community mean? #WeEOLC #BigConversation @DyingMatters @CompassionateCP @Rachel_EOLP thoughts?
@fionaDmurphy
10 May 2016 20:33
RT @WeEOLC: @Laconic_doc #WeEOLC I think it tells us the challenge of more evidence is needed of higher quality
@PamStoney1
10 May 2016 20:33
@fionaDmurphy #WeEOLC arose out of personal experience when close friend dying, as not NOK but trustee to her kids, needed to assert my role
@lgoodbu
10 May 2016 20:33
@fionaDmurphy @PamStoney1 #weeolc I know and that's what makes you and your work inspiring not all professionals value the time ??
@vannapoulter
10 May 2016 20:33
RT @lgoodbu: @helenfindlay @WeEOLC #WeEOLC maybe ppl don't understand what death is if they did maybe wouldn't be so reluctant
@SachaLG
10 May 2016 20:33
@hospicemanager @WeEOLC @helenfindlay @lgoodbu @KarinaKTC #WeEOLC Do u think it's because of endless 'fight' narrative in media? Feel hve 2?
@helenfindlay
10 May 2016 20:33
RT @StchMed: Yes, I think we forget how familiar we are with the unfamiliar #WeEOLC #BigConversation https://twitter.com/letstalkdeath/status/730115704486297605
@EveRGNDN
10 May 2016 20:33
How do others who work autonomously reflect on difficult conversations? Avoid burnout? We need support to maintain good #eol care #WeEOLC
@WeEOLC
10 May 2016 20:33
@Rachel_EOLP @heblau @learnhospice @lgoodbu @mjarmanhowe @_CLWDW #WeEOLC #BigConversation https://t.co/Nk975w53pp HT @Rachel_EOLP
@LetsTalkDeath
10 May 2016 20:33
@Rachel_EOLP @learnhospice @lgoodbu @mjarmanhowe Working on it in Bradford! https://t.co/mQOwgnjOAu #WeEOLC #BigConversation
@PhilBallRN
10 May 2016 20:33
We need to steer the change #WeEOLC reclaim natural nature of death, keep dialogue going @westirelandgirl @WeEOLC https://t.co/eUkVNZIXmn
@VickiJNurse
10 May 2016 20:34
@EmmaCClare @WeEOLC agree, after talking so many families think death is dramatic and scary #WeEOLC
@WeEOLC
10 May 2016 20:34
RT @helenfindlay: @WeEOLC @lgoodbu @KarinaKTC Good palliative care really leading up to death event #WeEOLC #BigConversation
@mjarmanhowe
10 May 2016 20:34
@Rachel_EOLP @heblau @learnhospice @lgoodbu @_CLWDW your partnership doing great work! ?? #BigConversation #WeEOLC
@itsneverbecky
10 May 2016 20:34
My hospice placement was the most positive experience I had as a student #WeEOLC https://t.co/LDcI69SiGh
@EveRGNDN
10 May 2016 20:34
RT @SachaLG: @hospicemanager @WeEOLC @helenfindlay @lgoodbu @KarinaKTC #WeEOLC Do u think it's because of endless 'fight' narrative in medi…
@JoyWharton1
10 May 2016 20:34
RT @hospicemanager: We need to steer the change #WeEOLC reclaim natural nature of death, keep dialogue going @westirelandgirl @WeEOLC https…
@lgoodbu
10 May 2016 20:34
@SachaLG @hospicemanager @WeEOLC @helenfindlay @KarinaKTC the battle, fight analogy isn't just in the media accept we all die #WeEOLC
@EveRGNDN
10 May 2016 20:34
RT @PamStoney1: @fionaDmurphy #WeEOLC I say 'it really helps me to understand your support systems' as I draw family tree & record signific…
@PhilBallRN
10 May 2016 20:34
RT @helenfindlay: @hospicemanager @lgoodbu @KarinaKTC @WeEOLC Highlights how everyone different & why person-centred care imp #WeEOLC #BigC…
@EveRGNDN
10 May 2016 20:34
RT @StchMed: Yes, I think we forget how familiar we are with the unfamiliar #WeEOLC #BigConversation https://twitter.com/letstalkdeath/status/730115704486297605
@Laconic_doc
10 May 2016 20:34
Not sure! MT @WeEOLC: What does a compassionate community mean? #WeEOLC thoughts?
@WeEOLC
10 May 2016 20:34
RT @JoyWharton1: #WeEOLC #BigConversation yes, eg Buddhist ideal of avoiding sedation as death nears, difficult to witness distress https:…
@LearnPEOLC
10 May 2016 20:34
RT @WeEOLC: What does a compassionate community mean? #WeEOLC #BigConversation @DyingMatters @CompassionateCP @Rachel_EOLP thoughts?
@Emma_Leigh_MBE
10 May 2016 20:34
RT @StchMed: Yes, I think we forget how familiar we are with the unfamiliar #WeEOLC #BigConversation https://twitter.com/letstalkdeath/status/730115704486297605
@fionaDmurphy
10 May 2016 20:35
RT @WeEOLC: This is a g8 resource #WeEOLC #BigConversation http://www.ncbi.nlm.nih.gov/pubmed/26443662
@PubHealth_Rach
10 May 2016 20:35
@EmmaCClare @WeEOLC Very true. Pervasive societal fascination in death but discussing own mortality or of loved ones very different. #WeEOLC
@fionaDmurphy
10 May 2016 20:35
RT @hospicemanager: .@helenfindlay @lgoodbu @KarinaKTC @WeEOLC #WeEOLC I have come across those who feel need to suffer, so defy our 'good…
@WeEOLC
10 May 2016 20:35
What does a compassionate community mean? #WeEOLC #BigConversation @DyingMatters
@helenfindlay
10 May 2016 20:35
@amaranwosu @lgoodbu @KarinaKTC @WeEOLC Kind of conversation no-one wants but so important to have #WeEOLC #BigConversation
@WeEOLC
10 May 2016 20:35
RT @StchMed: @mjarmanhowe @learnhospice @lgoodbu @StHelenaHospice We are doing same at @StCHospice #WeEOLC #BigConversation
@EveRGNDN
10 May 2016 20:35
RT @MsNaughtyCheese: My hospice placement was the most positive experience I had as a student #WeEOLC https://twitter.com/learnhospice/status/730116476678574081
@WeEOLC
10 May 2016 20:35
@PamStoney1 @fionaDmurphy excellent point #WeEOLC
@BridgetJohnst
10 May 2016 20:35
Here's one paper http://www.sciencedirect.com/science/article/pii/S0738399114000846 #WeEOLC https://twitter.com/katemasters67/status/730117371457843200
@WeEOLC
10 May 2016 20:35
RT @heblau: .@mjarmanhowe Yes, amazing spaces. But often attended by interested professionals, less by public. Work to do #WeEOLC #BigConve…
@APMPostTweets
10 May 2016 20:35
RT @BridgetJohnst: See my work on #PDQ http://bmcpalliatcare.biomedcentral.com/articles/10.1186/s12904-015-0013-3 #WeEOLC https://twitter.com/stchmed/status/730114735690100736
@heblau
10 May 2016 20:36
@lgoodbu @SachaLG Absolutely! Heard a doctor refer to EOL treatment decisions as a "battlefield" in my study #WeEOLC #BigConversation
@SachaLG
10 May 2016 20:36
@EmmaCClare @WeEOLC #WeEOLC Romanticised Denial - what a combo! 4 me no plan=bad death & plan = 2 sided conversation. #BigConversation
@Laconic_doc
10 May 2016 20:36
Q2 Only thing I have control over is me. I try to be compassionate to my pt. If *all* do [make pt central] we have comp community? #weeolc
@WeEOLC
10 May 2016 20:36
RT @VickiJNurse: @Becbaines @WeEOLC @fionaDmurphy the life of a District Nurse #WeEOLC
@katemasters67
10 May 2016 20:36
RT @MsNaughtyCheese: My hospice placement was the most positive experience I had as a student #WeEOLC https://twitter.com/learnhospice/status/730116476678574081
@StchMed
10 May 2016 20:36
Am lucky, have great team. Find Schwartz rounds good @PointofCareFdn #WeEOLC #BigConversation https://twitter.com/evercni/status/730118546953482243
@lgoodbu
10 May 2016 20:36
RT @heblau: @lgoodbu @SachaLG Absolutely! Heard a doctor refer to EOL treatment decisions as a "battlefield" in my study #WeEOLC #BigConve…
@PubHealth_Rach
10 May 2016 20:36
@WeEOLC @DyingMatters @CompassionateCP Kindness, openness, supportive of each other throughout life, ageing and death #WeEOLC
@helenfindlay
10 May 2016 20:36
RT @SachaLG: @hospicemanager @WeEOLC @helenfindlay @lgoodbu @KarinaKTC #WeEOLC Do u think it's because of endless 'fight' narrative in medi…
@vannapoulter
10 May 2016 20:36
@helenfindlay #WeEOLC very true.... We hear this so very often , scared, fearful, angry, upset all normal emotions for EOL patients
@EveRGNDN
10 May 2016 20:36
RT @StchMed: Am lucky, have great team. Find Schwartz rounds good @PointofCareFdn #WeEOLC #BigConversation https://twitter.com/evercni/status/730118546953482243
@itsneverbecky
10 May 2016 20:36
This.Different cultures can present "challenge" in terms of acceptance but also have beautiful death customs #WeEOLC https://twitter.com/evercni/status/730116337499049984
@PubHealth_Rach
10 May 2016 20:36
RT @WeEOLC: What does a compassionate community mean? #WeEOLC #BigConversation @DyingMatters @CompassionateCP @Rachel_EOLP thoughts?
@helenfindlay
10 May 2016 20:36
RT @heblau: @lgoodbu @SachaLG Absolutely! Heard a doctor refer to EOL treatment decisions as a "battlefield" in my study #WeEOLC #BigConve…
@Emma_Leigh_MBE
10 May 2016 20:36
RT @SachaLG: @WeEOLC #Bigconversation #WeEOLC 2 me it =opening up yr family 2 avoidable crises&panic instead of being able 2 focus on enjoy…
@EveRGNDN
10 May 2016 20:36
RT @MsNaughtyCheese: This.Different cultures can present "challenge" in terms of acceptance but also have beautiful death customs #WeEOLC h…
@APMPostTweets
10 May 2016 20:36
RT @BridgetJohnst: Here's one paper http://www.sciencedirect.com/science/article/pii/S0738399114000846 #WeEOLC https://twitter.com/katemasters67/status/730117371457843200
@PhilBallRN
10 May 2016 20:36
Possible, we need to rephrase the language, fight narrative suits some, not all #WeEOLC @WeEOLC so get #sensitive https://twitter.com/SachaLG/status/730118495971778565
@lgoodbu
10 May 2016 20:37
@heblau @SachaLG #weeolc we all need to think about language and the effect it has on ppl and how it can set expectations in treatment/EOL
@KarinaKTC
10 May 2016 20:37
@SachaLG @hospicemanager @WeEOLC @helenfindlay @lgoodbu good point,always narratives of fighting and battle #WeEOLC #BigConversation
@Laconic_doc
10 May 2016 20:37
If pt in hospice, EoL agenda is already set! MT @MsNaughtyCheese: My hospice placement was most +ve experience I had as a student #WeEOLC
@APMPostTweets
10 May 2016 20:37
RT @heblau: @lgoodbu @SachaLG Absolutely! Heard a doctor refer to EOL treatment decisions as a "battlefield" in my study #WeEOLC #BigConve…
@StchMed
10 May 2016 20:37
RT @helenfindlay: @amaranwosu @lgoodbu @KarinaKTC @WeEOLC Kind of conversation no-one wants but so important to have #WeEOLC #BigConversati…
@WeEOLC
10 May 2016 20:37
@ZacMaunder1 #WeEOLC agree significant or life changing news propably more reflective
@heblau
10 May 2016 20:38
@WeEOLC Spaces in which to be born, live and die.Designed with humans in mind http://www.goodreads.com/book/show/79766.A_Pattern_Language #WeEOLC #BigConversation
@Laconic_doc
10 May 2016 20:38
Sim challenge with dementia narratives... MT @KarinaKTC: good point,always narratives of fighting and battle #WeEOLC #BigConversation
@WeEOLC
10 May 2016 20:38
RT @hospicemanager: We need to steer the change #WeEOLC reclaim natural nature of death, keep dialogue going @westirelandgirl @WeEOLC https…
@helenfindlay
10 May 2016 20:38
RT @vannapoulter: @helenfindlay #WeEOLC very true.... We hear this so very often , scared, fearful, angry, upset all normal emotions for…
@lgoodbu
10 May 2016 20:38
RT @MsNaughtyCheese: My hospice placement was the most positive experience I had as a student #WeEOLC https://twitter.com/learnhospice/status/730116476678574081
@PamStoney1
10 May 2016 20:38
@WeEOLC @fionaDmurphy #WeEOLC has proved useful when I can talk from personal rather than prof exp... Eg why DNACPR/Will etc etc
@ZacMaunder1
10 May 2016 20:38
Home is where most people want to be, we need resources for community palliative care and children's community palliative care #WeEOLC
@lgoodbu
10 May 2016 20:38
@JFr4ser @MsNaughtyCheese @katemasters67 @learnhospice @mjarmanhowe #weeolc glad to hear it
@helenfindlay
10 May 2016 20:38
RT @KarinaKTC: @SachaLG @hospicemanager @WeEOLC @helenfindlay @lgoodbu good point,always narratives of fighting and battle #WeEOLC #BigConv…
@WeEOLC
10 May 2016 20:38
this is worth a look at #WeEOLC https://twitter.com/LetsTalkDeath/status/730118677031424000
@helenfindlay
10 May 2016 20:38
RT @Laconic_doc: Sim challenge with dementia narratives... MT @KarinaKTC: good point,always narratives of fighting and battle #WeEOLC #BigC…
@LetsTalkDeath
10 May 2016 20:39
RT @heblau: @WeEOLC Spaces in which to be born, live and die.Designed with humans in mind http://www.goodreads.com/book/show/79766.A_Pattern_Language #WeEOLC #BigConversation
@JoyWharton1
10 May 2016 20:39
#BigConversation some HCP state, 'only' or 'just' 4 palliative care when other treatments not working- there's no 'just' about it! #WeEOLC
@WeEOLC
10 May 2016 20:39
don't forget everyone to use #WeEOLC so we can see your tweets
@amaranwosu
10 May 2016 20:39
RT @heblau: @WeEOLC Spaces in which to be born, live and die.Designed with humans in mind http://www.goodreads.com/book/show/79766.A_Pattern_Language #WeEOLC #BigConversation
@SachaLG
10 May 2016 20:39
@hospicemanager @WeEOLC #WeEOLC started liking it & then went off it after son did 75 weeks chemo & cancer returned. Coward? Don't think so
@katemasters67
10 May 2016 20:39
@JFr4ser so much easier (&less admin!) to record..you can listen back..dialogue is real words, easier than written medical(isms!) #weEOLC
@WeEOLC
10 May 2016 20:39
RT @PamStoney1: @WeEOLC @fionaDmurphy #WeEOLC has proved useful when I can talk from personal rather than prof exp... Eg why DNACPR/Will et…
@itsneverbecky
10 May 2016 20:39
@Laconic_doc important to learn from hospice care, to normalise & celebrate death. The "agenda" should be the same everywhere #WeEOLC
@PhilBallRN
10 May 2016 20:39
Hi all noted some forgetting to use #WeEOLC so not seeing all the good tweets! Please use! @WeEOLC
@BridgetJohnst
10 May 2016 20:39
Another one http://www.bmj.com/content/350/bmj.g7645 #WeEOLC https://twitter.com/katemasters67/status/730117371457843200
@markhawker
10 May 2016 20:39
@ZacMaunder1 Part of the work I’m involved in is supporting people to remain at home if that’s their PPD: supporting preferences. #WeEOLC
@Laconic_doc
10 May 2016 20:39
Context key - v diff expect'ns in ITU & hospice! MT @lgoodbu: we all need to think about language & its effect on ppl & expectations #weeolc
@fionaDmurphy
10 May 2016 20:40
RT @BridgetJohnst: Here's one paper http://www.sciencedirect.com/science/article/pii/S0738399114000846 #WeEOLC https://twitter.com/katemasters67/status/730117371457843200
@fionaDmurphy
10 May 2016 20:40
RT @heblau: @WeEOLC Spaces in which to be born, live and die.Designed with humans in mind http://www.goodreads.com/book/show/79766.A_Pattern_Language #WeEOLC #BigConversation
@PhilBallRN
10 May 2016 20:40
RT @SachaLG: @hospicemanager @WeEOLC #WeEOLC started liking it & then went off it after son did 75 weeks chemo & cancer returned. Coward? D…
@WeEOLC
10 May 2016 20:40
@Laconic_doc @KarinaKTC grrrrr #WeEOLC agree
@VickiJNurse
10 May 2016 20:40
@hospicemanager @WeEOLC @westirelandgirlWe try very hard to get anyone home to die if thats what they want #WeEOLC #WeDistrictNurses
@WeEOLC
10 May 2016 20:40
RT @heblau: @WeEOLC Spaces in which to be born, live and die.Designed with humans in mind http://www.goodreads.com/book/show/79766.A_Pattern_Language #WeEOLC #BigConversation
@fionaDmurphy
10 May 2016 20:40
RT @WeEOLC: this is worth a look at #WeEOLC https://twitter.com/LetsTalkDeath/status/730118677031424000
@KarinaKTC
10 May 2016 20:40
Hoping #continuingbonds @CBondsStudy can help to give other narratives and language #WeEOLC #BigConversation
@SachaLG
10 May 2016 20:40
@lgoodbu @heblau #WeEOLC #BigConversation Expectations - now there's the devil in the detail. How 2 manage hope...it is not fixed.
@katemasters67
10 May 2016 20:40
@JFr4ser @MsNaughtyCheese @learnhospice @lgoodbu @mjarmanhowe think everyone should visit a hospice-I was so surprised at positivity#weEOLC
@PubHealth_Rach
10 May 2016 20:40
Excellent point Engaging in discussions as early as poss, whilst healthy, can help to feel more manageable? #WeEOLC https://twitter.com/katemasters67/status/730117817358487553
@Laconic_doc
10 May 2016 20:40
Agree - tho context affects expectat'n MT @MsNaughtyCheese: doc important to learn from hospice care, to normalise & celebrate death #WeEOLC
@WeEOLC
10 May 2016 20:41
Ty @BridgetJohnst #WeEOLC https://twitter.com/BridgetJohnst/status/730120162603601920
@WeEOLC
10 May 2016 20:41
RT @hospicemanager: Hi all noted some forgetting to use #WeEOLC so not seeing all the good tweets! Please use! @WeEOLC
@helenfindlay
10 May 2016 20:41
@westirelandgirl @SachaLG @hospicemanager @WeEOLC @lgoodbu @KarinaKTC Whereas courage is in having the conversation #weEOLC #BigConversation
@lgoodbu
10 May 2016 20:41
@Laconic_doc #weeolc about honest empathic real conversations handled with love compassion pts get treatment when it's not best for them
@fionaDmurphy
10 May 2016 20:41
@JoyWharton1 my absolute pet hate joy can't believe we hear it said so often #WeEOLC
@markhawker
10 May 2016 20:41
@VickiJNurse Or, better still, enable people to remain at home and support through tech. and other means. Prevent unn. admission. :) #WeEOLC
@Laconic_doc
10 May 2016 20:42
If only all had LPOA/death discussions when well! MT @Rachel_EOLP: Engaging in discussions as early as poss #WeEOLC https://twitter.com/katemasters67/status/730117817358487553
@WeEOLC
10 May 2016 20:42
@hospicemanager TY we are trying to keep track!! #WeEOLC
@PhilBallRN
10 May 2016 20:42
Consider example of language #WeEOLC used by @GrangerKate her writing and speaking shows other way to inform and inspire @WeEOLC
@PubHealth_Rach
10 May 2016 20:42
Looks fab! #WeEOLC https://twitter.com/LetsTalkDeath/status/730118677031424000
@lgoodbu
10 May 2016 20:42
RT @SachaLG: @lgoodbu @heblau #WeEOLC #BigConversation Expectations - now there's the devil in the detail. How 2 manage hope...it is not fi…
@WeEOLC
10 May 2016 20:42
RT @hospicemanager: Consider example of language #WeEOLC used by @GrangerKate her writing and speaking shows other way to inform and inspi…
@helenfindlay
10 May 2016 20:42
RT @MsNaughtyCheese: My hospice placement was the most positive experience I had as a student #WeEOLC https://twitter.com/learnhospice/status/730116476678574081
@PubHealth_Rach
10 May 2016 20:42
RT @WeEOLC: don't forget everyone to use #WeEOLC so we can see your tweets
@heblau
10 May 2016 20:42
@SachaLG @EmmaCClare @WeEOLC In lots of ways, yes. But can't plan for every eventuality #WeEOLC #BigConversation
@WeEOLC
10 May 2016 20:42
#WeEOLC https://twitter.com/EmmaCClare/status/730120659884445696
@PubHealth_Rach
10 May 2016 20:42
RT @PamStoney1: @WeEOLC @fionaDmurphy #WeEOLC has proved useful when I can talk from personal rather than prof exp... Eg why DNACPR/Will et…
@WeEOLC
10 May 2016 20:42
#WeEOLC https://twitter.com/amaranwosu/status/730120642989834241
@BridgetJohnst
10 May 2016 20:43
RT @Rachel_EOLP: Excellent point Engaging in discussions as early as poss, whilst healthy, can help to feel more manageable? #WeEOLC https:…
@ZacMaunder1
10 May 2016 20:43
Death is overly sanitised for professional protection -for young people death is not normal or to celebrated #WeEOLC
@SachaLG
10 May 2016 20:43
@markhawker @WeEOLC @ZacMaunder1 #WeEOLC Don't think I've ever met a child in all r 5 years that wanted 2 b in hospital! Maybe #hospice
@WeEOLC
10 May 2016 20:43
#WeEOLC https://twitter.com/westirelandgirl/status/730120505206951936
@WeEOLC
10 May 2016 20:43
RT @VickiJNurse: @hospicemanager @WeEOLC @westirelandgirlWe try very hard to get anyone home to die if thats what they want #WeEOLC #WeDist…
@CSNAT_
10 May 2016 20:43
@Rachel_EOLP @katemasters67 @helenfindlay @LetsTalkDeath is it also important to engage with family carers/loved ones early on? #WeEOLC
@StchMed
10 May 2016 20:43
RT @Laconic_doc: If only all had LPOA/death discussions when well! MT @Rachel_EOLP: Engaging in discussions as early as poss #WeEOLC https:…
@PubHealth_Rach
10 May 2016 20:43
RT @hospicemanager: Consider example of language #WeEOLC used by @GrangerKate her writing and speaking shows other way to inform and inspi…
@WeEOLC
10 May 2016 20:43
#WeEOLC https://twitter.com/amaranwosu/status/730119869182713857
@markhawker
10 May 2016 20:43
Big part of supporting EOLC preferences is having them recorded, accessible but also *actioned* by professionals. #WeEOLC
@helenfindlay
10 May 2016 20:44
@MsNaughtyCheese @Laconic_doc Words 'hospice' & 'palliative' taboo for many still #weEOLC #BigConversation
@WeEOLC
10 May 2016 20:44
#WeEOLC https://twitter.com/westirelandgirl/status/730119670880161792
@PhilBallRN
10 May 2016 20:44
That's great #WeEOLC @WeDistrictNurse allows choice, and experience and exposure to death @WeEOLC https://twitter.com/VickiJNurse/status/730120367113654275
@Laconic_doc
10 May 2016 20:44
I try hard to get *anything* for dying pt! MT @VickiJNurse: We try v hard to get anyone home to die if they want #WeEOLC #WeDistrictNurses
@WeEOLC
10 May 2016 20:44
#WeEOLC https://twitter.com/westirelandgirl/status/730119383469707266
@JoyWharton1
10 May 2016 20:44
@fionaDmurphy #WeEOLC #BigConversation another I always challenge is 'ceiling of care' ??must be working because I've heard others do so too!
@JoyWharton1
10 May 2016 20:44
RT @hospicemanager: Consider example of language #WeEOLC used by @GrangerKate her writing and speaking shows other way to inform and inspi…
@Laconic_doc
10 May 2016 20:44
Yes - goes right back to Q1 here! RT @helenfindlay: Words 'hospice' & 'palliative' taboo for many still #weEOLC #BigConversation
@heblau
10 May 2016 20:45
@CSNAT_CAS @Rachel_EOLP @katemasters67 Essential! They are the backbone of care in a compassionate community #WeEOLC #BigConversation
@KarinaKTC
10 May 2016 20:45
@WeEOLC @BridgetJohnst how do Drs feel about being recorded? Can see pros but does it mean more guarded conversations? #WeEOLC
@WeEOLC
10 May 2016 20:45
@amaranwosu @helenfindlay @lgoodbu @KarinaKTC don't forget #WeEOLC so we can see your thoughts!
@JoyWharton1
10 May 2016 20:45
RT @helenfindlay: @MsNaughtyCheese @Laconic_doc Words 'hospice' & 'palliative' taboo for many still #weEOLC #BigConversation
@fionaDmurphy
10 May 2016 20:45
@katemasters67 @WeEOLC @learnhospice @lgoodbu now then!everyone should visit a hospital that cares for the dying well #WeEOLC ??
@SachaLG
10 May 2016 20:45
@heblau @EmmaCClare @WeEOLC #WeEOLC I knew that but boy did knowing about likely problems take away so much fear. Unknown=SO scary
@helenfindlay
10 May 2016 20:45
@ZacMaunder1 Hear Hear! especially for people living with dementia (but not only) #weEOLC #BigConversation
@StchMed
10 May 2016 20:45
@Laconic_doc @Rachel_EOLP @katemasters67 much easier if people have talked to loved ones b4 they get ill #WeEOLC #BigConversation
@PubHealth_Rach
10 May 2016 20:45
So true @Emma_Leigh_MBE Death is part of life #WeEOLC @_CLWDW https://twitter.com/Emma_Leigh_MBE/status/730121028043718658
@lgoodbu
10 May 2016 20:45
RT @Laconic_doc: I try hard to get *anything* for dying pt! MT @VickiJNurse: We try v hard to get anyone home to die if they want #WeEOLC #…
@katemasters67
10 May 2016 20:45
@Laconic_doc @Rachel_EOLP @helenfindlay @LetsTalkDeath problem is until issue hits you between eyes hard to imagine what you'd do#weEOLC
@helenfindlay
10 May 2016 20:45
RT @PamStoney1: @fionaDmurphy #WeEOLC I say 'it really helps me to understand your support systems' as I draw family tree & record signific…
@fionaDmurphy
10 May 2016 20:45
@JoyWharton1 lol ??#WeEOLC
@helenfindlay
10 May 2016 20:45
RT @PamStoney1: @WeEOLC @fionaDmurphy #WeEOLC has proved useful when I can talk from personal rather than prof exp... Eg why DNACPR/Will et…
@Laconic_doc
10 May 2016 20:45
A very hospital-focused terminology! MT @JoyWharton1: another I always challenge is 'ceiling of care' #weeolc
@Emma_Leigh_MBE
10 May 2016 20:45
RT @Rachel_EOLP: So true @Emma_Leigh_MBE Death is part of life #WeEOLC @_CLWDW https://twitter.com/Emma_Leigh_MBE/status/730121028043718658
@lgoodbu
10 May 2016 20:46
RT @heblau: @CSNAT_CAS @Rachel_EOLP @katemasters67 Essential! They are the backbone of care in a compassionate community #WeEOLC #BigConver…
@Babaji538
10 May 2016 20:46
RT @WeEOLC: Ty @BridgetJohnst #WeEOLC https://twitter.com/BridgetJohnst/status/730120162603601920
@ZacMaunder1
10 May 2016 20:46
Sometimes we support people best by helping them work through their anger and agree with them when they say their situation is hard #WeEOLC
@CSNAT_
10 May 2016 20:46
RT @heblau: @CSNAT_CAS @Rachel_EOLP @katemasters67 Essential! They are the backbone of care in a compassionate community #WeEOLC #BigConver…
@itsneverbecky
10 May 2016 20:46
@helenfindlay @Laconic_doc huge same. Recently read "When Smoke Gets in Your Eyes" a "taboo" subject but so positive & inspiring #WeEOLC
@SachaLG
10 May 2016 20:46
@westirelandgirl @helenfindlay @hospicemanager @WeEOLC @lgoodbu @KarinaKTC #WeEOLC Normalisation wld then make far less courage required!
@PamStoney1
10 May 2016 20:46
#WeEOLC Military metaphors banned here, ex-vet RM husb abhors them. Altho his Lymphoma nicknamed 'The Alien' https://twitter.com/karinaktc/status/730119520053043200
@lgoodbu
10 May 2016 20:46
RT @ZacMaunder1: Death is overly sanitised for professional protection -for young people death is not normal or to celebrated #WeEOLC
@itsneverbecky
10 May 2016 20:46
RT @lgoodbu: @heblau @SachaLG #weeolc we all need to think about language and the effect it has on ppl and how it can set expectations in t…
@WeEOLC
10 May 2016 20:46
brilliant thoughts everyone - #WeEOLC
@WeEOLC
10 May 2016 20:46
RT @StchMed: @Laconic_doc @Rachel_EOLP @katemasters67 much easier if people have talked to loved ones b4 they get ill #WeEOLC #BigConversat…
@VickiJNurse
10 May 2016 20:46
@Laconic_doc thats terrible we do everything we can to get people home or to stay home we pride ourselves on it #WeEOLC #WeDNs
@fionaDmurphy
10 May 2016 20:46
RT @WeEOLC: Ty @BridgetJohnst #WeEOLC https://twitter.com/BridgetJohnst/status/730120162603601920
@helenfindlay
10 May 2016 20:46
RT @BridgetJohnst: See my work on #PDQ http://bmcpalliatcare.biomedcentral.com/articles/10.1186/s12904-015-0013-3 #WeEOLC https://twitter.com/stchmed/status/730114735690100736
@WeEOLC
10 May 2016 20:47
RT @heblau: @CSNAT_CAS @Rachel_EOLP @katemasters67 Essential! They are the backbone of care in a compassionate community #WeEOLC #BigConver…
@Laconic_doc
10 May 2016 20:47
Yes (or GP)! MT @StchMed: @katemasters67 much easier if people have talked to loved ones b4 they get ill #WeEOLC #BigConversation
@helenfindlay
10 May 2016 20:47
RT @lgoodbu: @WeEOLC @vannapoulter #WeEOLC we are all dying now if we were brave enough to admit it might make it easier to talk
@WeEOLC
10 May 2016 20:47
RT @Laconic_doc: Yes - goes right back to Q1 here! RT @helenfindlay: Words 'hospice' & 'palliative' taboo for many still #weEOLC #BigConver…
@itsneverbecky
10 May 2016 20:47
RT @SachaLG: @heblau @EmmaCClare @WeEOLC #WeEOLC I knew that but boy did knowing about likely problems take away so much fear. Unknown=SO s…
@WeEOLC
10 May 2016 20:47
RT @JoyWharton1: @fionaDmurphy #WeEOLC #BigConversation another I always challenge is 'ceiling of care' ??must be working because I've heard…
@lgoodbu
10 May 2016 20:47
RT @JoyWharton1: @fionaDmurphy #WeEOLC #BigConversation another I always challenge is 'ceiling of care' ??must be working because I've heard…
@helenfindlay
10 May 2016 20:47
RT @hospicemanager: Seems we using both #bigconversation #WeEOLC q1 not discussing death, can mean fearful, and unable to tolerate the the…
@WeEOLC
10 May 2016 20:47
RT @Laconic_doc: I try hard to get *anything* for dying pt! MT @VickiJNurse: We try v hard to get anyone home to die if they want #WeEOLC #…
@helenfindlay
10 May 2016 20:47
RT @StchMed: @WeEOLC Can mean they are unaware that talking about it can give more choice? #WeEOLC
@WeEOLC
10 May 2016 20:47
RT @markhawker: Big part of supporting EOLC preferences is having them recorded, accessible but also *actioned* by professionals. #WeEOLC
@ZacMaunder1
10 May 2016 20:47
Just being there and not trying force a jolly death on someone can help them start to appreciate the now #WeEOLC
@heblau
10 May 2016 20:47
@Laconic_doc @StchMed @katemasters67 How many participants in this chat have told their family of their wishes? #WeEOLC #BigConversation
@VickiJNurse
10 May 2016 20:47
@markhawker always , we pride ourselves on doing all we can #WeEOLC #WeDNs
@fionaDmurphy
10 May 2016 20:47
@katemasters67 @WeEOLC @learnhospice @lgoodbu ??#WeEOLC ah but your coming ??
@WeEOLC
10 May 2016 20:47
@markhawker #WeEOLC turning understanding into action
@Laconic_doc
10 May 2016 20:48
What's terrible? (Lost thread!) MT @VickiJNurse: thats terrible we do everything we can to get people home #WeEOLC #WeDNs
@JoyWharton1
10 May 2016 20:48
#BigConversation some pts don't like to have it in black and white, but are happy for me to record their preferences electronically #WeEOLC
@WeEOLC
10 May 2016 20:48
We are coming to the end soon #WeEOLC #BigConversation start gathering your thoughts for the final question
@lgoodbu
10 May 2016 20:48
@katemasters67 @fionaDmurphy @WeEOLC @learnhospice fiona has a point but it's understanding the different places ppl die #weeolc
@katemasters67
10 May 2016 20:48
@heblau @Laconic_doc @StchMed for end of life..what I know now with no end in sight! And that It may change #weEOLC
@helenfindlay
10 May 2016 20:49
@SachaLG @westirelandgirl @hospicemanager @WeEOLC @lgoodbu @KarinaKTC Courage to start off maybe, then normalised #weEOLC #BigConversation
@VickiJNurse
10 May 2016 20:49
@Laconic_doc sorry! terrible if you can't get people home if thats what they want #WeEOLC
@westirelandgirl
10 May 2016 20:49
RT @SachaLG: @westirelandgirl @helenfindlay @hospicemanager @WeEOLC @lgoodbu @KarinaKTC #WeEOLC Normalisation wld then make far less courag…
@lgoodbu
10 May 2016 20:49
RT @heblau: @WeEOLC Spaces in which to be born, live and die.Designed with humans in mind http://www.goodreads.com/book/show/79766.A_Pattern_Language #WeEOLC #BigConversation
@heblau
10 May 2016 20:49
@lgoodbu @katemasters67 @fionaDmurphy @WeEOLC @learnhospice And how and why they end up there #WeEOLC #BigConversation
@KarinaKTC
10 May 2016 20:49
@heblau @Laconic_doc @StchMed @katemasters67 to be honest,not quite sure what my wishes are ;) is that weird of me? #WeEOLC #BigConversation
@helenfindlay
10 May 2016 20:49
RT @Laconic_doc: Yes - goes right back to Q1 here! RT @helenfindlay: Words 'hospice' & 'palliative' taboo for many still #weEOLC #BigConver…
@WeEOLC
10 May 2016 20:49
@heblau @Laconic_doc @StchMed @katemasters67 #WeEOLC @learnhospice has and they are now bored of it!
@SachaLG
10 May 2016 20:49
@Laconic_doc @helenfindlay #BigConversation #WeEOLC I didn't know what #palliative care meant, ppl misunderstand- think=passive & doing 0!
@katemasters67
10 May 2016 20:49
A really good question! #weEOLC https://twitter.com/heblau/status/730122180692938752
@WeEOLC
10 May 2016 20:49
RT @ZacMaunder1: Just being there and not trying force a jolly death on someone can help them start to appreciate the now #WeEOLC
@helenfindlay
10 May 2016 20:49
RT @WeEOLC: @amaranwosu @helenfindlay @lgoodbu @KarinaKTC don't forget #WeEOLC so we can see your thoughts!
@PubHealth_Rach
10 May 2016 20:49
RT @hospicemanager: Hi all noted some forgetting to use #WeEOLC so not seeing all the good tweets! Please use! @WeEOLC
@WeEOLC
10 May 2016 20:49
RT @Laconic_doc: Yes (or GP)! MT @StchMed: @katemasters67 much easier if people have talked to loved ones b4 they get ill #WeEOLC #BigConve…
@amaranwosu
10 May 2016 20:50
@KarinaKTC @WeEOLC @BridgetJohnst Think it will help recall & patients & family. Especially as recording technology more accessible #WeEOLC
@helenfindlay
10 May 2016 20:50
RT @Rachel_EOLP: Excellent point Engaging in discussions as early as poss, whilst healthy, can help to feel more manageable? #WeEOLC https:…
@heblau
10 May 2016 20:50
.@KarinaKTC @Laconic_doc @StchMed Guessing you'd like burying under the house for a while before exhuming? ;) #WeEOLC #BigConversation
@helenfindlay
10 May 2016 20:50
RT @Laconic_doc: If only all had LPOA/death discussions when well! MT @Rachel_EOLP: Engaging in discussions as early as poss #WeEOLC https:…
@Laconic_doc
10 May 2016 20:50
I wouldn't mind, but no-one has asked me! MT @KarinaKTC: how do Drs feel about being recorded? #WeEOLC
@PhilBallRN
10 May 2016 20:50
I've discussed with, my mum, partner and sons, very interesting #SundayLunch #WeEOLC @heblau @WeEOLC now we all know https://twitter.com/heblau/status/730122180692938752
@CBondsStudy
10 May 2016 20:50
RT @heblau: .@KarinaKTC @Laconic_doc @StchMed Guessing you'd like burying under the house for a while before exhuming? ;) #WeEOLC #BigConv…
@StchMed
10 May 2016 20:50
@heblau @Laconic_doc @katemasters67 Great Q. Yes, in outline. And have will but no LPOA yet! #WeEOLC #BigConversation
@itsneverbecky
10 May 2016 20:50
@lgoodbu @heblau @SachaLG loke the change to Do Not *Attempt* CPR, helps people understand it is not guarenteed success #WeEOLC
@BridgetJohnst
10 May 2016 20:51
RT @katemasters67: A really good question! #weEOLC https://twitter.com/heblau/status/730122180692938752
@fionaDmurphy
10 May 2016 20:51
@lgoodbu @katemasters67 @WeEOLC @learnhospice but so few die in a hospice ??& so many in hospital #WeEOLC
@amaranwosu
10 May 2016 20:51
RT @BridgetJohnst: Here's one paper http://www.sciencedirect.com/science/article/pii/S0738399114000846 #WeEOLC https://twitter.com/katemasters67/status/730117371457843200
@WeEOLC
10 May 2016 20:51
Last question: what are your take home messages 4 yourself/others? #WeEOLC #BigConversation @westirelandgirl @Rachel_EOLP @CompassionateCP
@LearnPEOLC
10 May 2016 20:51
RT @heblau: @Laconic_doc @StchMed @katemasters67 How many participants in this chat have told their family of their wishes? #WeEOLC #BigCon…
@katemasters67
10 May 2016 20:51
RT @fionaDmurphy: @lgoodbu @katemasters67 @WeEOLC @learnhospice but so few die in a hospice ??& so many in hospital #WeEOLC
@PamStoney1
10 May 2016 20:51
@KarinaKTC #WeEOLC @BridgetJohnst I would be happy, have learnt so much more when I've been observed by GPST or Nurse & had their feedback
@fionaDmurphy
10 May 2016 20:51
RT @heblau: @lgoodbu @katemasters67 @fionaDmurphy @WeEOLC @learnhospice And how and why they end up there #WeEOLC #BigConversation
@Laconic_doc
10 May 2016 20:51
I use phrase 'intensive palliative care' MT @SachaLG: #WeEOLC I didn't know what #palliative care meant, think=passive & doing 0!
@PubHealth_Rach
10 May 2016 20:51
@CSNAT_CAS @katemasters67 @helenfindlay @LetsTalkDeath Definitely!! #WeEOLC
@Emma_Leigh_MBE
10 May 2016 20:51
@katemasters67 @heblau @Laconic_doc @StchMed I think a lot of us talk in general terms, maybe jokingly, but in black and white... #WeEOLC
@heblau
10 May 2016 20:51
@jobK2 @KarinaKTC @Laconic_doc @StchMed @katemasters67 Mine too #WeEOLC #BigConversation
@helenfindlay
10 May 2016 20:51
@katemasters67 @Laconic_doc @Rachel_EOLP @LetsTalkDeath Indeed. Like first time watching loved one die #weEOLC #BigConversation
@SachaLG
10 May 2016 20:51
@fionaDmurphy @westirelandgirl @helenfindlay @hospicemanager @WeEOLC @lgoodbu #WeEOLC #BigConverstaion Everyone's normal business!!
@KarinaKTC
10 May 2016 20:51
@heblau @Laconic_doc @StchMed with odd things to confuse future archaeologists;) #WeEOLC #BigConversation
@fionaDmurphy
10 May 2016 20:51
RT @SachaLG: @fionaDmurphy @westirelandgirl @helenfindlay @hospicemanager @WeEOLC @lgoodbu #WeEOLC #BigConverstaion Everyone's normal busin…
@lgoodbu
10 May 2016 20:51
@fionaDmurphy @westirelandgirl @helenfindlay @SachaLG @hospicemanager @WeEOLC #weeolc we can forget the ppl by describing dying #labels
@helenfindlay
10 May 2016 20:51
RT @SachaLG: @westirelandgirl @helenfindlay @hospicemanager @WeEOLC @lgoodbu @KarinaKTC #WeEOLC Normalisation wld then make far less courag…
@westirelandgirl
10 May 2016 20:51
Definitely, this is seen in Ireland. We also need to help people forgive themselves #weeolc https://twitter.com/hospicemanager/status/730117101067882496
@JoyWharton1
10 May 2016 20:51
RT @fionaDmurphy: @lgoodbu @katemasters67 @WeEOLC @learnhospice but so few die in a hospice ??& so many in hospital #WeEOLC
@lgoodbu
10 May 2016 20:51
RT @SachaLG: @fionaDmurphy @westirelandgirl @helenfindlay @hospicemanager @WeEOLC @lgoodbu #WeEOLC #BigConverstaion Everyone's normal busin…
@PubHealth_Rach
10 May 2016 20:52
RT @heblau: @CSNAT_CAS @Rachel_EOLP @katemasters67 Essential! They are the backbone of care in a compassionate community #WeEOLC #BigConver…
@LearnPEOLC
10 May 2016 20:52
Thinking about my take home message 1 #WeEOLC https://t.co/Fzy4hn0PGa
@fionaDmurphy
10 May 2016 20:52
RT @lgoodbu: @fionaDmurphy @westirelandgirl @helenfindlay @SachaLG @hospicemanager @WeEOLC #weeolc we can forget the ppl by describing dyin…
@PamStoney1
10 May 2016 20:52
@KarinaKTC #WeEOLC @BridgetJohnst It would improve my Comm skills!
@amaranwosu
10 May 2016 20:52
@BridgetJohnst @katemasters67 @JFr4ser I think the audio medium is a real opportunity. For consulations but also education #podcast #WeEOLC
@JoyWharton1
10 May 2016 20:52
@fionaDmurphy @lgoodbu @katemasters67 @WeEOLC @learnhospice #WeEOLC #BigConversation yes, important not to see dying in hospital as failure
@Laconic_doc
10 May 2016 20:52
If only all did this! MT @hospicemanager: I've discussed with, my mum, partner and sons, v interesting #WeEOLC now we all know
@LearnPEOLC
10 May 2016 20:52
Thinking about my take home message 2 #WeEOLC https://t.co/wl1h5DGpS0
@ZacMaunder1
10 May 2016 20:52
Learning about what is important for the person in the short life left, facilitating care to help achieve changing care goals#WeEOLC
@PubHealth_Rach
10 May 2016 20:52
RT @heblau: @Laconic_doc @StchMed @katemasters67 How many participants in this chat have told their family of their wishes? #WeEOLC #BigCon…
@WeEOLC
10 May 2016 20:52
RT @PamStoney1: @KarinaKTC #WeEOLC @BridgetJohnst It would improve my Comm skills!
@WeEOLC
10 May 2016 20:53
RT @learnhospice: Thinking about my take home message 1 #WeEOLC https://t.co/Fzy4hn0PGa
@WeEOLC
10 May 2016 20:53
RT @westirelandgirl: Definitely, this is seen in Ireland. We also need to help people forgive themselves #weeolc https://twitter.com/hospicemanager/status/730117101067882496
@PubHealth_Rach
10 May 2016 20:53
RT @StchMed: @Laconic_doc @Rachel_EOLP @katemasters67 much easier if people have talked to loved ones b4 they get ill #WeEOLC #BigConversat…
@EmilyHSA
10 May 2016 20:53
RT @vannapoulter: @WeEOLC #weeolc good evening ... I think it's all about been brave enough and confident to start those conversations #Big…
@WeEOLC
10 May 2016 20:53
RT @lgoodbu: @fionaDmurphy @westirelandgirl @helenfindlay @SachaLG @hospicemanager @WeEOLC #weeolc we can forget the ppl by describing dyin…
@jobK2
10 May 2016 20:53
RT @Rachel_EOLP: Excellent point Engaging in discussions as early as poss, whilst healthy, can help to feel more manageable? #WeEOLC https:…
@Emma_Leigh_MBE
10 May 2016 20:53
@WeEOLC @westirelandgirl @Rachel_EOLP @CompassionateCP 1) Proper talk, not just what music would you like #WeEOLC
@PhilBallRN
10 May 2016 20:53
RT @lgoodbu: @fionaDmurphy @westirelandgirl @helenfindlay @SachaLG @hospicemanager @WeEOLC #weeolc we can forget the ppl by describing dyin…
@Laconic_doc
10 May 2016 20:53
Reading 'Intimate Deaths' by De Hennezel opened my eyes do variance in folk's approaches to dying... #weeolc
@WeEOLC
10 May 2016 20:53
Last question – what are your take home messages 4 yourself/others? #WeEOLC #BigConversation
@nicolabell25
10 May 2016 20:53
@fionaDmurphy @lgoodbu @katemasters67 @WeEOLC @learnhospice cos sometimes that's where pts want to be #WeEOLC
@lgoodbu
10 May 2016 20:54
@Emma_Leigh_MBE @katemasters67 @heblau @Laconic_doc @StchMed joking helps and if you need to gave a convo later it makes it easier #weeolc
@fionaDmurphy
10 May 2016 20:54
@JoyWharton1 @lgoodbu @katemasters67 @WeEOLC @learnhospice it's not - it a privilege to care for the dying & the dead & role model #WeEOLC
@PubHealth_Rach
10 May 2016 20:54
RT @Emma_Leigh_MBE: @WeEOLC @westirelandgirl @Rachel_EOLP @CompassionateCP 1) Proper talk, not just what music would you like #WeEOLC
@helenfindlay
10 May 2016 20:54
RT @SachaLG: @Laconic_doc @helenfindlay #BigConversation #WeEOLC I didn't know what #palliative care meant, ppl misunderstand- think=passiv…
@amaranwosu
10 May 2016 20:54
@BridgetJohnst @katemasters67 @JFr4ser Here is a @Pallimed Blog about #hpm podcasts #WeEOLC @WeEOLC http://www.pallimed.org/2015/05/palliative-care-podcasts.html?m=1
@WeEOLC
10 May 2016 20:54
RT @Laconic_doc: I use phrase 'intensive palliative care' MT @SachaLG: #WeEOLC I didn't know what #palliative care meant, think=passive & d…
@SachaLG
10 May 2016 20:54
@Laconic_doc #WeEOLC I'd go 4 "Intensive palliative treatment" - (2 many hyped up hospital soap operas) - need ACTION #BigConversation
@fionaDmurphy
10 May 2016 20:54
RT @nicolabell25: @fionaDmurphy @lgoodbu @katemasters67 @WeEOLC @learnhospice cos sometimes that's where pts want to be #WeEOLC
@heblau
10 May 2016 20:54
ConversationS - plural not singular #WeEOLC #BigConversation
@westirelandgirl
10 May 2016 20:54
@WeEOLC @Rachel_EOLP @CompassionateCP Oh be kind to yourselves and to each other, to help, to care, to talk, to listen, be nice #weeolc
@helenfindlay
10 May 2016 20:54
RT @Laconic_doc: I use phrase 'intensive palliative care' MT @SachaLG: #WeEOLC I didn't know what #palliative care meant, think=passive & d…
@Ruthiemccarroll
10 May 2016 20:54
@WeEOLC @ZacMaunder1 and when the person does not die in predicted way or at all the ramifications for family immense and lasting #weEOLC
@fionaDmurphy
10 May 2016 20:54
RT @JoyWharton1: @fionaDmurphy @lgoodbu @katemasters67 @WeEOLC @learnhospice #WeEOLC #BigConversation yes, important not to see dying in ho…
@EmmaCClare
10 May 2016 20:54
RT @SachaLG: @WeEOLC #Bigconversation #WeEOLC 2 me it =opening up yr family 2 avoidable crises&panic instead of being able 2 focus on enjoy…
@helenfindlay
10 May 2016 20:54
RT @SachaLG: @fionaDmurphy @westirelandgirl @helenfindlay @hospicemanager @WeEOLC @lgoodbu #WeEOLC #BigConverstaion Everyone's normal busin…
@WeEOLC
10 May 2016 20:54
RT @Laconic_doc: Reading 'Intimate Deaths' by De Hennezel opened my eyes do variance in folk's approaches to dying... #weeolc
@Emma_Leigh_MBE
10 May 2016 20:54
@WeEOLC @westirelandgirl @Rachel_EOLP @CompassionateCP 2) To die well, we have to live well too, not sure I've cracked it yet ?? #WeEOLC
@WeEOLC
10 May 2016 20:54
RT @Emma_Leigh_MBE: @WeEOLC @westirelandgirl @Rachel_EOLP @CompassionateCP 1) Proper talk, not just what music would you like #WeEOLC
@Laconic_doc
10 May 2016 20:54
For yrs GPs used video as comms training MT @amaranwosu: I think the audio medium is a real opportunity. (consulations & education) #WeEOLC
@helenfindlay
10 May 2016 20:54
RT @lgoodbu: @fionaDmurphy @westirelandgirl @helenfindlay @SachaLG @hospicemanager @WeEOLC #weeolc we can forget the ppl by describing dyin…
@ZacMaunder1
10 May 2016 20:54
Giving information and then providing support and space, privacy and options on care #WeEOLC
@WeEOLC
10 May 2016 20:55
RT @learnhospice: Thinking about my take home message 2 #WeEOLC https://t.co/wl1h5DGpS0
@WeEOLC
10 May 2016 20:55
RT @Laconic_doc: If only all did this! MT @hospicemanager: I've discussed with, my mum, partner and sons, v interesting #WeEOLC now we all…
@westirelandgirl
10 May 2016 20:55
@Laconic_doc @StchMed @katemasters67 it is, and its much easier after death, grief is less complicated, #weeolc
@WeEOLC
10 May 2016 20:55
RT @JoyWharton1: @fionaDmurphy @lgoodbu @katemasters67 @WeEOLC @learnhospice #WeEOLC #BigConversation yes, important not to see dying in ho…
@VickiJNurse
10 May 2016 20:55
@MsNaughtyCheese @WeEOLC @lgoodbu @heblau @SachaLG agree. had that conversation with my Mum #WeEOLC
@heblau
10 May 2016 20:55
Lots of talk about individual preferences, less about how to support families & communities #WeEOLC #BigConversation
@Emma_Leigh_MBE
10 May 2016 20:55
@WeEOLC @westirelandgirl @Rachel_EOLP @CompassionateCP 3) Be a good and positive advocate for this message, drive it thru own work #WeEOLC
@itsneverbecky
10 May 2016 20:55
@Laconic_doc not necessarily, people often assume hospices are morbid, sombre places. If they can achieve positivity others can #WeEOLC
@EmmaCClare
10 May 2016 20:55
@SachaLG @WeEOLC yes I agree well said #weEOLC
@WeEOLC
10 May 2016 20:56
@Ruthiemccarroll @ZacMaunder1 #WeEOLC good point
@helenfindlay
10 May 2016 20:56
@westirelandgirl Ensure everyone who needs it has access to specialist palliative care 24/7 #weEOLC #BigConversation
@JoyWharton1
10 May 2016 20:56
RT @heblau: Lots of talk about individual preferences, less about how to support families & communities #WeEOLC #BigConversation
@Laconic_doc
10 May 2016 20:56
Can we generalise this much? Not sure! MT @westirelandgirl: it is, and its much easier after death, grief is less complicated, #weeolc
@WeEOLC
10 May 2016 20:56
RT @heblau: ConversationS - plural not singular #WeEOLC #BigConversation
@WeEOLC
10 May 2016 20:56
RT @SachaLG: @Laconic_doc #WeEOLC I'd go 4 "Intensive palliative treatment" - (2 many hyped up hospital soap operas) - need ACTION #BigConv…
@fionaDmurphy
10 May 2016 20:56
RT @EmmaCClare: @SachaLG @WeEOLC yes I agree well said #weEOLC
@fionaDmurphy
10 May 2016 20:56
RT @SachaLG: @WeEOLC #Bigconversation #WeEOLC 2 me it =opening up yr family 2 avoidable crises&panic instead of being able 2 focus on enjoy…
@Emma_Leigh_MBE
10 May 2016 20:56
@WeEOLC @westirelandgirl @Rachel_EOLP @CompassionateCP 4) Think of ways that I can help promote, this tweet chat has been useful #WeEOLC
@WeEOLC
10 May 2016 20:56
@amaranwosu @BridgetJohnst @katemasters67 @JFr4ser @Pallimed Ty great link #WeEOLC
@helenfindlay
10 May 2016 20:56
RT @Rachel_EOLP: @CSNAT_CAS @katemasters67 @helenfindlay @LetsTalkDeath Definitely!! #WeEOLC
@CSNAT_
10 May 2016 20:56
RT @heblau: Lots of talk about individual preferences, less about how to support families & communities #WeEOLC #BigConversation
@amaranwosu
10 May 2016 20:56
@JoyWharton1 @fionaDmurphy @lgoodbu @katemasters67 @WeEOLC @learnhospice #WeEOLC We must aim 2 achieve a "good death" no matter the setting
@PhilBallRN
10 May 2016 20:57
Last Q? #WeEolc #BigConversation @WeEOLC be ready to discuss, plain language, allow silence, wait 4 response no push https://t.co/6ktjOIKpbq
@WeEOLC
10 May 2016 20:57
RT @helenfindlay: @westirelandgirl Ensure everyone who needs it has access to specialist palliative care 24/7 #weEOLC #BigConversation
@Laconic_doc
10 May 2016 20:57
Closing thought: there is so much more I still need to learn about these conversations! #weeolc
@westirelandgirl
10 May 2016 20:57
Not sure any of us have, that's what makes us human, keep talking, keep trucking #WeEOLC https://t.co/9zrDoWWs0c
@PubHealth_Rach
10 May 2016 20:57
@WeEOLC EOL is part of life. Engaging when healthy can be easier. Not everyone will want2 but enabling & empowering people is vital #WeEOLC
@WeEOLC
10 May 2016 20:57
RT @EmmaCClare: @SachaLG @WeEOLC yes I agree well said #weEOLC
@JoyWharton1
10 May 2016 20:57
RT @amaranwosu: @JoyWharton1 @fionaDmurphy @lgoodbu @katemasters67 @WeEOLC @learnhospice #WeEOLC We must aim 2 achieve a "good death" no ma…
@StchMed
10 May 2016 20:57
Still need to try to normalise death and talk earlier to break taboo #WeEOLC #BigConversation https://twitter.com/weeolc/status/730123730354057216
@JoyWharton1
10 May 2016 20:57
RT @hospicemanager: Last Q? #WeEolc #BigConversation @WeEOLC be ready to discuss, plain language, allow silence, wait 4 response no push ht…
@WeEOLC
10 May 2016 20:58
RT @ZacMaunder1: Giving information and then providing support and space, privacy and options on care #WeEOLC
@SachaLG
10 May 2016 20:58
@helenfindlay @WeEOLC #WeEOLC #BigConversation I was certainly scared of process but I realise I also muddled in2 that scared of the loss
@palmer_carole
10 May 2016 20:58
RT @WeEOLC: #WeEOLC @Atul_Gawande https://twitter.com/Laconic_doc/status/730115677684633601
@PamStoney1
10 May 2016 20:58
#WeEOLC Keep listening, talking, engaging, sharing, encouraging. Using empathy & finding connections https://twitter.com/weeolc/status/730123022389129217
@CSNAT_
10 May 2016 20:58
Final thought: vital family carers/ loved ones also involved in #BigConversation early on #WeEOLC
@fionaDmurphy
10 May 2016 20:58
@heblau help leading upto death 4 family follow up call and support if needed - every family every time #WeEOLC
@PubHealth_Rach
10 May 2016 20:58
Fab - let's catch up soon! #WeEOLC https://twitter.com/Emma_Leigh_MBE/status/730124385701535747
@Laconic_doc
10 May 2016 20:58
I'd accept that! MT @SachaLG: @Laconic_doc #WeEOLC I'd go 4 "Intensive palliative treatment" - need ACTION #BigConversation
@helenfindlay
10 May 2016 20:58
RT @SachaLG: @helenfindlay @WeEOLC #WeEOLC #BigConversation I was certainly scared of process but I realise I also muddled in2 that scared…
@LetsTalkDeath
10 May 2016 20:58
Be wary of simplifying- consider timing, context, personal preferences, support systems .. #WeEOLC #BigConversation https://twitter.com/WeEOLC/status/730123022389129217
@fionaDmurphy
10 May 2016 20:58
RT @amaranwosu: @JoyWharton1 @fionaDmurphy @lgoodbu @katemasters67 @WeEOLC @learnhospice #WeEOLC We must aim 2 achieve a "good death" no ma…
@Emma_Leigh_MBE
10 May 2016 20:58
RT @westirelandgirl: Not sure any of us have, that's what makes us human, keep talking, keep trucking #WeEOLC https://twitter.com/Emma_Leigh_MBE/status/730123973963485184
@heblau
10 May 2016 20:58
RT @CSNAT_CAS: Final thought: vital family carers/ loved ones also involved in #BigConversation early on #WeEOLC
@palmer_carole
10 May 2016 20:58
RT @Laconic_doc: Great Q!! RT @AmyProffitt5: @EveRCNi @WeEOLC #WeEOLC #BigConversation "what do I need to know about you that would help me…
@JoyWharton1
10 May 2016 20:59
RT @PamStoney1: #WeEOLC Keep listening, talking, engaging, sharing, encouraging. Using empathy & finding connections https://twitter.com/weeolc/status/730123022389129217
@lgoodbu
10 May 2016 20:59
RT @CSNAT_CAS: Final thought: vital family carers/ loved ones also involved in #BigConversation early on #WeEOLC
@JoyWharton1
10 May 2016 20:59
RT @CSNAT_CAS: Final thought: vital family carers/ loved ones also involved in #BigConversation early on #WeEOLC
@fionaDmurphy
10 May 2016 20:59
RT @helenfindlay: @westirelandgirl Ensure everyone who needs it has access to specialist palliative care 24/7 #weEOLC #BigConversation
@lgoodbu
10 May 2016 20:59
RT @amaranwosu: @JoyWharton1 @fionaDmurphy @lgoodbu @katemasters67 @WeEOLC @learnhospice #WeEOLC We must aim 2 achieve a "good death" no ma…
@JoyWharton1
10 May 2016 20:59
RT @fionaDmurphy: @heblau help leading upto death 4 family follow up call and support if needed - every family every time #WeEOLC
@SachaLG
10 May 2016 20:59
@EmmaCClare @WeEOLC #WeEOLC It was summer holidays + 2 younger siblings - I did not want PANIC & we had #dementia + spinal+ #braintumours
@JoyWharton1
10 May 2016 20:59
RT @LetsTalkDeath: Be wary of simplifying- consider timing, context, personal preferences, support systems .. #WeEOLC #BigConversation htt…
@CSNAT_
10 May 2016 20:59
RT @fionaDmurphy: @heblau help leading upto death 4 family follow up call and support if needed - every family every time #WeEOLC
@ZacMaunder1
10 May 2016 20:59
As nurses we play such an important role in ensuring our patients know that we care and that we use their language #WeEOLC
@amaranwosu
10 May 2016 20:59
@fionaDmurphy @WeEOLC @learnhospice #WeEOLC A privilege. Each person we care for should improve our understanding of what it is to be human
@vannapoulter
10 May 2016 20:59
@WeEOLC thank you enjoyed that very thought provoking #WeEOLC @hospicemanager




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