#stomanursesaddingvalue - Tuesday 4th June 2019 8pm (GMT Standard Time) Quality of Life

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 Chat Details


Hosted by WeNurses using #stomanursesaddingvalue

This chat is guest hosted by @StomaCareVision

Quality of life (QOL) in patients living with a stoma is an important health issue. It could be postulated that a lack of understanding into which factors influence QOL stoma surgery and the key times at which patients may experience issues, hinders the ability of stoma care nurses to provide appropriately timed support and interventions to improve QOL.


Here are some links to background information that you may wish to take a look at:

What Matters to You – NHS England 

What are PROMS? – NHS Digital

The benefit of using PROMS in elective surgery – NHS Digital

Quality of Life - coaching and empowering ostomates – Coloplast

Coloplast QOL Tool 

Coloplast QOL document for download and use 

We will be exploring the following questions during the tweetchat:

  • In your experience what can be the key issues which impact on the QoL of ostomates ?
  • What can we do within our services to ensure we understand ‘what matters to you’  and to be responsive when key challenges arise?
  • This is an example of an always event - imagine if this was community longterm stoma care follow up services - what might this look like? 

  • What tools are available for you to assess patient QoL and at what times during the patients journey do you use these?
  • Has anyone had experience of using PROMS within stoma care and what are your thoughts on if this is a useful tool to empower and improve ostomates QOL?
  • In your experience what are the key timescales for follow up,initially following surgery and then long-term for ostomates as they become ‘expert patients’.
  • What support services are or should be available for ostomates who face challenges accepting their new normal? Do other expert patients have a role to play in providing some aspects of this support?

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