#WeLDNs - Thursday 30th October 2014 8:30pm (GMT Standard Time) CIPOLD:one year on

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This weeks pre-chat is a little different... It's a blog. First published on the learning disability elf blog site in response to the CIPOLD one year on response.

 We will be joined by @learningdiself @ld_CI and @mhoghton

Here's the blog as originally posted: 

The Confidential Inquiry into Premature Deaths of People with Learning Disabilities ( CIPOLD ) was published in March 2013. It reported that people with learning disabilities die, on average 16 years sooner than people in the general population, and that three times as many people with learning disabilities had deaths that could have been avoided through the provision of good quality healthcare, when compared with the general population.

Subsequent to the CIPOLD report, the Department of Health in England committed itself to publishing an update on actions that are being taken to embed the CIPOLD recommendations. The (much delayed) progress report has now been published. So what does it say? Can we be assured that premature deaths of people with learning disabilities are being addressed in a determined way, and that such deaths are well on the way to being consigned to past history? And can we be confident that responsibilities are being faced at local, regional and national levels to prevent further premature deaths of people with learning disabilities?

The progress report starts with a Foreword from Norman Lamb, Minister for Care and Support that urges us to ‘step up the pace' and make a ‘concerted national effort' for people with learning disabilities to achieve more equal access and outcomes (note that the wording is in relation to more equal access and outcomes, not equal access and outcomes). It concludes that ‘much more still needs to be done' . Oh dear! 

One's expectations at this point are immediately lowered to the point that anything positive in the report that follows will be considered a major achievement.

Eight overarching themes

The progress report itself is thematically structured. It does not identify each of the CIPOLD recommendations; rather it has grouped them together into eight overarching themes:

 

Identifying people with learning disabilities and their need for reasonable adjustments

The particular patterns of ill-health of people with learning disabilities

The fragmentation of the healthcare provided to people with learning disabilities

Deaths amenable to healthcare interventions

Adherence to legislation and guidance

The imperative to forward plan

End of life care

Reviewing deaths of people with learning disabilities in the future

 

For each of the themes, action at national, and in some cases local, level is described that outlines progress in that area. 

 

Some progress made but...

Overall, while it is clear that some progress has been made, there is so much in the report that fails to address, or is tangential to, the issues at heart, that it is disappointing reading. Let us illustrate this with four examples:

 

1. Identifying People with Learning Disabilities

The Progress Update report states that identifying people with learning disabilities in primary care has been addressed by expanding the General Practice register of people with learning disabilities to be an all age register. So far so good.

However, there is no mention of how this information is to be shared with, or ‘flagged' by, secondary care providers (e.g. hospitals) and the guidance that hospitals could expect to receive in relation to this.

 

2. Patterns of Ill Health in People with Learning Disabilities

In relation to the particular pattern of ill-health of people with learning disabilities, it is acknowledged in the Progress Update report that the National Institute for Health and Care Excellence (NICE) is currently working on three guidelines which relate to improving the health and care of people with learning disabilities (challenging behaviour, mental health problems, and care and support of older people with learning disabilities).

However, what is not said is that the recent consultation about the draft scope of NICE guidelines on multi-morbidity specifically excludes conditions associated with learning disabilities; despite this being a clear recommendation of CIPOLD.

 

3. Fragmentation of Healthcare

In relation to the fragmentation of healthcare provided to people with learning disabilities, the Progress Update report lays store on the Transforming Primary Care programme which will be provided for 2% of adults on GP registers with the most complex needs.

However, this is unlikely to be applicable to people with mild, moderate or even severe learning disabilities with multi-morbidity whose support staff (if they receive care or support at all) are ill-equipped to effectively help them coordinate, manage and proactively address their health needs.

Further, whilst much is made of the new Education, Health and Care Plans for children and young people, the report fails to address the recommendation for such co-ordinated care for adults with learning disabilities. In addition, as we move towards the integration of health and social care, the premature deaths of people with learning disabilities is not included as a driver for this change.

 

4. Mental Capacity Act

One might consider that adherence to the law is sacrosanct; it is a responsibility of all of us to do so.

However, the language used in the Progress Update report with regards to adherence to the Mental Capacity Act 2005 (MCA) is worrying at best and woolly at worst. It describes the use of commissioning as a tool for ‘encouraging' implementation of the MCA, and about the need to understand how it can have ‘greater impact'. It suggests that there ‘should' be staff trained in the MCA available 24 hours a day, although evidence from both CIPOLD and the House of Lords Select Committee is unequivocal that many staff are not sufficiently expert in understanding how the MCA relates to their own practice, and family carers are unsure of their role when key decisions are being made in relation to their relative.

Now is the time to tighten up compliance with the MCA, which involves much more robust measures for policing and enforcement, in conjunction with training initiatives, but sadly, the Progress Update report omits any mention of this.

 

Is it all bad news?

It might seem churlish to focus on the negatives of the Progress Update report; after all, there is progress being made that will hopefully contribute to making a difference to the lives of people with learning disabilities and, to a lesser extent their carers. Indeed it is of note that carers are almost absent from any mention in the Progress Update report, despite the fact that the campaigns which resulted in CIPOLD were largely borne of the evidence and insights of relatives, and that the experience of family members was so crucial to the findings of CIPOLD.

Our key point is this: 

The current progress outlined in the Progress Update report is likely to make a difference to the lives of people

But when we review completed actions (as opposed to ongoing actions or commitments), there is little evidence of progress that will prevent premature death 

 

It seems incredible that at this point in time, 18 months on from the completion of the CIPOLD report, and despite it being a placeholder indicator in the NHS Outcomes Framework, we still have no routine collection or linkage of national data that can tell us the age and cause of death of people with learning disabilities against which we can measure the extent of premature death and its change over time . What does that tell us about any commitment to addressing premature deaths of people with learning disabilities in a determined way, and consigning such deaths to past history?

Quite frankly it suggests that not only, in Norman Lamb's words, does much more need to be done, it also suggests that unless each of us raises our voices, agitates, demands and complains, nothing much more will happen within this government to actually reduce premature deaths in people with learning disabilities. 

 

It also tells us that there remains a significant time and cultural lag in producing effective change in addressing the gap in life expectations for people with learning disabilities and their families. In the USA, it took the direct intervention of President Kennedy in the 1960's to set up a Presidents' Commission to reverse the increasing institutionalisation of people with learning disabilities. It is now time for the Prime Minister and other senior politicians to get involved and provide strong leadership for the whole health and care sector in reducing premature deaths of people with learning disabilities and creating a climate for real change and improvement in outcomes for people with learning disabilities and their families.

 

Pre chat links:

Pauline Heslop, Peter Blair, Peter Fleming, Matt Hoghton, Anna Marriott, Lesley Russ. Confidential Inquiry into premature deaths of people with learning disabilities (CIPOLD) Final report (PDF). March 2013. 

Progress on premature deaths of people with learning disabilities. Department of Health, 2014. 





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 Chat Summary

 

On Wednesday 30th October, we were privileged to join a tweet chat hosted by #weldns. Also joining the chat were Matt Hoghton and Pauline Heslop, two of the authors of the Confidential Inquiry into premature deaths of people with learning disabilities.

The chat began by reflecting on some of the key findings of the report, for example that Women with learning disabilities died on average 20 years earlier than women in the general population and that men with learning disabilities died on average 13 years earlier than men in the general population. 

Matt Hoghton pointed out that it is still unclear why women died younger than men - the reverse of what is found in the general population. 

There was a good deal of shock and anger expressed at the findings, in particular ‘avoidable’ causes of death and concern that people were not getting access to appropriate supports. 

Some people were interested to know if the deaths identified in the Inquiry were across all settings and it is clear that they are – from a range of settings and range of severity of learning disabilities.


Matt also pointed out that other research has shown that young women in urban environments are especially vulnerable 


Reasonable Adjustments

One of the key themes that emerged was the need for reasonable adjustments – WeLD Nurses posed the question – “We know at this point that reasonable adjustments have to be made. How to we drive this forward? What is our role?” 


Some of the responses included


• To help identify what reasonable adjustments are needed and to offer support to ensure these are made 

• To help to ensure when they are made they are embedded in everyday practice

• To challenge organisations when the only response to the need to make adjustments is to offer the provision of ‘accessible information’ 

• To ensure that whilst reasonable adjustments are individual to each person, information about them should be recorded shared

• To act as mentors, striving for excellence and ensuring that students understand parents are experts in their children

• To insist on the provision of reasonable adjustments, to understand th Mental Capacity Act. Speak up...loudly. Be proactive. AND Look after yourself too


The Improving Health and Lives team have a Reasonable adjustments database on their website which can be found at: http://www.improvinghealthandlives.org.uk/adjustments/ 


LDCI pointed out that from next year services will be required to audit the provision of reasonable adjustments, but it was interesting that few people were aware that this was going to happen. You can get more details here 


Access to diagnostic investigations


LDCI pointed out that the “most common reported problem when people with learning disabilities were unwell was that investigations were not done or posed difficulties” as it was sometimes difficult for some PWLD to access diagnostics in acute services 


Ross6479 asked whether more routine tests/screening could be completed by LDNs to avoid referrals and waiting time and there was some agreement with this view.



Coordination across agencies


One concern raised was a lack of coordination across agencies involved. Salsa442 said “Research has shown the more agencies involved the greater the risks, that's why communication is so important.”


Parents and Carers


A concerning findings of the inquiry was that parents and carers were often not listened to, which flies in the face of everything we know about good partnership working.


Some thoughts on this were: 

• One family member said they thought that many people with learning disabilities “often don't have what I call 'body-mind-maintenance competencies' 

• One person suggested the provision of Acute liaison nurses in every hospital to bridge the gap between acute staff and carers

• advocacy was identified as key as carers/ family members often notice subtle changes in the person that are missed by professionals


The Inquiry team found that people who were without close friends/support were more likely to die from cause of death amenable to good health care, so this raised concerns about how we should take account of and respond to this additional vulnerability. 


One person pointed us to a resource on the patient experience website where a woman with learning disabilities talk about her treatment and the help she got from the Community nursing team for her bowel cancer diagnosis 

http://www.youtube.com/watch?v=yal0amH8bzo&sns=tw 


Named healthcare Coordinators


One of the recommendations of the report was that named healthcare coordinators should be allocated to people with complex or multiple health needs. This was roundly supported by contributors, but it was pointed out that the coordinators must be identified by the person or carers and not arbitrarily assigned. The professional role of the coordinator was also discussed, but the prevailing view was that this might be different for each person supported, depending on their needs and circumstances.


@care2twit pointed out that 2As a carer I think having a Named Professional and also ensuring Annual Health Checks is a good start.”



Mental Capacity Act


There was a good deal of concern expressed by many people about a continuing lack of understanding of the mental capacity act in healthcare settings. There was a good deal of support for Mental Capacity Act training and updates to be mandatory for health and social care staff, with active follow up on the ground. Many of the contributors talked about their key role in providing training, but also modelling behaviour. 



Better Information


Matt Hoghton suggested that there was a need to 2link GP registers with mortality data so we know age and cause of death of people with ld nationally” The Inquiry team had recommended the establishment of a National Learning Disability Mortality Review Body 


Examples of good practice

In addition to the RA database on the IHAL site, Norah Fey research centre also has examples of actions being taken locally and regionally which can be found at: http://www.bristol.ac.uk/cipold/conferencepresentations 


What will you change in your practice?


Finally, contributors were asked what they could do to change their practice and improve outcomes for people. Here are a few of the suggestions:

 

• LDCI pointed out that the “recommendations of the Confidential Inquiry are for everyone to reflect and take action not just for Govt or NHS England.”


• Need to focus more on follow-up of MCA training 

• Check up on response locally to the requirement for providers to undertake an annual audit of RAs which is in the NHS Standard Contract for 2014/15. 

• Ensuring my practice is proactive not reactive 

• Be sure to improve MCA awareness and RA where I am 

• As a student I talk to my IPL groups about LD nursing and related topics regularly to raise profile 

• Carer involvement useful here for extra training about LD understanding not so 

• Getting communications team locally to send out recommendations from the Inquiry report recommendations to all departments in the trust 

• Work with my Acute Liaison Nurse colleagues to review our strategy for PWLD. Voice of the individual at the front, Carer expertise included 


• LDCI pointed out that four new questions are to be trialled at CQC inspections of acute hospitals, specifically about care of people with learning disabilities. 


Finally Matt, pointed out in a very philosophical tweet “No person can change the world but we can change the world for one person”, which was a great way to draw the conversation to a close.








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 #WeLDNs transcript

 
@mhoghton
30 October 2014 20:30
Hello everyone this is Matt Hoghton from CIPOLD. Thanks for joining us for the next hour #weldns
@ld_CI
30 October 2014 20:30
Hello its Pauline here! I'm posting from the CIPOLD account. #weldns
@LearningDisElf
30 October 2014 20:30
Evening all! I'm André Tomlin posting from the LD Elf account. I work with John Northfield who is the Chief Blogger for that site. #weldns
@WeLDnurses
30 October 2014 20:30
Good evening tweeters! Can we start our evening with a hello, you lovely lurkers too! #weldns
@WeLDnurses
30 October 2014 20:30
RT @mhoghton: Hello everyone this is Matt Hoghton from CIPOLD. Thanks for joining us for the next hour #weldns
@WeLDnurses
30 October 2014 20:30
RT @ld_CI: Hello its Pauline here! I'm posting from the CIPOLD account. #weldns
@geary_ware
30 October 2014 20:32
Hi all. Claire here in leics #weldns
@Peanut2727
30 October 2014 20:32
Evening all, Claire here from the midlands #weldns
@WeLDnurses
30 October 2014 20:32
RT @geary_ware: Hi all. Claire here in leics #weldns
@WeLDnurses
30 October 2014 20:32
RT @Peanut2727: Evening all, Claire here from the midlands #weldns
@mhoghton
30 October 2014 20:32
We will looking at the CI report and Premature Deaths of People with Learning Disabilities: Progress Update from the DoH #weldns
@samabdulla
30 October 2014 20:33
#weldns hi all Sam in edinburgh!
@salsa442
30 October 2014 20:33
Hello all, Sal here waving from Leicester #weldns
@WeLDnurses
30 October 2014 20:33
RT @salsa442: Hello all, Sal here waving from Leicester #weldns
@momajor27_mo
30 October 2014 20:34
@WeLDnurses #weldns mo here
@salsa442
30 October 2014 20:34
Great to see #TeamClaire here tonight @geary_ware @Peanut2727 #weldns
@WeLDnurses
30 October 2014 20:34
RT @momajor27_mo: @WeLDnurses #weldns mo here
@WeLDnurses
30 October 2014 20:34
RT @salsa442: Great to see #TeamClaire here tonight @geary_ware @Peanut2727 #weldns
@Peanut2727
30 October 2014 20:34
RT @salsa442: Great to see #TeamClaire here tonight @geary_ware @Peanut2727 #weldns
@WeLDnurses
30 October 2014 20:35
Shall we start? What do people consider to be the main findings of the report? #weldns
@geary_ware
30 October 2014 20:35
@salsa442 @Peanut2727 lol we have now divorced #workwifenomore #weldns
@ross_6479_RNLD
30 October 2014 20:35
#weldns hi, Ross here in Northumberland
@WeLDnurses
30 October 2014 20:35
@geary_ware @salsa442 @Peanut2727 amicable we hope! #weldns
@WeLDnurses
30 October 2014 20:35
RT @ross_6479: #weldns hi, Ross here in Northumberland
@geary_ware
30 October 2014 20:36
"@WeLDnurses: @geary_ware @salsa442 @Peanut2727 amicable we hope! #weldns" obvs!
@mhoghton
30 October 2014 20:36
Women with ld died on average 20 years earlier than women in the general population. #weldns
@Peanut2727
30 October 2014 20:36
@WeLDnurses @geary_ware @salsa442 haha kinda...! Lol ?????? #weldns
@ld_CI
30 October 2014 20:36
Men with ld died on average 13 years earlier than men in the general population. #weldns
@WeLDnurses
30 October 2014 20:36
RT @ld_CI: Men with ld died on average 13 years earlier than men in the general population. #weldns
@WeLDnurses
30 October 2014 20:36
RT @mhoghton: Women with ld died on average 20 years earlier than women in the general population. #weldns
@geary_ware
30 October 2014 20:36
RT @WeLDnurses: Shall we start? What do people consider to be the main findings of the report? #weldns
@salsa442
30 October 2014 20:36
RT @mhoghton: Women with ld died on average 20 years earlier than women in the general population. #weldns
@ld_CI
30 October 2014 20:36
22% of people with ld were under age 50 when they died, compared with 9% in general population. #weldns
@LearningDisElf
30 October 2014 20:36
People with learning disabilities are dying younger than the rest of the population #WeLDNs #CIPOLD http://t.co/vUnDeKr8bb
@mhoghton
30 October 2014 20:37
We are still not sure why women died younger than men which is the revers of the general population #weldns
@salsa442
30 October 2014 20:37
RT @LearningDisElf: People with learning disabilities are dying younger than the rest of the population #WeLDNs #CIPOLD http://t.co/vUnDeKr…
@samabdulla
30 October 2014 20:37
For me the most shocking parts were a) age of death and b)lack of basic ax such as pain #weldns
@WeLDnurses
30 October 2014 20:37
RT @mhoghton: We are still not sure why women died younger than men which is the revers of the general population #weldns
@salsa442
30 October 2014 20:37
RT @ld_CI: 22% of people with ld were under age 50 when they died, compared with 9% in general population. #weldns
@geary_ware
30 October 2014 20:37
RT @ld_CI: 22% of people with ld were under age 50 when they died, compared with 9% in general population. #weldns
@WeLDnurses
30 October 2014 20:37
RT @ld_CI: 22% of people with ld were under age 50 when they died, compared with 9% in general population. #weldns
@WeLDnurses
30 October 2014 20:38
RT @LearningDisElf: People with learning disabilities are dying younger than the rest of the population #WeLDNs #CIPOLD http://t.co/vUnDeKr…
@mhoghton
30 October 2014 20:38
RT @samabdulla: For me the most shocking parts were a) age of death and b)lack of basic ax such as pain #weldns
@benthenurse
30 October 2014 20:38
RT @ld_CI: 22% of people with ld were under age 50 when they died, compared with 9% in general population. #weldns
@salsa442
30 October 2014 20:38
@mhoghton I'd really like to know more about this too #weldns
@ld_CI
30 October 2014 20:38
Yes, age at death is worrying but more so that they are also more likely to die from avoidable causes of death #weldns
@salsa442
30 October 2014 20:38
RT @samabdulla: For me the most shocking parts were a) age of death and b)lack of basic ax such as pain #weldns
@WeLDnurses
30 October 2014 20:38
RT @ld_CI: Yes, age at death is worrying but more so that they are also more likely to die from avoidable causes of death #weldns
@WeLDnurses
30 October 2014 20:38
RT @salsa442: @mhoghton I'd really like to know more about this too #weldns
@salsa442
30 October 2014 20:39
RT @ld_CI: Yes, age at death is worrying but more so that they are also more likely to die from avoidable causes of death #weldns
@Claire89_LD
30 October 2014 20:39
RT @ld_CI: 22% of people with ld were under age 50 when they died, compared with 9% in general population. #weldns
@Claire89_LD
30 October 2014 20:39
RT @LearningDisElf: People with learning disabilities are dying younger than the rest of the population #WeLDNs #CIPOLD http://t.co/vUnDeKr…
@Peanut2727
30 October 2014 20:39
Common causes such as chest infect led to premature death... Poor access to Ax/ detection of ill health #weldns
@salsa442
30 October 2014 20:39
@ld_CI I think the avoidable deaths trouble me the most, although the age of death is horrifying #weldns
@geary_ware
30 October 2014 20:40
RT @ld_CI: Yes, age at death is worrying but more so that they are also more likely to die from avoidable causes of death #weldns
@WeLDnurses
30 October 2014 20:40
That's the key word in this isn't it? "avoidable"? Why at this point are we still not getting it right? #weldns
@mhoghton
30 October 2014 20:40
@salsa442 @mhoghton We thought thsi might be late presentation of gynaecology cancers but this was not the case. #weldns
@WeLDnurses
30 October 2014 20:40
RT @salsa442: @ld_CI I think the avoidable deaths trouble me the most, although the age of death is horrifying #weldns
@salsa442
30 October 2014 20:40
RT @Peanut2727: Common causes such as chest infect led to premature death... Poor access to Ax/ detection of ill health #weldns
@WeLDnurses
30 October 2014 20:40
RT @Peanut2727: Common causes such as chest infect led to premature death... Poor access to Ax/ detection of ill health #weldns
@WeLDnurses
30 October 2014 20:40
RT @mhoghton: @salsa442 @mhoghton We thought thsi might be late presentation of gynaecology cancers but this was not the case. #weldns
@benthenurse
30 October 2014 20:40
@WeLDnurses lurker here! I may yet contribute! #WeLDNs
@salsa442
30 October 2014 20:41
@mhoghton That was my first thought, wondering now about osteoporosis and related complications..... #weldns
@WeLDnurses
30 October 2014 20:41
MT @LindseyBonnick: @WeLDnurses it would be useful if we knew more about the deaths- are they across all settings? #weldns
@salsa442
30 October 2014 20:41
RT @WeLDnurses: That's the key word in this isn't it? "avoidable"? Why at this point are we still not getting it right? #weldns
@mhoghton
30 October 2014 20:41
@salsa442 @ld_CI other research has shown that young women in urban enviroments are especially vulnerable #weldns
@WeLDnurses
30 October 2014 20:41
@benthenurse we love a lurker but please join in if you feel the urge! #weldns
@WeLDnurses
30 October 2014 20:41
RT @salsa442: @mhoghton That was my first thought, wondering now about osteoporosis and related complications..... #weldns
@salsa442
30 October 2014 20:42
@benthenurse @WeLDnurses Welcome Ben, we love a lurker, but do feel free to tweet at any time #weldns
@WeLDnurses
30 October 2014 20:42
RT @mhoghton: @salsa442 @ld_CI other research has shown that young women in urban enviroments are especially vulnerable #weldns
@salsa442
30 October 2014 20:42
RT @WeLDnurses: MT @LindseyBonnick: @WeLDnurses it would be useful if we knew more about the deaths- are they across all settings? #weldns
@geary_ware
30 October 2014 20:42
Twitter issues #weldns
@ld_CI
30 October 2014 20:42
yes they are - a range of settings and range of severity of ld #weldns
@Peanut2727
30 October 2014 20:42
As we know, often bug MDTs involved with pwld, communication is key #weldns
@salsa442
30 October 2014 20:42
@mhoghton @ld_CI Do you have a link for that? Is that because of lifestyle choices? #weldns
@WeLDnurses
30 October 2014 20:43
@mhoghton @salsa442 @ld_CI interesting, especially vunderable in what sense? Domestic violence? Lifestyle choices? #weldns
@salsa442
30 October 2014 20:43
“@geary_ware: Twitter issues #weldns”<snap ??
@WeLDnurses
30 October 2014 20:43
RT @Peanut2727: As we know, often bug MDTs involved with pwld, communication is key #weldns
@mhoghton
30 October 2014 20:44
@salsa442 @mhoghton @ld_CI I have not got the link with me but I will send later #weldns
@WeLDnurses
30 October 2014 20:44
RT @ld_CI: yes they are - a range of settings and range of severity of ld #weldns
@salsa442
30 October 2014 20:44
@Peanut2727 The more agencies involved, the greater the risks? #weldns
@WeLDnurses
30 October 2014 20:44
RT @mhoghton: @salsa442 @mhoghton @ld_CI I have not got the link with me but I will send later #weldns
@salsa442
30 October 2014 20:44
@mhoghton @ld_CI Thanks, I'd really like to see it #weldns
@WeLDnurses
30 October 2014 20:44
RT @salsa442: @mhoghton @ld_CI Do you have a link for that? Is that because of lifestyle choices? #weldns
@benthenurse
30 October 2014 20:45
@samabdulla a challenge at times in acute settings, but difficult to identify true causes for lack of ax. #weldns
@ld_CI
30 October 2014 20:45
@salsa442 @ld_CI yes lack of coordination across and between agencies was a real problem #weldns
@LearningDisElf
30 October 2014 20:45
@mhoghton @salsa442 @ld_CI We've agreed to write up the chat afterwards, so will include background detail and links in there #weldns
@WeLDnurses
30 October 2014 20:45
MT @LindseyBonnick: @WeLDnurses is there a region where these deaths are more prevalent? #weldns
@mhoghton
30 October 2014 20:46
@benthenurse @samabdulla Sorry what is ax? #weldns
@WeLDnurses
30 October 2014 20:46
@LindseyBonnick dont forget to add #weldns to your excellent questions! #weldns
@salsa442
30 October 2014 20:46
@LearningDisElf @mhoghton @ld_CI Awesome thanks #weldns
@salsa442
30 October 2014 20:46
RT @ld_CI: @salsa442 @ld_CI yes lack of coordination across and between agencies was a real problem #weldns
@salsa442
30 October 2014 20:46
RT @benthenurse: @samabdulla a challenge at times in acute settings, but difficult to identify true causes for lack of ax. #weldns
@ld_CI
30 October 2014 20:46
The most common reported problem when people with Ld were unwell was that investigations were not done or posed difficulties #weldns
@xXSian_MarieXx
30 October 2014 20:46
RT @LearningDisElf: People with learning disabilities are dying younger than the rest of the population #WeLDNs #CIPOLD http://t.co/vUnDeKr…
@drliberty
30 October 2014 20:46
RT @ld_CI: Yes, age at death is worrying but more so that they are also more likely to die from avoidable causes of death #weldns
@salsa442
30 October 2014 20:46
@mhoghton @benthenurse @samabdulla Assessment #weldns
@EasyReadDave
30 October 2014 20:46
RT @LearningDisElf: People with learning disabilities are dying younger than the rest of the population #WeLDNs #CIPOLD http://t.co/vUnDeKr…
@benthenurse
30 October 2014 20:47
@mhoghton @samabdulla assessment. (It's too big a word for tweeting!!) #WeLDNs
@WeLDnurses
30 October 2014 20:47
We know at this point that reasonable adjustments have to be made. How to we drive this forward? what is our role? #weldns
@Peanut2727
30 October 2014 20:47
@salsa442 not necessarily, good links between MDT required #weldns
@ld_CI
30 October 2014 20:47
Thanks! #weldns
@LindseyBonnick
30 October 2014 20:47
@WeLDnurses #weldns ooops sorry
@salsa442
30 October 2014 20:47
@ld_CI Really difficult for some PWLD to access diagnostics in acute services still #weldns
@MervChangeAGEnt
30 October 2014 20:47
RT @LearningDisElf: People with learning disabilities are dying younger than the rest of the population #WeLDNs #CIPOLD http://t.co/vUnDeKr…
@salsa442
30 October 2014 20:47
RT @WeLDnurses: We know at this point that reasonable adjustments have to be made. How to we drive this forward? what is our role? #weldns
@ld_CI
30 October 2014 20:47
Once a reasonable adjustment is made it needs to be embedded #weldns
@samabdulla
30 October 2014 20:48
@benthenurse but it doesn't excuse it? #weldns
@WeLDnurses
30 October 2014 20:48
RT @ld_CI: Once a reasonable adjustment is made it needs to be embedded #weldns
@ross_6479_RNLD
30 October 2014 20:48
I wonder if more routine tests/screening could be completed by LDNs to avoid referrals and waiting time #weldns
@Peanut2727
30 October 2014 20:48
RT @salsa442: @ld_CI Really difficult for some PWLD to access diagnostics in acute services still #weldns
@Peanut2727
30 October 2014 20:48
#weldns Twitter on go slow ????
@salsa442
30 October 2014 20:48
@Peanut2727 Research has shown the more agencies involved the greater the risks, that's why communication is so impt #weldns #safeguarding
@WeLDnurses
30 October 2014 20:48
Do acute wards share the knowledge they have of making adjustments? @ld_CI #weldns
@MASowden
30 October 2014 20:49
@ld_CI @salsa442 reasonable adjustments still sadly lacking too #weldns
@salsa442
30 October 2014 20:49
RT @MASowden: @ld_CI @salsa442 reasonable adjustments still sadly lacking too #weldns
@salsa442
30 October 2014 20:49
RT @ld_CI: Once a reasonable adjustment is made it needs to be embedded #weldns
@WeLDnurses
30 October 2014 20:49
MT @momajor27_mo: @WeLDnurses #weldns the ES is a reasonable adjustment, if done well could and should highlight unmet health need
@LindseyBonnick
30 October 2014 20:49
to educate the PWLD, parents, carers, other services etc.. info that is usable, simple to incorporate and creative #weldns
@k_runswick_cole
30 October 2014 20:49
RT @ld_CI: Men with ld died on average 13 years earlier than men in the general population. #weldns
@LearningDisElf
30 October 2014 20:49
@Peanut2727 tchat.io is still working quite quickly. you could try that instead #weldns
@ld_CI
30 October 2014 20:49
There is a list of examples of reasonable adjustments at LD Observatory website #weldns
@salsa442
30 October 2014 20:49
@ld_CI We know this, but how can we achieve this in busy acute services, it's a real challenge #weldns
@WeLDnurses
30 October 2014 20:50
RT @ld_CI: There is a list of examples of reasonable adjustments at LD Observatory website #weldns
@salsa442
30 October 2014 20:50
RT @WeLDnurses: Do acute wards share the knowledge they have of making adjustments? @ld_CI #weldns
@geary_ware
30 October 2014 20:50
@WeLDnurses help to identify what RA are needed and support to ensure these are made #weldns
@Claire89_LD
30 October 2014 20:50
@ld_CI diagnostic overshadowing? #weldns
@WeLDnurses
30 October 2014 20:50
RT @ross_6479: I wonder if more routine tests/screening could be completed by LDNs to avoid referrals and waiting time #weldns
@salsa442
30 October 2014 20:50
@WeLDnurses @ld_CI They are starting to where I am @GEHDawnW #weldns
@WeLDnurses
30 October 2014 20:50
RT @geary_ware: @WeLDnurses help to identify what RA are needed and support to ensure these are made #weldns
@benthenurse
30 October 2014 20:50
@WeLDnurses @ld_CI hard to be definitive. In some cases; but not often or consistently enough. #weldns
@WeLDnurses
30 October 2014 20:50
RT @salsa442: @WeLDnurses @ld_CI They are starting to where I am @GEHDawnW #weldns
@salsa442
30 October 2014 20:50
RT @geary_ware: @WeLDnurses help to identify what RA are needed and support to ensure these are made #weldns
@WeLDnurses
30 October 2014 20:51
RT @benthenurse: @WeLDnurses @ld_CI hard to be definitive. In some cases; but not often or consistently enough. #weldns
@geary_ware
30 October 2014 20:51
RT @salsa442: @WeLDnurses @ld_CI They are starting to where I am @GEHDawnW #weldns
@LearningDisElf
30 October 2014 20:51
@ld_CI The reasonable adjustments page from IHAL is here: https://t.co/V4R47Ljd54 #weldns
@ld_CI
30 October 2014 20:51
RAs should be individual to each person but recorded and info shared #weldns
@mhoghton
30 October 2014 20:51
@salsa442 @ld_CI I agree we need to record record reasonable adjustments as much as possible and challenge ourselves and others #weldns
@salsa442
30 October 2014 20:51
@Claire89_LD @ld_CI Don't get me started on this!! Happens a lot with #dementia patients too #weldns
@samabdulla
30 October 2014 20:51
Have always seen my role as doing myself out of a job. Where possible we should be supporting colleagues to develop skills needed #weldns
@LindseyBonnick
30 October 2014 20:51
@WeLDnurses for me it's about back to basics, get the little things right big things will follow #weldns
@WeLDnurses
30 October 2014 20:52
RT @LindseyBonnick: @WeLDnurses for me it's about back to basics, get the little things right big things will follow #weldns
@baylale
30 October 2014 20:52
RT @LearningDisElf: People with learning disabilities are dying younger than the rest of the population #WeLDNs #CIPOLD http://t.co/vUnDeKr…
@Claire89_LD
30 October 2014 20:52
RT @LearningDisElf: @ld_CI The reasonable adjustments page from IHAL is here: https://t.co/V4R47Ljd54 #weldns
@WeLDnurses
30 October 2014 20:52
RT @salsa442: @Claire89_LD @ld_CI Don't get me started on this!! Happens a lot with #dementia patients too #weldns
@WeLDnurses
30 October 2014 20:52
RT @ld_CI: RAs should be individual to each person but recorded and info shared #weldns
@MASowden
30 October 2014 20:52
http://t.co/uqyWqsBuwb via @youtube still some good practice as well though #weldns
@WeLDnurses
30 October 2014 20:52
RT @LearningDisElf: @ld_CI The reasonable adjustments page from IHAL is here: https://t.co/02OT1WO1gc #weldns #ebp
@ld_CI
30 October 2014 20:52
From next year services will be required to audit the provision of RAs. Are you aware of that? #weldns
@salsa442
30 October 2014 20:52
@mhoghton @ld_CI When I was ALN I started elective pathway for PWLD which had a heavy focus on RAs #weldns
@WeLDnurses
30 October 2014 20:52
RT @salsa442: @mhoghton @ld_CI When I was ALN I started elective pathway for PWLD which had a heavy focus on RAs #weldns
@salsa442
30 October 2014 20:52
RT @LearningDisElf: @ld_CI The reasonable adjustments page from IHAL is here: https://t.co/V4R47Ljd54 #weldns
@WeLDnurses
30 October 2014 20:52
RT @ld_CI: From next year services will be required to audit the provision of RAs. Are you aware of that? #weldns
@JusticeforLB
30 October 2014 20:53
RT @ld_CI: 22% of people with ld were under age 50 when they died, compared with 9% in general population. #weldns
@mhoghton
30 October 2014 20:53
@Claire89_LD @ld_CI Really good point and a difficult problem to remove the blinkers off all of us health care professionsla #weldns
@WeLDnurses
30 October 2014 20:53
RT @MASowden: http://t.co/uqyWqsBuwb via @youtube still some good practice as well though #weldns
@JusticeforLB
30 October 2014 20:53
RT @samabdulla: For me the most shocking parts were a) age of death and b)lack of basic ax such as pain #weldns
@ld_CI
30 October 2014 20:53
@salsa442 @mhoghton @ld_CI Great! #weldns
@JusticeforLB
30 October 2014 20:53
RT @LearningDisElf: People with learning disabilities are dying younger than the rest of the population #WeLDNs #CIPOLD http://t.co/vUnDeKr…
@geary_ware
30 October 2014 20:53
@Claire89_LD @ld_CI such a huge issue #weldns
@Peanut2727
30 October 2014 20:53
Have worked with other agencies to make creative RA's, that have positively benefitted the person wld. Can depend on the PCS #weldns
@AlexaDWilson
30 October 2014 20:53
RT @LearningDisElf: People with learning disabilities are dying younger than the rest of the population #WeLDNs #CIPOLD http://t.co/vUnDeKr…
@Peanut2727
30 October 2014 20:53
RT @salsa442: @mhoghton @ld_CI When I was ALN I started elective pathway for PWLD which had a heavy focus on RAs #weldns
@salsa442
30 October 2014 20:53
@LearningDisElf @ld_CI Must ensure they are individually assessed and not blanketly prescribed though! #reasonableadjustments #weldns
@salsa442
30 October 2014 20:54
RT @LindseyBonnick: @WeLDnurses for me it's about back to basics, get the little things right big things will follow #weldns
@geary_ware
30 October 2014 20:54
@samabdulla I said this at my interview! #weldns
@salsa442
30 October 2014 20:54
RT @WeLDnurses: RT @LearningDisElf: @ld_CI The reasonable adjustments page from IHAL is here: https://t.co/02OT1WO1gc #weldns #ebp
@WeLDnurses
30 October 2014 20:54
Very interesting point form @ld_CI what do we think may be the benefit of audit of RA #weldns
@ld_CI
30 October 2014 20:54
@salsa442 @LearningDisElf @ld_CI Absolutely. I despair of people saying if the provide easy read they provide RAs! #weldns
@Peanut2727
30 October 2014 20:54
@ld_CI will be interesting but much needed to get them thinking and doing ! #weldns
@WeLDnurses
30 October 2014 20:54
RT @ld_CI: @salsa442 @LearningDisElf @ld_CI Absolutely. I despair of people saying if the provide easy read they provide RAs! #weldns
@salsa442
30 October 2014 20:54
RT @ld_CI: @salsa442 @LearningDisElf @ld_CI Absolutely. I despair of people saying if the provide easy read they provide RAs! #weldns
@care2twit
30 October 2014 20:54
@ld_CI Would you mind if I join in #weldns? I follow you but I'm a parent carer.
@geary_ware
30 October 2014 20:55
RT @WeLDnurses: Very interesting point form @ld_CI what do we think may be the benefit of audit of RA #weldns
@ld_CI
30 October 2014 20:55
@care2twit @ld_CI You are very welcome #weldns
@mhoghton
30 October 2014 20:55
@Claire89_LD @ld_CI we need to RA and follow Mental Capacity Act. Think proactively. Coordinate and advocate. Listen to carers. #weldns
@care2twit
30 October 2014 20:55
RT @ross_6479: I wonder if more routine tests/screening could be completed by LDNs to avoid referrals and waiting time #weldns
@WeLDnurses
30 October 2014 20:55
@care2twit @ld_CI Please do! Your voices are the most important! #weldns
@Claire89_LD
30 October 2014 20:55
RT @ld_CI: @salsa442 @LearningDisElf @ld_CI Absolutely. I despair of people saying if the provide easy read they provide RAs! #weldns
@LearningDisElf
30 October 2014 20:55
@care2twit @ld_CI Hi Momma Switch - nice to meet you. Welcome! :-) #weldns
@benthenurse
30 October 2014 20:55
@ld_CI unaware - and good to know! more details where? also, requirement to publish? #weldns
@salsa442
30 October 2014 20:55
@ld_CI @LearningDisElf Oh yes indeed, very annoying, RAs are bespoke prescribed care pathways and treatment plans #individual #weldns
@WeLDnurses
30 October 2014 20:56
RT @benthenurse: @ld_CI unaware - and good to know! more details where? also, requirement to publish? #weldns
@ld_CI
30 October 2014 20:56
Its great to have parent carers here. We found they weren't listened to enough in the CI. #weldns
@bev_clough
30 October 2014 20:57
RT @LearningDisElf: People with learning disabilities are dying younger than the rest of the population #WeLDNs #CIPOLD http://t.co/vUnDeKr…
@WeLDnurses
30 October 2014 20:57
So many great threads popping up! this bird is flying in circles trying to catch them all! #weldns
@mhoghton
30 October 2014 20:57
@ld_CI 86% of people with LD who died were identified by themselves, their families and carers as unwell before they died #weldns
@WeLDnurses
30 October 2014 20:57
RT @ld_CI: Its great to have parent carers here. We found they weren't listened to enough in the CI. #weldns
@salsa442
30 October 2014 20:57
@care2twit @ld_CI You're very welcome indeed, everyone adds value here, especially parent carers #weldns
@salsa442
30 October 2014 20:57
RT @WeLDnurses: @care2twit @ld_CI Please do! Your voices are the most important! #weldns
@salsa442
30 October 2014 20:58
RT @ld_CI: Its great to have parent carers here. We found they weren't listened to enough in the CI. #weldns
@salsa442
30 October 2014 20:58
RT @WeLDnurses: So many great threads popping up! this bird is flying in circles trying to catch them all! #weldns
@contempl_activ
30 October 2014 20:58
RT @LearningDisElf: People with learning disabilities are dying younger than the rest of the population #WeLDNs #CIPOLD http://t.co/vUnDeKr…
@contempl_activ
30 October 2014 20:58
RT @ld_CI: 22% of people with ld were under age 50 when they died, compared with 9% in general population. #weldns
@WeLDnurses
30 October 2014 20:59
The CI found parents/carers werent listened too enough, how do we change this? #weldns
@salsa442
30 October 2014 20:59
@mhoghton @ld_CI That's a really sad statistic. We must learn to listen #togetherwearebetter #weldns
@geary_ware
30 October 2014 20:59
My phone isn't updating properly and I pad batter dead #weldns
@WeLDnurses
30 October 2014 20:59
RT @salsa442: @mhoghton @ld_CI That's a really sad statistic. We must learn to listen #togetherwearebetter #weldns
@1985Deanne
30 October 2014 20:59
RT @ld_CI: 22% of people with ld were under age 50 when they died, compared with 9% in general population. #weldns
@salsa442
30 October 2014 20:59
RT @WeLDnurses: The CI found parents/carers werent listened too enough, how do we change this? #weldns
@Claire89_LD
30 October 2014 21:00
RT @WeLDnurses: The CI found parents/carers werent listened too enough, how do we change this? #weldns
@WeLDnurses
30 October 2014 21:00
MT @benthenurse:don't have the report in front of me - how many hospital deaths were identified as SIs & investigated , do we know? #weldns
@salsa442
30 October 2014 21:00
@WeLDnurses ALNs in every hospital to bridge the gap between acute staff and carers #weldns
@mangan_sonia
30 October 2014 21:01
RT @ld_CI: 22% of people with ld were under age 50 when they died, compared with 9% in general population. #weldns
@care2twit
30 October 2014 21:01
RT @WeLDnurses: The CI found parents/carers werent listened too enough, how do we change this? #weldns
@WeLDnurses
30 October 2014 21:01
RT @MarkHBurton: calculated that your results meant 1800 preventable deaths per year. http://t.co/kUfz5zkm5h Does that make sense? #weldns
@mangan_sonia
30 October 2014 21:01
RT @LearningDisElf: People with learning disabilities are dying younger than the rest of the population #WeLDNs #CIPOLD http://t.co/vUnDeKr…
@geary_ware
30 October 2014 21:01
"@salsa442: @WeLDnurses ALNs in every hospital to bridge the gap between acute staff and carers #weldns" here here #collaboration
@ld_CI
30 October 2014 21:01
@WeLDnurses @benthenurse I haven't got the exact number with me but about 10 or so out of all deaths #weldns
@WeLDnurses
30 October 2014 21:01
RT @salsa442: @WeLDnurses ALNs in every hospital to bridge the gap between acute staff and carers #weldns
@mhoghton
30 October 2014 21:02
@salsa442 @mhoghton @ld_CIAbout a sixth of people who died had a significant fear of contact with health staff #weldns
@ld_CI
30 October 2014 21:02
@WeLDnurses @MarkHBurton yes it was scaled up for Mencap. It was 1200 premature deaths of people with ld each year #weldns
@salsa442
30 October 2014 21:02
“@MaryOToole10 speaking as fam member: Ppl with LD often don't have what I call 'body-mind-maintenance competencies' @AWebster67”<#weldns
@Claire89_LD
30 October 2014 21:02
RT @mhoghton: @salsa442 @mhoghton @ld_CIAbout a sixth of people who died had a significant fear of contact with health staff #weldns
@WeLDnurses
30 October 2014 21:02
MT @care2twit: #weldns Changes are already happening - Wolves Uni Health Faculty involve carers in their training of health professions!
@salsa442
30 October 2014 21:03
@MaryOToole10 @WeLDnurses @AWebster67 Awesome point, do add #weldns so we can all see your valuable input ??
@vickyradford
30 October 2014 21:03
RT @LearningDisElf: People with learning disabilities are dying younger than the rest of the population #WeLDNs #CIPOLD http://t.co/vUnDeKr…
@geary_ware
30 October 2014 21:03
@mhoghton @salsa442 this is so significant #weldns
@salsa442
30 October 2014 21:03
RT @mhoghton: @salsa442 @mhoghton @ld_CIAbout a sixth of people who died had a significant fear of contact with health staff #weldns
@care2twit
30 October 2014 21:03
RT @ld_CI: Its great to have parent carers here. We found they weren't listened to enough in the CI. #weldns
@WeLDnurses
30 October 2014 21:03
MT @benthenurse: from an acute hospital angle, there is something here about recog carers as experts & their skills & knowledge #weldns
@ross_6479_RNLD
30 October 2014 21:03
Lack of understanding cross fields resulting in reduced confidence when dealing with family and carers? #weldns
@mhoghton
30 October 2014 21:03
2 in every 5 people with LD who died experienced problems with having their illness diagnosed by their doctor. #weldns
@salsa442
30 October 2014 21:04
@mhoghton How does this relate to the rest of the population I wonder? Far too many people neglect their health through fear #weldns
@ld_CI
30 October 2014 21:04
@salsa442 @MaryOToole10 @WeLDnurses @AWebster67 great. Its important. Its the personal stories and voice that make a difference #weldns
@WeLDnurses
30 October 2014 21:04
Dont forget to add #weldns to your tweets folks, then everyone can follow them! #weldns
@WeLDnurses
30 October 2014 21:04
RT @mhoghton: 2 in every 5 people with LD who died experienced problems with having their illness diagnosed by their doctor. #weldns
@Claire89_LD
30 October 2014 21:04
RT @WeLDnurses: MT @care2twit: #weldns Changes are already happening - Wolves Uni Health Faculty involve carers in their training of health…
@LindseyBonnick
30 October 2014 21:04
@WeLDnurses as mentors we should strive for excellence and ensure that students understand parents are experts in their children #weldns
@mhoghton
30 October 2014 21:04
@salsa442 @mhoghton Really good point. I am not sure. #weldns
@ld_CI
30 October 2014 21:04
we had a comparator group. yes they also had preventable deaths, but from different causes #weldns
@LearningDisElf
30 October 2014 21:04
To summarise if you haven't seen it, here are the key recommendations from the #CIPOLD review of deaths #WeLDNs http://t.co/tbwRITsmKs
@salsa442
30 October 2014 21:05
RT @ld_CI: @WeLDnurses @MarkHBurton yes it was scaled up for Mencap. It was 1200 premature deaths of people with ld each year #weldns
@WeLDnurses
30 October 2014 21:05
RT @benthenurse: @mhoghton that's awful; we MUST seek to change that feeling! [which of course we do through better, quality care! #weldns
@salsa442
30 October 2014 21:05
RT @ross_6479: Lack of understanding cross fields resulting in reduced confidence when dealing with family and carers? #weldns
@WeLDnurses
30 October 2014 21:05
RT @LearningDisElf: To summarise if you haven't seen it, here are the key recommendations from the #CIPOLD review of deaths #WeLDNs http://…
@salsa442
30 October 2014 21:05
RT @mhoghton: 2 in every 5 people with LD who died experienced problems with having their illness diagnosed by their doctor. #weldns
@WeLDnurses
30 October 2014 21:05
RT @ld_CI: we had a comparator group. yes they also had preventable deaths, but from different causes #weldns
@Peanut2727
30 October 2014 21:05
@benthenurse @WeLDnurses indeed advocacy is key and carers/ family members notice subtle changes in the person w/LD #weldns
@geary_ware
30 October 2014 21:05
RT @LearningDisElf: To summarise if you haven't seen it, here are the key recommendations from the #CIPOLD review of deaths #WeLDNs http://…
@Claire89_LD
30 October 2014 21:05
RT @mhoghton: 2 in every 5 people with LD who died experienced problems with having their illness diagnosed by their doctor. #weldns
@WeLDnurses
30 October 2014 21:05
RT @Peanut2727: @benthenurse @WeLDnurses indeed advocacy is key and carers/ family members notice subtle changes in the person w/LD #weldns
@geary_ware
30 October 2014 21:05
RT @Peanut2727: @benthenurse @WeLDnurses indeed advocacy is key and carers/ family members notice subtle changes in the person w/LD #weldns
@ChrisButlernhs
30 October 2014 21:06
RT @mhoghton: 2 in every 5 people with LD who died experienced problems with having their illness diagnosed by their doctor. #weldns
@salsa442
30 October 2014 21:06
@mhoghton I'm curious to find that out, #nosynurse ?? #weldns
@Peanut2727
30 October 2014 21:06
RT @LearningDisElf: To summarise if you haven't seen it, here are the key recommendations from the #CIPOLD review of deaths #WeLDNs http://…
@salsa442
30 October 2014 21:06
RT @LearningDisElf: To summarise if you haven't seen it, here are the key recommendations from the #CIPOLD review of deaths #WeLDNs http://…
@salsa442
30 October 2014 21:06
RT @Peanut2727: @benthenurse @WeLDnurses indeed advocacy is key and carers/ family members notice subtle changes in the person w/LD #weldns
@ld_CI
30 October 2014 21:06
we found people who were without close friends/support were more likely to die from cause of death amenable to good health care #weldns
@LDStaffNurse
30 October 2014 21:06
RT @Peanut2727: @benthenurse @WeLDnurses indeed advocacy is key and carers/ family members notice subtle changes in the person w/LD #weldns
@LDStaffNurse
30 October 2014 21:07
Sorry I'm late no internet ##WELDNs
@WeLDnurses
30 October 2014 21:07
We are seeing issues in assessment, diagnosis, ignoring input from families/carers and horrific outcomes. #weldns
@LearningDisElf
30 October 2014 21:07
Named healthcare coordinators should be allocated to people with LD who have complex or multiple health needs #WeLDNs http://t.co/BJRDTI5QT6
@HealthUKTD
30 October 2014 21:07
RT @mhoghton: 2 in every 5 people with LD who died experienced problems with having their illness diagnosed by their doctor. #weldns
@salsa442
30 October 2014 21:07
RT @WeLDnurses: We are seeing issues in assessment, diagnosis, ignoring input from families/carers and horrific outcomes. #weldns
@LindseyBonnick
30 October 2014 21:07
@WeLDnurses LD liaison nurses in A&E? #weldns
@benthenurse
30 October 2014 21:07
@Peanut2727 @WeLDnurses its that subtlety that HCPs need to become attuned to [or listen to the carers for] to improve care #weldns
@salsa442
30 October 2014 21:07
RT @LearningDisElf: Named healthcare coordinators should be allocated to people with LD who have complex or multiple health needs #WeLDNs h…
@geary_ware
30 October 2014 21:07
RT @WeLDnurses: We are seeing issues in assessment, diagnosis, ignoring input from families/carers and horrific outcomes. #weldns
@WeLDnurses
30 October 2014 21:07
But we are still seeing these problems, would more reviews make a difference? #weldns
@LDStaffNurse
30 October 2014 21:08
RT @LearningDisElf: Named healthcare coordinators should be allocated to people with LD who have complex or multiple health needs #WeLDNs h…
@Claire89_LD
30 October 2014 21:08
RT @WeLDnurses: We are seeing issues in assessment, diagnosis, ignoring input from families/carers and horrific outcomes. #weldns
@WeLDnurses
30 October 2014 21:08
RT @AWebster67: #weldns yes supporting people with dental care & other health prevention should be a priority 4 paid carers
@MASowden
30 October 2014 21:08
@WeLDnurses @benthenurse v true need to ensure the expectation isn't that they take on nursing role by providing 24/7 care #weldns
@Peanut2727
30 October 2014 21:08
@ld_CI there are pwld who are not known/ never had contact with specialist services/ CLDTs. GP registers are key #weldns
@salsa442
30 October 2014 21:08
“@AWebster67: @MaryOToole10 yes supporting people with dental care & other health prevention should be a priority 4 paid carers”<#weldns
@WeLDnurses
30 October 2014 21:08
RT @LearningDisElf: Named healthcare coordinators should be allocated to people with LD who have complex or multiple health needs #WeLDNs h…
@Peanut2727
30 October 2014 21:08
RT @LearningDisElf: Named healthcare coordinators should be allocated to people with LD who have complex or multiple health needs #WeLDNs h…
@DrShirleyLock
30 October 2014 21:09
RT @LearningDisElf: To summarise if you haven't seen it, here are the key recommendations from the #CIPOLD review of deaths #WeLDNs http://…
@salsa442
30 October 2014 21:09
@LDStaffNurse think Twitter is also playing naughty tonight lovely x #weldns
@ld_CI
30 October 2014 21:09
@Peanut2727 @ld_CI I agree and in some ways they are more vulnerable #weldns
@MASowden
30 October 2014 21:09
RT @WeLDnurses: We are seeing issues in assessment, diagnosis, ignoring input from families/carers and horrific outcomes. #weldns
@salsa442
30 October 2014 21:09
RT @LindseyBonnick: @WeLDnurses LD liaison nurses in A&E? #weldns
@salsa442
30 October 2014 21:09
RT @WeLDnurses: But we are still seeing these problems, would more reviews make a difference? #weldns
@geary_ware
30 October 2014 21:09
@WeLDnurses so as ld nurses we need to attempt to prevent these by sharing our expertise and working with acute services #weldns
@geary_ware
30 October 2014 21:09
RT @LearningDisElf: Named healthcare coordinators should be allocated to people with LD who have complex or multiple health needs #WeLDNs h…
@LindseyBonnick
30 October 2014 21:10
@WeLDnurses coordinators should be a universal process so that expectation and standard is same across UK #weldns
@salsa442
30 October 2014 21:10
@WeLDnurses We need to take action now, commitment through commissioners and acute/LD trust joint funded ALN posts #weldns
@mhoghton
30 October 2014 21:10
@LearningDisElf We need to ensure outpatient investigations e.g. radiology are accessible for people with learning disabilities #weldns
@salsa442
30 October 2014 21:10
RT @Peanut2727: @ld_CI there are pwld who are not known/ never had contact with specialist services/ CLDTs. GP registers are key #weldns
@LDStaffNurse
30 October 2014 21:10
RT @salsa442: @WeLDnurses We need to take action now, commitment through commissioners and acute/LD trust joint funded ALN posts #weldns
@care2twit
30 October 2014 21:10
@LearningDisElf @WeLDnurses As a carer I think having a Named Professional and also ensuring Annual Health Checks is a good start. #weldns
@WeLDnurses
30 October 2014 21:10
MT @benthenurse: 1/2 yes, in it is important to look a thematic analysis and to comp and cont over lrg geographies. also no... #weldns
@WeLDnurses
30 October 2014 21:11
RT @LindseyBonnick: @WeLDnurses coordinators should be a universal process so that expectation and standard is same across UK #weldns
@benthenurse
30 October 2014 21:11
@WeLDnurses 2/2 in the sense of knowing what the outcomes are likely to be. Personally i think yes, we must never stop asking why #weldns
@MASowden
30 October 2014 21:11
@WeLDnurses it remains an uphill battle when consultants still make decisions with no ref to mca and RA, bring on the battle #weldns
@WeLDnurses
30 October 2014 21:11
RT @salsa442: @WeLDnurses We need to take action now, commitment through commissioners and acute/LD trust joint funded ALN posts #weldns
@ld_CI
30 October 2014 21:11
@geary_ware @WeLDnurses yes I agree LD nurses can't do everything. others need to take responsibility too, but with your support #weldns
@salsa442
30 October 2014 21:11
@Peanut2727 @ld_CI And may not even be registered with GP! These are the most vulnerable people in society, how can we help them? #weldns
@mhoghton
30 October 2014 21:11
@salsa442 @WeLDnurses ALN have made substantial differences in care in secondary care for people with LD (and other people!) #weldns
@care2twit
30 October 2014 21:11
@LearningDisElf @WeLDnurses Also, at 19 my son no longer has a named professional and not sure if he gets his proper annual checks! #weldns
@LearningDisElf
30 October 2014 21:11
Mental Capacity Act training & regular updates should be mandatory for health and social care staff #WeLDNs http://t.co/bk2ZTOl02J
@travell1ngl1ght
30 October 2014 21:11
RT @LearningDisElf: To summarise if you haven't seen it, here are the key recommendations from the #CIPOLD review of deaths #WeLDNs http://…
@WeLDnurses
30 October 2014 21:12
ALNs are amazing, what about in primary care, is there a role for them there? #weldns
@Peanut2727
30 October 2014 21:12
@LearningDisElf who is most appropriate "healthcare coordinator" could be different person to person I.e GP or CLDN #weldns
@LDStaffNurse
30 October 2014 21:12
RT @LearningDisElf: Mental Capacity Act training & regular updates should be mandatory for health and social care staff #WeLDNs http://t.co…
@MASowden
30 October 2014 21:12
RT @LearningDisElf: Mental Capacity Act training & regular updates should be mandatory for health and social care staff #WeLDNs http://t.co…
@WeLDnurses
30 October 2014 21:12
Do primary and secondary care speak to each other well enough? #weldns
@IsoMullarkey
30 October 2014 21:12
RT @LearningDisElf: Mental Capacity Act training & regular updates should be mandatory for health and social care staff #WeLDNs http://t.co…
@salsa442
30 October 2014 21:12
@mhoghton @WeLDnurses I agree totally ?? but there's still so much discrepancy in service levels #weldns
@LDStaffNurse
30 October 2014 21:12
@LearningDisElf it should be mandatory for consultants #weldns
@care2twit
30 October 2014 21:12
@WeLDnurses Don't need more reviews, just need at least ONE review! Sometimes they are completely missed! #weldns
@geary_ware
30 October 2014 21:12
@ld_CI @WeLDnurses yes definitely. We should support others, not attempt to do it all ourselves. #collaboration #weldns
@travell1ngl1ght
30 October 2014 21:13
RT @ld_CI: Men with ld died on average 13 years earlier than men in the general population. #weldns
@benthenurse
30 October 2014 21:13
@salsa442 @WeLDnurses ALN roles essential in helping to plan individ pathways! plus they all have a "can do" attitude!! #weldns
@salsa442
30 October 2014 21:13
RT @LearningDisElf: Mental Capacity Act training & regular updates should be mandatory for health and social care staff #WeLDNs http://t.co…
@salsa442
30 October 2014 21:13
RT @WeLDnurses: ALNs are amazing, what about in primary care, is there a role for them there? #weldns
@ld_CI
30 October 2014 21:13
Insist on provision of RAs. Understand Mental Capacity Act. Speak up...loudly. Be proactive. Look after yourself too. #weldns
@Claire89_LD
30 October 2014 21:13
@WeLDnurses R9-Preventative services for PwLD regarding high risk of resp Illness.This would include expert proactive @Posturalcare #weldns
@WeLDnurses
30 October 2014 21:13
RT @care2twit: @WeLDnurses Don't need more reviews, just need at least ONE review! Sometimes they are completely missed! #weldns
@mhoghton
30 October 2014 21:13
@Peanut2727 @LearningDisElf I think it can either as long as someone does it and provides continuity #weldns
@LearningDisElf
30 October 2014 21:13
RT @ld_CI: Insist on provision of RAs. Understand Mental Capacity Act. Speak up...loudly. Be proactive. Look after yourself too. #weldns
@Peanut2727
30 October 2014 21:13
@MASowden @WeLDnurses relentless battle at times but many do not grasp Capacity to consent or best interests #weldns
@WeLDnurses
30 October 2014 21:13
RT @LearningDisElf: Mental Capacity Act training & regular updates should be mandatory for health and social care staff #WeLDNs http://t.co…
@ld_CI
30 October 2014 21:13
@WeLDnurses They are changing service provision in Devon to have ld nurses in primary care #weldns
@WeLDnurses
30 October 2014 21:14
RT @Peanut2727: @LearningDisElf who is most appropriate "healthcare coordinator" could be different person to person I.e GP or CLDN #weldns
@travell1ngl1ght
30 October 2014 21:14
RT @LearningDisElf: People with learning disabilities are dying younger than the rest of the population #WeLDNs #CIPOLD http://t.co/vUnDeKr…
@salsa442
30 October 2014 21:14
@WeLDnurses I think it should be a primary and secondary care role, I think LDNs best placed to support annual health checks #weldns
@care2twit
30 October 2014 21:14
@WeLDnurses @AWebster67 Not all skilled at handling LD! Some autistic children need low lights, soft seating, time to get into room #weldns
@salsa442
30 October 2014 21:14
RT @WeLDnurses: Do primary and secondary care speak to each other well enough? #weldns
@benthenurse
30 October 2014 21:14
@Peanut2727 @LearningDisElf must be identified by the person or carers and not arbitrarily assigned. #weldns
@WeLDnurses
30 October 2014 21:14
@Peanut2727 @LearningDisElf surely similarly to CPA and it should be different for each person? #weldns
@salsa442
30 October 2014 21:14
@WeLDnurses Getting better with Electronic Discharge Summaries where I am #weldns
@WeLDnurses
30 October 2014 21:14
RT @ld_CI: Insist on provision of RAs. Understand Mental Capacity Act. Speak up...loudly. Be proactive. Look after yourself too. #weldns
@salsa442
30 October 2014 21:14
RT @LDStaffNurse: @LearningDisElf it should be mandatory for consultants #weldns
@WeLDnurses
30 October 2014 21:14
RT @Peanut2727: @MASowden @WeLDnurses relentless battle at times but many do not grasp Capacity to consent or best interests #weldns
@salsa442
30 October 2014 21:14
RT @care2twit: @WeLDnurses Don't need more reviews, just need at least ONE review! Sometimes they are completely missed! #weldns
@WeLDnurses
30 October 2014 21:14
RT @ld_CI: @WeLDnurses They are changing service provision in Devon to have ld nurses in primary care #weldns
@geary_ware
30 October 2014 21:14
@MASowden @WeLDnurses and really frustrating when they say 'the mental what act?!' #weldns
@salsa442
30 October 2014 21:15
RT @ld_CI: Insist on provision of RAs. Understand Mental Capacity Act. Speak up...loudly. Be proactive. Look after yourself too. #weldns
@LDStaffNurse
30 October 2014 21:15
@Peanut2727 @MASowden @WeLDnurses I agree so many professionals have no concept of MCA and best interested #weldns
@WeLDnurses
30 October 2014 21:15
RT @benthenurse: @Peanut2727 @LearningDisElf must be identified by the person or carers and not arbitrarily assigned. #weldns
@benthenurse
30 October 2014 21:15
RT @WeLDnurses: @Peanut2727 @LearningDisElf surely similarly to CPA and it should be different for each person? #weldns
@WeLDnurses
30 October 2014 21:15
RT @geary_ware: @MASowden @WeLDnurses and really frustrating when they say 'the mental what act?!' #weldns
@geary_ware
30 October 2014 21:16
@salsa442 @WeLDnurses yes definitely. A family were telling me their experience of ld health check and it consisted of 3 minutes #weldns
@salsa442
30 October 2014 21:16
@mhoghton @Peanut2727 @LearningDisElf And they are clearly identified #weldns we all know multi-agency works best when a clear lead in place
@mhoghton
30 October 2014 21:16
We need to link GP registers with mortality data so we know age and cause of death of people with ld nationally #weldns
@Peanut2727
30 October 2014 21:16
@WeLDnurses @LearningDisElf indeed, need clear communication about who is most appropriate for the role, not always LD nurse #weldns
@ld_CI
30 October 2014 21:16
@care2twit @WeLDnurses we reviewed deaths where concerns should have been raised but no one had a holistic view #weldns
@LearningDisElf
30 October 2014 21:16
#CIPOLD recommends the establishment of a National Learning Disability Mortality Review Body #WeLDNs http://t.co/ht9Ept95DO
@WeLDnurses
30 October 2014 21:16
CI, MCA RA's, all things that we know. But how do we make sure the places that dont find out about them? #weldns
@Screenjunkie
30 October 2014 21:16
RT @ld_CI: 22% of people with ld were under age 50 when they died, compared with 9% in general population. #weldns
@WeLDnurses
30 October 2014 21:16
RT @LearningDisElf: #CIPOLD recommends the establishment of a National Learning Disability Mortality Review Body #WeLDNs http://t.co/ht9Ept…
@Screenjunkie
30 October 2014 21:17
RT @LearningDisElf: People with learning disabilities are dying younger than the rest of the population #WeLDNs #CIPOLD http://t.co/vUnDeKr…
@AWebster67
30 October 2014 21:17
RT @ld_CI: 22% of people with ld were under age 50 when they died, compared with 9% in general population. #weldns
@salsa442
30 October 2014 21:17
@geary_ware @WeLDnurses I loved working across secondary and primary care, can really see the benefits #consistency #weldns
@mhoghton
30 October 2014 21:17
@WeLDnurses Using safeguarding leads, CQC, trianing etc #weldns
@LDStaffNurse
30 October 2014 21:17
RT @LearningDisElf: #CIPOLD recommends the establishment of a National Learning Disability Mortality Review Body #WeLDNs http://t.co/ht9Ept…
@geary_ware
30 October 2014 21:17
@WeLDnurses @Peanut2727 @LearningDisElf yeah would depend on each person as to who is most pertinent to that role for that person #weldns
@salsa442
30 October 2014 21:17
RT @WeLDnurses: CI, MCA RA's, all things that we know. But how do we make sure the places that dont find out about them? #weldns
@salsa442
30 October 2014 21:17
RT @LearningDisElf: #CIPOLD recommends the establishment of a National Learning Disability Mortality Review Body #WeLDNs http://t.co/ht9Ept…
@WeLDnurses
30 October 2014 21:18
Understanding of capacity is patchy so what needs to happen to counter this. And who is responsible for making sure it happens? #weldns
@salsa442
30 October 2014 21:18
RT @ld_CI: @care2twit @WeLDnurses we reviewed deaths where concerns should have been raised but no one had a holistic view #weldns
@benthenurse
30 October 2014 21:18
@WeLDnurses we have KPIs for other kind of healthcheck [ie LAC] would a performance target, quality linked, help improve situation? #weldns
@salsa442
30 October 2014 21:18
RT @mhoghton: We need to link GP registers with mortality data so we know age and cause of death of people with ld nationally #weldns
@ld_CI
30 October 2014 21:18
Examples of actions being taken locally and regionally are at http://t.co/86k6lPK7wq #weldns
@WeLDnurses
30 October 2014 21:18
RT @LindseyBonnick: @LDStaffNurse #weldns funding in place for mental health liaison, this is about trusts understanding the need
@mhoghton
30 October 2014 21:18
@WeLDnurses area safeguarding leads have a responsibilty to role out training #weldns
@LearningDisElf
30 October 2014 21:18
RT @ld_CI: Examples of actions being taken locally and regionally are at http://t.co/86k6lPK7wq #weldns
@WeLDnurses
30 October 2014 21:18
RT @ld_CI: Examples of actions being taken locally and regionally are at http://t.co/NL5eIraDNx #weldns #ebp
@LDStaffNurse
30 October 2014 21:19
RT @ld_CI: Examples of actions being taken locally and regionally are at http://t.co/86k6lPK7wq #weldns
@WeLDnurses
30 October 2014 21:19
RT @mhoghton: @WeLDnurses Using safeguarding leads, CQC, trianing etc #weldns
@care2twit
30 October 2014 21:19
@salsa442 @WeLDnurses Not all CCGs have prioritised LD or disability but in view of the earlier deaths perhaps they should? #weldns
@mhoghton
30 October 2014 21:19
RT @ld_CI: Examples of actions being taken locally and regionally are at http://t.co/86k6lPK7wq #weldns
@LDStaffNurse
30 October 2014 21:19
RT @WeLDnurses: RT @LindseyBonnick: @LDStaffNurse #weldns funding in place for mental health liaison, this is about trusts understanding th…
@salsa442
30 October 2014 21:19
RT @ld_CI: Examples of actions being taken locally and regionally are at http://t.co/86k6lPK7wq #weldns
@benthenurse
30 October 2014 21:19
@mhoghton @WeLDnurses I will agenda for the next regional safeguarding meeting! #messagespreading! #weldns
@LDStaffNurse
30 October 2014 21:19
RT @WeLDnurses: RT @ld_CI: Examples of actions being taken locally and regionally are at http://t.co/NL5eIraDNx #weldns #ebp
@salsa442
30 October 2014 21:19
RT @WeLDnurses: RT @LindseyBonnick: @LDStaffNurse #weldns funding in place for mental health liaison, this is about trusts understanding th…
@ld_CI
30 October 2014 21:19
@benthenurse @WeLDnurses yes it would but there will inevitably be 'gaming' #weldns
@WeLDnurses
30 October 2014 21:19
RT @benthenurse: @mhoghton @WeLDnurses I will agenda for the next regional safeguarding meeting! #messagespreading! #weldns<<<< EXCELLENT!
@LDStaffNurse
30 October 2014 21:20
RT @benthenurse: @mhoghton @WeLDnurses I will agenda for the next regional safeguarding meeting! #messagespreading! #weldns
@benthenurse
30 October 2014 21:20
@mhoghton @WeLDnurses we are; but also there is individual accountability of professionals via COP #weldns
@geary_ware
30 October 2014 21:20
@WeLDnurses often the case that there is a lack of training therefore lack of understanding causes avoidance of that area #weldns
@salsa442
30 October 2014 21:20
@mhoghton @WeLDnurses I teach about MCA in all the #safeguarding sessions I deliver #weldns
@WeLDnurses
30 October 2014 21:20
RT @benthenurse: @mhoghton @WeLDnurses we are; but also there is individual accountability of professionals via COP #weldns
@WeLDnurses
30 October 2014 21:20
RT @salsa442: @mhoghton @WeLDnurses I teach about MCA in all the #safeguarding sessions I deliver #weldns
@salsa442
30 October 2014 21:20
RT @WeLDnurses: RT @ld_CI: Examples of actions being taken locally and regionally are at http://t.co/NL5eIraDNx #weldns #ebp
@MASowden
30 October 2014 21:20
@WeLDnurses still comes down to greater recognition of the role of ldns so that they are equally valued in acute and primary #weldns
@mhoghton
30 October 2014 21:20
@ld_CI @benthenurse @WeLDnurses Remember the Self assessment Frameworks #weldns
@WeLDnurses
30 October 2014 21:21
RT @mhoghton: @ld_CI @benthenurse @WeLDnurses Remember the Self assessment Frameworks #weldns
@ld_CI
30 October 2014 21:21
I think that MCA training needs to be followed up 'on the ground' for profs to see its relevance #weldns
@WeLDnurses
30 October 2014 21:21
RT @ld_CI: I think that MCA training needs to be followed up 'on the ground' for profs to see its relevance #weldns
@lesleycchange1
30 October 2014 21:21
RT @LearningDisElf: People with learning disabilities are dying younger than the rest of the population #WeLDNs #CIPOLD http://t.co/vUnDeKr…
@salsa442
30 October 2014 21:21
@care2twit @WeLDnurses They definitely should, if we get it right for PWLD we get it right for everyone #patientsmatter #equity #weldns
@care2twit
30 October 2014 21:22
@WeLDnurses Need more communication as often carers will go to consultants in secondary and avoid GP so then GPs not so aware of LD #weldns
@Peanut2727
30 October 2014 21:22
MCA training needs to be mandatory for everyone !!! #weldns
@benthenurse
30 October 2014 21:22
RT @ld_CI: I think that MCA training needs to be followed up 'on the ground' for profs to see its relevance #weldns
@WeLDnurses
30 October 2014 21:22
RT @Peanut2727: MCA training needs to be mandatory for everyone !!! #weldns
@salsa442
30 October 2014 21:22
RT @WeLDnurses: RT @benthenurse: @mhoghton @WeLDnurses I will agenda for the next regional safeguarding meeting! #messagespreading! #weldns…
@mhoghton
30 October 2014 21:22
@MASowden @WeLDnurses I agree LD nurses in the community can really make a difference #weldns
@creativelypaleo
30 October 2014 21:22
RT @ld_CI: 22% of people with ld were under age 50 when they died, compared with 9% in general population. #weldns
@geary_ware
30 October 2014 21:22
@salsa442 @mhoghton @WeLDnurses promotion within day to day practice is also key. We can lead by example #theoryintopractice #weldns
@salsa442
30 October 2014 21:23
@benthenurse @ld_CI @WeLDnurses Like the national CQUIN idea #weldns
@WeLDnurses
30 October 2014 21:23
With 8 mins to go guys lets start coming together for some final thoughts #weldns
@WeLDnurses
30 October 2014 21:23
What are people taking from today? What will change about what YOU do? #weldns
@salsa442
30 October 2014 21:23
@geary_ware @mhoghton @WeLDnurses This really helps acute staff learn in my experience #weldns
@ld_CI
30 October 2014 21:23
The recommendations of the Confidential Inquiry are for everyone to reflect and take action not just for Govt or NHS England. #weldns
@benthenurse
30 October 2014 21:23
@Peanut2727 pleased to say it is in my area :) Need to focus more on followup as @ld_CI said #weldns
@salsa442
30 October 2014 21:24
RT @WeLDnurses: With 8 mins to go guys lets start coming together for some final thoughts #weldns
@salsa442
30 October 2014 21:24
RT @WeLDnurses: What are people taking from today? What will change about what YOU do? #weldns
@Andy_Notman
30 October 2014 21:24
RT @WeLDnurses: With 8 mins to go guys lets start coming together for some final thoughts #weldns
@geary_ware
30 October 2014 21:24
@salsa442 @care2twit @WeLDnurses exactly! MCA significant to all areas where someone lacks capacity so should be key in all practice #weldns
@salsa442
30 October 2014 21:24
@WeLDnurses That was a fast hour! #weldns
@kilgore_cliff
30 October 2014 21:24
RT @LearningDisElf: Mental Capacity Act training & regular updates should be mandatory for health and social care staff #WeLDNs http://t.co…
@mhoghton
30 October 2014 21:24
A requirement for providers to undertake an annual audit of RAs has been included in the NHS Standard Contract for 2014/15. #weldns
@Claire89_LD
30 October 2014 21:24
@WeLDnurses ensuring my practice is proactive not reactive #weldns
@WeLDnurses
30 October 2014 21:24
RT @Claire89_LD: @WeLDnurses ensuring my practice is proactive not reactive #weldns
@salsa442
30 October 2014 21:24
@WeLDnurses I will be sure to improve MCA awareness and RA where I am #weldns
@WeLDnurses
30 October 2014 21:25
RT @salsa442: @WeLDnurses I will be sure to improve MCA awareness and RA where I am #weldns
@lessimpson1
30 October 2014 21:25
RT @LearningDisElf: To summarise if you haven't seen it, here are the key recommendations from the #CIPOLD review of deaths #WeLDNs http://…
@mhoghton
30 October 2014 21:25
GP registers of people with learning disabilities are now expanded to be all age registers. #weldns
@WeLDnurses
30 October 2014 21:25
RT @mhoghton: GP registers of people with learning disabilities are now expanded to be all age registers. #weldns
@ld_CI
30 October 2014 21:25
Public Health England had developed easy-read materials for breast cancer, bowel cancer and cervical screening programmes. #weldns
@ross_6479_RNLD
30 October 2014 21:25
@WeLDnurses #weldns as a student I talk to my IPL groups about LD nursing and related topics regularly to raise profile
@care2twit
30 October 2014 21:25
@LearningDisElf @WeLDnurses Carer involvement useful here for extra training about LD understanding not so straightforward #weldns
@WeLDnurses
30 October 2014 21:25
RT @ross_6479: @WeLDnurses #weldns as a student I talk to my IPL groups about LD nursing and related topics regularly to raise profile
@salsa442
30 October 2014 21:26
RT @Claire89_LD: @WeLDnurses ensuring my practice is proactive not reactive #weldns
@mhoghton
30 October 2014 21:26
The Department of Health is reviewing if further work needs to be done on information sharing protocols between health /social care. #weldns
@LindseyBonnick
30 October 2014 21:26
@WeLDnurses I'm going to email the communications team and get the recommendations sent to all dept in the trust #weldns
@salsa442
30 October 2014 21:26
RT @mhoghton: GP registers of people with learning disabilities are now expanded to be all age registers. #weldns
@benthenurse
30 October 2014 21:26
@WeLDnurses work with my ALN colleague to review our strategy for PWLD. voice of the individual at the front.Carer expertise incl. #weldns
@WeLDnurses
30 October 2014 21:26
RT @LindseyBonnick: @WeLDnurses I'm going to email the communications team and get the recommendations sent to all dept in the trust #weldns
@geary_ware
30 October 2014 21:26
@salsa442 @WeLDnurses and ill be sure to help! #weldns
@salsa442
30 October 2014 21:26
RT @LindseyBonnick: @WeLDnurses I'm going to email the communications team and get the recommendations sent to all dept in the trust #weldns
@ld_CI
30 October 2014 21:27
Four new questions are being trialled at CQC inspections of acute hospitals, specifically about care of people with ld. #weldns
@mhoghton
30 October 2014 21:27
4 new questions are being trialled at CQC inspections of acute hospitals, specifically about care of people with Ld #weldns
@WeLDnurses
30 October 2014 21:27
RT @mhoghton: 4 new questions are being trialled at CQC inspections of acute hospitals, specifically about care of people with Ld #weldns
@WeLDnurses
30 October 2014 21:27
RT @ld_CI: Four new questions are being trialled at CQC inspections of acute hospitals, specifically about care of people with ld. #weldns
@mhoghton
30 October 2014 21:27
Annual health checks for people with LD have been extended to age 14-17 year olds. Health Action Plans are now an expectation. #weldns
@salsa442
30 October 2014 21:27
RT @ld_CI: Four new questions are being trialled at CQC inspections of acute hospitals, specifically about care of people with ld. #weldns
@WeLDnurses
30 October 2014 21:27
Great to see some wonderful responses to changing practice guys! #weldns
@Peanut2727
30 October 2014 21:27
Raise awareness of findings & recommendations via Local CCGs/ commissioners #weldns
@geary_ware
30 October 2014 21:28
@mhoghton that is fantastic #weldns
@LearningDisElf
30 October 2014 21:28
RT @WeLDnurses: Great to see some wonderful responses to changing practice guys! #weldns
@WeLDnurses
30 October 2014 21:28
RT @Peanut2727: Raise awareness of findings & recommendations via Local CCGs/ commissioners #weldns
@mhoghton
30 October 2014 21:28
No person can change the world but we can change the world for one person #weldns
@WeLDnurses
30 October 2014 21:28
RT @mhoghton: No person can change the world but we can change the world for one person #weldns
@salsa442
30 October 2014 21:28
@mhoghton LOVE this, transition has always been so difficult #weldns
@LearningDisElf
30 October 2014 21:28
RT @mhoghton: No person can change the world but we can change the world for one person #weldns
@salsa442
30 October 2014 21:28
RT @WeLDnurses: Great to see some wonderful responses to changing practice guys! #weldns
@salsa442
30 October 2014 21:29
RT @mhoghton: No person can change the world but we can change the world for one person #weldns
@Peanut2727
30 October 2014 21:29
RT @mhoghton: No person can change the world but we can change the world for one person #weldns
@WeLDnurses
30 October 2014 21:29
Tonight has been excellent! So much content and plenty food for thought! #weldns
@salsa442
30 October 2014 21:29
RT @WeLDnurses: Tonight has been excellent! So much content and plenty food for thought! #weldns
@ld_CI
30 October 2014 21:29
Thanks everyone. Its been a great discussion #weldns




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