#WhyWeDoResearch - Friday 17th May 2019 3pm (GMT Standard Time)
#WhyWeDoResearch 19 - Digital health & research
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Hosted by WeNurses using #WhyWeDoResearch
This chat is guest hosted by @LillyTrials
The #WhyWeDoResearch tweetfest runs from May 13th to May 24th - this discussion is on "Digital health & research" and everyone is welcome to take part.
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#WhyWeDoResearch transcript
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@LillyTrials
17 May 2019 15:01
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Hi #whywedoresearch friends! Welcome to our chat about the role of digital health in clinical trials, cohosted with… https://twitter.com/i/web/status/1129386546472394752 |
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@PRIMECentre
17 May 2019 15:01
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RT @WeNurses: The next #WhyWeDoResearch Tweetfest Tweetchat starts in 5 minutes Digital health & research .... join in from 3pm https://t… |
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@LillyTrials
17 May 2019 15:03
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??Tips: Don't forget to include the #whywedoresearch hashtag in all your tweets during the discussion. Also, please… https://twitter.com/i/web/status/1129386852866248704 |
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@lynn_laidlaw
17 May 2019 15:03
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Hi, I’m Lynn, have a rare disease and joining you from Scotland #WhyWeDoResearch |
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@DerekCStewart
17 May 2019 15:03
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RT @SDenegri: Oh wow, this is a bit cool. Thanks Claire. #WhyWeDoResearch https://twitter.com/ClaireW_UK/status/1129363982026969088 |
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@DerekCStewart
17 May 2019 15:03
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RT @LillyTrials: Hi #whywedoresearch friends! Welcome to our chat about the role of digital health in clinical trials, cohosted with @Unpha… |
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@lynn_laidlaw
17 May 2019 15:03
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@UnphasedLtd @LillyTrials ?? #WhyWeDoResearch |
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@DerekCStewart
17 May 2019 15:04
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RT @AnneMckenzieAM: The Strep A Team tell us their reasons for #WhyWeDoResearch to promote International Clinical Trials Day on Monday - t… |
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@DerekCStewart
17 May 2019 15:04
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RT @WeNurses: The next #WhyWeDoResearch Tweetfest Tweetchat starts in 5 minutes Digital health & research .... join in from 3pm https://t… |
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@datadrivencare
17 May 2019 15:04
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RT @PwSiobhan: Calling all #NIHRALP get involved in the conversations via #WhyWeDoResearch tweet fest happening right now. Loads of differe… |
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@datadrivencare
17 May 2019 15:04
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RT @WeNurses: The next #WhyWeDoResearch Tweetfest Tweetchat starts in 5 minutes Digital health & research .... join in from 3pm https://t… |
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@datadrivencare
17 May 2019 15:04
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RT @AnneMckenzieAM: The Strep A Team tell us their reasons for #WhyWeDoResearch to promote International Clinical Trials Day on Monday - t… |
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@datadrivencare
17 May 2019 15:04
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RT @SDenegri: Oh wow, this is a bit cool. Thanks Claire. #WhyWeDoResearch https://twitter.com/ClaireW_UK/status/1129363982026969088 |
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@datadrivencare
17 May 2019 15:05
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RT @LillyTrials: Hi #whywedoresearch friends! Welcome to our chat about the role of digital health in clinical trials, cohosted with @Unpha… |
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@datadrivencare
17 May 2019 15:05
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RT @LillyTrials: ??Tips: Don't forget to include the #whywedoresearch hashtag in all your tweets during the discussion. Also, please use A1… |
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@datadrivencare
17 May 2019 15:05
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RT @lynn_laidlaw: Hi, I’m Lynn, have a rare disease and joining you from Scotland #WhyWeDoResearch https://twitter.com/lillytrials/status/1129386546472394752 |
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@ShuUltrasound
17 May 2019 15:05
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RT @kimbomeek: Hello tweet peeps. Anyone who missed the #WhyWeDoResearch Radiography takeover earlier (or anyone who would like to look at… |
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@LillyTrials
17 May 2019 15:06
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Let's get started! Q1: "Digital health" is a broad term. How do you define it? #whywedoresearch https://t.co/dZh1UDIxVP |
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@LillyTrials
17 May 2019 15:06
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@lynn_laidlaw Welcome! Great to see you again. #whywedoresearch |
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@rheumpatient
17 May 2019 15:06
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Living in London with RA. Dabble in research and service improvement. #WhyWeDoResearch |
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@UnphasedLtd
17 May 2019 15:06
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@javararesearch @LillyTrials Hi Javara ?? thanks for joining #WhyWeDoResearch |
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@lynn_laidlaw
17 May 2019 15:07
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@LillyTrials You too #WhyWeDoResearch |
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@rheumpatient
17 May 2019 15:07
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RT @WeNurses: There is lots and lots and lots going on this week as part of the #WhyWeDoResearch Tweetfest .... and you don't have to be a… |
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@womenofteal
17 May 2019 15:08
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RT @LillyTrials: Let's get started! Q1: "Digital health" is a broad term. How do you define it? #whywedoresearch https://t.co/dZh1UDIxVP |
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@LillyTrials
17 May 2019 15:10
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@javararesearch Hi! Thanks for joining. What does IRO stand for? #whywedoresearch |
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@LillyTrials
17 May 2019 15:10
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@womenofteal Great to see you! #whywedoresearch |
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@LillyTrials
17 May 2019 15:10
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@rheumpatient Thanks for joining! #whywedoresearch |
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@lynn_laidlaw
17 May 2019 15:11
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@javararesearch Ok, what does that actually mean in practice though? #WhyWeDoResearch |
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@UnphasedLtd
17 May 2019 15:12
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@javararesearch Love the use of the word ‘empower’ in your answer. It’s exactly what technology should be used for. #WhyWeDoResearch |
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@UnphasedLtd
17 May 2019 15:13
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@lynn_laidlaw @LillyTrials Really support this view, technology should add and support instead of replace #WhyWeDoResearch |
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@DerekCStewart
17 May 2019 15:14
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RT @LillyTrials: Let's get started! Q1: "Digital health" is a broad term. How do you define it? #whywedoresearch https://t.co/dZh1UDIxVP |
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@DerekCStewart
17 May 2019 15:15
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RT @rheumpatient: Living in London with RA. Dabble in research and service improvement. #WhyWeDoResearch |
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@lynn_laidlaw
17 May 2019 15:15
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@UnphasedLtd @LillyTrials Absolutely, patients should have control over that process too. Do it with us not for us #WhyWeDoResearch |
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@LillyTrials
17 May 2019 15:16
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@UnphasedLtd We agree! This is especially true when it comes to the human connection in clinical research. #whywedoresearch |
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@womenofteal
17 May 2019 15:16
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RT @LillyTrials: Moving on to Q2: Have you seen examples of #digitalhealth approaches being used in clinical research? #whywedoresearch htt… |
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@UnphasedLtd
17 May 2019 15:16
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@vascuk Hi John, thanks for joining! #WhyWeDoResearch |
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@LillyTrials
17 May 2019 15:17
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@vascuk Welcome and Thanks for that perspective. It's not one that we particularly thought of but is a great point. #whywedoresearch |
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@lynn_laidlaw
17 May 2019 15:17
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@LillyTrials A2 Lots and lots and lots of apps! Not always helpful, useful and many not developed with patient input. #WhyWeDoResearch |
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@UnphasedLtd
17 May 2019 15:18
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Q2. Can you share examples of digital health approaches used in clinical research? #WhyWeDoResearch |
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@UnphasedLtd
17 May 2019 15:19
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@DerekCStewart @LillyTrials Hi Derek ?? good to have you here again! #WhyWeDoResearch |
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@UnphasedLtd
17 May 2019 15:21
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"Ask me if I'm empowered, don't tell me I am" - words to live by from @lynn_laidlaw #WhyWeDoResearch |
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@lynn_laidlaw
17 May 2019 15:21
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@rheumpatient @LillyTrials Great point, scary thought isn’t it. And potentially s complete waste of resources. #WhyWeDoResearch |
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@DerekCStewart
17 May 2019 15:22
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@jacknunn @LillyTrials Different ‘digits’, @jacknunn No need to tell us more #WhyWeDoResearch |
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@lynn_laidlaw
17 May 2019 15:22
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@UnphasedLtd ?? #WhyWeDoResearch |
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@lynn_laidlaw
17 May 2019 15:22
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RT @UnphasedLtd: "Ask me if I'm empowered, don't tell me I am" - words to live by from @lynn_laidlaw #WhyWeDoResearch https://t.co/X6js2C8v… |
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@UnphasedLtd
17 May 2019 15:22
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@WeAreSRUK @isansys Great definition, would you include improving the quality of care within ‘Digital Health’ #WhyWeDoResearch |
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@LillyTrials
17 May 2019 15:22
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@lynn_laidlaw Yes—apps are a hot topic right now! What was the purpose of the apps that you have experience with? #whywedoresearch |
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@rheumpatient
17 May 2019 15:22
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@lynn_laidlaw @LillyTrials I'm sure he has a vested interest in all this tech. #WhyWeDoResearch |
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@SABPResearch
17 May 2019 15:23
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@LillyTrials A1: New technologies improving practice to ensure we give our patients the best possible care #WhyWeDoResearch |
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@LillyTrials
17 May 2019 15:23
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A2. Tweet chats—like #whywedoresearch—are a great example of using digital health to build bridges in clinical rese… https://twitter.com/i/web/status/1129392060295991298 |
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@lynn_laidlaw
17 May 2019 15:25
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@LillyTrials Mainly when lay reviewing grant applications. Any I have tried myself have been disappointing so I gave up #WhyWeDoResearch |
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@btrfly12
17 May 2019 15:25
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RT @LillyTrials: A2. Tweet chats—like #whywedoresearch—are a great example of using digital health to build bridges in clinical research. D… |
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@rheumpatient
17 May 2019 15:26
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@LillyTrials Sometimes do #patientchat. #WhyWeDoResearch |
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@lynn_laidlaw
17 May 2019 15:26
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@UnphasedLtd @LillyTrials Yes, make sure you are meeting an actual patient need not what you perceive as a need. #WhyWeDoResearch |
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@LillyTrials
17 May 2019 15:26
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Time for Q3! Do you think there are any barriers to implementing technology in clinical research? #whywedoresearch https://t.co/6XbOqH9ymV |
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@negronjb
17 May 2019 15:27
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RT @UnphasedLtd: @lynn_laidlaw @LillyTrials Really support this view, technology should add and support instead of replace #WhyWeDoResearch |
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@vascuk
17 May 2019 15:28
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UKIVAS Registry #WhyWeDoResearch Q2 |
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@UnphasedLtd
17 May 2019 15:28
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Q3. Have you seen any barriers? #WhyWeDoResearch |
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@LillyTrials
17 May 2019 15:28
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@womenofteal Excellent suggestion! #whywedoresearch |
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@LillyTrials
17 May 2019 15:28
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@lynn_laidlaw Precisely why PPI and codesign approaches are so important in clinical research. #whywedoresearch |
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@Know_HG
17 May 2019 15:28
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RT @CLAHRC_WM: Real energy here @uhbtrust for the research showcase event showing #whywedoresearch. We’re here today showing why it’s impor… |
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@IACRN
17 May 2019 15:29
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RT @SDenegri: Yes, I think we'd all like to thank #WhyWeDoResearch a million times over wouldn't we. Just amazing initiative, amazing peopl… |
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@vascuk
17 May 2019 15:30
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NCARDRs #WhyWeDoResearch Q2 |
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@WeNurses
17 May 2019 15:30
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Patient related outcome measures - #WhyWeDoResearch Tweetchat with @lynn_laidlaw @EmmaYhnell starting at 4pm .... e… https://twitter.com/i/web/status/1129393740358017025 |
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@DerekCStewart
17 May 2019 15:32
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@DrAmirKhanGP Your Mum was merely asking that you learn to use evidence that is based on quality research to assess claims. #whywedoresearch |
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@lynn_laidlaw
17 May 2019 15:33
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@UnphasedLtd Do we assume that everyone can “ do “ digital? #WhyWeDoResearch |
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@rheumpatient
17 May 2019 15:34
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@SABPResearch @LillyTrials @TIHM_dementia Has it reduced admissions? Do patients and their families like it? #WhyWeDoResearch |
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@rheumpatient
17 May 2019 15:35
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@WeNurses @lynn_laidlaw @EmmaYhnell We did that on Monday I believe. #WhyWeDoResearch |
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@UnphasedLtd
17 May 2019 15:35
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@jlewisdc Hi John ?? this is a great point. Do you have any examples of dilemmas in which technology to choose? #WhyWeDoResearch |
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@lynn_laidlaw
17 May 2019 15:36
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@rheumpatient @WeNurses @EmmaYhnell It was so good it deserves a re run! #whywedoresearch |
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@womenofteal
17 May 2019 15:36
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@LillyTrials Another one - WiFi or internet access for some patients. #WhyWeDoResearch |
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@LillyTrials
17 May 2019 15:36
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@jlewisdc Yes, so many component parts to consider. #whywedoresearch |
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@LillyTrials
17 May 2019 15:36
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@rheumpatient That's another one of our favorites, too! #whywedoresearch |
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@lynn_laidlaw
17 May 2019 15:37
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@jlewisdc @UnphasedLtd Great point, lots of assumptions made about tech I think. #whywedoresearch |
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@DrPetra
17 May 2019 15:37
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#WhyWeDoResearch |
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@UCSD_HealthPro
17 May 2019 15:38
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RT @WeNurses: Patient related outcome measures - #WhyWeDoResearch Tweetchat with @lynn_laidlaw @EmmaYhnell starting at 4pm .... everyone we… |
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@lynn_laidlaw
17 May 2019 15:40
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@UnphasedLtd If it gets people thinking about inclusivity in general then that’s a good thing #whywedoresearch |
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@Stroppybrunette
17 May 2019 15:40
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RT @lynn_laidlaw: @welshflier @SDenegri Yes cake, so important! Should be one of the PPI standards. #WhyWeDoResearch |
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@LillyTrials
17 May 2019 15:40
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A4. Has anyone seen good examples of digital health used to connect with "hard to reach" populations? #whywedoresearch |
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@Stroppybrunette
17 May 2019 15:41
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@welshflier @lynn_laidlaw @SDenegri Especially when they're smartprice custard creams. At least give me a chocolate hobnob #WhyWeDoResearch |
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@erin_michalak
17 May 2019 15:42
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RT @SDenegri: Well, that's it everyone for this particular #WhyWeDoResearch tweetchat 'A patient and a carer walked into a bar...' The nex… |
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@lynn_laidlaw
17 May 2019 15:42
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@LillyTrials Hard to reach or we couldn’t be bothered finding them? #WhyWeDoResearch |
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@vascuk
17 May 2019 15:43
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@LillyTrials Yes the ERN #WhyWeDoResearch is all about hard to reach populations with rare diseases q4 European Reference Network |
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@UnphasedLtd
17 May 2019 15:43
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What’s the positive role technology can play in participation? #WhyWeDoResearch |
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@rheumpatient
17 May 2019 15:43
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RT @lynn_laidlaw: @LillyTrials Hard to reach or we couldn’t be bothered finding them? #WhyWeDoResearch |
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@lynn_laidlaw
17 May 2019 15:44
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Quote of the day from @Stroppybrunette, put some effort and thought into catering for Involvement. #WhyWeDoResearch |
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@rheumpatient
17 May 2019 15:44
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@lynn_laidlaw @LillyTrials Laughing so hard I nearly fell off my chair ??????#WhyWeDoResearch |
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@NuriaDeArgila
17 May 2019 15:44
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??Mañana a las 19h #WhyWeDoResearch con @carmenvillarb Estas son las preguntas:?? |
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@BridgetJohnst
17 May 2019 15:46
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RT @ClaireW_UK: @BridgetJohnst @LucyLew79 @RebeccaJPW can you help??? #whywedoresearch community - request for help please.. https://t.co/… |
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@UnphasedLtd
17 May 2019 15:46
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@lynn_laidlaw @LillyTrials That one got us laughing too ?? you’ve got a point Lynn! #WhyWeDoResearch |
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@UnphasedLtd
17 May 2019 15:47
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Q5. And our final question of the day, how might technology hinder participation? #WhyWeDoResearch |
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@UnphasedLtd
17 May 2019 15:48
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@vascuk Thanks for joining during your busy schedule John! Have a great weekend. #WhyWeDoResearch |
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@benshore
17 May 2019 15:49
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RT @ClaireW_UK: So many people I owe a bottle of champers...#WhyWeDoResearch @SDenegri @lynn_laidlaw @hotmail_kay @rheumpatient @SimonRSton… |
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@benshore
17 May 2019 15:49
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RT @EmmaYhnell: Yesssssss ?????????? you are AMAZING @ClaireW_UK - a research superstar!!! #WhyWeDoResearch https://twitter.com/DerekCStewart/status/1129359185295151105 |
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@benshore
17 May 2019 15:50
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RT @ClaireW_UK: And I'd like to say the biggest public thank you to everyone in the #WhyWeDoResearch community - I may have started the cam… |
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@lynn_laidlaw
17 May 2019 15:50
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@rheumpatient @Stroppybrunette @SDenegri @bmj_latest Wow, where was that? #WhyWeDoResearch |
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@benshore
17 May 2019 15:51
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RT @ClaireW_UK: And surely goes without saying but I'm saying it anyway, every patient I've ever met #WhyWeDoResearch https://t.co/9To1CPP3… |
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@benshore
17 May 2019 15:52
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RT @WeNurses: Patient related outcome measures - #WhyWeDoResearch Tweetchat with @lynn_laidlaw @EmmaYhnell starting at 4pm .... everyone we… |
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@benshore
17 May 2019 15:52
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RT @ClaireW_UK: @receivingconsnt @SDenegri Thank you ??. Better to make an offer than not, always #WhyWeDoResearch |
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@lynn_laidlaw
17 May 2019 15:53
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@rheumpatient Yes, nothing about NHS IT in the UK fills us with confidence. #WhyWeDoResearch |
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@rheumpatient
17 May 2019 15:53
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@lynn_laidlaw @Stroppybrunette @SDenegri @bmj_latest 'Twas the lovely @drjamesgalloway at @KCLImmunoMicro. #WhyWeDoResearch |
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@lynn_laidlaw
17 May 2019 15:54
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@rheumpatient @Stroppybrunette @SDenegri @bmj_latest @drjamesgalloway @KCLImmunoMicro Tell him to get the kettle on... #whywedoresearch |
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@LillyTrials
17 May 2019 15:55
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Hi, Melissa! #whywedoresearch |
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@LillyTrials
17 May 2019 15:55
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@WeAreSRUK Thanks for sharing. We will take a look at this. #whywedoresearch |
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@lynn_laidlaw
17 May 2019 15:56
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@LillyTrials If you don’t choose the tech wisely and in collaboration and assume tech makes everything better. #WhyWeDoResearch |
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@rheumpatient
17 May 2019 15:59
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@lynn_laidlaw @Stroppybrunette @SDenegri @bmj_latest @drjamesgalloway @KCLImmunoMicro Is the whole #WhyWeDoResearch… https://twitter.com/i/web/status/1129400994452914177 |
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@LillyTrials
17 May 2019 15:59
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@womenofteal Good point. Training for the site staff and the patients may be necessary. #whywedoresearch |
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@lynn_laidlaw
17 May 2019 15:59
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@rheumpatient Too easy to brush the harms aside. #WhyWeDoResearch |
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@erin_michalak
17 May 2019 15:59
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RT @UnphasedLtd: Q5. And our final question of the day, how might technology hinder participation? #WhyWeDoResearch https://twitter.com/LillyTrials/status/1129397624241569792 |
Stats
Total contributers:
23
Total tweets:
109
Total reach:
549,115
