#WhyWeDoResearch - Monday 20th May 2019 8pm (GMT Standard Time) #WhyWeDoResearch 19 - Expenses: Payment for patient partners

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Hosted by WeNurses using #WhyWeDoResearch

This chat is guest hosted by @SimonRStones

The #WhyWeDoResearch tweetfest runs from May 13th to May 24th - this discussion is on "Expenses: payment for patient partners involved in research" and everyone is welcome to take part. 





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 #WhyWeDoResearch transcript

 
@SimonRStones
20 May 2019 20:00
Happy #InternationalClinicalTrialsDay and welcome to our #WhyWeDoResearch Tweet Chat! Today, we'll be covering the… https://twitter.com/i/web/status/1130548994818674698
@PsAZZGroup
20 May 2019 20:01
@SimonRStones Hey Simon! I’m here and looking forward to tweeting with you on #whyWeDoResearch
@SimonRStones
20 May 2019 20:01
I'll be your host for the evening! Who else is joining us? Say hello! #WhyWeDoResearch https://t.co/RCgb70gyTo
@lynn_laidlaw
20 May 2019 20:02
@SimonRStones Hi Simon, should be an interesting hour! ?? #WhyWeDoResearch
@EmmaYhnell
20 May 2019 20:02
RT @SimonRStones: I'll be your host for the evening! Who else is joining us? Say hello! #WhyWeDoResearch https://t.co/RCgb70gyTo
@keeling_michael
20 May 2019 20:02
RT @SimonRStones: Happy #InternationalClinicalTrialsDay and welcome to our #WhyWeDoResearch Tweet Chat! Today, we'll be covering the hot to…
@rheumpatient
20 May 2019 20:02
@SimonRStones Very hot topic! ??????#whywedoresearch
@EmmaYhnell
20 May 2019 20:02
@SimonRStones ?????? Hello from sunny Cardiff ?? #WhyWeDoResearch
@thepiercy
20 May 2019 20:02
@lynn_laidlaw @SimonRStones Trying to follow what promises to be fascinating discussion #WhyWeDoResearch
@PsAZZGroup
20 May 2019 20:03
RT @SimonRStones: I'll be your host for the evening! Who else is joining us? Say hello! #WhyWeDoResearch https://t.co/RCgb70gyTo
@rheumpatient
20 May 2019 20:03
Hello. Joining from London and looking forward to another exciting #whywedoresearch tweetchat!
@fsgcer
20 May 2019 20:03
RT @SimonRStones: Happy #InternationalClinicalTrialsDay and welcome to our #WhyWeDoResearch Tweet Chat! Today, we'll be covering the hot to…
@smithhazelann
20 May 2019 20:04
@SimonRStones Hi Simon, Hazel here from Dublin (clinical trials coordinator) #WhyWeDoResearch
@smithhazelann
20 May 2019 20:04
RT @SimonRStones: I'll be your host for the evening! Who else is joining us? Say hello! #WhyWeDoResearch https://t.co/RCgb70gyTo
@smithhazelann
20 May 2019 20:04
RT @SimonRStones: Happy #InternationalClinicalTrialsDay and welcome to our #WhyWeDoResearch Tweet Chat! Today, we'll be covering the hot to…
@LoomesGill
20 May 2019 20:04
#AutisticsInAcademia This #WhyWeDoResearch tweet chat will interest lots of us, I think - about issues of working w… https://twitter.com/i/web/status/1130549863203123200
@KitzingerCelia
20 May 2019 20:04
Hello #WhyWeDoResearch I'm Celia and I've been tweeting laments about expenses claims forms all day today and yeste… https://twitter.com/i/web/status/1130549938092429313
@Delia_Muir
20 May 2019 20:04
#WhyWeDoResearch Hi from Leeds!
@Ataxia_and_Me
20 May 2019 20:04
the #Welsh are here in force at #WhyWeDoResearch https://t.co/OdJaicN3fd
@SimonRStones
20 May 2019 20:05
RT @KitzingerCelia: Hello #WhyWeDoResearch I'm Celia and I've been tweeting laments about expenses claims forms all day today and yesterday…
@lynn_laidlaw
20 May 2019 20:05
@KitzingerCelia ?? Celia. #WhyWeDoResearch
@smithhazelann
20 May 2019 20:06
@AvrilKennan @MRCGie Cant think of a better person to spend the day celebrating #ictd2019 than with you Avril! #WhyWeDoResearch
@Mcintyre14V
20 May 2019 20:06
@SimonRStones Hello from NS Canada #whyWeDoResearch. Looking forward to this topic
@lyns770
20 May 2019 20:06
RT @JPUHResearch: Here’s the last few pics of our team spreading the word of research today ????@JamesPagetNHS #ICTD2019 #whyWeDoResearch #Ma…
@Ataxia_and_Me
20 May 2019 20:06
Hello all at #WhyWeDoResearch from #Ataxia #RareDisease #patient group based in West #Wales with a #Global following
@AvrilKennan
20 May 2019 20:07
A1. If we are serious about patient partners having expertise to contribute, they should not be left out of pocket #whywedoresearch
@EmmaYhnell
20 May 2019 20:07
RT @KitzingerCelia: Hello #WhyWeDoResearch I'm Celia and I've been tweeting laments about expenses claims forms all day today and yesterday…
@BridgetJohnst
20 May 2019 20:07
@SimonRStones Definitely think we should pay expenses and time. We calculate at @NIHRINVOLVE rates #WhyWeDoResearch
@thepiercy
20 May 2019 20:07
I think patients and public resrrach team members should be paid for thier time #WhyWeDoResearch
@Ataxia_and_Me
20 May 2019 20:08
@AvrilKennan A1 the #patient is the expert in their own condition #WhyWeDoResearch
@DerekCStewart
20 May 2019 20:08
@SimonRStones Good evening @SimonRStones - Derek here for another #WhyWeDoResearch Tweetchat extravaganza. I may be… https://t.co/wYQYEvsPqU
@Ataxia_and_Me
20 May 2019 20:09
RT @DerekCStewart: @SimonRStones Good evening @SimonRStones - Derek here for another #WhyWeDoResearch Tweetchat extravaganza. I may be a li…
@rheumpatient
20 May 2019 20:09
RT @BridgetJohnst: @SimonRStones Definitely think we should pay expenses and time. We calculate at @NIHRINVOLVE rates #WhyWeDoResearch
@lynn_laidlaw
20 May 2019 20:09
@AvrilKennan Absolutely, it’s about respect and valuing people. #WhyWeDoResearch
@SimonRStones
20 May 2019 20:09
#WhyWeDoResearch https://t.co/DZILvxHBip
@SimonRStones
20 May 2019 20:09
RT @lynn_laidlaw: @AvrilKennan Absolutely, it’s about respect and valuing people. #WhyWeDoResearch
@JPUHResearch
20 May 2019 20:10
A2. #WhyWeDoResearch We intend to have the conversation about this from the outset of patient partners getting in… https://twitter.com/i/web/status/1130551262729199617
@lynn_laidlaw
20 May 2019 20:10
@DerekCStewart @SimonRStones Bring it on Derek #WhyWeDoResearch
@AvrilKennan
20 May 2019 20:10
@rheumpatient Agreed - respect is a very important word in this context #whywedoresearch
@rheumpatient
20 May 2019 20:10
@DerekCStewart @SimonRStones Love a bit of controversy! #whywedoresearch
@receivingconsnt
20 May 2019 20:10
I agree if we are asking them to input into study design they should be paid #WhyWeDoResearch
@lynn_laidlaw
20 May 2019 20:11
@KitzingerCelia Great point Celia, I think we can all think of situations where that happened. #WhyWeDoResearch
@DerekCStewart
20 May 2019 20:11
RT @lynn_laidlaw: @DerekCStewart @SimonRStones Bring it on Derek #WhyWeDoResearch
@Delia_Muir
20 May 2019 20:11
@KitzingerCelia A1. #whywedoresearch Totally agree with this. It's not enough to just sign up to the principle of p… https://twitter.com/i/web/status/1130551576379219970
@Ataxia_and_Me
20 May 2019 20:11
@EmmaYhnell @SimonRStones well said #patients #reseearch #pharma #WhyWeDoResearch
@SimonRStones
20 May 2019 20:12
@EmmaYhnell Anything that isn't 'participation'! #WhyWeDoResearch
@SimonRStones
20 May 2019 20:12
@DerekCStewart The more controversial, the better! #WhyWeDoResearch
@SimonRStones
20 May 2019 20:12
RT @Ataxia_and_Me: @AvrilKennan A1 the #patient is the expert in their own condition #WhyWeDoResearch
@couragesings
20 May 2019 20:12
#WhyWeDoResearch First, I view expenses and payment as two separate things. Expenses are the bare minimum for #pts… https://twitter.com/i/web/status/1130551941140951040
@SimonRStones
20 May 2019 20:13
@smithhazelann What about non-commercial studies (e.g. smaller institutional/health board studies)? #WhyWeDoResearch
@NatriceR
20 May 2019 20:13
RT @couragesings: #WhyWeDoResearch First, I view expenses and payment as two separate things. Expenses are the bare minimum for #pts to be…
@SimonRStones
20 May 2019 20:13
RT @thepiercy: I think patients and public resrrach team members should be paid for thier time #WhyWeDoResearch
@GilmerHealthLaw
20 May 2019 20:14
RT @couragesings: #WhyWeDoResearch First, I view expenses and payment as two separate things. Expenses are the bare minimum for #pts to be…
@SimonRStones
20 May 2019 20:14
@elspeth_mathie @PIRGatCRIPACC @UniofHerts How did you navigate through the process? #WhyWeDoResearch
@Ataxia_and_Me
20 May 2019 20:14
@couragesings good call different org. use different terms for different issues, can be confusing #WhyWeDoResearch
@Dr_LoucaMai
20 May 2019 20:14
Hi all - bit late to tonight's #whywedoresearch tweetchat on payment for involvement. I'm particularly interested i… https://twitter.com/i/web/status/1130552502431166464
@SimonRStones
20 May 2019 20:15
@smithhazelann @SRNCN1 @ClaireW_UK Broadly speaking, not. A general payment for 'patients/carers' involved #WhyWeDoResearch
@keeling_michael
20 May 2019 20:15
RT @Dr_LoucaMai: Hi all - bit late to tonight's #whywedoresearch tweetchat on payment for involvement. I'm particularly interested in child…
@couragesings
20 May 2019 20:15
RT @Ataxia_and_Me: @couragesings good call different org. use different terms for different issues, can be confusing #WhyWeDoResearch
@rheumpatient
20 May 2019 20:15
@KitzingerCelia Yes, I know of researchers in the same boat. #whywedoresearch
@Delia_Muir
20 May 2019 20:16
@SimonRStones #whywedoresearch Agree systems need changing but, in all honesty, I don't think they work for academi… https://twitter.com/i/web/status/1130552946381459456
@DCPatient
20 May 2019 20:17
RT @couragesings: #WhyWeDoResearch First, I view expenses and payment as two separate things. Expenses are the bare minimum for #pts to be…
@FibroFlutters
20 May 2019 20:17
#WhyWeDoResearch #TweetChat
@JPUHResearch
20 May 2019 20:18
@couragesings @rheumpatient @SimonRStones Hear hear #WhyWeDoResearch
@keeling_michael
20 May 2019 20:18
RT @JPUHResearch: A2. #WhyWeDoResearch We intend to have the conversation about this from the outset of patient partners getting involved…
@BridgetJohnst
20 May 2019 20:20
@lynn_laidlaw @JPUHResearch @SimonRStones Good point Lynn #whyWeDoResearch
@EmmaYhnell
20 May 2019 20:20
@lynn_laidlaw @DerekCStewart @SimonRStones There might also be issues with benefit payments #WhyWeDoResearch
@rheumpatient
20 May 2019 20:20
RT @couragesings: #WhyWeDoResearch First, I view expenses and payment as two separate things. Expenses are the bare minimum for #pts to be…
@EmmaYhnell
20 May 2019 20:20
@LecturerLee @SimonRStones Absolutely. #WhyWeDoResearch
@smithhazelann
20 May 2019 20:20
RT @EmmaYhnell: @lynn_laidlaw @DerekCStewart @SimonRStones There might also be issues with benefit payments #WhyWeDoResearch
@BridgetJohnst
20 May 2019 20:20
RT @Delia_Muir: @KitzingerCelia A1. #whywedoresearch Totally agree with this. It's not enough to just sign up to the principle of paying pe…
@lynn_laidlaw
20 May 2019 20:21
@smithhazelann @hrbireland @IrishCancerSoc All funders will pay PPI costs but only if requested in the budget #WhyWeDoResearch
@rheumpatient
20 May 2019 20:21
@smithhazelann I'd love some IOUs at least! #WhyWeDoResearch
@SimonRStones
20 May 2019 20:22
Q2: How do you start the discussion about payment? #WhyWeDoResearch https://t.co/D8gdwjQzSM
@EmmaYhnell
20 May 2019 20:22
RT @thepiercy: I think patients and public resrrach team members should be paid for thier time #WhyWeDoResearch
@keeling_michael
20 May 2019 20:22
RT @SimonRStones: Q2: How do you start the discussion about payment? #WhyWeDoResearch https://t.co/D8gdwjQzSM
@JPUHResearch
20 May 2019 20:23
A3 #WhyWeDoResearch @SimonRStones We've not experienced this @JamesPagetNHS 'yet'. Very interested to hear other… https://twitter.com/i/web/status/1130554534034530304
@smithhazelann
20 May 2019 20:23
RT @SimonRStones: Q2: How do you start the discussion about payment? #WhyWeDoResearch https://t.co/D8gdwjQzSM
@AvrilKennan
20 May 2019 20:23
@lynn_laidlaw @smithhazelann @hrbireland @IrishCancerSoc Sadly not all. But hopefully soon to be all! #WhyWeDoResearch
@Societi_UK_KD
20 May 2019 20:23
#WhyWeDoResearch
@SarahChapman30
20 May 2019 20:24
Hi, hope you don't mind me dropping in part way through! #whywedoresearch
@smithhazelann
20 May 2019 20:24
@Dr_LoucaMai @SimonRStones @lynn_laidlaw @DerekCStewart Can I ask why some did not want to be paid? #WhyWeDoResearch
@SimonRStones
20 May 2019 20:25
@Delia_Muir Well this is true... maybe they work for the IT folk then! #WhyWeDoResearch
@keeling_michael
20 May 2019 20:25
RT @JPUHResearch: A3 #WhyWeDoResearch @SimonRStones We've not experienced this @JamesPagetNHS 'yet'. Very interested to hear other respon…
@JPUHResearch
20 May 2019 20:26
RT @BridgetJohnst: @lynn_laidlaw @JPUHResearch @SimonRStones Good point Lynn #whyWeDoResearch
@SimonRStones
20 May 2019 20:26
RT @JPUHResearch: A2. #WhyWeDoResearch We intend to have the conversation about this from the outset of patient partners getting involved…
@bill_russell3
20 May 2019 20:26
@KitzingerCelia redesign the claims form with patient participation #whywedoresearch LOL
@EmmaYhnell
20 May 2019 20:26
@dyskochick @Dr_LoucaMai @rheumpatient @smithhazelann I complete agree! #WhyWeDoResearch
@Ataxia_and_Me
20 May 2019 20:26
@EmmaYhnell @PsAZZGroup @lynn_laidlaw @DerekCStewart @SimonRStones Good call #WhyWeDoResearch
@ByYrSide
20 May 2019 20:27
RT @WeNurses: Starting in 5 minutes Expenses: Payment for patient partners with @SimonRStones via #WhyWeDoResearch You don't have to be…
@d_galasinski
20 May 2019 20:28
RT @SimonRStones: Everyone welcome! #WhyWeDoResearch https://twitter.com/WeNurses/status/1130547510123139072
@ClaireW_UK
20 May 2019 20:29
Amazingly busy & thoughtful #WhyWeDoResearch tweetchat on expenses for patient partners in research hosted by… https://twitter.com/i/web/status/1130556053731590144
@Ataxia_and_Me
20 May 2019 20:29
@dyskochick @EmmaYhnell @lynn_laidlaw @DerekCStewart @SimonRStones its good practice to give the choice #WhyWeDoResearch
@Drakesyard
20 May 2019 20:29
@EmmaYhnell @lynn_laidlaw @SimonRStones #WhyWeDoResearch Agree @EmmaYhnell payment of out of pocket expenses is ess… https://t.co/UGLfPIY6Q7
@rheumpatient
20 May 2019 20:30
@DerekCStewart @SimonRStones You ARE being controversial tonight Derek! #WhyWeDoResearch
@JPUHResearch
20 May 2019 20:30
#WhyWeDoResearch
@EmmaYhnell
20 May 2019 20:30
@dyskochick @Ataxia_and_Me @lynn_laidlaw @DerekCStewart @SimonRStones What would you prefer as reimbursement? #WhyWeDoResearch
@elhtlibrary
20 May 2019 20:30
RT @WeNurses: Starting in 5 minutes Expenses: Payment for patient partners with @SimonRStones via #WhyWeDoResearch You don't have to be…
@22Q11_Ireland
20 May 2019 20:30
#PPI @PPI_Ignite_DCU @hrbireland #whywedoresearch
@SimonRStones
20 May 2019 20:30
@PsAZZGroup Exactly! Clear, upfront and transparent communications. Everything on the table! #WhyWeDoResearch
@EmmaYhnell
20 May 2019 20:31
@Ataxia_and_Me @dyskochick @lynn_laidlaw @DerekCStewart @SimonRStones Inclusive too! #WhyWeDoResearch
@EmmaYhnell
20 May 2019 20:31
RT @Drakesyard: @EmmaYhnell @lynn_laidlaw @SimonRStones #WhyWeDoResearch Agree @EmmaYhnell payment of out of pocket expenses is essential a…
@LecturerLee
20 May 2019 20:31
@EmmaYhnell @JPUHResearch @SimonRStones A2: It could be more a simple gift voucher type 'payment'. #WhyWeDoResearch
@smithhazelann
20 May 2019 20:31
@Dr_LoucaMai @SimonRStones @lynn_laidlaw @DerekCStewart Thank you Louca-Mai #WhyWeDoResearch
@bill_russell3
20 May 2019 20:31
@Dr_LoucaMai @dyskochick @smithhazelann @SimonRStones @lynn_laidlaw @DerekCStewart #whywedoresearch ...we are diffe… https://t.co/4LPTAzgUPB
@smithhazelann
20 May 2019 20:32
RT @bill_russell3: @Dr_LoucaMai @dyskochick @smithhazelann @SimonRStones @lynn_laidlaw @DerekCStewart #whywedoresearch ...we are different…
@FibroFlutters
20 May 2019 20:32
Come and join the conversation #WhyWeDoResearch #TweetChat #InternationalClinicalTrialsDay
@SimonRStones
20 May 2019 20:32
RT @Drakesyard: @EmmaYhnell @lynn_laidlaw @SimonRStones #WhyWeDoResearch Agree @EmmaYhnell payment of out of pocket expenses is essential a…
@dyskochick
20 May 2019 20:33
RT @bill_russell3: @Dr_LoucaMai @dyskochick @smithhazelann @SimonRStones @lynn_laidlaw @DerekCStewart #whywedoresearch ...we are different…
@SimonRStones
20 May 2019 20:33
@rheumpatient @EmmaYhnell @JPUHResearch I've seen Visa Debit cards used too - great for use by everyone #WhyWeDoResearch
@smithhazelann
20 May 2019 20:33
RT @SimonRStones: @PsAZZGroup Exactly! Clear, upfront and transparent communications. Everything on the table! #WhyWeDoResearch
@EmmaYhnell
20 May 2019 20:33
@lgoodbu @rheumpatient @lynn_laidlaw @smithhazelann Completely agree! #WhyWeDoResearch. I wish this was the case for researchers too!
@mlb_tv19
20 May 2019 20:34
RT @FibroFlutters: Come and join the conversation #WhyWeDoResearch #TweetChat #InternationalClinicalTrialsDay https://twitter.com/PsAZZGroup/status/1130555496761561088
@SimonRStones
20 May 2019 20:34
RT @bill_russell3: @Dr_LoucaMai @dyskochick @smithhazelann @SimonRStones @lynn_laidlaw @DerekCStewart #whywedoresearch ...we are different…
@JPUHResearch
20 May 2019 20:34
#WhyWeDoResearch
@JPUHResearch
20 May 2019 20:34
RT @LecturerLee: @EmmaYhnell @JPUHResearch @SimonRStones A2: It could be more a simple gift voucher type 'payment'. #WhyWeDoResearch
@JPUHResearch
20 May 2019 20:35
RT @SimonRStones: @rheumpatient @EmmaYhnell @JPUHResearch I've seen Visa Debit cards used too - great for use by everyone #WhyWeDoResearch
@FibroFlutters
20 May 2019 20:35
@EmmaYhnell @dyskochick @Dr_LoucaMai @rheumpatient @smithhazelann What about a #voucherscheme #WhyWeDoResearch
@JPUHResearch
20 May 2019 20:35
Just a little reminder that if you include the text. '#WhyWeDoResearch' in every tweet your reply will remain in th… https://twitter.com/i/web/status/1130557785362636801
@rheumpatient
20 May 2019 20:36
@EmmaYhnell @lynn_laidlaw @smithhazelann I've asked twice and been shot down. #WhyWeDoResearch
@ClaireW_UK
20 May 2019 20:36
RT @JPUHResearch: Just a little reminder that if you include the text. '#WhyWeDoResearch' in every tweet your reply will remain in the thre…
@BridgetJohnst
20 May 2019 20:36
@receivingconsnt @lgoodbu @EmmaYhnell @rheumpatient @lynn_laidlaw @smithhazelann Me too #whyWeDoResearch
@BewickCarol
20 May 2019 20:37
Not long now until the @AMRC #whyWeDoResearch tweetchat. Can’t wait! Check in 12-1 tomorrow for @leonora_neale and… https://twitter.com/i/web/status/1130558065034571776
@FibroFlutters
20 May 2019 20:37
Come and join the conversation #WhyWeDoResearch #InternationalClinicalTrialsDay
@JPUHResearch
20 May 2019 20:38
#WhyWeDoResearch @SimonRStones A4. Discuss in advance with organisations like INVOLVE or PIRES https://mcpin.org/resources/service-user-and-carer-groups/east-anglia/norfolk-suffolk-public-and-patient-involvement-in-research-group-ppires-nhs-south-norfolk-clinical-commissioning-group/
@Ataxia_and_Me
20 May 2019 20:38
RT @SimonRStones: @PsAZZGroup Exactly! Clear, upfront and transparent communications. Everything on the table! #WhyWeDoResearch
@lgoodbu
20 May 2019 20:38
@SimonRStones @receivingconsnt @EmmaYhnell @rheumpatient @lynn_laidlaw @smithhazelann And do you should !!! #WhyWeDoResearch
@DerekCStewart
20 May 2019 20:39
Hi @SimonRStones - Loving this. Light touch paper and stand-back #WhyWeDoResearch
@lgoodbu
20 May 2019 20:39
RT @EmmaYhnell: @lgoodbu @rheumpatient @lynn_laidlaw @smithhazelann Completely agree! #WhyWeDoResearch. I wish this was the case for resear…
@ClaireW_UK
20 May 2019 20:39
I can see engagement from #UK #Ireland #Canada #Spain #Netherlands in the expenses tweetchat so far @SimonRStones #whywedoresearch ??????????
@ClaireW_UK
20 May 2019 20:39
RT @EmmaYhnell: @lgoodbu @rheumpatient @lynn_laidlaw @smithhazelann Completely agree! #WhyWeDoResearch. I wish this was the case for resear…
@Dr_LoucaMai
20 May 2019 20:39
So agree with this! People do not want/need payment are not better/more noble than people who do #WhyWeDoResearch
@Ataxia_and_Me
20 May 2019 20:39
RT @FibroFlutters: @EmmaYhnell @dyskochick @Dr_LoucaMai @rheumpatient @smithhazelann What about a #voucherscheme #WhyWeDoResearch
@Stroppybrunette
20 May 2019 20:39
RT @SimonRStones: Happy #InternationalClinicalTrialsDay and welcome to our #WhyWeDoResearch Tweet Chat! Today, we'll be covering the hot to…
@FibroFlutters
20 May 2019 20:39
Come and join the conversation #WhyWeDoResearch #TweetChat #InternationalClinicalTrialsDay
@ClaireW_UK
20 May 2019 20:39
RT @DerekCStewart: Hi @SimonRStones - Loving this. Light touch paper and stand-back #WhyWeDoResearch
@couragesings
20 May 2019 20:40
AMEN. #WhyWeDoResearch
@lynn_laidlaw
20 May 2019 20:40
@DerekCStewart @SimonRStones I can’t keep up! #WhyWeDoResearch
@datadrivencare
20 May 2019 20:41
RT @DerekCStewart: Hi @SimonRStones - Loving this. Light touch paper and stand-back #WhyWeDoResearch
@datadrivencare
20 May 2019 20:41
RT @Dr_LoucaMai: So agree with this! People do not want/need payment are not better/more noble than people who do #WhyWeDoResearch https://…
@datadrivencare
20 May 2019 20:41
RT @FibroFlutters: Come and join the conversation #WhyWeDoResearch #TweetChat #InternationalClinicalTrialsDay https://t.co/k8c7RV3hIm
@datadrivencare
20 May 2019 20:41
RT @couragesings: AMEN. #WhyWeDoResearch https://t.co/tXWN1KArgD
@lynn_laidlaw
20 May 2019 20:41
@Dr_LoucaMai Heart of the matter, well said @Dr_LoucaMai #WhyWeDoResearch
@SimonRStones
20 May 2019 20:41
@EmmaYhnell @receivingconsnt @lgoodbu @rheumpatient @lynn_laidlaw @smithhazelann I have many, many stories like this! #WhyWeDoResearch
@FibroFlutters
20 May 2019 20:43
@smithhazelann Good question! #WhyWeDoResearch #TweetChat
@lynn_laidlaw
20 May 2019 20:43
@SimonRStones @DerekCStewart Pour me one as well #WhyWeDoResearch
@SimonRStones
20 May 2019 20:43
Good administration can make all the difference! #WhyWeDoResearch
@MartinaMorris76
20 May 2019 20:43
RT @VandaCa16661543: Celebrating International Clinical Trials day here at @RWT_NHS Connect with research #RWT #ICTD2019 #WhyWeDoResearch…
@JournalofEthics
20 May 2019 20:43
RT @WeNurses: Starting in 5 minutes Expenses: Payment for patient partners with @SimonRStones via #WhyWeDoResearch You don't have to be…
@S1landy
20 May 2019 20:44
RT @c_stich2: Remember the importance of clinical trials #ClinicalTrialsDay and the amazing work that's achieved #whywedoresearch @c_stich2…
@SarahChapman30
20 May 2019 20:44
RT @Dr_LoucaMai: So agree with this! People do not want/need payment are not better/more noble than people who do #WhyWeDoResearch https://…
@smithhazelann
20 May 2019 20:44
#WhyWeDoResearch https://t.co/HNlGVS6KlL
@SimonRStones
20 May 2019 20:45
@EmmaYhnell @FibroFlutters @JPUHResearch Private jet would be most welcomed! #WhyWeDoResearch
@smithhazelann
20 May 2019 20:45
#WhyWeDoResearch
@smithhazelann
20 May 2019 20:45
#WhyWeDoResearch
@Fedupcivvy
20 May 2019 20:45
RT @BewickCarol: Not long now until the @AMRC #whyWeDoResearch tweetchat. Can’t wait! Check in 12-1 tomorrow for @leonora_neale and @jocely…
@smithhazelann
20 May 2019 20:45
#WhyWeDoResearch
@SimonRStones
20 May 2019 20:46
Q4 Any more advice on navigating payment for patient partners in research!? #WhyWeDoResearch https://t.co/W2Xlv1bc5j
@smithhazelann
20 May 2019 20:47
RT @SimonRStones: Q4 Any more advice on navigating payment for patient partners in research!? #WhyWeDoResearch https://t.co/W2Xlv1bc5j
@SimonRStones
20 May 2019 20:47
@Delia_Muir @Dr_LoucaMai Well said @delia_muir! #WhyWeDoResearch
@smithhazelann
20 May 2019 20:48
RT @ClaireW_UK: Amazingly busy & thoughtful #WhyWeDoResearch tweetchat on expenses for patient partners in research hosted by @SimonRStone…
@SimonRStones
20 May 2019 20:49
It's a given - but is often forgotten! #WhyWeDoResearch
@SimonRStones
20 May 2019 20:50
Or even international standards with national policies to be adopted!? #AspireHigh #WhyWeDoResearch
@PsAZZGroup
20 May 2019 20:50
@SimonRStones ..and why we need to raise the profile! #whyWeDoResearch
@Ataxia_and_Me
20 May 2019 20:51
@EmmaYhnell @LecturerLee @SimonRStones @dyskochick @lynn_laidlaw @DerekCStewart Thank you #WhyWeDoResearch
@JPUHResearch
20 May 2019 20:52
RT @FibroFlutters: Come and join the conversation #WhyWeDoResearch #TweetChat #InternationalClinicalTrialsDay https://twitter.com/JPUHResearch/status/1130551262729199617
@SimonRStones
20 May 2019 20:52
This is an ABSOLUTE given. Quite frankly, if you don't, shame on you! #WhyWeDoResearch https://t.co/jaczR7eW7P
@EmmaYhnell
20 May 2019 20:52
RT @SimonRStones: Or even international standards with national policies to be adopted!? #AspireHigh #WhyWeDoResearch https://t.co/puOmJdOS…
@couragesings
20 May 2019 20:52
I couldn't resist adding in the #HowNotToDoPtEngagement to this one. #WhyWeDoResearch
@EmmaYhnell
20 May 2019 20:52
@SimonRStones Sounds great to me! #WhyWeDoResearch
@JPUHResearch
20 May 2019 20:52
RT @SimonRStones: @EmmaYhnell @FibroFlutters @JPUHResearch Private jet would be most welcomed! #WhyWeDoResearch
@JPUHResearch
20 May 2019 20:53
#WhyWeDoResearch A5. We're interested to hear what the patients involved in this chat would like - maybe we could l… https://twitter.com/i/web/status/1130562083722915842
@ClaireW_UK
20 May 2019 20:53
RT @JPUHResearch: #WhyWeDoResearch A5. We're interested to hear what the patients involved in this chat would like - maybe we could look at…
@PsAZZGroup
20 May 2019 20:53
#whywedoresearch
@smithhazelann
20 May 2019 20:53
RT @JPUHResearch: #WhyWeDoResearch A5. We're interested to hear what the patients involved in this chat would like - maybe we could look at…
@PsAZZGroup
20 May 2019 20:54
RT @SimonRStones: This is an ABSOLUTE given. Quite frankly, if you don't, shame on you! #WhyWeDoResearch https://twitter.com/EmmaYhnell/status/1130561611381583876
@SimonRStones
20 May 2019 20:54
@lynn_laidlaw You and me both - we know the cost of good quality involvement! #WhyWeDoResearch
@Crohnoid
20 May 2019 20:54
A5 We partly covered this one - vouchers #WhyWeDoResearch
@lynn_laidlaw
20 May 2019 20:54
@rheumpatient That’s outrageous but not surprising. #Whywedoresearch
@Roxiemusic2018
20 May 2019 20:55
RT @SimonRStones: Happy #InternationalClinicalTrialsDay and welcome to our #WhyWeDoResearch Tweet Chat! Today, we'll be covering the hot to…
@lynn_laidlaw
20 May 2019 20:56
@SimonRStones Absolutely. What annoys me is that patients reviewers aren’t great at calling this out. #WhyWeDoResearch
@elspeth_mathie
20 May 2019 20:56
@Drakesyard @thepiercy @Delia_Muir #WhyWeDoResearch my colleagues @JJonesatherts is more of an expert in this, but… https://twitter.com/i/web/status/1130562854942388224
@SimonRStones
20 May 2019 20:56
Q5 I think we've covered most of this already, but feel free to add any other remarks! #WhyWeDoResearch https://t.co/f6mKut2UEt
@SimonRStones
20 May 2019 20:56
RT @elspeth_mathie: @Drakesyard @thepiercy @Delia_Muir #WhyWeDoResearch my colleagues @JJonesatherts is more of an expert in this, but I kn…
@SimonRStones
20 May 2019 20:58
@Drakesyard @Delia_Muir @thepiercy Thanks for sharing this Jim - would love to hear how this conversation progresses #WhyWeDoResearch
@lynn_laidlaw
20 May 2019 20:58
RT @SimonRStones: @lynn_laidlaw You and me both - we know the cost of good quality involvement! #WhyWeDoResearch
@lynn_laidlaw
20 May 2019 20:58
RT @PsAZZGroup: #whywedoresearch https://twitter.com/rheumpatient/status/1130561715970760705
@EmmaYhnell
20 May 2019 20:59
@sally_crowe Thank you Sally that'd be great #WhyWeDoResearch
@Ataxia_and_Me
20 May 2019 20:59
@SimonRStones is it "Forgotten" / "overlooked" or just NOT given any consideration ? #WhyWeDoResearch




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