#WeNurses - Thursday 9th July 2020 8pm (GMT Standard Time) Health information week - Information we can trust

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Hosted by WeNurses using #WeNurses

This chat is guest hosted by @Healthinfoweek

Health Information Week #HIW2020 runs from 6th July to the 12th of July and "is a national, multi-sector campaign promoting high-quality information for patients and the public. High quality health information can have a huge impact on people’s ability to stay healthy and manage illnesses effectively, giving them a better quality of life." (Health Information Week 2020

This year the focus of the week are:

  • Finding information you can trust 
  • Wellbeing

So we have joined forces with @healthinfoweek and will be holding a #WeNurses tweetchat during Health Information Week to explore the following questions:

  • What does high quality information look like?  
  • Do you feel your patients know where and how to access high quality information about their health condition? 
  • What are the barriers they face? 
  • What about broader physical and mental wellbeing health information for your patients?
  • What are the ways you effectively support them, and what are the things you find challenging? 
  • What support does your organisation provide in terms of patient information?
  • How do you find high quality information to support your own health and wellbeing as a nurse?

To find out more about Health Information Week and download some useful resources please CLICK HERE 

  

About our guests

@LindsaySnell - Lindsay is a Clinical Librarian at University Hospitals of Derby and Burton NHS Foundation Trust. Her role is to support clinical and management teams to make the best use of the latest evidence. She is passionate about the role of high quality information in improving patient care. 

@cmmclaren - Catherine is a Library Knowledge Services Development Manager at Health Education England working across East of England and the Midlands. She works as part of a national team to supports the development and delivery of NHS Library and Knowledge Service staff and services.





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 #WeNurses transcript

 
@WeNurses
09 July 2020 20:02
It's time to stop scrolling and start chatting !!! Welcome to #WeNurses Tonight we are joined by the wonderful @Healthinfoweek and our topic is "Information you can trust" Please tweet us a hello and let us know any first thoughts you have https://t.co/j02AiavaEc
@AgencyNurse
09 July 2020 20:03
Hello Teresa here :D #WeNurses https://twitter.com/WeNurses/status/1281302745811759104
@samanthaclare
09 July 2020 20:03
Hello to the fabulous #WeNurses folks. I am Sam from @HHLibService and this looks to be a good conversation! #HIW2020
@tomroper
09 July 2020 20:04
Good evening #WeNurses #HIW2020 Tom here, Clinical Librarian at @BrightonSx_LKS #WeNurses Also part of the #ukmedlibs collective
@WeNurses
09 July 2020 20:04
Great to see you here #WeNurses https://twitter.com/samanthaclare/status/1281303060950777858
@WeNurses
09 July 2020 20:04
Welcome - we hope your shift went well ? #WeNurses https://twitter.com/PUNC_Hazel/status/1281303160108302342
@Gembley
09 July 2020 20:04
Hello ?? #WeNurses
@WeNurses
09 July 2020 20:05
QUESTION 1 What does high quality information look like? #WeNurses https://t.co/voxZZaiNk2
@WeNurses
09 July 2020 20:05
Hi Tom - thanks for joining us #WeNurses https://twitter.com/tomroper/status/1281303199463464961
@WeNurses
09 July 2020 20:05
@Gembley Hi Gemma #WeNurses
@Healthinfoweek
09 July 2020 20:05
Hello! Really excited to be here with #wenurses . I'm Lindsay, usually tweeting @LindsaySnell, here as @Healthinfoweek today. #HIW2020
@AgencyNurse
09 July 2020 20:06
Evidence based is the obvious answer ... but its more than that, it has to be accessible, understandable and fit for purpose #WeNurses https://twitter.com/WeNurses/status/1281303379466223617
@Its_Me_Alie
09 July 2020 20:06
@WeNurses @Healthinfoweek Hello #wenurses is this also about how we are supported in the actions we take as a direct result of the information received? Ie- do you trust it implicitly?
@nadeshka99
09 July 2020 20:06
@WeNurses @Healthinfoweek Hello #WeNurses , I am Nadia, and looking forward to your chat about information we can trust
@AgencyNurse
09 July 2020 20:07
RT @WeNurses: QUESTION 1 What does high quality information look like? #WeNurses https://t.co/voxZZaiNk2
@WeNurses
09 July 2020 20:07
Hello Lindsay :D #WeNurses https://twitter.com/Healthinfoweek/status/1281303503286272001
@RN_Emily_HPN
09 July 2020 20:07
@WeNurses @Healthinfoweek Hey all! looking forward to a natter and making new connections tonight ? #wenurses
@WeNurses
09 July 2020 20:07
Oooh interesting thought ... do we ? should we ? #WeNurses https://twitter.com/Its_Me_Alie/status/1281303829552734216
@WeNurses
09 July 2020 20:08
Hi Emily #WeNurses https://twitter.com/RN_Emily_HPN/status/1281303987027918849
@knitknitqueen
09 July 2020 20:08
@WeNurses @Healthinfoweek Looking forward to tonight's chat #wenurses
@WeNurses
09 July 2020 20:08
#WeNurses https://twitter.com/PUNC_Hazel/status/1281303976470814728
@NewcombLibrary
09 July 2020 20:08
Hello #WeNurses @WeNurses Heather @h_m17 from @NewcombLibrary ?? - just sharing this tweet from earlier this #HIW2020 ?? https://t.co/Wa7uzrXiRw
@CNSSinead
09 July 2020 20:08
Resources co-created with patients and families who have lived experience! #WeNurses https://twitter.com/wenurses/status/1281303379466223617
@WeNurses
09 July 2020 20:09
Hello and welcome Nadia #WeNurses https://twitter.com/nadeshka99/status/1281303831381409798
@samanthaclare
09 July 2020 20:09
@AgencyNurse quite - information that may be understandable for a clinician won't necessarily be understandable to a patient. It is important to have the right level of information for the right person. #WeNurses #HIW2020
@samanthaclare
09 July 2020 20:09
RT @NewcombLibrary: Hello #WeNurses @WeNurses Heather @h_m17 from @NewcombLibrary ?? - just sharing this tweet from earlier this #HIW2020 ??…
@WeNurses
09 July 2020 20:09
Hello and welcome #WeNurses :D https://twitter.com/librarymoomin/status/1281303507199578125
@RN_Emily_HPN
09 July 2020 20:09
@WeNurses It might seem like an obvious one but clear and concise. #wenurses
@Healthinfoweek
09 July 2020 20:09
@Its_Me_Alie @WeNurses Yes - working out how to apply the information, and if you trust it enough, and what to do when there is no information, is important but can be tough #WeNurses
@WeNurses
09 July 2020 20:09
Great to see you here #WeNurses https://twitter.com/cmmclaren/status/1281303495694565376
@nadeshka99
09 July 2020 20:09
@WeNurses Information that I can research further, that has a credible author behind it, definitely evidence based , best with some data too #WeNurses
@cmmclaren
09 July 2020 20:10
@AgencyNurse Yes, #HealthLiteracy making sure information is accessible, understandable and fit for purpose is all part of high quality information #WeNurses
@AgencyNurse
09 July 2020 20:10
@samanthaclare I agree and making things understandable is a challenge ... coming from a dyslexia point of view here ... but many other challenges to high quality info #WeNurses
@samanthaclare
09 July 2020 20:10
@Its_Me_Alie @WeNurses @Healthinfoweek that's a good question I think - if you're basing your clinical care on the information then you need to be able to know that you've critically analysed the information and believe it to be the best method at the current time. #HIW2020 #WeNurses
@Healthinfoweek
09 July 2020 20:11
Yes - patients and families will sometimes be interested in different aspects of a condition than health professionals so it's important that they're involved #WeNurses https://twitter.com/CNSSinead/status/1281304327970267136
@JaneVsw
09 July 2020 20:11
RT @NewcombLibrary: Hello #WeNurses @WeNurses Heather @h_m17 from @NewcombLibrary ?? - just sharing this tweet from earlier this #HIW2020 ??…
@WeNurses
09 July 2020 20:12
yes indeed #WeNurses https://twitter.com/katietatiedon/status/1281304942293245955
@tomroper
09 July 2020 20:12
Usually a cast-iron defence in court/fitness to practice proceedings #wenurses https://twitter.com/samanthaclare/status/1281304846348554242
@WeNurses
09 July 2020 20:12
A really good point #WeNurses https://twitter.com/Its_Me_Alie/status/1281304815377752069
@publicenema2
09 July 2020 20:13
@WeNurses ??reliable(true) ??free/well available ??good to understand/clear/pointed. #WeNurses
@samanthaclare
09 July 2020 20:13
@katietatiedon @WeNurses indeed, although I think that clinicians that have used the same jargon/abbreviations for many years are more likely to forget that the average person doesn't speak the same "language"! #HIW2020 #WeNurses
@WeNurses
09 July 2020 20:13
RT @publicenema2: @WeNurses ??reliable(true) ??free/well available ??good to understand/clear/pointed. #WeNurses
@Gode_fridus
09 July 2020 20:14
RT @WeNurses: It's time to stop scrolling and start chatting !!! Welcome to #WeNurses Tonight we are joined by the wonderful @Healthinf…
@Healthinfoweek
09 July 2020 20:15
#PIFTick quality standard at https://pifonline.org.uk/pif-tick/ has many of these things we're mentioning #wenurses @PiFonline #HIW2020
@WeNurses
09 July 2020 20:15
QUESTION 2 Do you feel your patients know where and how to access high quality information about their health condition? #WeNurses https://t.co/wUFHR2Iw0r
@WeNurses
09 July 2020 20:15
@PUNC18Sophie @Healthinfoweek Hi Sophie and welcome #WeNurses
@WeNurses
09 July 2020 20:15
RT @Healthinfoweek: #PIFTick quality standard at https://pifonline.org.uk/pif-tick/ has many of these things we're mentioning #wenurses @PiFonline #HI…
@Lerounxi
09 July 2020 20:15
@WeNurses High quality information, I think - must have come from underpinning evidence based research, to show that something has been thoroughly explored and understood and that has been proven to have a proven outcome or effect or been proven to work/not work etc. #WeNurses
@RN_Emily_HPN
09 July 2020 20:16
@Healthinfoweek @PiFonline Thanks for sharing this resource! #wenurses
@mskahin1
09 July 2020 20:16
@WeNurses Easy to understand, evidence-based and in different formats and languages for all to access. #WeNurses
@Lerounxi
09 July 2020 20:16
@WeNurses ‘Google’ ?? #WeNurses
@tomroper
09 July 2020 20:16
We used to talk about the expert patient. We seem not to so much nowadays. Is that still a useful concept? #WeNurses #WeNurses
@BrocklesbySusan
09 July 2020 20:16
RT @CNSSinead: Resources co-created with patients and families who have lived experience! #WeNurses
@Lerounxi
09 July 2020 20:17
@WeNurses Patients if they are shown the direction and given resources on high quality evidence, often in the form of leaflets, websites etc - they are able to gain more understanding about something in the terminology they understand! Remember jargon is barrier to access #WeNurses
@AgencyNurse
09 July 2020 20:17
Great question .... the answer is not always ... but i do see part of our role as nurses as being signposts to that info. Lots of work gone into things like the NHS web pages ... really accessible and often the first up on google searches #WeNurses https://twitter.com/WeNurses/status/1281305900901416968
@HannahDavis__
09 July 2020 20:18
@WeNurses I'd Say The Majority Would Ask "Dr Google." However, Most Conditions Are Listed Via The NHS Web Page Which Comes Up Trumps First #WeNurses
@mskahin1
09 July 2020 20:18
@WeNurses Not all. We should not assume everyone can read or write. Many are not digitally skilled. Some people rely on translation. You as the staff are the best source to educate and signpost whilst they are your patient. #WeNurses
@WeNurses
09 July 2020 20:18
Great addition of languages here #WeNurses https://twitter.com/mskahin1/status/1281306213423239175
@WeNurses
09 July 2020 20:19
Interesting question .... #WeNurses https://twitter.com/tomroper/status/1281306232469557249
@RN_Emily_HPN
09 July 2020 20:19
@WeNurses There is a wealth of information online if patient's know where to look and are computer literate. Do we forget about the people that don't have internet access? What about people who can't read English? #WeNurses
@samanthaclare
09 July 2020 20:19
@Lerounxi @WeNurses That would be the gold standard, but not everything is backed up by reams of evidence which can make it difficult to judge whether the information is appropriate for use. #HIW2020 #WeNurses Critical analysis skills are useful here.
@Healthinfoweek
09 July 2020 20:19
@Lerounxi @WeNurses #WeNurses and there's such a variety on Google, isn't there? Everything from http://www.nhs.uk and reputable patient support groups to the dreaded "miracle cures"
@WeNurses
09 July 2020 20:20
A really important point ... so how do we help these patients to access high quality information ? #WeNurses https://twitter.com/mskahin1/status/1281306728764715010
@Lerounxi
09 July 2020 20:20
@samanthaclare @WeNurses Absolutely agree with you.. most thinks in nursing are done - because it always has been that way not always has evidence behind it! #WeNurses
@Gembley
09 July 2020 20:20
@WeNurses Good old google!! This is the main focus of most people’s research. We need to educate patients and families about accurate and helpful information presented in a way that is easy to understand. #Wenurses
@mskahin1
09 July 2020 20:20
RT @WeNurses: A really important point ... so how do we help these patients to access high quality information ? #WeNurses
@Healthinfoweek
09 July 2020 20:20
@RN_Emily_HPN @WeNurses So I guess this is where the public libraries are really helpful - most offer internet access #WeNurses
@samanthaclare
09 July 2020 20:21
@RN_Emily_HPN @WeNurses all very good points, there's also a danger that online information isn't actually correct and when people are scared for their health they may grab the nearest website that looks "reasonable". #HIW2020 #WeNurses
@nadeshka99
09 July 2020 20:21
@WeNurses Some do and educate us, others use online resources, some are very keen to listen to us trying to explain and are patient while we are looking for answers #WeNurses
@cmmclaren
09 July 2020 20:21
@mskahin1 @WeNurses The importance of #digitalLiteracy and #healthliteracy should never be underestimated. #WeNurses #HIW2020
@AgencyNurse
09 July 2020 20:21
@RN_Emily_HPN @WeNurses also think we need to consider misinformation and it's role here ... when someone asks a health question on FB it could be their sisters, brothers, aunties hairdresser who answers based on something similar she had 50 years ago ! #WeNurses
@tomroper
09 July 2020 20:22
@Healthinfoweek @RN_Emily_HPN @WeNurses Er....usually. Most closed during pandemic, though opening up again now #wenurses
@WeNurses
09 July 2020 20:22
How problematic is this ?? #WeNurses https://twitter.com/Healthinfoweek/status/1281307005232320512
@Healthinfoweek
09 July 2020 20:23
Also worth being aware of the @readingagency Reading Well collection - most #PublicLibraries have copies for loan https://reading-well.org.uk/books or people can buy their own. Chosen by patients and health professionals. #WeNurses
@mskahin1
09 July 2020 20:23
RT @cmmclaren: @mskahin1 @WeNurses The importance of #digitalLiteracy and #healthliteracy should never be underestimated. #WeNurses #HIW2020
@AgencyNurse
09 July 2020 20:23
@tomroper @Healthinfoweek @RN_Emily_HPN @WeNurses gosh a really good point .... which has perhaps left some people very much in the dark ! #WeNurses
@tomroper
09 July 2020 20:24
@Healthinfoweek @Lerounxi @WeNurses And there’s variation in quality of patient information groups resources. Some v.good, some sponsored by pharma #WeNurses
@WeNurses
09 July 2020 20:24
Thanks - great link here #WeNurses https://twitter.com/Healthinfoweek/status/1281307942298451968
@RN_Emily_HPN
09 July 2020 20:24
@samanthaclare @WeNurses Definately, I think it's important to acknowledge many people will go to google but as nurse's we should be educating and signposting to the websites that are high quality information like NHS and charity's associated with the disease. E.g @macmillancancer #wenurses
@WeNurses
09 July 2020 20:24
#WeNurses https://twitter.com/PUNC18Sophie/status/1281307419470151680
@samanthaclare
09 July 2020 20:24
@Gembley @WeNurses indeed - it is vital that people don't just assume that the first available website is the best one to use, or that the neighbour has the best information - it is harder when people are searching for information that may well impact their health. #WeNurses #HIW2020
@Healthinfoweek
09 July 2020 20:24
Covering dementia, long term conditions, children's mental health, young people's mental health, moodboosting books @readingagency #WeNurses https://reading-well.org.uk/books
@WeNurses
09 July 2020 20:24
RT @cmmclaren: @mskahin1 @WeNurses The importance of #digitalLiteracy and #healthliteracy should never be underestimated. #WeNurses #HIW2020
@WeNurses
09 July 2020 20:25
QUESTION 3 What are the barriers patients / people face accessing high quality information? #WeNurses https://t.co/c0QbfLjVWP
@HannahDavis__
09 July 2020 20:25
@WeNurses #WeNurses
@CharlotteNHSRN
09 July 2020 20:25
RT @WeNurses: QUESTION 1 What does high quality information look like? #WeNurses https://t.co/voxZZaiNk2
@WeNurses
09 July 2020 20:25
#WeNurses https://twitter.com/jmv127/status/1281308115766521857
@WeNurses
09 July 2020 20:26
#WeNurses :) https://twitter.com/librarymoomin/status/1281308289276547077
@Gembley
09 July 2020 20:26
RT @WeNurses: QUESTION 3 What are the barriers patients / people face accessing high quality information? #WeNurses https://t.co/c0QbfLj…
@RN_Emily_HPN
09 July 2020 20:26
@AgencyNurse @WeNurses Definately! I've seen posts from people pop up on FB asking for medical advice. Signposting to better information/professionals is such an important thing to do #WeNurses
@WeNurses
09 July 2020 20:26
Here are some very relevant stats #WeNurses https://twitter.com/SueLaceybryant/status/1281308384902500352
@Lerounxi
09 July 2020 20:26
@WeNurses Jargon #WeNurses
@Healthinfoweek
09 July 2020 20:26
@WeNurses How willing do you find people are to discuss the more questionable information with you? Or do they tend to be firmly decided before they speak to you? @PUNC18Sophie #WeNurses
@CharlotteNHSRN
09 July 2020 20:27
RT @WeNurses: QUESTION 3 What are the barriers patients / people face accessing high quality information? #WeNurses https://t.co/c0QbfLj…
@AgencyNurse
09 July 2020 20:27
Too much information can be a barrier #WeNurses https://twitter.com/WeNurses/status/1281308405748191233
@CNSSinead
09 July 2020 20:27
@WeNurses As a children’s nurse I have to explain that treatments recommended via google or Chinatown may not be appropriate for a paediatric population as clinical trials are not carried out in children. I then direct to validated resources....#WeNurses
@PUNC18Sophie
09 July 2020 20:27
@WeNurses Not knowing where to look, or what to look for. Lots of contradicting info on the internet. when you google search a condition or symptom so many unreliable sources come up so if you’re not sure what you’re looking for it’s a minefield! #wenurses
@Healthinfoweek
09 July 2020 20:27
So important, but definitely in short supply #WeNurses https://twitter.com/CharlotteNHSRN/status/1281308635860172807
@HannahDavis__
09 July 2020 20:28
@WeNurses Terminology/Jargon - Not Understanding The Statistics. May Not Be Tech Savvy. Could Access Dated Information #WeNurses
@Gembley
09 July 2020 20:28
@WeNurses People assuming everyone has access to online information. Some people still respond better to paper based or in person information. Also people might be scared/concerned so don’t always do the in depth look they might normally do. #WeNurses
@WeNurses
09 July 2020 20:28
Great point Sophie - so how do we ensure that patients find the right info when they need it ? #WeNurses https://twitter.com/PUNC18Sophie/status/1281309082847268864
@cmmclaren
09 July 2020 20:28
@WeNurses Poor numeracy and literacy skills. Information isn't written at a level and language that many people can access. #WeNurses #HIW2020
@samanthaclare
09 July 2020 20:29
so by using simple language that is jargon free we can help them to themselves - for instance the words urine or stool may be clinically understood, but not everybody understands that. #HIW2020 #WeNurses https://twitter.com/SueLaceybryant/status/1281308384902500352
@CNSSinead
09 July 2020 20:30
@PUNC18Sophie @WeNurses Milk exclusion is not the answer to everything....and potentially dangerous without the support of a registered dietitian! ?? #WeNurses
@RN_Emily_HPN
09 July 2020 20:30
@AgencyNurse @tomroper @Healthinfoweek @WeNurses If you don't have a tv or listen to the radio either then you wouldn't get any of the updates! In Leicester we've had a letter in the post with instructions in different languages what to do if you have symptoms. It's a good thing but again if you are illiterate not so. #wenurses
@lisaworth2
09 July 2020 20:30
RT @WeNurses: STARTING IN 30 MINS TIME A #HIW2020 themed #WeNurses with @Healthinfoweek Health information week - Information we can tr…
@mskahin1
09 July 2020 20:30
@WeNurses Stigma. Lack of literacy. Lack of knowledge of services. How well they are treated by staff. How accessible Trusts make their information available and do inreach. Disability. Economical barriers to access or attend workshops & services. Fear. Poor health. No internet. #WeNurses
@AgencyNurse
09 July 2020 20:31
@Gembley @WeNurses I can't help but think that there is a huge case here for individualised care ... treating each person according to the needs they have, including the information we signpost to or give them #WeNurses
@CharlotteNHSRN
09 July 2020 20:31
RT @Healthinfoweek: So important, but definitely in short supply #WeNurses
@Healthinfoweek
09 July 2020 20:31
@CNSSinead @WeNurses Do you have some preferred go-to resources that you trust? #WeNurses
@PeterMartin55
09 July 2020 20:31
@WeNurses #WeNurses Letters sent out, particular to people experiencing poor mental health, can seem intimidating & over formal. Some examples of friendly tone using plain English would considerably help. High quality information needs to be understandable, accessible & friendly.
@AgencyNurse
09 July 2020 20:31
Lockdown has been challenging in so many ways #WeNurses https://twitter.com/RN_Emily_HPN/status/1281309746679685121
@jmv127
09 July 2020 20:32
@WeNurses The media and sensationalism can be problematic. They will announce a wonder drug to cure everything because it worked in a bunch of mice in a lab and people believe it all #WeNurses
@CNSSinead
09 July 2020 20:32
@WeNurses Healthcare professionals designing resources that they deem to be accessible to the general population #WeNurses
@WeNurses
09 July 2020 20:32
Wow a really interesting point here ... something to consider #WeNurses https://twitter.com/PeterMartin55/status/1281310044504698883
@RN_Emily_HPN
09 July 2020 20:32
@CharlotteNHSRN @WeNurses I think it's so easy to fall into the trap of assuming someone has understood because they have nodded and smiled. Especially when we are under time pressures. #wenurses
@alimully
09 July 2020 20:32
Really struggle to get translated information especially for less common languages #wenurses https://twitter.com/mskahin1/status/1281306728764715010
@WeNurses
09 July 2020 20:32
RT @CNSSinead: @WeNurses Healthcare professionals designing resources that they deem to be accessible to the general population #WeNurses
@Gembley
09 July 2020 20:32
@AgencyNurse @WeNurses Which brings us back to a focus of individualised patient centred care. #WeNurses
@samanthaclare
09 July 2020 20:32
@cmmclaren @WeNurses You are absolutely right, but sometimes the health literacy (r even just plain literacy) campaign can come across as blaming people for their lower levels of literacy and I do find that rather difficult to work with sometimes. #HIW2020 #WeNurses
@WeNurses
09 July 2020 20:32
RT @alimully: Really struggle to get translated information especially for less common languages #wenurses https://twitter.com/mskahin1/status/1281306728764715010
@mskahin1
09 July 2020 20:33
RT @alimully: Really struggle to get translated information especially for less common languages #wenurses
@tomroper
09 July 2020 20:34
@jmv127 @WeNurses Behind the Headlines is a great help here: https://www.nhs.uk/news/ #WeNurses
@alimully
09 July 2020 20:34
@CNSSinead @WeNurses Good point, all resources should go to a pt panel, we might think they are readable and understandable but often they arent #wenurses
@WeNurses
09 July 2020 20:34
Really important tweet here #WeNurses https://twitter.com/claire_doodle/status/1281310533996683267
@AgencyNurse
09 July 2020 20:34
@claire_doodle @WeNurses wow that does sound challenging .... how did you communicate ?? #WeNurses
@Healthinfoweek
09 July 2020 20:34
@jmv127 @WeNurses #BehindTheHeadlines does some very good, straightforward analysis of those headlines at https://www.nhs.uk/news/ #WeNurses Not every headline but gives a good idea of the pitfalls.
@samanthaclare
09 July 2020 20:35
@RN_Emily_HPN @CharlotteNHSRN @WeNurses YES!! Even I do that sometimes, being deaf and just wanting to get out of there! There are techniques to use such as the "teach back" method to get the patient to explain back to you in their own words. #HIW2020 #WeNurses
@WeNurses
09 July 2020 20:35
QUESTION 4 What about broader physical and mental wellbeing health information for your patients? How can we ensure this information is high quality ? #WeNurses https://t.co/IJcUNQ2lul
@WeNurses
09 July 2020 20:35
Thanks for sharing - great to have a global perspective #WeNurses https://twitter.com/publicenema2/status/1281310933281910784
@Gembley
09 July 2020 20:36
@Healthinfoweek @jmv127 @WeNurses Looks like a great resource I have never really looked at. #WeNurses
@AgencyNurse
09 July 2020 20:36
Oh my goodness there is literally a health and wellbeing minefield out there ! #WeNurses https://twitter.com/WeNurses/status/1281310922611531777
@RN_Emily_HPN
09 July 2020 20:36
@WeNurses When training patients to connect HPN we usually have a step by step written instruction for the procedure. Instead, we used videos as aids for the patient who was illiterate and were available to answer any questions he had about his condition #wenurses
@samanthaclare
09 July 2020 20:37
@alimully @CNSSinead @WeNurses quite - we all write leaflets from our own perspective and simply forget that the person reading it has an entirely different perspective! (even library leaflets can be a bit impenetrable!!) #WeNurses #HIW2020
@AgencyNurse
09 July 2020 20:38
Gosh yes another barrier right there ... masks ! #WeNurses https://twitter.com/claire_doodle/status/1281311478264614918
@alimully
09 July 2020 20:38
@RN_Emily_HPN @WeNurses I dont know why we dont have more videos, a picture tells a thousand words #wenurses
@CNSSinead
09 July 2020 20:38
@alimully @WeNurses Co-creating resources with patients has been an amazing quality improvement experience for me recently. Interestingly, no one refused to give feedback when they knew it was taken seriously to help others. We developed a stunning eczema care plan together #WeNurses
@RN_Emily_HPN
09 July 2020 20:38
@samanthaclare @CharlotteNHSRN @WeNurses It can sometimes feel more time consuming to use the teach back method but it is so worth it! Saves time in the long run and leads to better outcomes! #wenurses
@WeNurses
09 July 2020 20:38
#WeNurses https://t.co/REuEWW6LWc
@RN_Emily_HPN
09 July 2020 20:38
RT @alimully: @RN_Emily_HPN @WeNurses I dont know why we dont have more videos, a picture tells a thousand words #wenurses
@jmv127
09 July 2020 20:38
@SueLaceybryant @NHS_HealthEdEng @RuthCarlyle @NHS_Education #WeNurses I know what I am doing tomorrow...
@WeNurses
09 July 2020 20:39
Thats so brilliant to hear #WeNurses https://twitter.com/CNSSinead/status/1281311767470145542
@samanthaclare
09 July 2020 20:39
@AgencyNurse oh my god yes - I have just ordered to large badges from @sootmegs that say "I can't lipread through your mask" - can't wait for them to arrive. #WeNurses #HIW2020
@RN_Emily_HPN
09 July 2020 20:39
@alimully @WeNurses Absolutely!! #wenurses
@KirklandWalsh
09 July 2020 20:39
RT @WeNurses: Here are some very relevant stats #WeNurses
@Healthinfoweek
09 July 2020 20:39
@AgencyNurse Definitely! #WeNurses
@RN_Emily_HPN
09 July 2020 20:39
@alimully @WeNurses We have so much technology at our fingertips to create diverse resources for patients. #wenurses
@WeNurses
09 July 2020 20:39
Fabulous use of video here #WeNurses https://twitter.com/RN_Emily_HPN/status/1281311318197170177
@samanthaclare
09 July 2020 20:40
@RN_Emily_HPN @CharlotteNHSRN @WeNurses precisely! It is so worth spending that time to ensure that the patient understands what they need to do. #WeNurses #HIW2020
@WeNurses
09 July 2020 20:40
QUESTION 5 What are the ways you effectively support patients to access high quality information, and what are the things you find challenging? #WeNurses https://t.co/T1y8bmKPBA
@AgencyNurse
09 July 2020 20:40
@samanthaclare @sootmegs wow i didn't even know there was such a thing ! #WeNurses
@Healthinfoweek
09 July 2020 20:40
@RN_Emily_HPN @alimully @WeNurses This looks interesting from the South West: https://ahsninnovationexchange.co.uk/news/ahsn/south-west/2020/south-west-born-patient-video-library-launched-across-england #WeNurses
@CNSSinead
09 July 2020 20:41
@RN_Emily_HPN @alimully @WeNurses Let’s make them!!! I would love to work with patients to do an adrenaline pen demonstration video where the patient doesn’t lie down calmly on a fluffy white rug and inject themselves ?? #NotRealLife #WeNurses #AllergyNurse
@WeNurses
09 July 2020 20:41
RT @Healthinfoweek: @RN_Emily_HPN @alimully @WeNurses This looks interesting from the South West: https://ahsninnovationexchange.co.uk/news/ahsn/south-west/2020/south-west-born-patient-video-library-launched-across-england #WeNurses
@Gembley
09 July 2020 20:41
@WeNurses I think this is especially hard at the moment with so many services becoming digital, or telephone based. How do we know our parents are aware of additional information or services? #WeNurses
@RN_Emily_HPN
09 July 2020 20:41
@CNSSinead @alimully @WeNurses 100% with you! #wenurses
@Healthinfoweek
09 July 2020 20:42
Always great to hear when it's been done well! #WeNurses https://twitter.com/CNSSinead/status/1281311767470145542
@samanthaclare
09 July 2020 20:42
@AgencyNurse @sootmegs she has other, rather fabulous, badges! #WeNurses Shout out to @sootmegs etsy shop - https://www.etsy.com/uk/shop/Sootmegs?ref=simple-shop-header-name&listing_id=814757722
@cmmclaren
09 July 2020 20:42
@WeNurses A lot of what we have been talking about so far this evening has highlighted #HealthLiteracy if it's of interest here is a short e-learning package for people https://www.e-lfh.org.uk/health-literacy/https://www.e-lfh.org.uk/health-literacy/ #HIW2020 #wenurses
@alimully
09 July 2020 20:43
@WeNurses I try and use information produced by national organisations, no reason to reinvent the wheel and they do involve pts and clinicians when developing it. Struggle with pts who cant read English - limited translations available #wenurses
@WeNurses
09 July 2020 20:43
A really excellent point ... does anyone have an answer ?? #WeNurses https://twitter.com/Gembley/status/1281312591374102530
@WeNurses
09 July 2020 20:43
Thanks Catherine #WeNurses https://twitter.com/cmmclaren/status/1281312806550241280
@samanthaclare
09 July 2020 20:44
@RN_Emily_HPN @CNSSinead @alimully @WeNurses great idea, just PLEASE add subtitles!! #WeNurses #HIW2020
@Gembley
09 July 2020 20:44
@WeNurses Spending time with our patients to make sure they know how to acces appropriate information for the individual. Time is the key thing and we don’t always have enough ?? #WeNurses
@WeNurses
09 July 2020 20:44
RT @samanthaclare: @RN_Emily_HPN @CNSSinead @alimully @WeNurses great idea, just PLEASE add subtitles!! #WeNurses #HIW2020
@cmmclaren
09 July 2020 20:44
RT @samanthaclare: @RN_Emily_HPN @CNSSinead @alimully @WeNurses great idea, just PLEASE add subtitles!! #WeNurses #HIW2020
@RN_Emily_HPN
09 July 2020 20:44
@samanthaclare @CNSSinead @alimully @WeNurses Noted. So important! ?? #wenurses
@SueLaceybryant
09 July 2020 20:45
#wenurses As a Starter for Ten, bookmark https://www.nhs.uk/conditions/ @WeNurses #HEELKS https://twitter.com/wenurses/status/1281309379158032386
@tomroper
09 July 2020 20:45
#wenurses Our service has a Patient Information Librarian; increasingly common in NHS libraries. Someone dedicated to helping clinicians produce high quality information, advising public libraries on standards, good practice, helping patients themselves is a great resource https://twitter.com/wenurses/status/1281312181234159618
@WeNurses
09 July 2020 20:45
#WeNurses https://twitter.com/CNSSinead/status/1281313538783485955
@CNSSinead
09 July 2020 20:45
@WeNurses Parental support groups are really important for the #allergy population. They can help each other in terms of sharing their lived experience of navigating the world of allergies ?? #WeNurses
@AgencyNurse
09 July 2020 20:46
RT @SueLaceybryant: #wenurses As a Starter for Ten, bookmark https://www.nhs.uk/conditions/ @WeNurses #HEELKS https://twitter.com/wenurses/status/1281309379158032386
@samanthaclare
09 July 2020 20:46
@cmmclaren @WeNurses oops - page not found - try this one! #WeNurses #HIW2020 https://www.e-lfh.org.uk/health-literacy/
@Gembley
09 July 2020 20:46
@samanthaclare @AgencyNurse @sootmegs Love the badges ?? what a great idea #WeNurses
@WeNurses
09 July 2020 20:46
wow what an amazing idea ... worth checking to see if your library has one #WeNurses https://twitter.com/tomroper/status/1281313640071729152
@RN_Emily_HPN
09 July 2020 20:47
@WeNurses I don't have the answers but I know it is so important we don't leave people behind with the shift to digital. #wenurses
@RN_Emily_HPN
09 July 2020 20:47
RT @WeNurses: wow what an amazing idea ... worth checking to see if your library has one #WeNurses
@WeNurses
09 July 2020 20:47
#WeNurses https://t.co/Y7EClZbGPM
@SueLaceybryant
09 July 2020 20:48
Try this link #wenurses https://www.e-lfh.org.uk https://twitter.com/cmmclaren/status/1281312806550241280
@samanthaclare
09 July 2020 20:48
@RN_Emily_HPN @WeNurses this is so vital - there really must not be the assumption that everyone has the latest ipad! #WeNurses #HIW2020
@CNSSinead
09 July 2020 20:48
@samanthaclare @WeNurses @RN_Emily_HPN @alimully NHS virtual pride had a person conducting sign language #goals #WeNurses
@Gembley
09 July 2020 20:49
@WeNurses Going to have to see if we have one of these ?? #WeNurses
@Healthinfoweek
09 July 2020 20:49
@RN_Emily_HPN @WeNurses Yes - I've been surprised when out and about how many people still don't do the internet, and don't want to. #DigitalDivide #WeNurses #HIW2020
@samanthaclare
09 July 2020 20:49
@WeNurses and even if we don't have a librarian dedicated to patient information we will help you in any way we can! #WeNurses #HIW2020
@WeNurses
09 July 2020 20:50
QUESTION 6 What support does your organisation provide in terms of patient information? #WeNurses https://t.co/nQeFshkQrG
@RN_Emily_HPN
09 July 2020 20:50
@CNSSinead @samanthaclare @WeNurses @alimully Love that. I have a level 2 qualification in BSL and until I completed the course I was so unaware of the challenges people who are Deaf and HOH have. #WeNurses
@Healthinfoweek
09 July 2020 20:50
RT @tomroper: #wenurses Our service has a Patient Information Librarian; increasingly common in NHS libraries. Someone dedicated to helping…
@AgencyNurse
09 July 2020 20:50
@samanthaclare @RN_Emily_HPN @WeNurses and also the assumption must not be made that they haven't :) #WeNurses
@alimully
09 July 2020 20:51
@samanthaclare @RN_Emily_HPN @WeNurses Or wifi, my father in law has no internet, he would definitely need printed info and a phone call to signpost him #wenurses
@samanthaclare
09 July 2020 20:51
oops - #WeNurses #HIW2020 https://twitter.com/samanthaclare/status/1281314930986307584
@RN_Emily_HPN
09 July 2020 20:51
@AgencyNurse @samanthaclare @WeNurses Very true! My 81 year old Nan is an absolute whizz on her iPad. #wenurses
@AgencyNurse
09 July 2020 20:51
@samanthaclare @RN_Emily_HPN @WeNurses sorry pressed tweet before i had finished ... particulary thinking of older generation who are often assumed to not be digitally literate ... but many are #WeNurses
@samanthaclare
09 July 2020 20:52
@RN_Emily_HPN @AgencyNurse @WeNurses quite! My parents are complete opposites - one hates PCs and the other has a Mac! #WeNurses #HIW2020
@Healthinfoweek
09 July 2020 20:52
Yes - I've been asked to do literature searches to find patient information leaflets / websites on specific topics, or in specific languages, and I'm not a dedicated Patient information librarian. #WeNurses https://twitter.com/samanthaclare/status/1281314583421075462
@AgencyNurse
09 July 2020 20:52
@RN_Emily_HPN @samanthaclare @WeNurses yes indeed I have some elderly relatives who are brilliantly tech savvy #WeNurses
@AgencyNurse
09 July 2020 20:52
@samanthaclare @RN_Emily_HPN @WeNurses LOL fabulous ! #WeNurses
@Gembley
09 July 2020 20:52
@WeNurses One of the things I love is different members of the MDT working and supporting each other to acces information from different places that may benefit our patients. The best information for our patients may come from a different discipline. #WeNurses
@SueLaceybryant
09 July 2020 20:52
#wenurses Recent research in England tells us that between 43% working age adults in England routinely do not understand health information. https://cdn.literacytrust.org.uk/media/documents/National_Literacy_Trust_-_Literacy_and_life_expectancy_report.pdf
@jmv127
09 July 2020 20:52
@WeNurses #WeNurses sometimes I feel like we are the ones responsible for deforestation. We have so many leaflets.
@WeNurses
09 July 2020 20:53
RT @WeNurses: QUESTION 6 What support does your organisation provide in terms of patient information? #WeNurses https://t.co/nQeFshkQrG
@TEnyeribe
09 July 2020 20:53
Health information week - Information we can trust with @Healthinfoweek via #WeNurses 09/07/2020 http://www.wecommunities.org/tweet-chats/chat-details/5520 via @WeNurses Organizations’ like Macmilian can support patients with extra funding for cancer treatment.
@WeNurses
09 July 2020 20:53
Brilliant :) #WeNurses https://twitter.com/librarymoomin/status/1281315433178714118
@AgencyNurse
09 July 2020 20:54
Love this point #WeNurses https://twitter.com/Gembley/status/1281315359858085890
@WeNurses
09 July 2020 20:54
Wow that sounds brilliant #WeNurses https://twitter.com/publicenema2/status/1281315689618341889
@RN_Emily_HPN
09 July 2020 20:54
@AgencyNurse @samanthaclare @WeNurses It's brought me so much joy how much she has enjoyed zooming with all her different social groups. I swear she's got a better social life than me ?? #wenurses
@Healthinfoweek
09 July 2020 20:54
https://labtestsonline.org.uk/global-sites LabTestsOnline is a high quality website with information in other languages, I've often found it helpful. Very grateful for the charities and organisations that publish in multiple languages #WeNurses
@WeNurses
09 July 2020 20:55
QUESTION 7 How do you find high quality information to support your own health and wellbeing as a nurse? #WeNurses https://t.co/mn2ortefG5
@CNSSinead
09 July 2020 20:55
@jmv127 @WeNurses Changes could be afoot though...Covid 19 has meant telephone #allergy consultations with resources emailed to parents afterwards! Those who didn’t have access to email we had to post, but this wasn’t many. #sustainable #SaveTheTrees #WeNurses
@AgencyNurse
09 July 2020 20:55
@RN_Emily_HPN @samanthaclare @WeNurses oh thats so lovely .... many elderly people have been left so isolated, so it's great to hear a good news story :) #WeNurses
@Healthinfoweek
09 July 2020 20:56
RT @WeNurses: Brilliant :) #WeNurses https://twitter.com/librarymoomin/status/1281315433178714118
@AgencyNurse
09 July 2020 20:56
Twitter ... I know a few nurses ;D #WeNurses https://twitter.com/WeNurses/status/1281315966681518080
@RN_Emily_HPN
09 July 2020 20:56
@SueLaceybryant That's a big number. #wenurses
@jmv127
09 July 2020 20:56
@CNSSinead @WeNurses Our way of working has rapidly changed for the better #WeNurses
@samanthaclare
09 July 2020 20:57
this can be difficult to do if you are facing your own sudden health issues. Even the inestimable @trishgreenhalgh will tell you that a shock diagnosis will send you to google without your usual critical analysis hat on! #WeNurses #HIW2020 https://twitter.com/WeNurses/status/1281315966681518080
@Gembley
09 July 2020 20:58
@WeNurses Do we have time for that?? ?? food support networks, a what’s app group and a zoom chat help a lot #WeNurses
@RN_Emily_HPN
09 July 2020 20:59
@jmv127 @WeNurses This has made me consider if we could ask people if they would prefer the information digitally. I know I'd prefer information digitally rather than on paper. Not for everyone though #wenurses
@TEnyeribe
09 July 2020 21:00
Health information week - Information we can trust with @Healthinfoweek via #WeNurses 09/07/2020 http://www.wecommunities.org/tweet-chats/chat-details/5520 via @WeNurses NHS gives reliable information that promotes patient wellbeing for instance NHS choice website for testicular checkup.
@tomroper
09 July 2020 21:01
A lot of work had been put into wellbeing portals for nurses, and others, during #covid19, at local and national level. Do you use them? Find them useful? #wenurses
@WeNurses
09 July 2020 21:02
Eeek we forgot to hashtag #WeNurses ! https://twitter.com/WeNurses/status/1281317668340019207
@RN_Emily_HPN
09 July 2020 21:03
@samanthaclare @trishgreenhalgh Very good point. #wenurses
@AgencyNurse
09 July 2020 21:03
Thank you everyone - really interesting tweetchat this evening #WeNurses
@Healthinfoweek
09 July 2020 21:05
@WeNurses #WeNurses It's been great to be here and be part of the discussion, thank you! #HIW2020
@WeNurses
09 July 2020 21:05
Next weeks #WeNurses ..... Debriefing and Covid19 > http://www.wecommunities.org/tweet-chats/chat-details/5519 See you there :D https://t.co/DKOxbVmRJs
@AgencyNurse
09 July 2020 21:05
RT @WeNurses: Next weeks #WeNurses ..... Debriefing and Covid19 > http://www.wecommunities.org/tweet-chats/chat-details/5519 See you there :D https://t.co/DKOxbVmRJs
@Claire_F1att
09 July 2020 21:05
RT @WeNurses: Next weeks #WeNurses ..... Debriefing and Covid19 > http://www.wecommunities.org/tweet-chats/chat-details/5519 See you there :D https://t.co/DKOxbVmRJs
@Healthinfoweek
09 July 2020 21:05
RT @WeNurses: Next weeks #WeNurses ..... Debriefing and Covid19 > http://www.wecommunities.org/tweet-chats/chat-details/5519 See you there :D https://t.co/DKOxbVmRJs
@SueLaceybryant
09 July 2020 21:05
Check out the data #wenurses at http://www.healthliteracyplace.org.uk/evidence/target-groups/children-and-young-people/ https://twitter.com/Sybil_Ramkin/status/1281316350833627136
@tomroper
09 July 2020 21:05
Thanks @wenurses for the opportunity to talk about these things, and being hospitable to #welibrarians #wenurses
@librarymoomin
09 July 2020 21:05
Thank you, really enjoyed this #WeNurses chat, it was my first! Certainly given me something to think about to take back to my library service to help our nurses! #HIW2020n https://twitter.com/WeNurses/status/1281317668340019207
@WeNurses
09 July 2020 21:05
We agree - thank you so very much :D #WeNurses https://twitter.com/Healthinfoweek/status/1281318466709008385
@WeNurses
09 July 2020 21:06
@librarymoomin great to here and Librarians always welcome here :D #WeNurses
@WeNurses
09 July 2020 21:06
@tomroper Most welcome it was lovely to have you join us :) #WeNurses
@JulesLewis6
09 July 2020 21:07
RT @WeNurses: Next weeks #WeNurses ..... Debriefing and Covid19 > https://t.co/DFcfxUtf61 See you there :D https://t.co/DKOxbVmRJs
@JulesLewis6
09 July 2020 21:08
RT @WeNurses: Next weeks #WeNurses ..... Debriefing and Covid19 > http://www.wecommunities.org/tweet-chats/chat-details/5519 See you there :D https://t.co/DKOxbVmRJs
@Gembley
09 July 2020 21:08
Thank you for an interesting evening @WeNurses ?? plenty to think about and a recipe swap shop in the works #WeNurses
@WeNurses
09 July 2020 21:09
@Claire_F1att lets hope so ... looking forward to seeing you there :) #WeNurses
@WeNurses
09 July 2020 21:09
@Gembley hehehehehe fabulous #WeNurses
@lynnette463
09 July 2020 21:11
RT @WeNurses: Next weeks #WeNurses ..... Debriefing and Covid19 > http://www.wecommunities.org/tweet-chats/chat-details/5519 See you there :D https://t.co/DKOxbVmRJs
@RN_Emily_HPN
09 July 2020 21:11
@SueLaceybryant Shocking statistics. We definitely have work to do! #wenurses
@JulesLewis6
09 July 2020 21:13
So looking forward to this #WeNurses ????? #Debriefs please join us next week ?? https://twitter.com/wenurses/status/1281318478864158720
@MarySextonNHS
09 July 2020 21:13
@snabless @awdainty @joWakeman1 @MecrowLove @dgftmatronopd @RachelTomkins2 #WeNurses nurses love a challenge I think we may need a plan so our amazing #AHP colleagues are not alone in getting active @DudleyGroupNHS https://twitter.com/lorraineallchu2/status/1280907751460352002
@XavierWhite9
09 July 2020 21:13
RT @WeNurses: Next weeks #WeNurses ..... Debriefing and Covid19 > http://www.wecommunities.org/tweet-chats/chat-details/5519 See you there :D https://t.co/DKOxbVmRJs
@WeNurses
09 July 2020 21:14
RT @JulesLewis6: So looking forward to this #WeNurses ????? #Debriefs please join us next week ?? https://twitter.com/wenurses/status/1281318478864158720
@P_e_t_r_a____
09 July 2020 21:15
RT @WeNurses: Next weeks #WeNurses ..... Debriefing and Covid19 > http://www.wecommunities.org/tweet-chats/chat-details/5519 See you there :D https://t.co/DKOxbVmRJs
@samanthaclare
09 July 2020 21:16
sorry I vanished there, I had an incoming video call! It was a great chat and I look forward to joining in a few more! #WeNurses #HIW2020 https://twitter.com/WeNurses/status/1281318783546769409
@snabless
09 July 2020 21:19
RT @MarySextonNHS: @snabless @awdainty @joWakeman1 @MecrowLove @dgftmatronopd @RachelTomkins2 #WeNurses nurses love a challenge I think we…
@nhhoward
09 July 2020 21:25
RT @WeNurses: Brilliant :) #WeNurses https://twitter.com/librarymoomin/status/1281315433178714118
@nhhoward
09 July 2020 21:26
RT @SueLaceybryant: #wenurses Recent research in England tells us that between 43% working age adults in England routinely do not understan…
@SueLaceybryant
09 July 2020 21:33
@WeNurses Thank You for your welcom. Ever awestruck by what you do for patients. Make friends with your health librarian this #HealthInformationWeek #wenurses #heelks And Check out reliable information sources: https://library.nhs.uk/public/
@maeveymint
09 July 2020 21:34
RT @WeNurses: Next weeks #WeNurses ..... Debriefing and Covid19 > http://www.wecommunities.org/tweet-chats/chat-details/5519 See you there :D https://t.co/DKOxbVmRJs




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