#WeCYPNs - Wednesday 24th April 2019 8pm (GMT Standard Time)
Teaching carers complex procedures
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Chat Details
Hosted by WeCYPnurses using #WeCYPNs
This chat is guest hosted by @lmpartridge
There are lots of families in the community looking after CYP with complex medical needs and carrying out care such as invasive and non invasive ventilation, enteral and parenteral feeding, administration of intravenous medication and much more. Often supported by community children's nurses. This is evidenced by #notanursebut on Twitter.
This chat is co-hosted by Linda Partridge formerly of Well Child and aims to discuss the accountability issues of training families i.e consideration of health and safety and delegation.
- Ensuring health & safety/delegation - how do you ensure that responsibility for training is not delegated to someone who is not experienced to deliver specific training/task
- What if any are your major challenges when it comes to training parents and carers
- Who's responsibility is it to train parents and carer's and who delivers the training
- Who train's the trainer?
- Who reviews the training given and when/where is re training given?
- Is training offered at an appropriate time and place?
- Whatbtraining models, if any, do you use/
- Are parents/ carers able to evaluate the training they have been offered?
Further reading
https://www.wellchild.org.uk/supporting-you/trainingprinciples/
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#WeCYPNs transcript
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@WeCYPnurses
24 April 2019 20:01
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Dedication! Well done @estbennington ?? #wecypns |
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@lmpartridge
24 April 2019 20:01
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@WeCYPnurses @hepworth_becky I am here #wecypns |
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@NinaHeighington
24 April 2019 20:01
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I’m here but not great at tweet chats!!! #wecypns |
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@WeCYPnurses
24 April 2019 20:02
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@LucyAlexandria Hi Lucy. I hoped you would join us! The real expert!! #wecypns |
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@cdodd09
24 April 2019 20:02
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@WeCYPnurses @hepworth_becky @lmpartridge me! #wecypns https://t.co/p2SKwxwJq7 |
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@WeCYPnurses
24 April 2019 20:03
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@cdodd09 @hepworth_becky @lmpartridge Hi Caroline!! #wecypns |
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@WeCYPnurses
24 April 2019 20:03
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Great to you all here. Don't forget to stick within the NMC guidance and to use the hashtag #wecypns so that we can… https://twitter.com/i/web/status/1121127465999654912 |
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@cdodd09
24 April 2019 20:03
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@NinaHeighington you'll be fine Nina! just using #wecypns and contribute as and when you want! |
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@WeCYPnurses
24 April 2019 20:03
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@tbrooks1976 @hepworth_becky @lmpartridge don't forget the #wecypns so we don't miss your tweets.... |
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@sn_barnes
24 April 2019 20:04
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@WeCYPnurses @hepworth_becky @lmpartridge I’m here!!! #wecypns |
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@WeCYPnurses
24 April 2019 20:04
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#wecypns |
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@tbrooks1976
24 April 2019 20:04
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RT @WeCYPnurses: @tbrooks1976 @hepworth_becky @lmpartridge don't forget the #wecypns so we don't miss your tweets.... |
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@WeCYPnurses
24 April 2019 20:04
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@sn_barnes @hepworth_becky @lmpartridge yay!! #wecypns |
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@al1878
24 April 2019 20:05
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I’m mum to 13 yr old complex needs daughter, looking forward to the conversation #wecypns |
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@LucyAlexandria
24 April 2019 20:05
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@WeCYPnurses See, twitter expert forgot the hashtag....#WeCYPNs ???? |
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@WeCYPnurses
24 April 2019 20:06
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@al1878 Fabulous. Great to get parents perspective #wecypns |
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@WeCYPnurses
24 April 2019 20:06
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Right let's kick off with the first question.... #wecypns https://t.co/v6lQjdSlVg |
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@WeCYPnurses
24 April 2019 20:07
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@LucyAlexandria Funny!! Forgiven once! #wecypns |
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@paedsnursebeth
24 April 2019 20:07
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@WeCYPnurses @hepworth_becky @lmpartridge Hi! You’ll have to bear with me as I’m juggling between #wecypns, #WeStNs… https://twitter.com/i/web/status/1121128457197559809 |
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@al1878
24 April 2019 20:08
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@LucyAlexandria Nice to meet you Lucy! #wecypns |
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@WeCYPnurses
24 April 2019 20:08
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Great to see you Esther but don't forget to use the #wecypns on every tweet so we can all see them. |
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@gsqia
24 April 2019 20:08
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RT @paedsnursebeth: @WeCYPnurses @hepworth_becky @lmpartridge Hi! You’ll have to bear with me as I’m juggling between #wecypns, #WeStNs and… |
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@WeCYPnurses
24 April 2019 20:09
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@paedsnursebeth @hepworth_becky @lmpartridge Pop in as you can.... juggling chats is a skill that I have not mastered yet. #wecypns |
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@mazp74
24 April 2019 20:10
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@WeCYPnurses Professionals who are experts and knowledgeable in what they are teaching. #wecypns |
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@NinaHeighington
24 April 2019 20:11
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@cdodd09 @WeCYPnurses It varies too between regions we have someone to train on the pump but usual nurses do NG training #WeCYPNs |
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@paedsnursebeth
24 April 2019 20:11
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@WeCYPnurses @hepworth_becky @lmpartridge Me currently - #WeCYPNs https://t.co/sGZeQOlBwQ |
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@ceeceeb70
24 April 2019 20:11
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I'm lurking! #wecypns |
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@estbennington
24 April 2019 20:12
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@WeCYPnurses #wecypns It’s also about the professional training to be able to train. Not all great nurses are great trainers |
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@WeCYPnurses
24 April 2019 20:14
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@al1878 Would your Community Nurses co-ordinate the training? or do it themselves? #wecypns |
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@WeCYPnurses
24 April 2019 20:14
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@ceeceeb70 lurkers always welcome! #wecypns |
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@WeCYPnurses
24 April 2019 20:15
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good point.... Just because we know how to change a trache, are we good at passing that knowledge across? #wecypns |
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@cdodd09
24 April 2019 20:16
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@sianhooban @WeCYPnurses it's tricky as not everyone is good at teaching #wecypns so there's competency and teaching skills |
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@mazp74
24 April 2019 20:16
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RT @estbennington: @WeCYPnurses #wecypns It’s also about the professional training to be able to train. Not all great nurses are great trai… |
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@lmpartridge
24 April 2019 20:17
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It is the consistency that is so important for parents and carers #wecypns |
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@Paula74cat
24 April 2019 20:17
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@WeCYPnurses @WeCYPNs #wecypns |
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@WeCYPnurses
24 April 2019 20:17
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don't forget your #wecypns |
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@mazp74
24 April 2019 20:17
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@LucyAlexandria @WeCYPnurses Would that be too much? Can they take it all in? #wecypns |
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@WeCYPnurses
24 April 2019 20:18
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RT @lmpartridge: It is the consistency that is so important for parents and carers #wecypns |
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@WeCYPnurses
24 April 2019 20:18
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time for the next question. #wecypns https://t.co/swgTBy1dFO |
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@estbennington
24 April 2019 20:19
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@WeCYPnurses #wecypns It’s also about the journey the family are on, what there experience is, what style of teaching suits them. |
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@WeCYPnurses
24 April 2019 20:19
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@firogers3 @hepworth_becky @lmpartridge Don't forget the #wecypns with your tweets so that we can all see them |
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@GemmaMadden6
24 April 2019 20:20
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@WeCYPnurses Communication, and the willingness to want to learn and be taught #wecypns |
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@lmpartridge
24 April 2019 20:21
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#wecypns Planning and risk assessment is crucial when thinking about challenges |
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@estbennington
24 April 2019 20:21
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@WeCYPnurses #WeCYPNs Barriers to learning. Our families have so many things to juggle, nurses have so many pressu… https://twitter.com/i/web/status/1121132058728902663 |
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@al1878
24 April 2019 20:21
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@WeCYPnurses From my side as a parent it’s the wait for training meaning home discharge can be delayed, #wecypns |
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@tbrooks1976
24 April 2019 20:21
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#wecypns in what I have seen and heard from networking and working in my local area, training is hard to come by, s… https://twitter.com/i/web/status/1121132134985601026 |
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@LucyAlexandria
24 April 2019 20:22
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RT @estbennington: @WeCYPnurses #wecypns It’s also about the professional training to be able to train. Not all great nurses are great trai… |
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@sn_barnes
24 April 2019 20:22
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@WeCYPnurses Having protected learning time!! #wecypns |
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@WeCYPnurses
24 April 2019 20:22
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@al1878 training of parents and then the carers within the carepackage can often delay discharge. How could this be improved? #wecypns |
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@WeCYPnurses
24 April 2019 20:23
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RT @lmpartridge: #wecypns Planning and risk assessment is crucial when thinking about challenges |
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@WeCYPnurses
24 April 2019 20:23
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@tbrooks1976 a rare beast indeed! If you find one, can you please share! #wecypns |
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@estbennington
24 April 2019 20:25
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@lmpartridge #WeCYPNs It’s also about teaching our families transferable skills and how to risk asses new situations |
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@WeCYPnurses
24 April 2019 20:25
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sad face #wecypns |
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@cdodd09
24 April 2019 20:25
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#wecypns :-) |
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@al1878
24 April 2019 20:25
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@WeCYPnurses I have trained so many staff myself as no training in community for PAs available #wecypns |
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@LucyAlexandria
24 April 2019 20:26
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RT @al1878: @WeCYPnurses From my side as a parent it’s the wait for training meaning home discharge can be delayed, #wecypns |
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@NinaHeighington
24 April 2019 20:26
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@WeCYPnurses Language barrier and remembering to book interpreters/availability of interpreters several times! #wecypns |
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@WeCYPnurses
24 April 2019 20:26
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@NinaHeighington I read that as hangovers at first!! #wecypns |
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@al1878
24 April 2019 20:26
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@LucyAlexandria @WeCYPnurses Same here my TPN team are my main support, even with other issues! #wecypns |
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@WeCYPnurses
24 April 2019 20:26
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@cdodd09 nearly the naughty step! #wecypns |
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@lmpartridge
24 April 2019 20:26
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#wecypns With more complex procedures there does not to be a focus on this area being recognised as a specialism |
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@mazp74
24 April 2019 20:27
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#wecypns |
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@lmpartridge
24 April 2019 20:27
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I mean there does need to be focus - sorry!! #wecypns |
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@cdodd09
24 April 2019 20:27
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@2tubies @WeCYPnurses that's a really good point we often forget as HCP that we often talk a different language #wecypns |
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@WeCYPnurses
24 April 2019 20:27
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time is ticking on... question 3? #wecypns https://t.co/Ni8r1ubC1w |
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@cdodd09
24 April 2019 20:28
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@WeCYPnurses i know! thankfully i corrected myself before you saw! #wecypns :-) |
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@WeCYPnurses
24 April 2019 20:28
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I think we often forget this. Talk in our nursey language and expect everyone to understand... #wecypns |
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@estbennington
24 April 2019 20:28
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@rachwalshxx @WeCYPnurses #WeCYPNs it’s a training journey, needs to be family pace. |
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@lmpartridge
24 April 2019 20:29
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Q3 is the biggie for me #wecypns |
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@LucyAlexandria
24 April 2019 20:29
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RT @WeCYPnurses: time for the next question. #wecypns https://t.co/swgTBy1dFO |
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@LucyAlexandria
24 April 2019 20:29
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RT @WeCYPnurses: time is ticking on... question 3? #wecypns https://t.co/Ni8r1ubC1w |
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@WeCYPnurses
24 April 2019 20:30
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@sianhooban @tbrooks1976 essential! #wecypns |
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@mazp74
24 April 2019 20:30
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RT @lmpartridge: #wecypns Planning and risk assessment is crucial when thinking about challenges |
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@paedsnursebeth
24 April 2019 20:30
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RT @WeCYPnurses: I think we often forget this. Talk in our nursey language and expect everyone to understand... #wecypns https://t.co/feQG… |
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@cdodd09
24 April 2019 20:30
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@WeCYPnurses ensure you have staff available that are correctly trained and have the appropriate teaching skills #wecypns |
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@lmpartridge
24 April 2019 20:30
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Parents need to feel confident on those delivering the training #wecypns |
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@LucyAlexandria
24 April 2019 20:31
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RT @al1878: @WeCYPnurses I have trained so many staff myself as no training in community for PAs available #wecypns |
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@LucyAlexandria
24 April 2019 20:31
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RT @lmpartridge: #wecypns With more complex procedures there does not to be a focus on this area being recognised as a specialism |
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@estbennington
24 April 2019 20:31
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@WeCYPnurses #WeCYPNs Delegation is the lead nurse be it ward or discharge nurse making sure standards are kept high |
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@2tubies
24 April 2019 20:31
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RT @WeCYPnurses: I think we often forget this. Talk in our nursey language and expect everyone to understand... #wecypns https://t.co/feQG… |
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@WeCYPnurses
24 April 2019 20:32
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#wecypns |
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@2tubies
24 April 2019 20:32
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RT @lmpartridge: Parents need to feel confident on those delivering the training #wecypns |
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@NinaHeighington
24 April 2019 20:33
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#wecypns |
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@lmpartridge
24 April 2019 20:33
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@ph_wilson1 @WeCYPnurses I absolutely agree! This must now be recognised and supported #wecypns |
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@firogers3
24 April 2019 20:33
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@2tubies @WeCYPnurses So true we forget and use jargon probably without thinking #wecypns |
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@WeCYPnurses
24 April 2019 20:34
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@paedsnursebeth ooo…. not good. Well done you to recognise and voice that you weren't able to do that. #wecypns |
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@lmpartridge
24 April 2019 20:34
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Also there are pother professionals who deliver training such as physios #wecypns |
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@al1878
24 April 2019 20:34
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@ph_wilson1 @WeCYPnurses This would be my dream! #wecypns |
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@WeCYPnurses
24 April 2019 20:35
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Are you ready for question 4? Here it is... #wecypns https://t.co/2cSypgpj24 |
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@WeCYPnurses
24 April 2019 20:36
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@al1878 How does this make you feel Alison...? #wecypns |
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@paedsnursebeth
24 April 2019 20:36
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@cdodd09 @WeCYPnurses Absolutely! #WeCYPNs |
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@LucyAlexandria
24 April 2019 20:37
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RT @WeCYPnurses: Are you ready for question 4? Here it is... #wecypns https://t.co/2cSypgpj24 |
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@lmpartridge
24 April 2019 20:37
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It goes back to Phils comment about it needing to now be professionalised #wecypns |
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@WeCYPnurses
24 April 2019 20:37
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@firogers3 @2tubies I know I do... It's automatic to think in nursey language and presume people will understand. #wecypns |
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@cdodd09
24 April 2019 20:37
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@WeCYPnurses there are 'train the trainer' courses available #wecypns |
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@WeCYPnurses
24 April 2019 20:40
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don't forget your #wecypns so we can all see your tweets Rachel. |
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@2tubies
24 April 2019 20:40
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#wecypns ????? |
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@lmpartridge
24 April 2019 20:40
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My worry iOS not having enough opportunities for people to attend courses or even have time to review their skills and competencies #wecypns |
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@WeCYPnurses
24 April 2019 20:41
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how scary #wecypns |
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@lmpartridge
24 April 2019 20:42
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#wecypns My 82 year old mum is still training carers for my adult sister! |
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@WeCYPnurses
24 April 2019 20:43
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so important @sn_barnes #wecypns |
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@WeCYPnurses
24 April 2019 20:43
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RT @lmpartridge: #wecypns My 82 year old mum is still training carers for my adult sister! |
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@WeCYPnurses
24 April 2019 20:44
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don't forget the #wecypns so that we don't miss your tweets. |
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@lmpartridge
24 April 2019 20:44
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Also what about the responsibility when our C&YP begin the transition process and new teams take over #wecypns |
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@WeCYPnurses
24 April 2019 20:45
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Great chatting chaps! Next question..... #wecypns https://t.co/t2YQyUmvmq |
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@WeCYPnurses
24 April 2019 20:45
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@lmpartridge now this is tricky! a whole new can of worms.... #wecypns |
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@firogers3
24 April 2019 20:46
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@WeCYPnurses @al1878 Integrated working & involving community team as early as possible but appreciate not always easy #wecypns |
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@michellewignall
24 April 2019 20:46
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@WeCYPnurses #wecypns as parents we have to show competency should the trainers be transparent in theirs if asked ?… https://twitter.com/i/web/status/1121138425032249351 |
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@estbennington
24 April 2019 20:47
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@WeCYPnurses #WeCYPNs For anyone who is training it’s about getting the best and most up to date skills from the ex… https://twitter.com/i/web/status/1121138574106214402 |
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@WeCYPnurses
24 April 2019 20:47
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@NinaHeighington @ph_wilson1 Linda @lmpartridge has just raised the transition flag too... Now that's a whole new chat! #wecypns |
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@2tubies
24 April 2019 20:47
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@LucyAlexandria @WeCYPnurses @firogers3 Exactly!! I have been at both ends of that scale of medical literacy! #wecypns |
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@WeCYPnurses
24 April 2019 20:47
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RT @estbennington: @WeCYPnurses #WeCYPNs For anyone who is training it’s about getting the best and most up to date skills from the experts… |
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@lmpartridge
24 April 2019 20:48
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#wecypns It goes back to commitment to ensure reviews and updates take place and work around the changing needs of… https://twitter.com/i/web/status/1121138766859657216 |
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@estbennington
24 April 2019 20:48
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@michellewignall @WeCYPnurses #WeCYPNs absolutely families should be able to ask. It’s a partnership. |
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@WeCYPnurses
24 April 2019 20:48
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great thoughts Michelle. Thanks for joining us. #wecypns #stoleyourphoto |
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@lucyjrparker
24 April 2019 20:49
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@WeCYPnurses Ensuring they have a choice to remain the parent or carer when it comes to invasive or painful procedures #WeCYPNs |
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@WeCYPnurses
24 April 2019 20:49
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really important point @lucyjrparker #wecypns |
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@estbennington
24 April 2019 20:50
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@lmpartridge #WeCYPNs it’s both the trust and the nurses responsibility to make sure they are competent to train |
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@WeCYPnurses
24 April 2019 20:50
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@al1878 such an important point Alison #wecypns |
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@mazp74
24 April 2019 20:51
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RT @WeCYPnurses: sad face #wecypns https://twitter.com/al1878/status/1121132598963601410 |
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@WeCYPnurses
24 April 2019 20:51
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@sianhooban @lmpartridge NO!!!! #weeccns are just mopping up as best they can in most areas. Huge impact on services. #wecypns |
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@WeCYPnurses
24 April 2019 20:52
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only 10 minutes left! Time for our last question... #wecypns https://t.co/COyAale4N2 |
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@WeCYPnurses
24 April 2019 20:53
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@LucyAlexandria @NinaHeighington @ph_wilson1 @lmpartridge She is one amazing lady Lucy! #wecypns |
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@lmpartridge
24 April 2019 20:54
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There is much that can be gained from sharing good models and having easy access to find out what is being used in other areas #wecypns |
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@WeCYPnurses
24 April 2019 20:54
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#wecypns https://twitter.com/rachwalshxx/status/1121136840810147845 |
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@lmpartridge
24 April 2019 20:54
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@MrsRBurnell @WeCYPnurses Fab #wecypns |
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@2tubies
24 April 2019 20:55
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@WeCYPnurses I don’t recall ever being asked to evaluate any training I have been given. #wecypns |
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@lmpartridge
24 April 2019 20:55
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I think we do need to raise it and I would be happy to work with others to do this #wecypns |
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@WeCYPnurses
24 April 2019 20:56
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@NinaHeighington @LucyAlexandria @ph_wilson1 @lmpartridge that's it! #naughtystep #wecypns |
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@WeCYPnurses
24 April 2019 20:56
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@sianhooban @lmpartridge @TheQNI Shout loudly! But who too? #wecypns |
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@lmpartridge
24 April 2019 20:56
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Has anyone used the training principles launched by WellChild a few months ago? #wecypns |
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@WeCYPnurses
24 April 2019 20:57
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RT @lmpartridge: Has anyone used the training principles launched by WellChild a few months ago? #wecypns |
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@WeCYPnurses
24 April 2019 20:58
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Last 3 minutes left... What are you taking away from this chat? #wecypns |
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@lmpartridge
24 April 2019 20:58
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I would like us to continue this important conversation and would value your thoughts on who to do this #wecypns |
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@WeCYPnurses
24 April 2019 20:59
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@al1878 @LucyAlexandria @slightlyhelen tired fingers! #wecypns |
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@WeCYPnurses
24 April 2019 21:00
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@NinaHeighington @LucyAlexandria @ph_wilson1 @lmpartridge you are doing fab! #wecypns |
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@al1878
24 April 2019 21:00
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@WeCYPnurses That the right questions are being asked and therefore hopefully change and the future is looking better! #wecypns |
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@WeCYPnurses
24 April 2019 21:00
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#wecypns |
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@WeCYPnurses
24 April 2019 21:01
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Brilliant Alison. I can assure you that we are shouting loudly about this! Thanks so much for joining us. #wecypns |
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@mazp74
24 April 2019 21:01
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RT @WeCYPnurses: Brilliant Alison. I can assure you that we are shouting loudly about this! Thanks so much for joining us. #wecypns https… |
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@cdodd09
24 April 2019 21:02
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Thank you @hepworth_becky and @lmpartridge for hosting this intersting chat #wecypns https://t.co/4UIxVGwxss |
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@WeCYPnurses
24 April 2019 21:02
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great analogy Michelle. Thanks for joining us. #wecypns |
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@al1878
24 April 2019 21:02
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@WeCYPnurses Thank you for inviting parents to this chat, very refreshing #wecypns |
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@WeCYPnurses
24 April 2019 21:02
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RT @lmpartridge: I would like us to continue this important conversation and would value your thoughts on who to do this #wecypns |
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@WeCYPnurses
24 April 2019 21:02
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RT @cdodd09: Thank you @hepworth_becky and @lmpartridge for hosting this intersting chat #wecypns https://t.co/4UIxVGwxss |
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@lmpartridge
24 April 2019 21:02
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You can download the principles from the WellChild website #wecypns |
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@WeCYPnurses
24 April 2019 21:03
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Time is up! Thanks for such a busy and informative chat #wecypns https://t.co/VDCMN5NRPp |
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@WeCYPnurses
24 April 2019 21:03
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RT @lmpartridge: You can download the principles from the WellChild website #wecypns |
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@lmpartridge
24 April 2019 21:04
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Thank you #wecypns for the opportunity to raise this important issue. Lets keep chatting! |
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@WeCYPnurses
24 April 2019 21:04
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Huge thanks to @lmpartridge for all her expertise and enthusiasm in driving this discussion forward. #wecypns |
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@WeCYPnurses
24 April 2019 21:05
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RT @lmpartridge: Thank you #wecypns for the opportunity to raise this important issue. Lets keep chatting! |
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@SAPHNAsharonOBE
24 April 2019 21:08
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RT @lmpartridge: Also what about the responsibility when our C&YP begin the transition process and new teams take over #wecypns |
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@sn_barnes
24 April 2019 21:08
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Thank you to @lmpartridge and @hepworth_becky for such an in-depth and interesting chat! I definitely want to be a trainer one day! #wecypns |
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@4AdsthePoet
24 April 2019 21:09
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RT @WeCYPnurses: really important point @lucyjrparker #wecypns https://twitter.com/lucyjrparker/status/1121139084003614720 |
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@lmpartridge
24 April 2019 21:09
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@sn_barnes @hepworth_becky Yay #wecypns |
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@Paula74cat
24 April 2019 21:10
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RT @lmpartridge: You can download the principles from the WellChild website #wecypns |
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@lmpartridge
24 April 2019 21:10
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@al1878 They could easily be adapted and I think that was the plan? Esther can you confirm? #wecypns |
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@firogers3
24 April 2019 21:13
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@SAPHNAsharonOBE @WeCYPnurses @trudyward8 @theRCN @nhse @LMulroney33 Thanks will do #wecypns |
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