#WeCYPNs - Wednesday 16th January 2019 8pm (GMT Standard Time) The care of CYP with Autism in hospital and community

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Hosted by WeCYPnurses using #WeCYPNs

This chat is guest hosted by @Louise90999815

The care of children and young people with autism has raised significant concerns in the media recently with the campaign of Paula McGowan and her son who had autism and died.

The recently published Ten year NHS plan highlights the priorities of the needs of children and young people with autism.

There are currently 1.2m people in the UK with learning disability and 600,000 people with autism.

Autistic people die on average 16 years earlier than the general population of the Uk and those with autism and learning disability it is 30yrs earlier. In a recent report by Autistica a study in Sweden highlighted the main causes of death.

There is also a high risk of mental health issues with 70% of autistic individuals with one mental health disorder and 40%with two.

Many families increasingly find themselves on a long waiting list for diagnosis of autism.

It has been identified through the Paula McGowan campaign that there is a need for all of the NHS staff to be given relevant training for the care of CYP with autism.

There has also been recent media coverage on the care of autistic children and young people in residential settings and the use of isolation and restraint.  This includes the STOMP campaign to reduce the use of anti-psychotic medication and investigate the deaths of people with autism and or learning disability.

Reference

NHS Ten year plan

www.longtermplan.nhs.uk.

  1. How can we significantly reduce premature deaths for CYP with autism and or learning disability?
  2. How can we improve the lives of CYP in the hospital and community ?
  3. What research should we be considering for CYP with autism?
  4. How do we identify CYP with autism in the primary care setting?
  5. What guidance is available for CYP with autism?
  6. Who should receive training for CYP with autism?
  7. How can we improve the understanding of the needs of CYP with autism in the NHS?





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 #WeCYPNs transcript

 
@WeCYPnurses
16 January 2019 20:00
Under starters orders and don’t forget the #wecypns so we can see who is in the tweet chat and you make up are lovely engagement wheel????
@hepworth_becky
16 January 2019 20:02
RT @WeCYPnurses: Under starters orders and don’t forget the #wecypns so we can see who is in the tweet chat and you make up are lovely enga…
@spencer_sian
16 January 2019 20:03
@WeCYPnurses Hello- intermittency here in Kent with the ole internet! #wecypns
@WeCYPnurses
16 January 2019 20:03
RT @spencer_sian: @WeCYPnurses Hello- intermittency here in Kent with the ole internet! #wecypns
@mazp74
16 January 2019 20:04
@WeCYPnurses Listen to the families. #WeCYPNs
@paularich1977
16 January 2019 20:04
@WeCYPnurses Everyone all! 3rd year student nurse joining from South Wales #WeCYPNs
@robbradley01
16 January 2019 20:05
@spencer_sian @WeCYPnurses Hello Rob here, charge nurse on a surgical and medical daycase ward #wecypns
@WeCYPnurses
16 January 2019 20:05
RT @robbradley01: @spencer_sian @WeCYPnurses Hello Rob here, charge nurse on a surgical and medical daycase ward #wecypns
@hepworth_becky
16 January 2019 20:05
@WeCYPnurses Big question @Louise90999815 ! By finding appropriate ways of offering regular healthchecks? #WeCYPNs
@Csage110
16 January 2019 20:05
@WeCYPnurses Understand/ research what the main causes of premature deaths for this group of CYP are first #WeCYPNs
@rachaelmajor1
16 January 2019 20:05
@mazp74 @WeCYPnurses Absolutely we know our children and their individuality #wecypns
@spencer_sian
16 January 2019 20:06
#wecypns honest open discussions and conversations, planning, care profiles and plans, listening events, collaborat… https://twitter.com/i/web/status/1085629327079849989
@WeCYPnurses
16 January 2019 20:06
RT @spencer_sian: #wecypns honest open discussions and conversations, planning, care profiles and plans, listening events, collaboration wi…
@robbradley01
16 January 2019 20:07
@WeCYPnurses #wecypns by putting the child front and centre, making reasonable adjustments, listen to the family.
@mazp74
16 January 2019 20:07
@receivingconsnt I think that’s fair - they know their child, & their condition, better than anyone. #WeCYPNs
@lorraine_tinker
16 January 2019 20:07
Learn lessons from past SIs and embeds change #wecypns
@WeCYPnurses
16 January 2019 20:07
RT @robbradley01: @WeCYPnurses #wecypns by putting the child front and centre, making reasonable adjustments, listen to the family.
@WeCYPnurses
16 January 2019 20:07
RT @hepworth_becky: @WeCYPnurses Big question @Louise90999815 ! By finding appropriate ways of offering regular healthchecks? #WeCYPNs
@spencer_sian
16 January 2019 20:07
RT @robbradley01: @WeCYPnurses #wecypns by putting the child front and centre, making reasonable adjustments, listen to the family.
@spencer_sian
16 January 2019 20:08
RT @lorraine_tinker: Learn lessons from past SIs and embeds change #wecypns
@WeCYPnurses
16 January 2019 20:08
RT @Csage110: @WeCYPnurses Understand/ research what the main causes of premature deaths for this group of CYP are first #WeCYPNs
@LesChan68
16 January 2019 20:08
@robbradley01 @WeCYPnurses #reasonable #adjustments can be the very simplest of things too, but the most significant to a child #WeCYPNs
@Emma4facs
16 January 2019 20:08
@WeCYPnurses #WeCYPNS Parents MUST be listened too and not disregarded or thought of as over anxious parents ?????? @LesChan68
@WeCYPnurses
16 January 2019 20:09
RT @Emma4facs: @WeCYPnurses #WeCYPNS Parents MUST be listened too and not disregarded or thought of as over anxious parents ?????? @LesChan68
@paularich1977
16 January 2019 20:09
@Emma4facs @WeCYPnurses @LesChan68 indeed they know their child best, they must not be ignored! #WeCYPNs
@WeCYPnurses
16 January 2019 20:10
QUESTION 2 How can we improve the lives of CYP in the hospital and community ? #WeCYPNs https://t.co/arXPgUs9Fx
@WeCYPnurses
16 January 2019 20:10
RT @paularich1977: @Emma4facs @WeCYPnurses @LesChan68 indeed they know their child best, they must not be ignored! #WeCYPNs
@robbradley01
16 January 2019 20:10
@LesChan68 @WeCYPnurses And improve the care and patient experience for the child and Family. #wecypns
@WeCYPnurses
16 January 2019 20:10
@receivingconsnt @paularich1977 Welcome #wecypns
@WeCYPnurses
16 January 2019 20:10
RT @robbradley01: @LesChan68 @WeCYPnurses And improve the care and patient experience for the child and Family. #wecypns
@paularich1977
16 January 2019 20:11
@receivingconsnt @WeCYPnurses Not good news, Is this the Paul Ridd Foundation petition from yesterday? #WeCYPNs
@sn_barnes
16 January 2019 20:11
RT @spencer_sian: #wecypns honest open discussions and conversations, planning, care profiles and plans, listening events, collaboration wi…
@sn_barnes
16 January 2019 20:11
RT @WeCYPnurses: QUESTION 2 How can we improve the lives of CYP in the hospital and community ? #WeCYPNs https://t.co/arXPgUs9Fx
@lorraine_tinker
16 January 2019 20:12
#wecypns we participated in phase 1 of this study https://bmjopen.bmj.com/content/bmjopen/6/12/e012333.full.pdf
@mazp74
16 January 2019 20:12
RT @robbradley01: @LesChan68 @WeCYPnurses And improve the care and patient experience for the child and Family. #wecypns
@reboverend_RNc
16 January 2019 20:12
@WeCYPnurses Cor everyone said all I was going to say! You guys are speedy! ??#WeCYPNs
@mazp74
16 January 2019 20:12
RT @paularich1977: @Emma4facs @WeCYPnurses @LesChan68 indeed they know their child best, they must not be ignored! #WeCYPNs
@hepworth_becky
16 January 2019 20:12
@WeCYPnurses @Louise90999815 With paediatrician reviews? If not Routine screening by school nurses? #WeCYPNS
@WeCYPnurses
16 January 2019 20:12
RT @reboverend_RNc: @WeCYPnurses Cor everyone said all I was going to say! You guys are speedy! ??#WeCYPNs
@lorraine_tinker
16 January 2019 20:13
@WeCYPnurses #WeCYPNs https://www.hqip.org.uk/resource/the-learning-disabilities-mortality-review-annual-report-2017/
@Csage110
16 January 2019 20:13
@WeCYPnurses Good question ... #wecypns
@Emma4facs
16 January 2019 20:13
@LesChan68 @WeCYPnurses #WeCYPNs Currently happening with me and my daughter, in the end I put an official Complain… https://twitter.com/i/web/status/1085631175077625888
@Emma4facs
16 January 2019 20:13
RT @paularich1977: @Emma4facs @WeCYPnurses @LesChan68 indeed they know their child best, they must not be ignored! #WeCYPNs
@spencer_sian
16 January 2019 20:14
@WeCYPnurses ???? #wecypns
@mazp74
16 January 2019 20:14
@WeCYPnurses Key workers? Personalised care plans? #WeCYPNS
@mazp74
16 January 2019 20:14
RT @WeCYPnurses: QUESTION 2 How can we improve the lives of CYP in the hospital and community ? #WeCYPNs https://t.co/arXPgUs9Fx
@robbradley01
16 January 2019 20:14
@WeCYPnurses @LesChan68 Listening to the needs if the child and Family. #wecypns
@WeCYPnurses
16 January 2019 20:15
RT @mazp74: @WeCYPnurses Key workers? Personalised care plans? #WeCYPNS
@WeCYPnurses
16 January 2019 20:15
RT @lorraine_tinker: @WeCYPnurses #WeCYPNs https://www.hqip.org.uk/resource/the-learning-disabilities-mortality-review-annual-report-2017/
@DannGooding
16 January 2019 20:15
@WeCYPnurses Please teach me, I don’t have enough awareness on these issues! #wecypns
@WeCYPnurses
16 January 2019 20:15
RT @DannGooding: @WeCYPnurses Please teach me, I don’t have enough awareness on these issues! #wecypns
@hepworth_becky
16 January 2019 20:16
@WeCYPnurses Having pre prepared passports/one page profiles offering strategies and adjustments can help alleviate stressors. #WeCYPNS
@mazp74
16 January 2019 20:16
@WeCYPnurses @hepworth_becky @Louise90999815 When required. These families may already have numerous appointments to attend. #WeCYPNS
@Csage110
16 January 2019 20:16
@cdodd09 @receivingconsnt @WeCYPnurses I wish we had a play specialist within our CCN team! Such a need #wecypns
@hepworth_becky
16 January 2019 20:16
RT @WeCYPnurses: QUESTION 2 How can we improve the lives of CYP in the hospital and community ? #WeCYPNs https://t.co/arXPgUs9Fx
@WeCYPnurses
16 January 2019 20:16
RT @Csage110: @cdodd09 @receivingconsnt @WeCYPnurses I wish we had a play specialist within our CCN team! Such a need #wecypns
@Emma4facs
16 January 2019 20:17
@paedsnursebeth @spencer_sian @WeCYPnurses #WeCYPNs Totally agree with this Beth, I have 5 children all with physic… https://twitter.com/i/web/status/1085632053218078727
@DannGooding
16 January 2019 20:17
RT @WeCYPnurses: QUESTION 2 How can we improve the lives of CYP in the hospital and community ? #WeCYPNs https://t.co/arXPgUs9Fx
@dormouse107
16 January 2019 20:18
@robbradley01 #weCYPns by listening to what the child and family need
@cdodd09
16 January 2019 20:19
@hepworth_becky @Csage110 @receivingconsnt @WeCYPnurses @spencer_sian We all need @spencer_sian ?? #wecypns
@lorraine_tinker
16 January 2019 20:19
@Csage110 @cdodd09 @receivingconsnt @WeCYPnurses Have you seen the resources @Monkeywellbeing do re autism #WeCYPNs
@WeCYPnurses
16 January 2019 20:20
QUESTION 3 What research should we be considering for CYP with autism? #WeCYPNs https://t.co/jHIwTbcLG0
@spencer_sian
16 January 2019 20:20
@hepworth_becky @Csage110 @cdodd09 @receivingconsnt @WeCYPnurses No fighting please ?????? #wecypns would be amazing i… https://twitter.com/i/web/status/1085632825141932032
@DannGooding
16 January 2019 20:20
RT @lorraine_tinker: @WeCYPnurses #WeCYPNs https://www.hqip.org.uk/resource/the-learning-disabilities-mortality-review-annual-report-2017/
@WeCYPnurses
16 January 2019 20:20
RT @spencer_sian: @hepworth_becky @Csage110 @cdodd09 @receivingconsnt @WeCYPnurses No fighting please ?????? #wecypns would be amazing if @nah…
@dormouse107
16 January 2019 20:20
@paedsnursebeth @WeCYPnurses #wecypns we are starting hospital passports but so far not many of them have been roll… https://twitter.com/i/web/status/1085632986048020480
@spencer_sian
16 January 2019 20:20
@cdodd09 @hepworth_becky @Csage110 @receivingconsnt @WeCYPnurses I am very noisy!! #wecypns some of you can vouch for that
@Csage110
16 January 2019 20:21
@lorraine_tinker @cdodd09 @receivingconsnt @WeCYPnurses @Monkeywellbeing Thanks will have a look #WeCYPNS
@WeCYPnurses
16 January 2019 20:21
RT @spencer_sian: @cdodd09 @hepworth_becky @Csage110 @receivingconsnt @WeCYPnurses I am very noisy!! #wecypns some of you can vouch for that
@WeCYPnurses
16 January 2019 20:21
RT @dormouse107: @paedsnursebeth @WeCYPnurses #wecypns we are starting hospital passports but so far not many of them have been rolled out…
@DannGooding
16 January 2019 20:21
RT @WeCYPnurses: QUESTION 3 What research should we be considering for CYP with autism? #WeCYPNs https://t.co/jHIwTbcLG0
@mazp74
16 January 2019 20:22
RT @WeCYPnurses: QUESTION 3 What research should we be considering for CYP with autism? #WeCYPNs https://t.co/jHIwTbcLG0
@lorraine_tinker
16 January 2019 20:22
@DannGooding Usually done by parents and CDC staff in community before they are in hospital #WeCYPNs
@robbradley01
16 January 2019 20:22
@paularich1977 @spencer_sian #wecypns I give them back to the patient and Family to keep and hand to any HCP that t… https://twitter.com/i/web/status/1085633390022414336
@mazp74
16 January 2019 20:22
@WeCYPnurses Trialling different assessment tools. #WeCYPNs
@tyephilip
16 January 2019 20:22
RT @robbradley01: @WeCYPnurses #wecypns by putting the child front and centre, making reasonable adjustments, listen to the family.
@hepworth_becky
16 January 2019 20:22
@spencer_sian @cdodd09 @Csage110 @receivingconsnt @WeCYPnurses Oh yes!! #wecypns https://t.co/alT3eKmA8R
@hepworth_becky
16 January 2019 20:23
@paularich1977 @DannGooding @WeCYPnurses We are just adapting ours.... #WeCYPNS
@WeCYPnurses
16 January 2019 20:23
RT @mazp74: @WeCYPnurses Trialling different assessment tools. #WeCYPNs
@hepworth_becky
16 January 2019 20:24
#WeCYPNs
@paularich1977
16 January 2019 20:24
@hepworth_becky @DannGooding @WeCYPnurses Fab would love to see once finished #WeCYPNs
@spencer_sian
16 January 2019 20:24
I remember-sitting alongside Tim and re-designing his All about Me plan, #wecypns we had a template but wanted to i… https://twitter.com/i/web/status/1085634032107470849
@paularich1977
16 January 2019 20:25
@WeCYPnurses @DannGooding @hepworth_becky #WeCYPNs ??
@spencer_sian
16 January 2019 20:25
@hepworth_becky @cdodd09 @Csage110 @receivingconsnt @WeCYPnurses #wecypns https://t.co/HVxGVjIUnz
@WeCYPnurses
16 January 2019 20:27
@reboverend_RNc Some people like physical passports others use electronic versions like the e red book?? #wecypns
@paularich1977
16 January 2019 20:27
@WeCYPnurses Behaviour support, effective transitions? These are common problems that lead into adulthood #weCYPNs
@spencer_sian
16 January 2019 20:27
Collaboration #wecypns
@WeCYPnurses
16 January 2019 20:27
RT @spencer_sian: I remember-sitting alongside Tim and re-designing his All about Me plan, #wecypns we had a template but wanted to individ…
@hepworth_becky
16 January 2019 20:27
#WeCYPNs
@WeCYPnurses
16 January 2019 20:28
QUESTION 4 How do we identify CYP with autism in the primary care setting? #WeCYPNs https://t.co/TbEZiqyrg7
@hepworth_becky
16 January 2019 20:28
#WeCYPNs
@WeCYPnurses
16 January 2019 20:28
RT @spencer_sian: Collaboration #wecypns https://twitter.com/wecypnurses/status/1085632799615434754
@hepworth_becky
16 January 2019 20:29
This is a fab example #wecypns
@rachaelmajor1
16 January 2019 20:30
Unfortunately have to go but will catch up later. Great topic thank you #WeCYPNs
@dormouse107
16 January 2019 20:30
@WeCYPnurses #wecypns would love more info on this as my area is trying to set up nurse led clinics for basic health /medication reviews.
@WeCYPnurses
16 January 2019 20:30
RT @dormouse107: @WeCYPnurses #wecypns would love more info on this as my area is trying to set up nurse led clinics for basic health /me…
@paularich1977
16 January 2019 20:31
@WeCYPnurses effective transitions between services #WeCYPNs
@hepworth_becky
16 January 2019 20:31
@cdodd09 @LesChan68 @Csage110 @receivingconsnt @WeCYPnurses Lucky you! #WeCYPNs
@WeCYPnurses
16 January 2019 20:31
@rachaelmajor1 Thanks for joining us #wecypns
@LesChan68
16 January 2019 20:31
@cdodd09 @Csage110 @receivingconsnt @WeCYPnurses That’s fantastic why does everything stop on Fridays ????? #WeCYPNs
@WeCYPnurses
16 January 2019 20:31
@dormouse107 In Newcastle there is a flag on the erecord or pink triangle to show they have autism ?? #wecypns
@spencer_sian
16 January 2019 20:32
#playmatters #wecypns @LLaurajwalsh @SalTwinkles @nahpsofficial TY Lesley @TonkinAlison @CathHubbuck et al
@WeCYPnurses
16 January 2019 20:32
@dormouse107 Do CYP with autism have yearly reviews? #wecypns
@spencer_sian
16 January 2019 20:33
@hepworth_becky @cdodd09 @LesChan68 @Csage110 @receivingconsnt @WeCYPnurses Wow #wecypns
@dormouse107
16 January 2019 20:33
@sn_barnes @reboverend_RNc @WeCYPnurses #wecypns can share ours if you dm me your address , its a work in progress but will give you a start
@spencer_sian
16 January 2019 20:33
@WeCYPnurses Great question #wecypns #playmatters @OfficialNIHR @LLaurajwalsh
@WeCYPnurses
16 January 2019 20:34
@LesChan68 @Csage110 @cdodd09 @receivingconsnt Does any use therapy dogs for CYP with Autism? ??#wecypns
@spencer_sian
16 January 2019 20:34
RT @dormouse107: @sn_barnes @reboverend_RNc @WeCYPnurses #wecypns can share ours if you dm me your address , its a work in progress but wil…
@robbradley01
16 January 2019 20:34
@reboverend_RNc @WeCYPnurses I give ours back to the patient/family to take TO any other appointment or hospital #WeCYPNs
@dormouse107
16 January 2019 20:35
@paularich1977 @sn_barnes @reboverend_RNc @WeCYPnurses #wecypns if there is a national one please share as we have… https://twitter.com/i/web/status/1085636627047899141
@WeCYPnurses
16 January 2019 20:36
@reboverend_RNc @paularich1977 @DannGooding @hepworth_becky That is a very good point?? #wecypns
@WeCYPnurses
16 January 2019 20:36
QUESTION 5 What guidance is available for CYP with autism? #WeCYPNs https://t.co/B9zWb1r34J
@paularich1977
16 January 2019 20:36
@dormouse107 @sn_barnes @reboverend_RNc @WeCYPnurses I was about to say there’s work in Wales to create a standardised passport #weCYPNs
@robbradley01
16 January 2019 20:36
@WeCYPnurses @LesChan68 @Csage110 @cdodd09 @receivingconsnt #WeCYPNs we have one that visits wards but not specifically for CYP with Autism.
@lorraine_tinker
16 January 2019 20:36
@paularich1977 @sn_barnes @reboverend_RNc @WeCYPnurses Borrow others already done ‘don’t reinvent the wheel’#weCYPNs
@reboverend_RNc
16 January 2019 20:37
@cdodd09 @LesChan68 @Csage110 @receivingconsnt @WeCYPnurses Brilliant! #WeCYPNs
@dormouse107
16 January 2019 20:37
#wecypns ooh yes please share resources id be really grateful https://t.co/BaVVf8Po4X
@WeCYPnurses
16 January 2019 20:37
RT @lorraine_tinker: @paularich1977 @sn_barnes @reboverend_RNc @WeCYPnurses Borrow others already done ‘don’t reinvent the wheel’#weCYPNs
@dormouse107
16 January 2019 20:38
@paularich1977 @sn_barnes @reboverend_RNc @WeCYPnurses #wecypns some of my collegues are working on this :)
@spencer_sian
16 January 2019 20:38
?????????? #playmatters #playteams #healthplayspecialist #wecypns @nahpsofficial @NHSEngland @RCPCH_and_Us https://t.co/4e9QQxBC7r
@spencer_sian
16 January 2019 20:38
RT @WeCYPnurses: QUESTION 5 What guidance is available for CYP with autism? #WeCYPNs https://t.co/B9zWb1r34J
@dormouse107
16 January 2019 20:40
RT @spencer_sian: ?????????? #playmatters #playteams #healthplayspecialist #wecypns @nahpsofficial @NHSEngland @RCPCH_and_Us https://t.co/4e9QQ…
@lorraine_tinker
16 January 2019 20:41
@sa_mom_in_uk @JanetAnneLee @BSUH_NHS @BSUHplayteam @hannah1ines @KAM4LPatel #weCYPNs pet therapy dog today
@Csage110
16 January 2019 20:42
@LesChan68 @cdodd09 @receivingconsnt @WeCYPnurses We’re based in the community so would be great in both environments #WeCYPNs
@lorraine_tinker
16 January 2019 20:42
@wishingwelluk @WithinWell @JanetAnneLee @wshtchiefexec #weCYPNs #music and pts LD @spencer_sian
@sn_barnes
16 January 2019 20:43
@WeCYPnurses @receivingconsnt I LOVE this idea!!!! #wecypns https://t.co/4ywlUsM9ix
@cdodd09
16 January 2019 20:43
@robbradley01 do you Rob i've always wanted pet therapy visits you'll have to let me know the details! #wecypns
@WeCYPnurses
16 January 2019 20:45
QUESTION 6 Who should receive training for CYP with autism? #WeCYPNs https://t.co/qNEcc3PblD
@sn_barnes
16 January 2019 20:45
@WeCYPnurses @dormouse107 @paularich1977 @reboverend_RNc ?? Excellent!! Thank you!! #wecypns
@paularich1977
16 January 2019 20:46
@hepworth_becky #WeCYPNs https://t.co/VXNDQHmMVI
@DannGooding
16 January 2019 20:46
RT @WeCYPnurses: QUESTION 5 What guidance is available for CYP with autism? #WeCYPNs https://t.co/B9zWb1r34J
@dormouse107
16 January 2019 20:46
@WeCYPnurses #wecypns anyone who they may encounter in both hospital or community
@hepworth_becky
16 January 2019 20:46
RT @WeCYPnurses: QUESTION 6 Who should receive training for CYP with autism? #WeCYPNs https://t.co/qNEcc3PblD
@lorraine_tinker
16 January 2019 20:47
@spencer_sian @WeCYPnurses @JanetAnneLee has the ability to print makaton #weCYPNs
@hepworth_becky
16 January 2019 20:47
@WeCYPnurses All of us! #wecypns
@WeCYPnurses
16 January 2019 20:47
@spencer_sian What about your SALT?? I have got PECs programme which is great for #autism #weCYPNs
@Csage110
16 January 2019 20:48
@WeCYPnurses My counter question would be what does that training look like? #weCYPNs
@robbradley01
16 January 2019 20:48
@WeCYPnurses Anyone! We have an e-learning module on autism. #WeCYPNs
@spencer_sian
16 January 2019 20:48
@lorraine_tinker @WeCYPnurses @JanetAnneLee Does she ???? Janet- please please please #wecypns
@LesChan68
16 January 2019 20:48
@WeCYPnurses EVERYONE a child becomes an adult #WeCYPNs
@WeCYPnurses
16 January 2019 20:48
RT @robbradley01: @WeCYPnurses Anyone! We have an e-learning module on autism. #WeCYPNs
@WeCYPnurses
16 January 2019 20:48
@paularich1977 Yes I think everyone in the #NHS should receive training so we are all more aware?? #weCYPNs
@WeCYPnurses
16 January 2019 20:49
RT @LesChan68: @WeCYPnurses EVERYONE a child becomes an adult #WeCYPNs
@WeCYPnurses
16 January 2019 20:49
RT @hepworth_becky: @WeCYPnurses All of us! #wecypns
@WeCYPnurses
16 January 2019 20:49
RT @Csage110: @WeCYPnurses My counter question would be what does that training look like? #weCYPNs
@paularich1977
16 January 2019 20:49
@robbradley01 @WeCYPnurses I think it needs to be alot more than e-learning though, it feels very tokenistic #WeCYPNs
@lorraine_tinker
16 January 2019 20:49
@WeCYPnurses All health care & support staff (porters/catering /domestics) #weCYPNs
@spencer_sian
16 January 2019 20:49
@WeCYPnurses I have asked already- I’ve got PECS - but specifically need some key makaton ones #wecypns may have fo… https://twitter.com/i/web/status/1085640305502814208
@WeCYPnurses
16 January 2019 20:50
@Csage110 I hope with the ten year plan that will be addressed sooner rather than later ??#weCYPNs
@paularich1977
16 January 2019 20:50
@DannGooding @WeCYPnurses Should be a lot more in the degree programme for student nurses also #WeCYPNs
@LesChan68
16 January 2019 20:50
@WeCYPnurses Every ward should have a designated #champion too ensuring training and skills are current for the whole team #WeCYPNs
@WeCYPnurses
16 January 2019 20:50
@robbradley01 Yes I did an e learning autism course which was very useful ?? #weCYPNs
@LesChan68
16 January 2019 20:51
@paularich1977 @WeCYPnurses Yes yes yes unique traits #WeCYPNs
@hepworth_becky
16 January 2019 20:51
@DannGooding @WeCYPnurses And those children become adults. #WeCYPNs
@WeCYPnurses
16 January 2019 20:51
@LesChan68 Does anyone have an #autismchampion??#WeCYPNS
@WeCYPnurses
16 January 2019 20:51
RT @paularich1977: @DannGooding @WeCYPnurses Should be a lot more in the degree programme for student nurses also #WeCYPNs
@robbradley01
16 January 2019 20:52
@cdodd09 Yes it's a dog called Elsa I think! I'll find out for you #WeCYPNs
@WeCYPnurses
16 January 2019 20:52
@paularich1977 @DannGooding Yes I agree nurse training is very important ??#weCYPNs
@paularich1977
16 January 2019 20:52
@LesChan68 @WeCYPnurses Completely agree! Ld Champions are vital throughout all departments #weCYPNs
@sn_barnes
16 January 2019 20:52
RT @WeCYPnurses: @LesChan68 Does anyone have an #autismchampion??#WeCYPNS
@DannGooding
16 January 2019 20:52
RT @WeCYPnurses: And finally .... QUESTION 7 How can we improve the understanding of the needs of CYP with autism in the NHS? #WeCYPNs h…
@WeCYPnurses
16 January 2019 20:53
RT @spencer_sian: @WeCYPnurses I have asked already- I’ve got PECS - but specifically need some key makaton ones #wecypns may have found so…
@dormouse107
16 January 2019 20:53
@WeCYPnurses @LesChan68 #wecypns we have a link nurse but we need more education for her to become a champion
@LesChan68
16 January 2019 20:54
@paularich1977 @WeCYPnurses ?? agree #WeCYPNs
@WeCYPnurses
16 January 2019 20:54
RT @paularich1977: @LesChan68 @WeCYPnurses Completely agree! Ld Champions are vital throughout all departments #weCYPNs
@lorraine_tinker
16 January 2019 20:54
@robbradley01 @WeCYPnurses #weCYPNs @RCPCHPresident has a free LD cyp e learning module https://www.rcpch.ac.uk/resources/disability-matters-elearning
@paularich1977
16 January 2019 20:54
@WeCYPnurses Listen, Values and attitudes training, Quality of Life measures, Sharing good practice #WeCYPNs
@sn_barnes
16 January 2019 20:55
@paularich1977 @WeCYPnurses Everyone who comes into contact with children and their families, I quite agree! ?????? #wecypns
@WeCYPnurses
16 January 2019 20:55
RT @lorraine_tinker: @robbradley01 @WeCYPnurses #weCYPNs @RCPCHPresident has a free LD cyp e learning module https://www.rcpch.ac.uk/resources/disability-matters-elearning
@WeCYPnurses
16 January 2019 20:55
@lorraine_tinker @robbradley01 @RCPCHPresident Great resource thank you ??#weCYPNs
@WeCYPnurses
16 January 2019 20:55
RT @dormouse107: @WeCYPnurses @LesChan68 #wecypns we have a link nurse but we need more education for her to become a champion
@WeCYPnurses
16 January 2019 20:55
@dormouse107 @LesChan68 Excellent ?? #weCYPNs
@WeCYPnurses
16 January 2019 20:56
RT @dormouse107: @paularich1977 @sn_barnes @reboverend_RNc @WeCYPnurses #wecypns if there is a national one please share as we have been wo…
@WeCYPnurses
16 January 2019 20:56
RT @sn_barnes: @paularich1977 @WeCYPnurses Everyone who comes into contact with children and their families, I quite agree! ?????? #wecypns
@WeCYPnurses
16 January 2019 20:56
@paularich1977 @Csage110 @PaulaMc007 Totally agree there is so much to be done!??#weCYPNs
@spencer_sian
16 January 2019 20:57
RT @sn_barnes: @paularich1977 @WeCYPnurses Everyone who comes into contact with children and their families, I quite agree! ?????? #wecypns
@spencer_sian
16 January 2019 20:57
RT @dormouse107: @paularich1977 @sn_barnes @reboverend_RNc @WeCYPnurses #wecypns if there is a national one please share as we have been wo…
@dormouse107
16 January 2019 20:57
@LesChan68 @WeCYPnurses #wecypns this is my problem , small team and links needed for so many vital roles
@WeCYPnurses
16 January 2019 20:58
Any last thoughts before we close ??#weCYPNs
@hepworth_becky
16 January 2019 20:58
Great resource for free! #WeCYPNs
@WeCYPnurses
16 January 2019 20:58
RT @dormouse107: @LesChan68 @WeCYPnurses #wecypns this is my problem , small team and links needed for so many vital roles
@sn_barnes
16 January 2019 20:58
@lorraine_tinker @robbradley01 @WeCYPnurses @RCPCHPresident Thank you! #wecypns
@spencer_sian
16 January 2019 20:59
RT @lorraine_tinker: @robbradley01 @WeCYPnurses #weCYPNs @RCPCHPresident has a free LD cyp e learning module https://www.rcpch.ac.uk/resources/disability-matters-elearning
@hepworth_becky
16 January 2019 20:59
Ohh! Important message! #wecypns




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