#WeStNs - Wednesday 7th October 2020 8pm (GMT Standard Time) #WeStNs Death Cafe: Lets Talk about Death and Dying

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Hosted by WeStudentNurse using #WeStNs

During recent times, following  the COVID-19 pandemic, death has been spoken about more. We realised that many student nurses find it uncomfortable to talk about death and dying and in turn we thought that it would be an important topic to discuss.

Part of the Nursing and Midwifery  Council code (NMC, 2019) is states a nurses role is  to treat and maintain everyones dignity and this would be in life and in death. So how do we do this? Well there is a series of podcasts looking at Death and Dying that @WeStudentNursehave produced with others, these would be a great start for this chat. As student nurses and as registered nurses this is something we will come across regularly so lets maintain dignity. Dying Matters talks about how those conversations about dying will give your loved ones the knowledge that they have had a ‘good death’ and their wishes were followed.

Discussion:

Focussed themes include:

1.  How comfortable do you feel talking about death and dying? If it is uncomfortable, why?

2. Have you witnessed a death whilst working as a student nurse? Did  you take part in the process of caring for the body after death, if so how did it make you feel?

3. What do you think Palliative care means ? How would you feel talking about it with your patients and what’s your experience of it in practice?

4. What were the key attribute student nurses need to help patients and their families through this time? If you have listened to our Podcasts- this will help you.

5. As a student nurse what do you feel you need to know to feel confident and competent to talk about death and dying with patients?

Further Reading:

Survivors of Bereavement by Suicide (SOBS) : https://uksobs.org/

Support after Suicide Partnership (SASP): https://supportaftersuicide.org.uk/

DyingMatters : https://www.dyingmatters.org/overview/resources





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 #WeStNs transcript

 
@WeStudentNurse
07 October 2020 20:00
Good Evening all. Please could you introduce yourselves and tell us what you are hoping to get from this chat? #WeStNs https://t.co/qzFDoKnwXt
@Georgina_Lilly_
07 October 2020 20:00
RT @WeStudentNurse: Good Evening all. Please could you introduce yourselves and tell us what you are hoping to get from this chat? #WeStNs…
@StNurseLee
07 October 2020 20:01
@WeStudentNurse Good evening Lee here, Looking forward to discussing how we manage ELC in an inpatient setting. #WeStNs
@VickiG1086
07 October 2020 20:01
RT @WeStudentNurse: Good Evening all. Please could you introduce yourselves and tell us what you are hoping to get from this chat? #WeStNs…
@StNurseLee
07 October 2020 20:01
RT @WeStudentNurse: Good Evening all. Please could you introduce yourselves and tell us what you are hoping to get from this chat? #WeStNs…
@Chelsea_Fawcett
07 October 2020 20:01
Tweetchat starting now #WeStNs https://twitter.com/WeStudentNurse/status/1313917011303559168
@WeStudentNurse
07 October 2020 20:02
#WeStNs https://t.co/Jw60RumvwA
@Chelsea_Fawcett
07 October 2020 20:02
@WeStudentNurse Hello, I'm a 3rd-year student mental health nurse. Just going to lurk and maybe chime in every now and then! #WeStNs
@WeStudentNurse
07 October 2020 20:02
@StNurseLee Hi Lee. That's a great question hope we can answer this a little. #WeStNs
@Punc20HaLi
07 October 2020 20:02
@WeStudentNurse Hello. I’m Hannah. I’m just trying to gain experience of getting involved in tweet chats. #WeStNs #punc20
@WeStudentNurse
07 October 2020 20:03
We will be using mentimeter to see how you are feeling and your experiences. this is an interactive and anonymous way to feedback. #WeStNs https://t.co/8sWSXVOv7z
@Natalie_StN
07 October 2020 20:03
RT @WeStudentNurse: #WeStNs https://t.co/Jw60RumvwA
@WoolfElisha
07 October 2020 20:03
@WeStudentNurse @StNurseLee Good evening! Elisha here ?? #WeStNs
@Georgina_Lilly_
07 October 2020 20:03
@WeStudentNurse Hello, my name is Georgie! I'm a 3rd-year student nurse from York. I'm here because before starting my degree I was scared about death and dying, I've since had a lot of experience of it in practice and attended several death cafes. I'm looking forward to the discussion #WeStNs https://t.co/BNxRkEQRQY
@Natalie_StN
07 October 2020 20:04
@WeStudentNurse #WeStNs ?????
@WeStudentNurse
07 October 2020 20:04
@Chelsea_Fawcett Lovely to have you here #WeStNs
@Rhys_Marv
07 October 2020 20:04
@WeStudentNurse #WeStNs 3rd Yr MH StN here. Hoping to lean about whether via sub-cut at EoL helps/hinders? And what is good EoL care especially with Older Persons living with Dementia?
@WeStudentNurse
07 October 2020 20:05
#WeStNs https://t.co/s8BgrkbxZc
@Natalie_StN
07 October 2020 20:05
@Punc20HaLi @WeStudentNurse Excellent... you will end up hooked! Glad to have you on board #WeStNs
@WeStudentNurse
07 October 2020 20:05
@Natalie_StN Great, that is the aim to talk freely #WeStNs
@WeStudentNurse
07 October 2020 20:05
@Punc20HaLi Welcome and enjoy #WeStNs
@Punc20HaLi
07 October 2020 20:05
@Natalie_StN @WeStudentNurse Thank you I hope so #WeStNs
@WeStudentNurse
07 October 2020 20:05
@WoolfElisha @StNurseLee Good evening great to have you here #WeStNs
@WeStudentNurse
07 October 2020 20:06
@EPUNC18 @StNurseLee that great thank you for come #WeStNs
@Georgina_Lilly_
07 October 2020 20:06
During the Tweet chat "let's talk about death and dying" you can use the mentimeter to post how you are feeling about the topic anonymously! Join us now #WeStNs https://twitter.com/WeStudentNurse/status/1313917760922148866
@MParry442
07 October 2020 20:06
@WeStudentNurse Sorry #WeStNs
@Punc20HaLi
07 October 2020 20:06
@WeStudentNurse I haven’t really had a lot of experience with death. I have never seen a dead body. I have asked questions though. I am interested in the topic #WeStNs
@Rhys_Marv
07 October 2020 20:06
@WeStudentNurse More comfortable after Covid, however how much involvement is too much? How much time should you be with the family/allow them their space etc #WeStNs
@lucy_uo
07 October 2020 20:07
RT @WeStudentNurse: Good Evening all. Please could you introduce yourselves and tell us what you are hoping to get from this chat? #WeStNs…
@Rachel_A_
07 October 2020 20:07
RT @WeStudentNurse: Good Evening all. Please could you introduce yourselves and tell us what you are hoping to get from this chat? #WeStNs…
@WeStudentNurse
07 October 2020 20:07
@MParry442 Great to have you in attendance @MParry442 #WeStNs
@WeCYPnurses
07 October 2020 20:07
@WeStudentNurse We might lurk if that’s ok #weStNs happy to offer advice on EoL care for children if needed.
@PUNC19Laura
07 October 2020 20:07
Having a little lurk and may chip on this #WeStNs ?? https://twitter.com/westudentnurse/status/1313917011303559168
@WeStudentNurse
07 October 2020 20:07
@Rhys_Marv Fantastic #WeStNs
@samkitchen03
07 October 2020 20:07
@WeStudentNurse Hello! I'm a second year Learning Disability nursing student at Hull. I'm here as I've had lots of experience talking around death and dying in relation to suicide and self harm etc. but not so much experience with the reality of death and dying #WeStNs
@WoolfElisha
07 October 2020 20:08
@WeStudentNurse It’s something I’m trying to get better at. I still do find it difficult though. I think because I’m still trying to figure out how to emotionally distance myself from peoples circumstances. I tend to get sucked into the sadness of that makes sense. #WeStNs
@WeStudentNurse
07 October 2020 20:08
@Punc20HaLi Such an important topic and we all learn more about it together #WeStNs
@stnEllena_paeds
07 October 2020 20:08
@WeStudentNurse I wouldn’t say I find it uncomfortable, as I would want to try and help in anyway that I can, but I would say that I don’t feel overly confident through worry of saying the wrong things or not knowing how to respond to certain situations or conversations #WeStNs
@PUNC19Laura
07 October 2020 20:08
@WeStudentNurse Quite comfortable - I have some experience. Usually in respect of expected death following illness/ frailty/ elderly. Never sudden death, not sure how I would feel/ react #WeStNs
@MParry442
07 October 2020 20:09
@Rhys_Marv @WeStudentNurse Hi Rhys this really depends on the individual patient need, fluids do help sometimes. #WeStNs
@WeStudentNurse
07 October 2020 20:09
@Rhys_Marv This is why it’s so important because it’s in the forefront now #WeStNs
@StNurseLee
07 October 2020 20:09
@WeStudentNurse Personally a mixed bag, I have had quite a few patients dye so far during my training and I dont always know what to say. Often finding myseld being quiet and leting my mentor take point #WeStNs
@Natalie_StN
07 October 2020 20:09
@WeStudentNurse I don’t feel as uncomfortable as when I first started as a student nurse. But I still feel slightly uncomfortable. I feel it’s because I feel I don’t have the right words to say to the patient or their family. #WeStNs
@WoolfElisha
07 October 2020 20:09
TweetChat happening right now. The team are talking death & dying. #WeStNs https://twitter.com/westudentnurse/status/1313917011303559168
@Georgina_Lilly_
07 October 2020 20:09
@WeStudentNurse I have started to feel comfortable talking about it with patients and at work but I still find it very hard to talk about when thinking of my own and my family's wishes for death and dying #WeStNs
@WeStudentNurse
07 October 2020 20:09
@Brydie_Diakite that is the hardest part sometimes #WeStNs how do you over come this?
@nikkilouh
07 October 2020 20:09
@WeStudentNurse I am a MH student nurse, hoping to feel more comfortable talking about death #WeStNs
@WeStudentNurse
07 October 2020 20:10
@WeCYPnurses That would be fantastic thank you #WeStNs
@WeCYPnurses
07 October 2020 20:10
@Rhys_Marv @WeStudentNurse Not a right or wrong answer to this @Rhys_Marv Each family are very different. Read the cues that they give and don’t be afraid to just ask. #weStNs
@WeStudentNurse
07 October 2020 20:10
@PUNC19Laura Lovely to have you with us #WeStNs
@Natalie_StN
07 October 2020 20:10
@stnEllena_paeds @WeStudentNurse I’m with you on this one. I’m always worried that I say something to upset the family and the person dying #WeStNs
@lucy_uo
07 October 2020 20:10
@WeStudentNurse Hia I'm Lucy. I've not had much experience of death in placement. Not really sure what I want to get out of this except understanding, maybe. Just started palliative care module last week too so should be interesting for that #WeStNs
@PUNC19Laura
07 October 2020 20:10
@WeStudentNurse Laura, 2nd year StN @ Plymouth - previous work in community nursing. Just popping in as #WeStNs caught my eye and I strongly advocate ending stigma around death & dying and the awkwardness.
@WeStudentNurse
07 October 2020 20:11
@samkitchen03 Experience is great we all learn from each other. #WeStNs
@WeStudentNurse
07 October 2020 20:11
@WoolfElisha This is a topic most find difficult #WeStNs
@Natalie_StN
07 October 2020 20:11
@Georgina_Lilly_ @WeStudentNurse Yes! I found it very difficult during the summer when my step dad was dying. I knew everything that I should say, but when it came to actually speaking to him, it was a real struggle #WeStNs
@Rhys_Marv
07 October 2020 20:12
@MParry442 @WeStudentNurse This may be a reason to talk more frankly with families about the condition of the patient to the family but from my experience when you use fluid families see it as a sense of hope as treatments still being given #WeStNs
@Chelsea_Fawcett
07 October 2020 20:12
@Natalie_StN @stnEllena_paeds @WeStudentNurse I second this - I just don't want to say the wrong thing or whether to leave them to have some space. #WeStNS
@Natalie_StN
07 October 2020 20:12
@claire63483492 @WeStudentNurse Do you have any advice for student nurses on how to become more comfortable? #WeStNs
@ShuAdultNursing
07 October 2020 20:12
RT @WoolfElisha: TweetChat happening right now. The team are talking death & dying. #WeStNs
@WeStudentNurse
07 October 2020 20:12
@stnEllena_paeds And sometimes that is the biggest worry #WeStNs
@carlyannedavies
07 October 2020 20:12
@WeStudentNurse I sometimes feel uncomfortable talking about death with others. I think this is because I dont know what to say and I dont want to say the wrong thing. #WeStNs
@WeCYPnurses
07 October 2020 20:12
@WeStudentNurse @Brydie_Diakite With each experience of EoL you build your own ‘toolbox’ of responses. Remember that each person/family are different though. #weStNs
@lucy_uo
07 October 2020 20:12
@WeStudentNurse I'm ok talking about it in general terms, but tend to find talking about things which upset me make me more upset #WeStNs
@EPUNC18
07 October 2020 20:12
@WeStudentNurse #WeStNs I’m ok talking about death and dying as it’s a part of life and happens to everyone I sometimes find it harder talking about it with family but I’m lucky that my family have always made it ok to talk about it and we’re always happy to answer any questions
@WeStudentNurse
07 October 2020 20:13
@claire63483492 How could we become comfortable with this topic?? #WeStNs
@Georgina_Lilly_
07 October 2020 20:13
@Natalie_StN @WeStudentNurse Yes, I'm with you on that, my fears about death and dying in nursing came from personal experiences and caring for family members at the end of their life. I'm really relieved that I have been able to face this fear in practice and can talk openly about it ?? #WeStNs
@WeStudentNurse
07 October 2020 20:13
@PUNC19Laura What advice could you give others? #WeStNs
@stnEllena_paeds
07 October 2020 20:13
@WeStudentNurse But then I think that in that situation sometimes there isn’t anything to say but just to be there to listen and offer support in that way as sometimes that is what is needed or wanted rather than a conversation #WeStNs
@PUNC19Laura
07 October 2020 20:13
@Rhys_Marv @MParry442 @WeStudentNurse You can give comfort care treatments and life prolonging treatments at a patients wishes. I don’t think it’s common practice for fluids to be prescribed as part of EOL care anymore? #WeStNs
@nursingPUNC18
07 October 2020 20:14
RT @WeStudentNurse: #WeStNs https://t.co/Jw60RumvwA
@nursingPUNC18
07 October 2020 20:14
RT @WeStudentNurse: #WeStNs https://t.co/s8BgrkbxZc
@nikkilouh
07 October 2020 20:14
@WeStudentNurse I have not experienced this in practice but have had to tell my own children about death of grandparents #WeStNs
@PUNC19Laura
07 October 2020 20:14
@Natalie_StN @claire63483492 @WeStudentNurse Mentoring, exposure (awful I know but seeing it once helps the next time and the next, talking things through, reading up on great palliative care (amazon!) #WeStNs
@WeStudentNurse
07 October 2020 20:15
#WeStNs https://t.co/wYLPIuQps1
@WeStudentNurse
07 October 2020 20:15
@StNurseLee Sometimes just being there is what is needed , presences is powerful #WeStNs
@Natalie_StN
07 October 2020 20:15
@Georgina_Lilly_ @WeStudentNurse I also struggle with the process of dying... when you watch a loved on die, you know what’s going to happened next due to your nursing experience. It’s mixed feelings- your non educated self harbours hope, but your logical brain knows the inevitable #WeStNs
@WeStudentNurse
07 October 2020 20:15
@Natalie_StN How have you overcome this? #WeStNs
@suicidebereaved
07 October 2020 20:16
@WeStudentNurse Hello I'm Nina, with lived experience of #suicidebereavement and made the podcast with Emily. I'll lurk unless needed :) #WeStNs
@samkitchen03
07 October 2020 20:16
@WeStudentNurse I feel comfortable talking about it to people I know but with people I don't know, I worry about saying the wrong thing. It's such a personal subject with so much surrounding it like beliefs, religion etc. #WeStNs
@PUNC19Laura
07 October 2020 20:16
@WeStudentNurse Each family and each person is completely different, each situation is individual. There’s no set format, approach and deal on an individualistic level. A good death is absolutely possible! #WeStNs
@WeCYPnurses
07 October 2020 20:16
@WeStudentNurse @claire63483492 Look at death as something that is a Part of life. It’s a real privilege to be able to make a difference for the patient and their family #WeStNs
@WeStudentNurse
07 October 2020 20:16
@Georgina_Lilly_ Presence can be all that’s needed sometimes #WeStNs
@Natalie_StN
07 October 2020 20:17
@WeStudentNurse I think it’s exposure to an extent. Also understanding that death is part of the life cycle. Reading @drkathrynmannix book With The End in Mind helped lots too #WeStNs
@stnEllena_paeds
07 October 2020 20:17
@WeStudentNurse I have witnessed a death, I was first unsure whether I wanted to take part in the caring of the body, but with discussion and support from my supervisors I did, I felt comforted by how the nurse continued to talk to the patient and explain what we were doing #WeStNs
@Georgina_Lilly_
07 October 2020 20:17
@Natalie_StN @WeStudentNurse #WeStNs https://t.co/DyLQkxc9EH
@WeStudentNurse
07 October 2020 20:17
@nikkilouh A really great start in that as you are talking about it here thank you #WeStNs
@EPUNC18
07 October 2020 20:18
@WeStudentNurse #WeStNs On my 2nd placement in my 1st yr a patient passed away around dinner time it was expected and I went in with another student and HCA to help prepare the body ready for the undertakers, it was so surreal and I felt a little sick I also shed a few tears
@WeStudentNurse
07 October 2020 20:18
#WeStNs https://twitter.com/mparry442/status/1313920383343566851
@Chelsea_Fawcett
07 October 2020 20:18
@WeStudentNurse On my 2nd placement, I witnessed somebody who was dying and I was there to hold their hand and keep them comfortable, I wasn't there when they died though. I was also involved in caring for someone else after they had died and the HCA's were so respectful. #WeStNs
@WeCYPnurses
07 October 2020 20:18
@samkitchen03 @WeStudentNurse Asking what matters to them is key. Let them tell you. #weStNs
@carlyannedavies
07 October 2020 20:18
@WeStudentNurse Someone died whilst I was on my general placement. It was quite a strange experience as I didnt feel like there was time to acknowledge his death as the ward was so fast paced, I didnt get to take part in the process of caring for the body after death though. #WeStNs
@MParry442
07 October 2020 20:18
@Georgina_Lilly_ @WeStudentNurse #WeStNs the death café movement has really helped in aiding the conversations around death and normalising them, we have a little way to go yet though
@Chelsea_Fawcett
07 October 2020 20:19
@WeStudentNurse I felt okay, just focussed on them and how to be with them. #WeStNs
@WeStudentNurse
07 October 2020 20:19
@lucy_uo Well knowledge and understand is definitely a start #WeStNs
@WeStudentNurse
07 October 2020 20:19
@PUNC19Laura Thank you #WeStNs
@WoolfElisha
07 October 2020 20:19
@WeStudentNurse Iv not yet witnessed a death. Iv been on shift when people have died & Iv been there when family have left after saying goodbye. Iv done last offices a few times which I find no problem. It’s the atmosphere created by other peoples feelings I struggle with. #WeStNs
@WeStudentNurse
07 October 2020 20:20
#WeStNs https://t.co/yXTaCs34xm
@nikkilouh
07 October 2020 20:20
@WeStudentNurse I have not experienced this as a student but as a care assistant i have sat with patients who died #WeStNs
@PUNC19Laura
07 October 2020 20:20
@carlyannedavies @WeStudentNurse It is not dissimilar to caring for someone alive. Treat them gently, wash and dress them carefully. Talk to them. Treat them with the same respect you would if they were still with us #WeStNs
@WeStudentNurse
07 October 2020 20:20
@Rhys_Marv @Georgina_Lilly_ It will be up in slide to tell you what to do #WeStNs
@WeStudentNurse
07 October 2020 20:20
RT @Natalie_StN: @claire63483492 @WeStudentNurse Do you have any advice for student nurses on how to become more comfortable? #WeStNs
@StNurseLee
07 October 2020 20:20
@WeStudentNurse For me at first this was hard, as time has gone on I have grown to love this process, as I find this one of the most humbling things I can do for the person before they depart the ward. #WeStNs
@MParry442
07 October 2020 20:21
@StNurseLee @WeStudentNurse #WeStNs in any particular setting? Acute settings can be more problematic due to not diagnosing dying early enough. often acute areas are looking for that cure and miss some key signs. its a complex scenario
@WeStudentNurse
07 October 2020 20:21
@carlyannedavies Which is normal. People think it’s to morbid ? #WeStNs
@Georgina_Lilly_
07 October 2020 20:21
@MParry442 @WeStudentNurse Yes, @betharoohardy first got me involved in them. They are really helpful, especially when talking about the "taboo" topics that can be hard to talk about/ know how to navigate in everyday conversations. Especially helpful for nurses and nursing students! #WeStNs
@Natalie_StN
07 October 2020 20:21
@WeStudentNurse I have witnessed one death and I did take part in the last offices. It was a complete privilege. I did feel nervous to begin with and silly talking to them. But once I got over my initial fears, I am glad I was able to give that care #WeStNs
@nikkilouh
07 October 2020 20:22
@MParry442 @WeStudentNurse I like the book ' Badgers parting gifts ' too. #WeStNs
@WeCYPnurses
07 October 2020 20:22
@EPUNC18 @WeStudentNurse It is really sad when someone dies. Always. But such a privilege to be a part of that care whether that is before or afterwards. Don’t beat yourself up for feeling sad... #weStNs
@MParry442
07 October 2020 20:22
@yarnydeb @WeStudentNurse #WeStNs increasing the conversations and normalising death conversations are essential to move forward. a good start is using the right language. Read Kathryn Mannix book with the end in mind its superb
@StnKirstin
07 October 2020 20:22
@WeStudentNurse At first I found it hard but after doing a spoke placement with the palliative care nurses was were I found my passion about advocating for my patient at every stage of life and after. #WeStNs
@WeStudentNurse
07 October 2020 20:22
@Brydie_Diakite A professional and therapeutic relationship helps #WeStNs
@Natalie_StN
07 October 2020 20:23
RT @WeStudentNurse: #WeStNs https://t.co/yXTaCs34xm
@PUNC19Laura
07 October 2020 20:23
A long way to go. Remember - it will happen to us all and we will all lose loved ones. To respect it as normal & learn to process it in a healthy manner is a wonderful achievement. (This does not mean we cannot grieve tho!) #WeStNs https://twitter.com/mparry442/status/1313921731090952192
@Georgina_Lilly_
07 October 2020 20:23
@MParry442 @WeStudentNurse @betharoohardy I also started watching @TheGoodDeath on youtube long before I started nursing and this was really helpful, particularly for finding answers about topics you might feel scared to ask about! #WeStNs
@WeStudentNurse
07 October 2020 20:24
@stnEllena_paeds Such an important recognition #WeStNs
@ges_09
07 October 2020 20:24
@WeStudentNurse Fairly comfortable, I have experienced death within my immediate family, expected due to illness. I worked for a cancer charity prior, communicating with families/patients which often led to conversations about diagnosis/what is to come/death. #WeStNs
@WeStudentNurse
07 October 2020 20:25
#WeStNs https://t.co/jGyNz472E3
@WeStudentNurse
07 October 2020 20:25
@nikkilouh That’s a hard one what sort of language do we use when needing to explain is important to consider #WeStNs
@lucy_uo
07 October 2020 20:25
@WeStudentNurse I've been on shift when people have died, and once when a patient's husband died on another ward. But never seen 1st hand #WeStNs
@StnKirstin
07 October 2020 20:26
@WeStudentNurse Yes, I felt so honoured that I was able to continue the respect and dignity for my patient even once they had passed away. Just because a patient has passed away doesn’t mean I stop treating them and give them them the care they deserve. #WeStNs
@PUNC19Laura
07 October 2020 20:26
@WeStudentNurse There is a distinction between palliative and EOL care. Palliative is acceptance that there will be a terminal event however active treatment can continue for symptom relief and comfort. #WeStNs
@WeStudentNurse
07 October 2020 20:26
@Natalie_StN @Georgina_Lilly_ And that’s the hard bit professionally you know what needs to be done but personally you can’t face it #WeStNs
@WeStudentNurse
07 October 2020 20:27
@suicidebereaved Thank you for being in attendance Nina #WeStNs
@PUNC19Laura
07 October 2020 20:27
@WeStudentNurse EOL care is last weeks/ days. Active, life prolonging treatment is dropped in favour of comfort care. #WeStNs
@WeStudentNurse
07 October 2020 20:27
@samkitchen03 Knowing what matters and cultural choice is important and we only find that out by asking #WeStNs
@WeStudentNurse
07 October 2020 20:28
@yarnydeb Amazing to have you here. What advice would you give to student nurses ? #WeStNs
@jnicolbham
07 October 2020 20:28
@WeStudentNurse @WeStudentNurse #WeStNs 1/2 never under estimate the power of silence and 'presence' fully being with someone in the moment. This can be more powerful than words. If you're not sure what to say asking a reflective question back 'what makes you ask me that' allows you to find
@StNurseLee
07 October 2020 20:28
@WeStudentNurse From my understanding it is a mix of things. from symptom management for illnesses which are not curable and a mix of EoLC #WeStNs
@MParry442
07 October 2020 20:28
@Rhys_Marv @WeStudentNurse #WeStNs Marie Curie have some good resources, you can pick up references from there to delve in more detail
@WeStudentNurse
07 October 2020 20:29
This is important to realise everyone’s important will be different #WeStNs https://twitter.com/punc19laura/status/1313921195331461121
@Punc20HaLi
07 October 2020 20:29
@WeStudentNurse I haven’t been involved in someone’s care when they have passed but I gave a lady care who was on end of life care. It was very touching and I didn’t want to leave her on her own when we’d finished #WeStNs
@jnicolbham
07 October 2020 20:29
@WeStudentNurse @WeStudentNurse #WeStNs out more about the person's perspective without having th 'answer' the question
@nikkilouh
07 October 2020 20:29
@WeStudentNurse Honest and simple language is best. #WeStNs
@stnEllena_paeds
07 October 2020 20:29
@WeStudentNurse Palliative care can be treatment, care and support for people who have a life limiting illness, with the goal for a good quality of life - palliative care may lead to end of life care. Palliative care that I’ve been a part of is so personal to the family and their needs #WeStNs
@WeStudentNurse
07 October 2020 20:30
@WeCYPnurses @claire63483492 Completely agree, as nurses we have the privilege to be with someone during their most vulnerable times to help them through #WeStNs
@WeCYPnurses
07 October 2020 20:30
@nikkilouh @MParry442 @WeStudentNurse Love this book. ?? #WeStNs
@WeStudentNurse
07 October 2020 20:30
@stnEllena_paeds How did you find the processes? #WeStNs
@EPUNC18
07 October 2020 20:30
@WeStudentNurse #WeStNs for me palliative means knowing that you or that person won’t get better and will ultimately pass away from a condition or disease but will have certain treatments available to make life comfortable
@Natalie_StN
07 October 2020 20:31
@WeStudentNurse It’s when the healthcare professionals support a person and their family who have a life limiting condition. It doesn’t mean the patient it going to die imminently, but it does mean that their is no cure for their condition. #WeStNs
@WeStudentNurse
07 October 2020 20:31
@EPUNC18 We as students need to realise the dignity this process gives the person too. #WeStNs
@Natalie_StN
07 October 2020 20:31
RT @WeStudentNurse: This is important to realise everyone’s important will be different #WeStNs
@puncabigail53
07 October 2020 20:32
@WeStudentNurse I feel comfortable talking about it casually, or professionally, but there are certain situations outside of work where I don't feel comfortable - if someone close to me said that a loved one had passed away for example, I wouldn't know what to say? #westns
@Punc20HaLi
07 October 2020 20:32
@WeStudentNurse I don’t really know a lot about palliative care but I know it is to do with end of life. I think I’d find it hard to talk to a patient about their wishes but it is something I would do #WeStNs
@WeStudentNurse
07 October 2020 20:32
@Chelsea_Fawcett Do you think just being there eased them? #WeStNs
@Georgina_Lilly_
07 October 2020 20:32
RT @WeStudentNurse: #WeStNs https://t.co/jGyNz472E3
@Natalie_StN
07 October 2020 20:32
@StNurseLee @WeStudentNurse @claire63483492 Absolutely! #WeStNs
@stnEllena_paeds
07 October 2020 20:33
@WeStudentNurse A girl I worked with was receiving palliative care for 6 months before she died, it was hard to see how it affected the family, the parents didn’t leave her side, seeing how the family struggled day by day with the uncertainty of what would happen next was hard #WeStNs
@WeStudentNurse
07 October 2020 20:33
@carlyannedavies Did you get to talk about the processes with you mentor? Would of that been helpful?#WeStNs
@EPUNC18
07 October 2020 20:33
@WeStudentNurse #WeStNs I’ve not had any first hand experience of it in practice but I did witness a patient being told that their cancer was terminal and sat with them and talked with them for a while afterwords and was amazed at their acceptance, and I felt comfortable doing so
@WeCYPnurses
07 October 2020 20:34
RT @jnicolbham: @WeStudentNurse @WeStudentNurse #WeStNs 1/2 never under estimate the power of silence and 'presence' fully being with someo…
@Natalie_StN
07 October 2020 20:34
@stnEllena_paeds @WeStudentNurse It’s really hard to watch: I often feel there’s not enough emotional support for the family after the death. They go from caring and being busy 24/7 to absolutely nothing. It must be so difficult for them #WeStNs
@WeStudentNurse
07 October 2020 20:34
@WoolfElisha How do you over come these feelings? #WeStNs
@WeStudentNurse
07 October 2020 20:35
#WeStNs https://t.co/MKz0MYowrv
@WeStudentNurse
07 October 2020 20:35
@nikkilouh Can you give any advice about being with the person? #WeStNs
@Natalie_StN
07 October 2020 20:35
@Punc20HaLi @WeStudentNurse It’s a very difficult conversation to have: #WeStNs
@puncabigail53
07 October 2020 20:36
@WeStudentNurse I never have as a student nurse, but during my previous job as a community healthcare assistant, I was with a service user as they passed away: I didn't care for the body afterwards but as it was the first time I had witnessed death I shed many tears! #westns
@stnEllena_paeds
07 October 2020 20:36
@WeStudentNurse Personal, rewarding and I felt privileged to be there, to ensure that they were cared for and respected until they left the ward, they were still our patient so still deserved to receive the respect and dignity they would have done if they were alive #WeStNs
@Behtieboo
07 October 2020 20:36
@WeStudentNurse I haven't witnessed a death but on my 2nd placement I spoke to a patient and she was died 2hours later, I put myself forward in helping with personal hygiene, it was a humble and nerve wracking experience. Still think of her #WeStNs
@WeStudentNurse
07 October 2020 20:36
@StNurseLee This is a prime example of exposure helping? #WeStNs
@PUNC19Laura
07 October 2020 20:36
@WeStudentNurse Patience, understanding, empathy. A willingness to help. Try not to let your own feelings cloud the families own pain and experience #WeStNs
@MParry442
07 October 2020 20:36
@WeStudentNurse #WeStNs I am about to write a book chapter looking at last offices (care after death) and would love to add some student experiences in. If you have any you would like to share e mail me and will see if I can include them maria.parry@southwales.ac.uk
@lucy_uo
07 October 2020 20:36
@WeStudentNurse Looking after someone spiritually, emotionally, psychologically, physiologically, when they are going to die. And their loved ones before and after #WeStNs
@WeStudentNurse
07 October 2020 20:37
RT @MParry442: @StNurseLee @WeStudentNurse #WeStNs in any particular setting? Acute settings can be more problematic due to not diagnosing…
@WoolfElisha
07 October 2020 20:37
@WeStudentNurse Exposure and experience I think. #WeStNs
@WeStudentNurse
07 October 2020 20:37
@MalaykahZUHURA Lovely to have you with us #WeStNs
@Georgina_Lilly_
07 October 2020 20:38
@PUNC19Laura @WeStudentNurse That's a great answer ?? #WeStNs
@stnEllena_paeds
07 October 2020 20:38
@Natalie_StN @WeStudentNurse I completely agree, loosing that sense of purpose and drive must be so hard and the uncertainty of how family life may change or what will happen next #WeStNs
@N4LTH
07 October 2020 20:38
RT @WeStudentNurse: #WeStNs https://t.co/jGyNz472E3
@Chelsea_Fawcett
07 October 2020 20:38
@WeStudentNurse I think so. I don't think I could have said anything to help but perhaps just knowing they weren't alone when they felt scared seemed to relax them, as they were visibly so anxious before. #WeStNs
@EPUNC18
07 October 2020 20:38
@WeStudentNurse #WeStNs Being and showing kindness to the family and the person who has passed, but it’s just as important to maintain that person dignity as well
@nikkilouh
07 October 2020 20:38
@WeStudentNurse I just sat and held their hand and talked to them. #WeStNs
@Behtieboo
07 October 2020 20:39
@WeStudentNurse I remember standing by the door unable to move at the site of the patients body, the nurses were brilliant! I worked at my own pace,and afterwards I was given time to reflect outside the ward! #WeStNs
@WeStudentNurse
07 October 2020 20:39
@StnKirstin This shows that even being apprehensive you can learn and it becomes a passion to care for a person. #WeStNs
@WeStudentNurse
07 October 2020 20:40
#WeStNs https://t.co/DIzprFD94U
@PUNC19Laura
07 October 2020 20:40
@carlyannedavies @WeStudentNurse I’ve found it comes with experience, however I’m quite good at biting back that feeling (mostly) as it’s not my relative, it’s not my personal pain. However sometimes families appreciate you showing emotions. It shows you are human. #WeStNs
@WoolfElisha
07 October 2020 20:40
@WeStudentNurse Compassion, patience & empathy. #WeStNs
@StaceyReesRNLD
07 October 2020 20:40
RT @MParry442: @StNurseLee @WeStudentNurse #WeStNs in any particular setting? Acute settings can be more problematic due to not diagnosing…
@WeStudentNurse
07 October 2020 20:40
@NHSWarrior40k That’s lovely welcome #WeStNs
@WeCYPnurses
07 October 2020 20:41
@stnEllena_paeds @WeStudentNurse That sounds tough. Really hard and especially emotionally draining when the death involves a younger person. So important to make sure all involved are properly supported. #weStNs
@stnEllena_paeds
07 October 2020 20:41
@WeStudentNurse Compassion, empathy, willingness to help and support in any way that you feel comfortable and able,this may be by doing the smallest of things but to the family you’re caring for may mean the world or make their day just a little brighter, be sure to look after yourself #WeStNs
@MParry442
07 October 2020 20:41
@theadhdstn @WeStudentNurse @StLukes_Sheff #WeStNs that is a lovely mantra, you will do well ??
@WeStudentNurse
07 October 2020 20:42
@Rhys_Marv Yes it is humbling because your that last contact. And then we need to remember to talk with peers to make sure we don’t take it home too. #WeStNs
@puncabigail53
07 October 2020 20:43
@WeStudentNurse To me palliative care means treatment/support/care for those with chronic illnesses to achieve the best quality of life possible - doesn't always necessarily mean that the person is on end of life care, but its the step ahead! #westns
@Natalie_StN
07 October 2020 20:43
@WeStudentNurse Honesty, respect, inclusivity (“no decision about me, without me”... and also, just because someone is dying, never ignore them when talking to the family and vice versa) Bravery, good communication, the ability to be silent when needed #WeStNs
@WeStudentNurse
07 October 2020 20:43
@lucy_uo How did you find the ward after the death? #WeStNs
@Behtieboo
07 October 2020 20:44
@WeStudentNurse emotional, because it was a younger patient,not that its ok in older patients. All he could do was cry! I didn't know or have the right words to say to him. He was so scared of death, all I did was hold his hands, just sat with him while he cried #WeStNs
@stnEllena_paeds
07 October 2020 20:44
@WeCYPnurses @WeStudentNurse It really was, I was part of a therapy team at the time - so it was strange as our role changed to maintaining, monitoring and supporting the family as a familiar face, rather than rehab based - we had a lot of de brief sessions for support so that was appreciated #WeStNs
@WeStudentNurse
07 October 2020 20:45
#WeStNs https://t.co/bJEMvls2qD
@lucy_uo
07 October 2020 20:45
@WeStudentNurse Empathy, patience, the ability to know when you don't understand or can't explain something but to be able to admit that. Active listening skills. I think it's easy to say something just because you feel you have to but some people just want you to listen. #WeStNs
@MParry442
07 October 2020 20:46
@carlyannedavies @WeStudentNurse Sometimes saying nothing is best but go with your gut feelings #WeStNs
@WeStudentNurse
07 October 2020 20:46
@StNurseLee Yes that it’s right treatment is active but prognosis is acceptance of an terminal event going to happen #WeStNs
@puncabigail53
07 October 2020 20:47
@WeStudentNurse Empathy, compassion and adaptability: not everyone grieves the same, so simply listening to them if they need someone to talk to, or alternatively sitting with them in silence can make a big difference to their grieving process! #westns
@Behtieboo
07 October 2020 20:47
@WeStudentNurse Patience, Empathy, space, effective communication skills Amongst others...#WeStNs
@lucy_uo
07 October 2020 20:47
@WeStudentNurse Also if you know there are certain things you know should be done before death to ask if a patient is ready to talk about them. The 1st time my Mum met her palatine nurse she got asked where she wanted to die, and she just wasn't ready for that questions, found it abrupt #WeStNs
@xolisajane
07 October 2020 20:47
@WeStudentNurse Q2: Not witnessed but I have been part of the patient journey. Cried on my first one - mainly because they were so lively up to the end and we’d just been talking about him in the MDT ?? #WeStNs
@WeStudentNurse
07 October 2020 20:47
@Punc20HaLi Yes it can be very touch as they are trusting you in their most vulnerable state #WeStNs
@Rhys_Marv
07 October 2020 20:48
@WeStudentNurse I think it has gotten easier as my first experience I didn't know the gentleman or the ward. But,on extended placement I got to know the patient ,their families and found that this knowledge was hugely beneficial when supporting them at the end of life and after death #WeStNs
@WeCYPnurses
07 October 2020 20:48
@MParry442 @WeStudentNurse A very long time ago, as a yr1 student nurse I was left alone to prepare a man who had died, for his family. I thought it would be a good idea to prop him up with pillows so he looked comfy! Not my best moment, as the visitors stayed for ages and rigor mortis set in... #WeStNs
@WeStudentNurse
07 October 2020 20:49
@EPUNC18 Yes this is a very good understanding #WeStNs
@Punc20HaLi
07 October 2020 20:49
@WeStudentNurse Patience, understanding, knowledge and sympathy #WeStNs
@Georgina_Lilly_
07 October 2020 20:50
RT @WeStudentNurse: #WeStNs https://t.co/s8BgrkbxZc
@MParry442
07 October 2020 20:50
@PUNC19Laura @WeStudentNurse Always worth remembering palliation is from diagnosis and end of life is from when the patient is in a progressive state of decline (the last 6 to 12 months). NICE differentiate again with the term last days #WeStNs
@WeStudentNurse
07 October 2020 20:51
@puncabigail53 About listening #WeStNs
@lucy_uo
07 October 2020 20:51
@WeStudentNurse I don't feel there is really anything I need to know. I think it's more experience that I need. I'd like magic words but I know they don't exist #WeStNs
@MParry442
07 October 2020 20:52
@WeCYPnurses @WeStudentNurse oh we all learn from our mistakes, I have a few ?? #WeStNs
@WeStudentNurse
07 October 2020 20:52
@StNurseLee @Natalie_StN @claire63483492 Absolutely does, and is vital #WeStNs
@EPUNC18
07 October 2020 20:53
@WeStudentNurse #WeStNs Honestly for me I feel nothing I could ever know would make me more confident or competent in talking to patients about dying it’s never an easy subject but I would listen and be guided by them
@WeCYPnurses
07 October 2020 20:53
Death is Always really sad, but we have to remember it’s not our grief. Ok to shed a few tears but to sob uncontrollably is best saved until you are off duty #weStNs https://twitter.com/punc19laura/status/1313927081626087432
@WeStudentNurse
07 October 2020 20:53
@Punc20HaLi It’s very difficult but thinking of it as how will we know what they want? Sometimes helps and you can gain most information from a general talk. #WeStNs
@MParry442
07 October 2020 20:53
@lucy_uo @WeStudentNurse So important Lucy everyone is different and we really need to dip our toes in and be guided by the patient/family #WeStNs
@WeStudentNurse
07 October 2020 20:54
@stnEllena_paeds How did you feel in that time? #WeStNs
@PUNC19Laura
07 October 2020 20:55
@WeCYPnurses Absolutely agree. I’ve seen it in carehomes and it makes me feel so awkward, they might be “like family” but ultimately they are not. Support the patient & family professionally first, process your own feelings separately #WeStNs
@lucy_uo
07 October 2020 20:55
@WeStudentNurse After the patient died it depends. There was a time dozens of family members showed up, and that was actually a bit frustrating when you were trying to work, but also wanting to be sensitive. Another time it was a patient who had been there a long time & people were upset #WeStNs
@WeStudentNurse
07 October 2020 20:55
@claire63483492 And that is our aim to make people comfortable and do what we can #WeStNs
@WeStudentNurse
07 October 2020 20:55
@carlyannedavies That is a shame #WeStNs
@nikkilouh
07 October 2020 20:56
@WeStudentNurse I suppose it is about looking at different scenarios etc as families will need different approaches to discussions than the patient. What are the protocols when a death occurs e.g who do we need to inform etc, correct documentation. #WeStNs
@lucy_uo
07 October 2020 20:56
@WeStudentNurse For the woman whose husband had died on another ward she was actually is relatively high spirits. She knew he was going to die, she went to visit him on the ward, and she saw it as a blessing for him, and talked about how she was lucky he had been her husband #WeStNs
@WeStudentNurse
07 October 2020 20:57
MentiMeter Results thank you for being do involved #WeStNs https://t.co/E3lFN9FyMZ
@lucy_uo
07 October 2020 20:57
@MParry442 @WeStudentNurse Yes. For us when something becomes everyday it is probably easy to not always think the weights our words might carry. I don't blame the nurse. #WeStNs
@WeStudentNurse
07 October 2020 20:58
What an opportunity if you what to know more about last offices #WeStNs https://twitter.com/mparry442/status/1313926232631894016
@PUNC19Laura
07 October 2020 20:58
@WeCYPnurses If i was full of grief and wanted to sob and hold my family members hand a member of staff was doing it, I would personally feel like it was completely inappropriate #WeStNs we can be compassionate but professional.
@WeStudentNurse
07 October 2020 20:58
@MParry442 Thank you @MParry442 that’s amazing I’m sure you will have lots to include #WeStNs
@WeCYPnurses
07 October 2020 20:58
@WeStudentNurse Great chat you guys! So good to see death and dying being talked about so openly. #weStNs
@stnEllena_paeds
07 October 2020 20:58
@WeStudentNurse I felt useless to be honest, it will be a situation that will remain with me - I had to be aware at the time to not become too personally involved and cross boundaries #WeStNs
@WeStudentNurse
07 October 2020 20:58
@lucy_uo This is so important #WeStNs
@Georgina_Lilly_
07 October 2020 20:59
RT @WeStudentNurse: MentiMeter Results thank you for being do involved #WeStNs https://t.co/E3lFN9FyMZ




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