#WeNurses - Wednesday 11th November 2020 8pm (GMT Standard Time) What role does popular culture play in healthcare?

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This chat is guest hosted by @genomicsedu

What role does popular culture play in healthcare?

 Popular culture is a good way to get new advances in healthcare into the public’s consciousness. However, sometimes facts can be misconstrued, and expectations elevated. How important is it to separate the fact from the fiction?

The media can play a powerful role in the way we perceive new advances or treatments in healthcare and can sometimes influence our expectations or opinions about the care we receive. The information we see in newspaper headlines or included in tv shows or movie storylines (genetic engineering in Jurassic Park for example) can, at times, be inaccurate or misleading. Despite how this information is presented it does have the power to influence and can affect our views and decisions.

Genomics (the study of all our DNA) is one example that is featured prominently in media and popular culture. From the portrayal of genetic conditions in soaps to advertisements from companies offering kits that will provide with you with a wealth of health and lifestyle advice based on information from your DNA.   

    

What does this mean for nurses?

Genomics is now part of the suite of investigations that is used in many different specialities. As a result, more healthcare professionals as well as patients, maybe encountering this technology for the first time.  Many patients will have preconceived ideas about the value of genetics and genomics, and part of the role of the healthcare professional is to find out patients’ views and correct any misinformation held by patients and their families. Through this Twitterchat we want to discuss the different strategies you use to manage patient expectations and their questions. Where do you go for further information about genetics and genomics and how do you handle those conversations when a patient has a misunderstanding based on information they heard about through popular culture?

     

Join the chat

During this chat we would like to explore some of the common themes, myths and misconceptions perpetuated by popular culture around genetics and genomics and share strategies for dealing with them. Do you feel prepared or even comfortable to answer questions or challenge misconceptions?

   

Top tip

Before joining the chat, we suggest you download and listen to our ‘Genomics in popular culture’ podcast to understand some of the popular myths and facts that surround genomics and genetic testing.

 

Questions will include:

  • How does popular culture –news stories, films, books, adverts etc. – influence patients’ expectations of healthcare? 
  • What kind of questions have you heard from patients following, for example, a big news event or a storyline in a soap?
  • How do you manage patient expectations based on what they have seen or read through popular culture?
  • From the animated DNA in Jurassic Park, genomics has featured in popular culture in various ways. What examples have you seen?
  • Do stories featuring complex topics in healthcare, like genomics, motivate you to learn more?
  • Where do you go to find out more about complex topics, like genomics?
  • What can HEE do to support you?

 

What is the Genomics Education Programme?

Health Education England’s Genomics Education Programme exists to deliver and advise on learning and development opportunities that prepare current and future NHS professionals to make the best use of genomics in their practice.

Rapid advances in technology and understanding mean that genomics is now more relevant than ever before. As genomics increasingly becomes a part of mainstream NHS care, all healthcare professionals, and not just genomics specialists, need to have a good understanding of its relevance and potential to impact the diagnosis, treatment and management of people in our care.

The GEP’s objectives are:

  • Prepare the workforce to deliver the new England-wide NHS Genomic Medicine Service.
  • Support the completion of the landmark 100,000 Genomes Project.
  • Provide the best education opportunities in genomics for the NHS workforce.
  • Develop strategic collaborations to keep the UK at the forefront of genomics in healthcare.

 

For more information,visit or

contact us

.


    
About our guests

   

Joanne Swidenbank - Joanne is a Registered nurse currently undertaking a PhD (Topic: Healthcare workforce education in genomics) at the University of South Wales funded by KESS2 in partnership with Genomics Partnership Wales.

Charlotte Hitchcock - Charlotte entered nursing as a mature student, qualifying in 1995. She worked in theatres at Birmingham Children’s Hospital and was involved in the establishment of the Liver Transplant team. Charlotte then moved to Norfolk, spending six years working as a senior theatre practitioner in the emergency theatres and during which she qualified as an operating department practitioner to achieve dual qualification. She worked as Assistant Lead Nurse in North Wales for two years, and later back Theatre Manager at the Alexandra Hospital in Redditch. Charlotte started work at NewCross Hospital in 2012, working in Clinical Informatics, prior to starting the exciting role as Genomic Ambassador covering Wolverhampton, Walsall, Dudley and Worcestershire.

Michelle Bishop - Dr Michelle Bishop is the Education Development Specialist for HEE’s Genomics Education Programme. She studied a PhD in the field of genetics education and has since specialised in genetics and genomics education for Health Education England. She also previously worked as a genetic counsellor. Michelle provides educational guidance and contributes to the development of genomics-related resources and curricula for the specialist workforce, as well as driving wider NHS workforce transformation.

Ed Miller - Dr Ed Miller is Senior Education DevelopmentOfficer for HEE’s Genomics Education Programme. Ed provides scientific and educational guidance for the development and production of a range of resources for the NHS workforce. Before joining the GEP, Ed completed a PhD in DNA damage repair and replication at the University of Birmingham. During his time as a researcher he gained valuable experience in science communication and public engagement by planning and presenting at a number of educational events for a wide range of audiences





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 #WeNurses transcript

 
@WeNurses
11 November 2020 20:02
Hello and welcome to tonight's #WeNurses Tonight we are joined by the fab @genomicsedu and we are discussing "What role does popular culture play in healthcare?" Please say "hi" if you are joining us and share your first thoughts https://t.co/0IamzRb5Q4
@gremlin2c
11 November 2020 20:02
RT @WeNurses: Hello and welcome to tonight's #WeNurses Tonight we are joined by the fab @genomicsedu and we are discussing "What role doe…
@gillmosswillink
11 November 2020 20:02
RT @WeNurses: Hello and welcome to tonight's #WeNurses Tonight we are joined by the fab @genomicsedu and we are discussing "What role doe…
@saksART
11 November 2020 20:02
RT @WeNurses: Good morning .... don't forget #WeNurses is TONIGHT at 8pm ???????????????????? What role does popular culture play in healthcare? >…
@genomicsedu
11 November 2020 20:02
RT @WeNurses: Hello and welcome to tonight's #WeNurses Tonight we are joined by the fab @genomicsedu and we are discussing "What role doe…
@EdGenomesEdu
11 November 2020 20:02
Hi everyone. Looking forward to it #WeNurses
@Marie_Batey
11 November 2020 20:03
@WeNurses @gremlin2c @genomicsedu Hello :) Really looking forward to this chat. #WeNurses
@jo_swidenbank
11 November 2020 20:03
RT @WeNurses: Hello and welcome to tonight's #WeNurses Tonight we are joined by the fab @genomicsedu and we are discussing "What role doe…
@gremlin2c
11 November 2020 20:03
@WeNurses @genomicsedu Hi, looking forward to hearing from everyone. #wenurses
@WeNurses
11 November 2020 20:03
hello and great to have you here #WeNurses https://twitter.com/gremlin2c/status/1326616536338092035
@MarcelleTauber
11 November 2020 20:04
@WeNurses @genomicsedu Good evening everyone! Looking forward to tonight's discussion #WeNurses
@WeNurses
11 November 2020 20:04
Hi Marie - welcome ... its a great topic isn't it ! #WeNurses https://twitter.com/Marie_Batey/status/1326616526502375424
@AlisonPope4
11 November 2020 20:04
@WeNurses @genomicsedu Hi everyone! Looking forward to tonight’s chat #WeNurses
@gillmosswillink
11 November 2020 20:04
Replying to #WeNurses looking forward to this
@AgencyNurse
11 November 2020 20:04
Hi everyone .... been really looking forward to this tweetchat ... what a fab topic ! #WeNurses
@WeNurses
11 November 2020 20:05
@AlisonPope4 @genomicsedu hello and welcome #WeNurses
@WeNurses
11 November 2020 20:05
QUESTION 1 How does popular culture –news stories, films, books, adverts etc. – influence patients’ expectations of healthcare? #WeNurses https://t.co/0bS3oOiO8i
@WeNurses
11 November 2020 20:05
@MarcelleTauber @genomicsedu Hi Marcelle lovely to see you here #WeNurses
@WeNurses
11 November 2020 20:05
Hello and welcome #WeNurses https://twitter.com/jo_swidenbank/status/1326616497318465536
@Marie_Batey
11 November 2020 20:05
@WeNurses Sure is! So much potential for all of us, in whatever role we play. Can’t wait for the discussion. #WeNurses
@EdGenomesEdu
11 November 2020 20:06
@WeNurses @genomicsedu How much do we think popular culture can impact patients views? #WeNurses
@WeNurses
11 November 2020 20:06
Hi Ed - great to have you here #WeNurses https://twitter.com/EdGenomesEdu/status/1326616426271137795
@DonnaKirwan3
11 November 2020 20:06
@WeNurses @gremlin2c @genomicsedu Hello! @genomicsedu #WeNurses
@WeNurses
11 November 2020 20:06
Hello and a great first thought #WeNurses https://twitter.com/Winn_on_Health/status/1326617050190667778
@MarcelleTauber
11 November 2020 20:06
@WeNurses @genomicsedu Lovely to be with you all. How are u? #WeNurses
@jo_swidenbank
11 November 2020 20:07
@WeNurses I think that it can create a somewhat unrealistic idea about how accurate/fast some healthcare technologies are, ie you run a sample through a machine and *ping!* you have an answer. #WeNurses
@AgencyNurse
11 November 2020 20:07
Fab first question .... yes i definitely think that popular culture does influence patients ... even if only on a subconscious level #WeNurses https://twitter.com/WeNurses/status/1326616993940824065
@genomicsedu
11 November 2020 20:07
Hi everyone, looking forward to a great chat #WeNurses
@WeNurses
11 November 2020 20:08
@MarcelleTauber @genomicsedu we are fab thank you .... really excited about tonights topic :D #WeNurses
@gremlin2c
11 November 2020 20:08
There are often misleading headlines which don’t provide a real or coherent explanation of what is happening but are there to shock. #wenurses https://twitter.com/wenurses/status/1326616993940824065
@WeNurses
11 November 2020 20:08
Thoughts ? #WeNurses https://twitter.com/EdGenomesEdu/status/1326617241312485377
@Marie_Batey
11 November 2020 20:08
@EdGenomesEdu @WeNurses @genomicsedu I think we’ve only got to look at the range of views that people (staff included) hold re COVID-19 to appreciate that this will be very diverse, and possibly challenging. #WeNurses
@WeNurses
11 November 2020 20:08
An excellent point #WeNurses https://twitter.com/jo_swidenbank/status/1326617574675771392
@WeNurses
11 November 2020 20:09
Helllooo #WeNurses https://twitter.com/saksART/status/1326617792041381892
@SusanMcgavock
11 November 2020 20:09
@AgencyNurse #WeNurses it gives them certain expectations and plays into some regressive sterotypes
@WeNurses
11 November 2020 20:10
Great point Chloe #WeNurses (PS Don't forget to add #WeNurses to each tweet so others can see your fab points ) https://twitter.com/chloe__nichole/status/1326617872651718656
@Marie_Batey
11 November 2020 20:10
@jo_swidenbank @WeNurses Unrealistic and maybe inaccurate also sometimes. #WeNurses
@gremlin2c
11 November 2020 20:10
@jo_swidenbank @WeNurses Definitely agree with this. People get a diagnosis from an immediate test within hours in a film and everyone thinks that will happen #WeNurses
@jo_swidenbank
11 November 2020 20:10
@WeNurses Not helped by the rise of direct to consumer genetic tests, which can give results without there necessarily being clinical utility of them for the patient #WeNurses
@EdGenomesEdu
11 November 2020 20:10
I think with so much access to information now it can be hard to pick out the facts. Which can cloud expectations #WeNurses
@jo_swidenbank
11 November 2020 20:10
@Marie_Batey @WeNurses Yes, I would agree with that! #WeNurses
@MarcelleTauber
11 November 2020 20:11
@WeNurses It can reinforce unrealistic expectations ... the sitting up drinking tea 2 minutes after being defibrillated always gets me. But, it can also be a fabulous tool in demystifying health, investigations, the hospital setting & HCP roles #WeNurses .
@chloe__nichole
11 November 2020 20:11
@WeNurses Thankyou! I’ll add for next time, whoops! #WeNurses
@SusanMcgavock
11 November 2020 20:11
@AgencyNurse #WeNurses often in popular serials there is a blurring of the boundaries interprofessionally which can’t happen in real life
@knitknitqueen
11 November 2020 20:12
@AgencyNurse Very good question.. News reports the crazy stuff and not the 99% of the good stuff we do. Patients only think doctors, midwives and nurses run the NHS TV shows only show paramedics and not the other professions working Makes it a challenge to work #WeNurses
@EdGenomesEdu
11 November 2020 20:12
@MarcelleTauber @WeNurses Great point. It can provide a way in for conversations with patients #WeNurses
@AgencyNurse
11 November 2020 20:12
@SusanMcgavock yes i think so - think it can also make things like genetics seem quite scary, was thinking of all the films that have some genetics in : Attack of the clones Jurrasic Park The Matrix All quite scary #WeNurses
@AgencyNurse
11 November 2020 20:13
Yes a goos point and something we really need to be aware of as nurses #WeNurses https://twitter.com/knitknitqueen/status/1326618710065508356
@WeNurses
11 November 2020 20:14
#WeNurses > https://twitter.com/Cornishchuckle/status/1326619074244308995
@WeNurses
11 November 2020 20:14
#WeNurses > https://twitter.com/Winn_on_Health/status/1326618777572749312
@saksART
11 November 2020 20:14
The trick is to harness the initial power (widespread raising awareness of an issue) thru popular culture & use it to positively reframe messages in a more realistic coherent way #WeNurses
@Marie_Batey
11 November 2020 20:14
@WeNurses There must be more of a role for us in influencing what gets portrayed, surely... #WeNurses
@jo_swidenbank
11 November 2020 20:14
@DonnaKirwan3 Very much this - on websites like 23 and me they say you should discuss with a genetic counsellor...but with no further information! #WeNurses
@AgencyNurse
11 November 2020 20:14
Oh my goodness yes (loved it!) but again a "scary" reality portrayed #WeNurses https://twitter.com/gremlin2c/status/1326619187679211520
@EdGenomesEdu
11 November 2020 20:15
@knitknitqueen @AgencyNurse Do you think expectations can be too high some times from patients? #WeNurses
@SusanMcgavock
11 November 2020 20:15
@AgencyNurse It can make really ordinary things seem exciting but I guess that’s entertainment #Wenurses
@WeNurses
11 November 2020 20:15
QUESTION 2 What kind of questions have you heard from patients following, for example, a big news event or a storyline in a soap? #WeNurses https://t.co/3G7d9Clvri
@AgencyNurse
11 November 2020 20:15
#WeNurses eek ! https://twitter.com/DonnaKirwan3/status/1326619369208770563
@reboverend_RNc
11 November 2020 20:15
@WeNurses Hello #WeNurses peeps-sorry I’m late, been eating my dinner! ?? There is a lot of diversity to this q: patriarchal models; service & duty OR naughty minx; quick fixes; always available to provide care; virtuosity beats intellect. Matrons Rule. white women are predominant
@LukiTheNurse
11 November 2020 20:16
Things like Greys and ER have shown Mental health wards/Psych to be scary, to be feared and to never end up there in any circumstance #WeNurses https://twitter.com/WeNurses/status/1326616993940824065
@jo_swidenbank
11 November 2020 20:16
@Winn_on_Health @WeNurses Oh yes, the actual realistic process wouldn’t make good TV/film! Writers only get a certain amount of time to tell a story. But this does trickle in to public perception too. #WeNurses
@WeNurses
11 November 2020 20:16
Interesting point ... can popular culture be a way into conversations with patients ?? #WeNurses https://twitter.com/EdGenomesEdu/status/1326618775328845824
@knitknitqueen
11 November 2020 20:16
@EdGenomesEdu @AgencyNurse Yes, I do love Holby City, but when they show someone collapsing and then getting a bed and operation so quickly it does not bode well when we have a delay in theatres #WeNurses
@DianaHeyes
11 November 2020 20:16
RT @WeLDnurses: Tonight at 8pm #WeNurses
@WeNurses
11 November 2020 20:16
@chloe__nichole :D (don;t worry we forget sometimes too) #WeNurses
@WeNurses
11 November 2020 20:16
#WeNurses https://twitter.com/jo_swidenbank/status/1326618565378772995
@gremlin2c
11 November 2020 20:17
Great question #WeNurses I have been asked whether there samples will be sold and if the treatment is real https://twitter.com/wenurses/status/1326619507461328898
@knitknitqueen
11 November 2020 20:17
@WeNurses Do people have affairs like how they do in casualty... #WeNurses
@WeNurses
11 November 2020 20:17
Excellent point ! #WeNurses https://twitter.com/saksART/status/1326619292616552450
@reboverend_RNc
11 November 2020 20:17
@knitknitqueen @AgencyNurse I call Holby my favourite comedy show of the week! So far removed from the reality of our work... #WeNurses
@jo_swidenbank
11 November 2020 20:18
@WeNurses Not from patients, but I had discussions with friends and family about hereditary cancers following the untimely passing of Chadwick Boseman from bowel cancer. #WeNurses
@WeNurses
11 November 2020 20:18
Oooh thoughts ? #WeNurses https://twitter.com/Marie_Batey/status/1326619341740249090
@gremlin2c
11 November 2020 20:18
@WeNurses @chloe__nichole I just have #WeNurses
@WeNurses
11 November 2020 20:18
RT @EdGenomesEdu: @knitknitqueen @AgencyNurse Do you think expectations can be too high some times from patients? #WeNurses
@SusanMcgavock
11 November 2020 20:18
@WeNurses Yes absolutely you can find common ground and then that helps to open up #WeNurses
@jeanleo999
11 November 2020 20:19
@EdGenomesEdu @knitknitqueen @AgencyNurse #Wenurses oh yes patients often have unrealistic expectations. But have never met one yet whose expectations can’t be managed with a bit of compassion and honesty.
@gremlin2c
11 November 2020 20:19
@reboverend_RNc @knitknitqueen @AgencyNurse Always love the ward staff running off to scrub for major operations. #WeNurses
@knitknitqueen
11 November 2020 20:19
@reboverend_RNc @AgencyNurse You will be surprised that so many people think the hospital runs like the show.. #WeNurses
@1stAidForNurses
11 November 2020 20:19
Yes!! I am so sick of the mis and disinformation about #Covid_19 that has cost so many lives. Need to boot out #GOPCorruption & #COVIDIOTS - we're fighting for our #FrontLineHeroes - sisters & brothers in hospitals across our country. #WeNurses https://twitter.com/WeNurses/status/1326618257097437186
@genomicsedu
11 November 2020 20:20
RT @gremlin2c: Great question #WeNurses I have been asked whether there samples will be sold and if the treatment is real https://t.co/AGu…
@WeNurses
11 November 2020 20:20
RT @SusanMcgavock: @WeNurses Yes absolutely you can find common ground and then that helps to open up #WeNurses
@EdGenomesEdu
11 November 2020 20:20
@WeNurses "So you can look at your DNA and it will tell you all about your health" is one I have heard #WeNurses
@knitknitqueen
11 November 2020 20:20
@jeanleo999 @EdGenomesEdu @AgencyNurse It is hard when we are dealing with people who struggle to understand that TV is not the reality #WeNurses
@LukiTheNurse
11 November 2020 20:20
A friend asked me recently about the realism of Ratched on Netflix.. I haven't seen it but I'm sure some of us have been called Nurse Ratchet in our time #WeNurses https://twitter.com/WeNurses/status/1326619507461328898
@gillmosswillink
11 November 2020 20:20
@WeNurses Coronation St currently running with mitochondrial disorder.. and the dilemma of parents V medical professionals .. #WeNurses
@WeNurses
11 November 2020 20:20
#WeNurses - great example https://twitter.com/emmattonkin/status/1326620359320330245
@SusanMcgavock
11 November 2020 20:20
@WeNurses Do you think you’ll be giving me the vaccine soon? #WeNurses
@MarcelleTauber
11 November 2020 20:21
#WeNurses https://twitter.com/marcelletauber/status/1326620913807323138
@knitknitqueen
11 November 2020 20:21
@Marie_Batey @WeNurses apparently they have 'consultants' from health backgrounds on the shows... #WeNurses
@WeNurses
11 November 2020 20:21
RT @EdGenomesEdu: @WeNurses "So you can look at your DNA and it will tell you all about your health" is one I have heard #WeNurses
@WeNurses
11 November 2020 20:21
Another great example #WeNurses https://twitter.com/gillmosswillink/status/1326620825273896960
@knitknitqueen
11 November 2020 20:21
@gremlin2c @reboverend_RNc @AgencyNurse And they work in ICU .... discharge ... #WeNurses
@gillmosswillink
11 November 2020 20:22
RT @gremlin2c: @reboverend_RNc @knitknitqueen @AgencyNurse Always love the ward staff running off to scrub for major operations. #WeNurses
@WeNurses
11 November 2020 20:22
#WeNurses https://twitter.com/AlisonPope4/status/1326620819825504257
@gremlin2c
11 November 2020 20:22
I think that sometimes news headlines and programmes can help to start conversations with patients (colleagues and friends) @BBCRadio1PR Did a series about genetics and genomics #WeNurses
@WeNurses
11 November 2020 20:22
#WeNurses https://twitter.com/MarcelleTauber/status/1326620913807323138
@WeNurses
11 November 2020 20:22
RT @SusanMcgavock: @WeNurses Do you think you’ll be giving me the vaccine soon? #WeNurses
@reboverend_RNc
11 November 2020 20:22
@knitknitqueen @AgencyNurse Oh I know... medical staff organising rotas for nurses, the nurse at the bedside suddenly in theatre (which is always free!) & pts sat up chatting 5 minutes after arrest... love it! ?? #WeNurses
@WeNurses
11 November 2020 20:22
RT @reboverend_RNc: @WeNurses Hello #WeNurses peeps-sorry I’m late, been eating my dinner! ?? There is a lot of diversity to this q: patri…
@knitknitqueen
11 November 2020 20:22
@WeNurses The news story recently in the daily mail has not helped, saying that we twiddle our thumbs.. #WeNurses
@jo_swidenbank
11 November 2020 20:22
@WeNurses Some shows have medical advisors, I don’t know how many of those are nurses in addition to or instead of physicians #WeNurses
@AgencyNurse
11 November 2020 20:23
RT @gremlin2c: Great question #WeNurses I have been asked whether there samples will be sold and if the treatment is real https://t.co/AGu…
@Marie_Batey
11 November 2020 20:23
@knitknitqueen @WeNurses I know, and keeping this ‘grounded’ / rooted in reality and accessible truth is key. #WeNurses The rest of us need to do so from a more ‘near patient‘ perspective.
@EdGenomesEdu
11 November 2020 20:23
@gremlin2c @BBCRadio1PR Can a big news story pre-empt questions you may get from patients? #WeNurses
@knitknitqueen
11 November 2020 20:23
@reboverend_RNc @AgencyNurse and going home on time.... and drinking wine and having a party... hmmm perhaps I am looking in the wrong places to work ha ha ?????? #WeNurses
@gremlin2c
11 November 2020 20:23
Have to ask - are you advising on that @gillmosswillink given that is your specialty and your base? #WeNurses https://twitter.com/gillmosswillink/status/1326620825273896960
@AgencyNurse
11 November 2020 20:23
Yes absolutely agree they do #WeNurses https://twitter.com/gremlin2c/status/1326621267760472065
@WeNurses
11 November 2020 20:23
RT @Marie_Batey: @knitknitqueen @WeNurses I know, and keeping this ‘grounded’ / rooted in reality and accessible truth is key. #WeNurses Th…
@LukiTheNurse
11 November 2020 20:24
Well they have medical 'consultants' to shows in the states to see realism. Obviously dramatic license is taken #wenurses https://twitter.com/WeNurses/status/1326620252139118593
@WeNurses
11 November 2020 20:24
Interesting question .... any thoughts folks ?? #WeNurses https://twitter.com/EdGenomesEdu/status/1326621619918352385
@MarcelleTauber
11 November 2020 20:24
@WeNurses I don't know sometimes it takes the often incorrect or sensationalistic headlines for the general public people to be interested in the health service but the result is we are fire fighting misinformation all the time #WeNurses
@AgencyNurse
11 November 2020 20:24
#WeNurses https://twitter.com/jeanleo999/status/1326621813653245952
@Winn_on_Health
11 November 2020 20:24
@WeNurses The Archers has prompted questions about alcohol and foetal malformation / foetal alcohol syndrome. #wenurses
@WeNurses
11 November 2020 20:25
QUESTION 3 How do you manage patient expectations based on what they have seen or read through popular culture? #WeNurses https://t.co/oXDLr229k9
@Marie_Batey
11 November 2020 20:25
@jo_swidenbank @WeNurses Will be interesting to see how we lead more in this arena as RNs and RMs given the advent of genomics. #WeNurses
@reboverend_RNc
11 November 2020 20:25
@knitknitqueen @AgencyNurse You and me both! Don’t even get me started on Casualty!! ???? #WeNurses
@jeanleo999
11 November 2020 20:25
Thanks Teresa #WeNurses https://twitter.com/agencynurse/status/1326621921853763587
@jo_swidenbank
11 November 2020 20:25
@WeNurses I have experienced this - when gene therapy for haemophilia first made the news I had several phone calls from patients wanting to discuss the ‘cure’ they’d read about after seeing it on TV. #WeNurses
@MarcelleTauber
11 November 2020 20:26
@AlisonPope4 @WeNurses Yes ... and often with a species supremacy/taking over the world/dystopia element ?? #WeNurses
@knitknitqueen
11 November 2020 20:26
@jeanleo999 @EdGenomesEdu @AgencyNurse all depends.. working in admissions and pre assessment you are asked all sorts #WeNurses
@genomicsedu
11 November 2020 20:26
RT @WeNurses: Interesting question .... any thoughts folks ?? #WeNurses https://twitter.com/EdGenomesEdu/status/1326621619918352385
@knitknitqueen
11 November 2020 20:26
@reboverend_RNc @WeNurses O yes and making up dance routines... #WeNurses
@genomicsedu
11 November 2020 20:27
RT @WeNurses: QUESTION 3 How do you manage patient expectations based on what they have seen or read through popular culture? #WeNurses h…
@EdGenomesEdu
11 November 2020 20:27
@jo_swidenbank @WeNurses Do you see people who say they think they have the gene for X (insert newspaper headline)? #WeNurses
@gillmosswillink
11 November 2020 20:27
@gremlin2c Funnily enough..no!! ??#WeNurses
@reboverend_RNc
11 November 2020 20:27
@WeNurses Just be honest. Just create space to wonder why they ask that. Just model what Nurses really do. #WeNurses
@AgencyNurse
11 November 2020 20:27
Great Q - firstly it helps if you yourself are in touch with what's out there, then I have found that most people react well to "well that's what the telly says ... but here is the actual info" .. most people aware of the relationship between popular culture & reality #WeNurses https://twitter.com/WeNurses/status/1326621994297815041
@jo_swidenbank
11 November 2020 20:27
@WeNurses Honest and realistic discussions about the utility and limitations of new treatments/technologies is key. #WeNurses
@knitknitqueen
11 November 2020 20:27
@WeNurses depends .. some programmes can be thought provoking, like house. I miss House #WeNurses
@WeNurses
11 November 2020 20:28
Does anyone find this ? #WeNurses https://twitter.com/EdGenomesEdu/status/1326622598432780288
@WeNurses
11 November 2020 20:28
RT @MarcelleTauber: @AlisonPope4 @WeNurses Yes ... and often with a species supremacy/taking over the world/dystopia element ?? #WeNurses
@WeNurses
11 November 2020 20:28
RT @knitknitqueen: @WeNurses depends .. some programmes can be thought provoking, like house. I miss House #WeNurses
@knitknitqueen
11 November 2020 20:29
@jeanleo999 @EdGenomesEdu @AgencyNurse yep and more education needs to be done.. lockdown is giving peeps too much time on their hands #WeNurses
@jo_swidenbank
11 November 2020 20:29
@EdGenomesEdu @WeNurses Not in practice (as I was working within a specific clinical speciality) but with friends and family I have had these discussions! #wenurses
@gremlin2c
11 November 2020 20:30
@WeNurses #WeNurses I suspect as professionals we are good at managing expectations with confidence in areas we are used to -when something is new or innovative for us andbeen recent dramas which could be the same kind of subject, it is important to hear their understanding first
@EdGenomesEdu
11 November 2020 20:30
@AgencyNurse I guess there must be a skill though to the conversation though so as not to belittle beliefs or ideas? #WeNurses
@jeanleo999
11 November 2020 20:31
@knitknitqueen @EdGenomesEdu @AgencyNurse Ahhh now - the great google ???????? no matter how many times we are told not to look???? that’s another story. But I think patients tend to frighten themselves more with that and then need lots of reassurance #WeNurses
@Winn_on_Health
11 November 2020 20:31
@WeNurses Best not to dismiss popular portrays but to explain that fiction or fictionalised versions of healthcare are fascinating but nearly as fascinating as the work we really do. #WeNurses
@AgencyNurse
11 November 2020 20:31
When i first saw this discussion ... i thought there's not much mention of genetics in popular culture ... but the more i thought about it the more i realised that it's everywhere !!!! In the news, on TV, in films ... we are bombarded with it ! #WeNurses
@reboverend_RNc
11 November 2020 20:32
@jo_swidenbank @WeNurses I agree. We have set a culture of cure or fail...the reality is most people with chronic health issues have to learn to live with it in a new way. But it’s not very heroic or provides a happy ending does it?! #WeNurses
@jo_swidenbank
11 November 2020 20:32
@MarcelleTauber @WeNurses @AlisonPope4 Genomics has some dark historical roots in eugenics, which has even carried over to some other healthcare tools which are still used today (for example, BMI). #wenurses
@DeborahLakeland
11 November 2020 20:33
Hello! I am Debs and I am Cancer Genomics Project Manager for the @LSC_CA_ALLIANCE and very much looking forward to the chat #wenurses https://twitter.com/wenurses/status/1326616273422327808
@Marie_Batey
11 November 2020 20:33
@EdGenomesEdu @AgencyNurse Definitely. It’s a skill to say ‘to be honest, I’m not sure that’s correct’ or ‘I don’t know... but maybe let’s find out together’. #WeNurses
@EdGenomesEdu
11 November 2020 20:33
@AgencyNurse It really is when you look for it, and often coming with high expectations compared to the reality of what it can do #WeNurses
@jeanleo999
11 November 2020 20:33
#Wenurses (forgot the hashtag again ????) https://twitter.com/jeanleo999/status/1326622719576862723
@AgencyNurse
11 November 2020 20:33
@EdGenomesEdu yeah - sorry was shortening for Twitter !! It's about listening, sometimes even agreeing that that programme / news article / film was interesting and have a real conversation #WeNurses
@reboverend_RNc
11 November 2020 20:34
@jeanleo999 @knitknitqueen @EdGenomesEdu @AgencyNurse Why it is important to be aware of what’s out there to signpost people to reputable sources. Knowledge can be powerful #WeNurses
@gremlin2c
11 November 2020 20:34
@AgencyNurse #WeNurses “The A word” talked about the 100k genome project. “Orphan Black” talked about the genome and cloning
@Marie_Batey
11 November 2020 20:34
@Winn_on_Health @WeNurses Absolutely! #WeNurses
@AgencyNurse
11 November 2020 20:34
@EdGenomesEdu It's like gold cars .... you think there are none until you start to be more concious of them, then you realise they are everywhere !! #WeNurses
@WeNurses
11 November 2020 20:35
QUESTION 4 From the animated DNA in Jurassic Park, genomics has featured in popular culture in various ways. What examples have you seen? #WeNurses https://t.co/TYp9zkbyLg
@AlisonPope4
11 November 2020 20:35
@gremlin2c @WeNurses #WeNurses it must also be difficult for those HCPs without a genetics or genomics background. How do we support the non-specialists to answer questions when they arise as a result of seeing something on TV or in a film?
@MarcelleTauber
11 November 2020 20:35
@WeNurses This only be done by talking, listening, establishing a trusting relationship, honesty, probably a little humour when required & presenting info in a way the pt 'gets' with kindly reinforcement. If you want to support patient experience these must be key. #WeNurses
@AgencyNurse
11 November 2020 20:35
@Marie_Batey @EdGenomesEdu really great point Marie .... not knowing is fine, we should know our limitations .. finding out together is a great approach #WeNurses
@jeanleo999
11 November 2020 20:35
Exactly #WeNurses https://twitter.com/reboverend_rnc/status/1326624293699129351
@WeNurses
11 November 2020 20:35
#WeNurses https://t.co/eSmzvIpW1t
@AgencyNurse
11 November 2020 20:36
@DonnaKirwan3 thanks Donna #WeNurses
@EdGenomesEdu
11 November 2020 20:36
@reboverend_RNc @jeanleo999 @knitknitqueen @AgencyNurse What would you class as a reputable resource? #WeNurses
@WeNurses
11 November 2020 20:36
Excellent point #WeNurses https://twitter.com/reboverend_RNc/status/1326624293699129351
@WeNurses
11 November 2020 20:36
RT @gremlin2c: @AgencyNurse #WeNurses “The A word” talked about the 100k genome project. “Orphan Black” talked about the genome and cloning
@DonnaKirwan3
11 November 2020 20:36
...and this should continue throughout the patient’s journey. Not just a one off event #WeNurses https://twitter.com/marcelletauber/status/1326624576428793856
@WeNurses
11 November 2020 20:37
Good question ! #WeNurses https://twitter.com/EdGenomesEdu/status/1326624791072268291
@jeanleo999
11 November 2020 20:37
@EdGenomesEdu @reboverend_RNc @knitknitqueen @AgencyNurse I often share up to date Nice guidance with patients #WeNurses
@WeNurses
11 November 2020 20:37
All great points #WeNurses https://twitter.com/MarcelleTauber/status/1326624576428793856
@gremlin2c
11 November 2020 20:37
@AlisonPope4 @WeNurses I guess the main thing is to ensure they know about the resources that are available and that they are comfortable to say they don’t know but will ask. @genomicsedu has fantastic resources for all levels #WeNurses
@jo_swidenbank
11 November 2020 20:37
@WeNurses Showing my age, but the film GATTACA was probably the first time I saw genomics within a film and grasped what it meant (I was 8 when Jarassic Park came out!) #wenurses
@knitknitqueen
11 November 2020 20:37
@AgencyNurse @EdGenomesEdu I need to get out more xx #WeNurses
@EdGenomesEdu
11 November 2020 20:37
@jeanleo999 @reboverend_RNc @knitknitqueen @AgencyNurse Do you patients find these helpful? #WeNurses
@DeborahLakeland
11 November 2020 20:37
@jo_swidenbank @WeNurses Direct to consumer tests with clinical significant findings are not validated and therefore not acted upon to my knowledge #wenurses
@chloe__nichole
11 November 2020 20:37
@WeNurses #WeNurses emphasis on positive discussions, working together with the patient to give accessible information. Not always as simple! but I think communication is key when there are differing expectations.
@WeNurses
11 November 2020 20:39
QUESTION 4 From the animated DNA in Jurassic Park, genomics has featured in popular culture in various ways. What examples have you seen? #WeNurses
@MarcelleTauber
11 November 2020 20:39
@chloe__nichole @WeNurses @genomicsedu Welcome Chloe and thanks fir joining in! I agree with you! #WeNurses
@reboverend_RNc
11 November 2020 20:39
@EdGenomesEdu @jeanleo999 @knitknitqueen @AgencyNurse That’s a great question Ed! I think it may be knowing what the patient wants to know? As a paeds RN I look for parent websites with correct info right through to articles. Even a free genomics session so they understand the language and science if they want to. #WeNurses
@jo_swidenbank
11 November 2020 20:39
@DeborahLakeland @WeNurses Would that mean someone presenting to their GP with a clinically significant DTC result would need to be referred to genetics? #WeNurses
@EdGenomesEdu
11 November 2020 20:39
@jo_swidenbank @WeNurses This film gets quoted a lot when genetics and genomics is discussed. Interesting that it still is. #WeNurses
@jo_swidenbank
11 November 2020 20:41
@EdGenomesEdu @WeNurses It came out around the same time Dolly the sheep was making headlines and there was a bit of a ‘moral panic’ about what reproductive genomic technologies would mean #wenurses
@Winn_on_Health
11 November 2020 20:41
@jeanleo999 @knitknitqueen @EdGenomesEdu @AgencyNurse Some patients may frighten themselves. Others will sift and sort information and come to consultations with a good understanding of background (some with a distorted view), and questions. IMO the questions are the really useful bit of the conversation / consultation #WeNurses
@jeanleo999
11 November 2020 20:42
@EdGenomesEdu @reboverend_RNc @knitknitqueen @AgencyNurse It depends on the patient but a fair few have found it helpful in terms of knowing their treatment is evidence based and are reassured when they have an idea of how treatment options are considered step by step. Makes treatment decisions a shared decision #WeNurses
@Marie_Batey
11 November 2020 20:42
@jo_swidenbank @WeNurses What film is this? #WeNurses :) #ShowingMyAgeNow ...
@gremlin2c
11 November 2020 20:42
@jo_swidenbank @EdGenomesEdu @WeNurses That still influences many people’s attitudes to anything to do with genetics. #WeNurses
@reboverend_RNc
11 November 2020 20:43
@EdGenomesEdu @jeanleo999 @knitknitqueen @AgencyNurse Apps for things like congenital heart disease, YT videos...we should offer the same to families as we do each other. They are the ones doing the care when they go home & in why shouldn’t they know what we know? Not a power game #WeNurses
@PatriciaSelway
11 November 2020 20:43
#WeNurses. Needing a bit of help here... Opportunities for nursing please... Where you are hard of hearing, lipread, and you are dealing with masks. I'm really struggling right now.
@EdGenomesEdu
11 November 2020 20:43
@jo_swidenbank @WeNurses The idea of 'designer babies' is a common conversation I still have when talking genomics #WeNurses
@jeanleo999
11 November 2020 20:44
@Winn_on_Health @knitknitqueen @EdGenomesEdu @AgencyNurse True - there are always positives to the interweb ??#WeNurses
@WeNurses
11 November 2020 20:44
QUESTION 5 Do stories featuring complex topics in healthcare, like genomics, motivate you to learn more? #WeNurses https://t.co/pID7AaJg7s
@genomicsedu
11 November 2020 20:44
RT @WeNurses: QUESTION 5 Do stories featuring complex topics in healthcare, like genomics, motivate you to learn more? #WeNurses https://…
@DonnaKirwan3
11 November 2020 20:44
Wouldn’t it be fantastic if @genomicsedu could develop learning resources for schools #WeNurses https://twitter.com/gremlin2c/status/1326625114469888000
@DeborahLakeland
11 November 2020 20:44
@jo_swidenbank @WeNurses I would say that they should probably be investigated through the Genomic Medicine Service and any findings of a clinically significant nature would be validated by a second test centre, and a referral to Clinical Genetics for proper management. #wenurses
@EdGenomesEdu
11 November 2020 20:44
@jeanleo999 @reboverend_RNc @knitknitqueen @AgencyNurse Guess you tailor the support for the patient? #WeNurses
@WeNurses
11 November 2020 20:45
RT @DonnaKirwan3: ...and this should continue throughout the patient’s journey. Not just a one off event #WeNurses https://twitter.com/marcelletauber/status/1326624576428793856
@Winn_on_Health
11 November 2020 20:45
@EdGenomesEdu @reboverend_RNc @jeanleo999 @knitknitqueen @AgencyNurse A reputable source can be what you want it to be - selection bias, amongst others, can creep in. Healthcare professionals have a role in discussing & pointing patients to sources, & in interpreting information for patients in the context of the consult #WeNurses
@jeanleo999
11 November 2020 20:45
@EdGenomesEdu @reboverend_RNc @knitknitqueen @AgencyNurse Yes but I think we all do that ??#WeNurses
@jo_swidenbank
11 November 2020 20:45
@EdGenomesEdu @WeNurses Yes, the ‘designer baby’ idea casts a long shadow! And again comes full circle to eugenics. #wenurses
@WeNurses
11 November 2020 20:46
We agree and all the resources can be found here > https://www.genomicseducation.hee.nhs.uk/ #WeNurses #EBP https://twitter.com/gremlin2c/status/1326625114469888000
@WeNurses
11 November 2020 20:46
RT @chloe__nichole: @WeNurses #WeNurses emphasis on positive discussions, working together with the patient to give accessible information.…
@EdGenomesEdu
11 November 2020 20:46
@DonnaKirwan3 @genomicsedu Its something we may look to in the future after all schools contain the nurses and HCP of the future :) #WeNurses
@gillmosswillink
11 November 2020 20:46
The Genomics 101 is perfect for signposting professionals who want to learn more #WeNurses https://twitter.com/gremlin2c/status/1326625114469888000
@AgencyNurse
11 November 2020 20:46
RT @WeNurses: QUESTION 5 Do stories featuring complex topics in healthcare, like genomics, motivate you to learn more? #WeNurses https://…
@Marie_Batey
11 November 2020 20:46
@DonnaKirwan3 @genomicsedu I really like this idea, and I’d add for parents too. It’s all our future so we should invest in taking people with us. #WeNurses
@Winn_on_Health
11 November 2020 20:46
@jeanleo999 @knitknitqueen @EdGenomesEdu @AgencyNurse And a load of .... (use your own descriptor!) #WeNurses
@WeNurses
11 November 2020 20:46
RT @gillmosswillink: The Genomics 101 is perfect for signposting professionals who want to learn more #WeNurses https://twitter.com/gremlin2c/status/1326625114469888000
@gremlin2c
11 November 2020 20:47
@EdGenomesEdu @jo_swidenbank @WeNurses Very much the case especially after gene therapy carried out in utero #WeNurses
@WeNurses
11 November 2020 20:47
absolutely #WeNurses https://twitter.com/EdGenomesEdu/status/1326627343767572482
@DonnaKirwan3
11 November 2020 20:47
Also many people rely on stories eg women’s magazines which tend to portray a negative experiences. #WeNurses
@knitknitqueen
11 November 2020 20:47
@WeNurses depends on where I see it #WeNurses
@MarcelleTauber
11 November 2020 20:47
@WeNurses Yes, it does. Difficult to know what the grain(s) of truth are in the science fiction, so initial research can be difficult but in the main, yes. However talking or tweeting with knowledgable colleagues helps more! ?? #WeNurses
@DeborahLakeland
11 November 2020 20:47
@DonnaKirwan3 @genomicsedu I have developed some Genomics education for schools in Preston. Currently working on expanding this programme #wenurses
@jo_swidenbank
11 November 2020 20:48
@WeNurses As a constantly curious person, if there is a healthcare storyline in a film/show with something I’m not familiar with I will immediately go down a rabbit hole learning about it ?? #wenurses
@EdGenomesEdu
11 November 2020 20:48
And FREE to NHS staff #WeNurses https://twitter.com/WeNurses/status/1326627277258584067
@WeNurses
11 November 2020 20:48
Well said :D #WeNurses https://twitter.com/MarcelleTauber/status/1326627707678027779
@reboverend_RNc
11 November 2020 20:48
@EdGenomesEdu @jeanleo999 @knitknitqueen @AgencyNurse Just like everything else we do! As a parent of child with #Autism the worst thing was not knowing where to start looking & knowing what to trust in first few weeks...you are looking for something to say it’s not true or a magic answer- let’s help people on the journey #WeNurses
@Marie_Batey
11 November 2020 20:48
RT @gillmosswillink: The Genomics 101 is perfect for signposting professionals who want to learn more #WeNurses
@WeNurses
11 November 2020 20:48
RT @EdGenomesEdu: And FREE to NHS staff #WeNurses https://twitter.com/WeNurses/status/1326627277258584067
@AlisonPope4
11 November 2020 20:48
@DonnaKirwan3 @genomicsedu #WeNurses good point! It does need looking at, especially as the school children take the health messages back to their families too.
@gremlin2c
11 November 2020 20:49
RT @WeNurses: We agree and all the resources can be found here > https://www.genomicseducation.hee.nhs.uk/ #WeNurses #EBP
@gillmosswillink
11 November 2020 20:49
RT @WeNurses: We agree and all the resources can be found here > https://www.genomicseducation.hee.nhs.uk/ #WeNurses #EBP
@jo_swidenbank
11 November 2020 20:49
RT @EdGenomesEdu: And FREE to NHS staff #WeNurses
@gremlin2c
11 November 2020 20:49
RT @gillmosswillink: The Genomics 101 is perfect for signposting professionals who want to learn more #WeNurses
@DeborahLakeland
11 November 2020 20:49
@Marie_Batey @DonnaKirwan3 @genomicsedu In the Genomics education programme I developed locally parents, guardians and teachers benefited from the experience as well as pupils #wenurses
@EdGenomesEdu
11 November 2020 20:49
@MarcelleTauber @WeNurses Hope this is helping #WeNurses
@Marie_Batey
11 November 2020 20:49
@EdGenomesEdu @DonnaKirwan3 @genomicsedu Exactly! #WeNurses And imagine how fab it would be if children / young people myth busted at the dinner table...
@jeanleo999
11 November 2020 20:49
@Winn_on_Health @knitknitqueen @EdGenomesEdu @AgencyNurse ????????that too ???? #WeNurses
@Marie_Batey
11 November 2020 20:49
RT @WeNurses: We agree and all the resources can be found here > https://www.genomicseducation.hee.nhs.uk/ #WeNurses #EBP
@WeNurses
11 November 2020 20:49
That's brilliant to hear #WeNurses https://twitter.com/DeborahLakeland/status/1326628068044251137
@Winn_on_Health
11 November 2020 20:49
@EdGenomesEdu @DonnaKirwan3 @genomicsedu Have a conversation with: http://www.genomicsforschools.org/ #WeNurses
@DeborahLakeland
11 November 2020 20:49
@saksART @DonnaKirwan3 @genomicsedu Absolutely! I am working on it behind the scenes #wenurses
@MarcelleTauber
11 November 2020 20:50
RT @WeNurses: We agree and all the resources can be found here > https://www.genomicseducation.hee.nhs.uk/ #WeNurses #EBP
@Marie_Batey
11 November 2020 20:50
@EdGenomesEdu @jeanleo999 @reboverend_RNc @knitknitqueen @AgencyNurse That’s one of the privileges of the nursing / midwifery role. #WeNurses
@EdGenomesEdu
11 November 2020 20:51
@Winn_on_Health @DonnaKirwan3 @genomicsedu Thanks for sharing #WeNurses
@gillmosswillink
11 November 2020 20:51
I have to agree #WeNurses ???????? https://twitter.com/marcelletauber/status/1326627707678027779
@jeanleo999
11 November 2020 20:51
I think so too #WeNurses https://twitter.com/marie_batey/status/1326628469468491782
@AgencyNurse
11 November 2020 20:51
Yep no doubt about it #WeNurses https://twitter.com/WeNurses/status/1326626803855843330
@gremlin2c
11 November 2020 20:51
@Marie_Batey @EdGenomesEdu @DonnaKirwan3 @genomicsedu There are a lot of events and special activities put on around this for school children especially during health science week. #WeNurses
@reboverend_RNc
11 November 2020 20:52
@Marie_Batey @EdGenomesEdu @jeanleo999 @knitknitqueen @AgencyNurse I agree with you Marie- the magic of our craft is making science and humanism meld in a way that is unique for them. #WeNurses
@EdGenomesEdu
11 November 2020 20:52
@genomicsedu @gremlin2c @WeNurses #WeNurses
@Marie_Batey
11 November 2020 20:52
RT @EdGenomesEdu: And FREE to NHS staff #WeNurses
@AgencyNurse
11 November 2020 20:52
could not agree more #WeNurses https://twitter.com/reboverend_RNc/status/1326628832758140934
@gremlin2c
11 November 2020 20:53
RT @EdGenomesEdu: @genomicsedu @gremlin2c @WeNurses #WeNurses
@Marie_Batey
11 November 2020 20:53
@reboverend_RNc @EdGenomesEdu @jeanleo999 @knitknitqueen @AgencyNurse Love this! #Melding #ItIsWhatWeDo #WeNurses
@Winn_on_Health
11 November 2020 20:54
@WeNurses Absolutely! As a teenager I read The Jupiter Legacy - the first pages describe scanning an injured victim's implanted chip for biomed data ... that was 1974: I've been hooked since. #WeNurses
@DeborahLakeland
11 November 2020 20:54
@MellyJWatson @WeNurses @jo_swidenbank Exactly. How reliable is there data? ?? #wenurses
@WeNurses
11 November 2020 20:54
wow sounds like a great read ! #WeNurses https://twitter.com/Winn_on_Health/status/1326629329414090752
@Marie_Batey
11 November 2020 20:55
@gremlin2c @EdGenomesEdu @DonnaKirwan3 @genomicsedu In that case need to get a plan together for Health Science Week. #WeNurses
@WeNurses
11 November 2020 20:55
QUESTION 6 Where do you go to find out more about complex topics, like genomics? #WeNurses https://t.co/W2PimhEUYT
@genomicsedu
11 November 2020 20:55
RT @WeNurses: QUESTION 6 Where do you go to find out more about complex topics, like genomics? #WeNurses https://t.co/W2PimhEUYT
@jo_swidenbank
11 November 2020 20:55
@WeNurses For me it was Brave New World - always loved a sci-fi dystopia! #wenurses
@gillmosswillink
11 November 2020 20:55
RT @Winn_on_Health: @EdGenomesEdu @DonnaKirwan3 @genomicsedu Have a conversation with: http://www.genomicsforschools.org/ #WeNurses
@EdGenomesEdu
11 November 2020 20:56
@WeNurses Is there enough information out there about genomics if not how can @genomicsedu help? #WeNurses
@jeanleo999
11 November 2020 20:56
@DeborahLakeland @Marie_Batey @DonnaKirwan3 @genomicsedu I think I would probably need to attend to get the basics. Shows how well you know your stuff if you can communicate it to all levels of people, fair play. #WeNurses
@gremlin2c
11 November 2020 20:56
There are some brilliant free course out there #wenurses https://twitter.com/wenurses/status/1326629541750706176
@AgencyNurse
11 November 2020 20:56
Well the @genomicsedu webpage > https://www.genomicseducation.hee.nhs.uk/ BUT i would not have know about this without Twitter .... so would have to say Twitter #AskTheCrowd #WeNurses https://twitter.com/WeNurses/status/1326629541750706176
@WeNurses
11 November 2020 20:57
RT @gremlin2c: There are some brilliant free course out there #wenurses https://twitter.com/wenurses/status/1326629541750706176
@EdGenomesEdu
11 November 2020 20:57
@jo_swidenbank @WeNurses Such an amazing book. #WeNurses
@WeNurses
11 November 2020 20:57
Thoughts ? #WeNurses https://twitter.com/EdGenomesEdu/status/1326629772957511680
@WeNurses
11 November 2020 20:57
RT @jo_swidenbank: @WeNurses For me it was Brave New World - always loved a sci-fi dystopia! #wenurses
@MarcelleTauber
11 November 2020 20:57
@WeNurses I go to @Marie_Batey ! #weNurses
@gbtpo
11 November 2020 20:58
A6 my go to is @VickyCuthill an amazing nurse specialist who runs the polyposis registry @StMarksHosp - she writes a lot of informative genomics articles #WeNurses https://twitter.com/wenurses/status/1326629541750706176
@jeanleo999
11 November 2020 20:58
@Marie_Batey @reboverend_RNc @EdGenomesEdu @knitknitqueen @AgencyNurse Some #melding and some #meddling ? ????????#WeNurses
@Winn_on_Health
11 November 2020 20:58
@WeNurses Academic journals Specialist news reporting webpages Organisational webpages University webages Specialist community groups on Social Media Books by recognised leaders in the fields #WeNurses
@DeborahLakeland
11 November 2020 20:58
@jeanleo999 @Marie_Batey @DonnaKirwan3 @genomicsedu Done an MSc Genomic Medicine with @DonnaKirwan3 so I have a little knowledge in this vast field #wenurses
@knitknitqueen
11 November 2020 20:58
@Marie_Batey @EdGenomesEdu @jeanleo999 @reboverend_RNc @AgencyNurse Dont forget the other roles as well #WeNurses
@gremlin2c
11 November 2020 20:58
@EdGenomesEdu @WeNurses @genomicsedu A greater link to all education teams in Trusts. Asking for links to be put on trust intranets. Maybe arranging workshops - virtually of course #WeNurses
@DonnaKirwan3
11 November 2020 20:58
I love listening to @KatArney podcasts they are so informative and easy to understand #WeNurses https://twitter.com/gremlin2c/status/1326630004520865792
@WeNurses
11 November 2020 20:58
And what an excellent resource she is :D #WeNurses https://twitter.com/MarcelleTauber/status/1326630199006531585
@reboverend_RNc
11 November 2020 20:58
@WeNurses Online ??????? On YT ?? On here! ?? #WeNurses
@jo_swidenbank
11 November 2020 20:58
@WeNurses @genomicsedu have excellent resources, but I also am partial to a google scholar search to read up to date research. Plus my experienced colleagues on Twitter! #WeNurses
@EdGenomesEdu
11 November 2020 20:58
@gbtpo @VickyCuthill @StMarksHosp @VickyCuthill is fantastic #WeNurses
@gremlin2c
11 November 2020 20:59
@AgencyNurse @genomicsedu Great point Tre. #WeNurses
@WeNurses
11 November 2020 20:59
Thanks @gbtpo #WeNurses https://twitter.com/gbtpo/status/1326630279482630153
@genomicsedu
11 November 2020 20:59
@gremlin2c We have a range of free online short courses and more in-depth taught courses with our partner universities. Check out our website for more details: https://www.genomicseducation.hee.nhs.uk/ #WeNurses
@Marie_Batey
11 November 2020 20:59
@WeNurses I think we also need to look within our own organisations too. Often there are colleagues doing amazing work on #Genomics that we aren’t sighted on. Such as Genomic Counsellors etc. #WeNurses All are very helpful resources.
@AgencyNurse
11 November 2020 21:00
@MarcelleTauber @WeNurses @Marie_Batey #AskMarie :D #WeNurses
@Winn_on_Health
11 November 2020 21:00
@gremlin2c @jo_swidenbank @WeNurses Recommend trying the book first though. The trailers for the series don't appeal to me at all. #WeNurses
@WeNurses
11 November 2020 21:00
Great point .... and perhaps also our librarian colleagues #WeNurses https://twitter.com/Marie_Batey/status/1326630740717662213
@DeborahLakeland
11 November 2020 21:01
@jeanleo999 There are lots of resources at all levels to get you started. Follow @genomicsedu #wenurses
@nursemaiden
11 November 2020 21:01
@WeNurses This area is of great interest to me having a son with a rare auto inflammatory disease which was diagnosed with genetic testing at The Royal Free #wenurses
@WeNurses
11 November 2020 21:01
AND FINALLY What can HEE do to support you? #WeNurses https://t.co/0XXAgoWMFS
@genomicsedu
11 November 2020 21:02
RT @WeNurses: AND FINALLY What can HEE do to support you? #WeNurses https://t.co/0XXAgoWMFS
@knitknitqueen
11 November 2020 21:02
@WeNurses The library.. I miss librarians #WeNurses
@genomicsedu
11 November 2020 21:02
RT @DeborahLakeland: @jeanleo999 There are lots of resources at all levels to get you started. Follow @genomicsedu #wenurses
@AgencyNurse
11 November 2020 21:02
Now's a great time to say what support you need in relation to genomics :D #WeNurses https://twitter.com/WeNurses/status/1326631206444814345
@jeanleo999
11 November 2020 21:02
@DeborahLakeland @genomicsedu Will take a look- thanks #WeNurses
@DonnaKirwan3
11 November 2020 21:02
#WeNurses keep developing and doing what you do! Harness ideas https://twitter.com/wenurses/status/1326631206444814345
@WeNurses
11 November 2020 21:02
They are still there ..... the will be back :D #WeNurses https://twitter.com/knitknitqueen/status/1326631341434277888
@EdGenomesEdu
11 November 2020 21:03
@nursemaiden @WeNurses How did you find your conversations with healthcare professionals when talking about your sons care? #WeNurses
@sawherry
11 November 2020 21:03
RT @WeNurses: We agree and all the resources can be found here > https://www.genomicseducation.hee.nhs.uk/ #WeNurses #EBP https://twitter.com/gremlin2c/status/1326625114469888000
@Winn_on_Health
11 November 2020 21:03
@WeNurses Popular culture such as films are a god way to explore existential dimensions of science. The film 'Anon' is great if you're into AI. Bladerunner is also on my list of rewatch films; not for the realism, but for the expansion of the possible #WeNurses
@jo_swidenbank
11 November 2020 21:03
@WeNurses In Wales @GenomicsWales have recently recruited Genomics Champions, one in each health board to provide information and promote genomics within their respective health boards ?? #WeNurses
@gremlin2c
11 November 2020 21:03
#WeNurses Have you also listened to The GeneticsUnzipped Podcast which has some good discussions https://genetics.org.uk/news/genetics-unzipped-podcast-is-launched/ https://twitter.com/winn_on_health/status/1326630348705443841
@WeNurses
11 November 2020 21:04
Ooooh another great link #WeNurses #EBP https://twitter.com/gremlin2c/status/1326631781366423554
@DeborahLakeland
11 November 2020 21:04
@DonnaKirwan3 Signpost learning @genomicsedu #wenurses
@Marie_Batey
11 November 2020 21:04
My goodness! I have found so much out tonight about #Genomics and, as always, otter things. Well done to you all and thank you for all you’ve shared. #WeNurses https://t.co/2kc4TjBVsW
@ginReaper
11 November 2020 21:04
RT @WeNurses: QUESTION 6 Where do you go to find out more about complex topics, like genomics? #WeNurses https://t.co/W2PimhEUYT
@WeNurses
11 November 2020 21:05
That's all for tonight everyone ... can we please extend a huge THANK YOU to @genomicsedu for such a fab discussion If you want to find out more about genomics go and have an explore of their fab website > https://www.genomicseducation.hee.nhs.uk/ #WeNurses https://t.co/acpkeOKfyU
@WeNurses
11 November 2020 21:05
Next week is #SelfCareWeek AND the @SelfCareForum will be taking over WeNurses on Wed 18th Nov with a tweetchat from 8pm - 9pm Read more here > http://www.wecommunities.org/blogs/3577 #WeNurses https://t.co/96RveY8wbI
@genomicsedu
11 November 2020 21:05
@AgencyNurse Yes please, we have a great range of resources and supporting materials on our website but we are always on the look out ideas for new things... #WeNurses
@WeNurses
11 November 2020 21:05
Thanks for joining us Marie and we are so pleased it has been a useful hour for you #WeNurses https://twitter.com/Marie_Batey/status/1326631973499101184
@EdGenomesEdu
11 November 2020 21:05
@wellcomegenome also have some great public facing resources #WeNurses
@nursemaiden
11 November 2020 21:05
@EdGenomesEdu @WeNurses #Wenurses sadly knowledge lacking in acute hospitals and have relied on our immunologist being our advocate with emergency medicine. Specialist hospital in London and treatment has been life changing for us all.
@gremlin2c
11 November 2020 21:06
@nursemaiden @WeNurses As someone with personal interest, what information do you feel should be available to public, patients and relatives and where would you want to be able to find it? #WeNurses
@AgencyNurse
11 November 2020 21:06
Yes THANK YOU @genomicsedu ... fantastic topic and fantastic discussion #WeNurses https://twitter.com/WeNurses/status/1326632085797351426
@DeborahLakeland
11 November 2020 21:06
@DonnaKirwan3 Me too @DonnaKirwan3 Every day is a Genomics school day. What a time to be alive! #wenurses
@WeNurses
11 November 2020 21:06
RT @EdGenomesEdu: @wellcomegenome also have some great public facing resources #WeNurses
@jo_swidenbank
11 November 2020 21:07
@WeNurses @genomicsedu Thank you for an excellent discussion! #WeNurses
@DonnaKirwan3
11 November 2020 21:07
Enjoyed the rolls coaster texting ride @genomicsedu Thanks for sharing #WeNurses https://t.co/91NmKvMAcl
@WeNurses
11 November 2020 21:07
Well said #WeNurses https://twitter.com/DeborahLakeland/status/1326632464144592896
@gremlin2c
11 November 2020 21:07
@jo_swidenbank @WeNurses @GenomicsWales It’s a brilliant idea and would be good if we were able to emulate that in all nations of the UK #WeNurses
@EdGenomesEdu
11 November 2020 21:07
Thanks to all for a great discussion tonight. Especially @jo_swidenbank and @gremlin2c for supporting. Really interesting and lots to go back over. Also thanks to @AgencyNurse and @WeNurses for hosting. #WeNurses
@genomicsedu
11 November 2020 21:07
@WeNurses Thank you to everyone for a great discussion. #WeNurses
@RichardSky24
11 November 2020 21:07
RT @WeNurses: Great point .... and perhaps also our librarian colleagues #WeNurses
@WeNurses
11 November 2020 21:08
Thank you all ... what a fab team :D #WeNurses https://twitter.com/EdGenomesEdu/status/1326632748371619843
@MarcelleTauber
11 November 2020 21:08
Keep online courses coming & advertise them more, add basic knowledge to undergraduate programmes, demystify the science (where possible) & keep banging the genomics drum! Tie in with #DecadeOfHealth (if not already) #WeNurses https://twitter.com/wenurses/status/1326631206444814345
@Winn_on_Health
11 November 2020 21:08
@gremlin2c Podcasts, of course! I have many book marked .... too many. But I'll look GeneticsUnzipped up ... It's a great title for starters. #WeNurses
@MarcelleTauber
11 November 2020 21:08
RT @AgencyNurse: Yes THANK YOU @genomicsedu ... fantastic topic and fantastic discussion #WeNurses
@nursemaiden
11 November 2020 21:08
@gremlin2c @WeNurses #wenurses primary care and emergency care/ acute medicine are often our first point of contact. Education needed in these areas
@knitknitqueen
11 November 2020 21:09
@WeNurses @genomicsedu Thank you #WeNurses
@chloe__nichole
11 November 2020 21:10
@WeNurses @genomicsedu Thankyou! #WeNurses
@DeborahLakeland
11 November 2020 21:10
@gremlin2c @EdGenomesEdu @WeNurses @genomicsedu Genomics is competing with COVID currently so communicating updates and getting engagement can be difficult #wenurses
@duruasya
11 November 2020 21:10
RT @EdGenomesEdu: @wellcomegenome also have some great public facing resources #WeNurses
@WeNurses
11 November 2020 21:10
YES :D #WeNurses https://twitter.com/Sybil_Ramkin/status/1326633381103333382
@gillmosswillink
11 November 2020 21:11
I concur #WeNurses @EdGenome ?? https://twitter.com/edgenomesedu/status/1326632748371619843
@reboverend_RNc
11 November 2020 21:11
@knitknitqueen @WeNurses @genomicsedu As always: thank you for great connections and learning! #WeNurses https://t.co/jrTymp8vmE
@gremlin2c
11 November 2020 21:11
@nursemaiden @WeNurses There is work starting in these areas #WeNurses
@DeborahLakeland
11 November 2020 21:12
@WeNurses @genomicsedu Good times #wenurses #generationgenome @genomicsedu
@reboverend_RNc
11 November 2020 21:13
@MarcelleTauber @WeNurses Great answer! #WeNurses
@genomicsedu
11 November 2020 21:14
@AgencyNurse Thank you to our support team @gremlin2c , @jo_swidenbank and @EdGenomesEdu and thanks @WeNurses for another fantastic chat. Lots to consider. #WeNurses
@MellyJWatson
11 November 2020 21:15
RT @gremlin2c: #WeNurses Have you also listened to The GeneticsUnzipped Podcast which has some good discussions https://genetics.org.uk/news/genetics-unzipped-podcast-is-launched/
@nursemaiden
11 November 2020 21:15
@WeNurses @genomicsedu #Wenurses I’m off to look at it now! Thank you very much ??
@DeborahLakeland
11 November 2020 21:15
@gremlin2c Which is why reaching public, patients and the healthcare workforce through Genomics Education is vital #wenurses @genomicsedu




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