#WeEOLC - Tuesday 5th July 2016 8pm (GMT Standard Time)
WeEOLC Journal Club
If you haven't joined in a tweet chat before it's very simple. Here's a guide Tweet
Chat Details
Hosted by WeEOLC using #WeEOLC
Our next tweet chat on Tuesday 5th July will be an opportunity to learn from the literature and from one another. The paper we have chosen is from a study undertaken in New Zealand on the benefits of hospital admission, from the perspective of patients with palliative care needs. In the UK, deaths in hospital are often viewed negatively, and there is a current policy drive towards increasing the proportion of deaths in one's "usual place of residence". This paper focuses on the benefits of hospital admission - as such, we thought it would make an interesting discussion and one which could perhaps draw out similarities and differences in hospital care in different countries.
To prepare for the chat read please the open access article (link below) and jot down your thoughts, particularly focusing on:-
- what is your experience of hospital admissions in the last year of life?
- does the paper "ring true" for you in your place of work?
- what do you think about the methods - how the authors did this piece of research?
- what about the quality of the findings?
- does it raise any unanswered questions for you?
Look forward to seeing you on 5th July - follow the discussion on #WeEOLC 20:00-21:00 GMT.
Robinson,J, Gott, M, Gardiner, C, Ingleton, C (2015) A Qualitative study exploring the benefits of hospital admissions from the perspectives of patients with palliative care needs, in Palliative Medicine, 29 (8) p703-710 available from http://pmj.sagepub.com/content/29/8/703.full.pdf+html (OPENACCESS)
You might find the following links useful:
Infographic: Reading Scientific Papers
Chat Contributers
100 Tweets
200 Tweets
20000 Impressions
20000 Impressions
20000 Impressions
Engagement Wheel
Chat Word Cloud
Participant bio cloud
Chat Summary
Coming soon
Post Chat Comments
After the chat you may like to add a reflection, add some questions, or maybe you've made a change from something you leant on the chat...well now you can with "post chat comments" below.
You'll need to be logged into via Twitter from the main menu, then you can share your post chat comments...
You'll need to be logged into via Twitter from the main menu, then you can share your post chat comments...
|
@{{Comment.screenName}}
{{Comment.DateCreated | date:"dd MMMM yyyy HH:mm"}}
|
{{Comment.Comment}} |
#WeEOLC transcript
|
@WeEOLC
05 July 2016 20:00
|
|
Welcome everybody to this evenings tweetchat - @heblau tweeting as @WeEOLC. Give us a wave & tell us where & who you are #WeEOLC |
|
@WeEOLC
05 July 2016 20:03
|
|
@cewalshe Welcome! Don't forget to use #WeEOLC so everyone can see tweets, even if you are multi-tasking (PS can't they have toast tonight?) |
|
@nursingSUni
05 July 2016 20:04
|
|
@WeEOLC @heblau Hello, I'm Penny tweeting on behalf of @nursingSUni #WeEOLC |
|
@WeEOLC
05 July 2016 20:04
|
|
So tonight's chat is a journal club - this is the paper we will be discussing http://pmj.sagepub.com/content/29/8/703.full.pdf+html make sure to use #WeEOLC |
|
@WeEOLC
05 July 2016 20:04
|
|
RT @nursingSUni: @WeEOLC @heblau Hello, I'm Penny tweeting on behalf of @nursingSUni #WeEOLC |
|
@WeEOLC
05 July 2016 20:04
|
|
.@nursingSUni Welcome Penny - are you a student nurse? #WeEOLC |
|
@cewalshe
05 July 2016 20:05
|
|
@WeEOLC Oh dear. Epic fail already at #WeEOLC. Gammon, and nearly ready ... |
|
@nursingSUni
05 July 2016 20:05
|
|
@WeEOLC yes, I am #WeEOLC |
|
@WeEOLC
05 July 2016 20:06
|
|
First question:- can you tell us about positive experiences of hospital admissions in the last year of life? #WeEOLC |
|
@WeEOLC
05 July 2016 20:07
|
|
Unusual topic -focus on positive aspects of hospital care at the end of life - vs presumpting home is best #WeEOLC https://twitter.com/WeEOLC/status/750405393839366144 |
|
@WeEOLC
05 July 2016 20:08
|
|
@HannahSTN @nursingSUni Welcome. Can you share positive experiences of EOLC in hospitals? #WeEOLC |
|
@heblau
05 July 2016 20:09
|
|
RT @WeEOLC: Unusual topic -focus on positive aspects of hospital care at the end of life - vs presumpting home is best #WeEOLC https://t.c… |
|
@LetsTalkDeath
05 July 2016 20:10
|
|
Given that EOLC is "core business" for hospitals it is important to look at positive elements so that we can learn #WeEOLC |
|
@elleysowerby
05 July 2016 20:10
|
|
@WeEOLC @heblau #WeEOLC Hello Elley here just lurking ?? |
|
@marie7732
05 July 2016 20:10
|
|
@IrishHospice established hospice friendly hospital prog 10 years ago see http://hospicefoundation.ie/healthcare-programmes/hospice-friendly-hospitals/ for full info #WeEOLC |
|
@WeEOLC
05 July 2016 20:12
|
|
So in a nutshell - paper interviewed 14 patients on admission & after discharge, asking re (1) expectations and (2) experiences #WeEOLC 1/2 |
|
@BridgetJohnst
05 July 2016 20:13
|
|
@WeEOLC #WeEOLC sorry joining a bit late #mumtaxiduty |
|
@WeEOLC
05 July 2016 20:13
|
|
Found 4 themes: being cared for & feeling safe,receiving care to manage at home,relief for family feeling better &/or getting better #WeEOLC |
|
@PamStoney1
05 July 2016 20:14
|
|
@WeEOLC #WeEOLC Pam here, Sp Dr in hospice but thinking back to a relative's death in hospital 10yrs ago. Staff at LTHT HDU (LGI) were ace |
|
@BridgetJohnst
05 July 2016 20:14
|
|
RT @Diealogforum: What happens after I die? http://bbc.in/29ikBLQ via @BBCiWonder #WeEOLC = D Core Q no3. No1 = How Prepare for dying No2… |
|
@nursingSUni
05 July 2016 20:15
|
|
@WeEOLC @HannahSTN side rooms with open visiting hours, syringe drivers for pain relief, time for family and friends to say goodbye #WeEOLC |
|
@WeEOLC
05 July 2016 20:15
|
|
Yes, a fantastic model in Ireland - TY for link #WeEOLC - are findings of this study transferable to UK hospitals? https://twitter.com/marie7732/status/750406631444344833 |
|
@WeEOLC
05 July 2016 20:16
|
|
.@nursingSUni @HannahSTN participants in this study were in the last year of life - all but 2 were discharged #WeEOLC |
|
@elleysowerby
05 July 2016 20:17
|
|
@WeEOLC #WeEOLC Think it also depends on the ethos of care amongst staff and if palliative care is seen as an integral componenet |
|
@heblau
05 July 2016 20:17
|
|
Participants were in last year of life - not actively dying - all took part in interviews about their experiences #WeEOLC |
|
@cewalshe
05 July 2016 20:18
|
|
@WeEOLC interlink between home and hospital critical #WeEOLC |
|
@WeEOLC
05 July 2016 20:18
|
|
Next question - did this study's findings "ring true" for you in your place of work? #WeEOLC |
|
@BridgetJohnst
05 July 2016 20:19
|
|
RT @marie7732: @IrishHospice established hospice friendly hospital prog 10 years ago see http://hospicefoundation.ie/healthcare-programmes/hospice-friendly-hospitals/ for full info #WeEOLC |
|
@WeEOLC
05 July 2016 20:19
|
|
Reminder: 4 themes -feeling safe, receiving care to manage at home, relief 4 family, feeling/getting better #WeEOLC https://twitter.com/WeEOLC/status/750408435284324353 |
|
@BridgetJohnst
05 July 2016 20:20
|
|
RT @WeEOLC: So tonight's chat is a journal club - this is the paper we will be discussing http://pmj.sagepub.com/content/29/8/703.full.pdf+html make sure to use #WeEOLC |
|
@heblau
05 July 2016 20:20
|
|
I am interested in the idea of hospital as helping people to "feel safe" - resonates w/ my experience but why is this? #WeEOLC |
|
@ClareVeigh
05 July 2016 20:21
|
|
RT @marie7732: @IrishHospice established hospice friendly hospital prog 10 years ago see http://hospicefoundation.ie/healthcare-programmes/hospice-friendly-hospitals/ for full info #WeEOLC |
|
@ClareVeigh
05 July 2016 20:21
|
|
RT @WeEOLC: So tonight's chat is a journal club - this is the paper we will be discussing http://pmj.sagepub.com/content/29/8/703.full.pdf+html make sure to use #WeEOLC |
|
@LearnPEOLC
05 July 2016 20:21
|
|
Sorry everyone I'm super late and now catching up madly #WeEOLC |
|
@LearnPEOLC
05 July 2016 20:22
|
|
RT @marie7732: @IrishHospice established hospice friendly hospital prog 10 years ago see http://hospicefoundation.ie/healthcare-programmes/hospice-friendly-hospitals/ for full info #WeEOLC |
|
@WeEOLC
05 July 2016 20:22
|
|
Why do you think participants reported feeling safer in hospital than at home? #WeEOLC |
|
@BridgetJohnst
05 July 2016 20:22
|
|
#feeling safe and secure @heblau @WeEOLC #WeEOLC this was a key theme in my doctoral research from over 14 years ago |
|
@cewalshe
05 July 2016 20:23
|
|
@heblau 24/7 care. Easy availability of care and support? Expertise? #WeEOLC |
|
@elleysowerby
05 July 2016 20:23
|
|
@heblau #WeEOLC I think for some it can be comforting to be surrounded by 24/7 care and also the relief/support for family |
|
@BridgetJohnst
05 July 2016 20:23
|
|
RT @cewalshe: @heblau 24/7 care. Easy availability of care and support? Expertise? #WeEOLC |
|
@BridgetJohnst
05 July 2016 20:23
|
|
RT @elleysowerby: @heblau #WeEOLC I think for some it can be comforting to be surrounded by 24/7 care and also the relief/support for family |
|
@WeEOLC
05 July 2016 20:24
|
|
Feeling safe is so important for people in the last year of life - wherever they are receiving care #WeEOLC https://twitter.com/BridgetJohnst/status/750409638500306944 |
|
@BridgetJohnst
05 July 2016 20:24
|
|
RT @WeEOLC: Feeling safe is so important for people in the last year of life - wherever they are receiving care #WeEOLC https://t.co/CRpSv… |
|
@researchospice
05 July 2016 20:24
|
|
Great chat going on at @WeEOLC #WeEOLC about dying in hospital @APMPostTweets @MarieCurieEOLC |
|
@WeEOLC
05 July 2016 20:24
|
|
.@elleysowerby Good point - a key theme in this paper was relief for family while they were in hospital #WeEOLC |
|
@WeEOLC
05 July 2016 20:25
|
|
RT @cewalshe: @heblau 24/7 care. Easy availability of care and support? Expertise? #WeEOLC |
|
@WeEOLC
05 July 2016 20:25
|
|
RT @BridgetJohnst: #feeling safe and secure @heblau @WeEOLC #WeEOLC this was a key theme in my doctoral research from over 14 years ago |
|
@cewalshe
05 July 2016 20:25
|
|
And even as a committed community care advocate, I don't think we can replicate that at home @elleysowerby @heblau #WeEOLC |
|
@BridgetJohnst
05 July 2016 20:26
|
|
RT @cewalshe: And even as a committed community care advocate, I don't think we can replicate that at home @elleysowerby @heblau #WeEOLC |
|
@LearnPEOLC
05 July 2016 20:26
|
|
@WeEOLC @elleysowerby #WeEOLC I agree carers need a break & a trusted place for those they love |
|
@WeEOLC
05 July 2016 20:26
|
|
What do others think -will hospital always provide a "safety net' for some ppl who feel vulnerable at home #WeEOLC https://twitter.com/cewalshe/status/750410246795952128 |
|
@LearnPEOLC
05 July 2016 20:26
|
|
RT @researchospice: Great chat going on at @WeEOLC #WeEOLC about dying in hospital @APMPostTweets @MarieCurieEOLC |
|
@LearnPEOLC
05 July 2016 20:26
|
|
@BridgetJohnst @heblau @WeEOLC #WeEOLC have things changed since then? |
|
@LearnPEOLC
05 July 2016 20:27
|
|
RT @elleysowerby: @heblau #WeEOLC I think for some it can be comforting to be surrounded by 24/7 care and also the relief/support for family |
|
@LearnPEOLC
05 July 2016 20:27
|
|
RT @cewalshe: @heblau 24/7 care. Easy availability of care and support? Expertise? #WeEOLC |
|
@WeEOLC
05 July 2016 20:27
|
|
About the paper - to what extent do you think findings are transferable to UK? 14 patients in one hospital in New Zealand #WeEOLC |
|
@LearnPEOLC
05 July 2016 20:27
|
|
RT @WeEOLC: Reminder: 4 themes -feeling safe, receiving care to manage at home, relief 4 family, feeling/getting better #WeEOLC https://t.c… |
|
@LearnPEOLC
05 July 2016 20:27
|
|
RT @cewalshe: @WeEOLC interlink between home and hospital critical #WeEOLC |
|
@LearnPEOLC
05 July 2016 20:27
|
|
RT @cewalshe: And even as a committed community care advocate, I don't think we can replicate that at home @elleysowerby @heblau #WeEOLC |
|
@heblau
05 July 2016 20:27
|
|
RT @WeEOLC: What do others think -will hospital always provide a "safety net' for some ppl who feel vulnerable at home #WeEOLC https://t.co… |
|
@cewalshe
05 July 2016 20:28
|
|
Yes, and home a haven for those who feel stressed and anxious in hospital. Thats why we need to get it all right, every time. #WeEOLC |
|
@BridgetJohnst
05 July 2016 20:28
|
|
@learnhospice @heblau @WeEOLC #WeEOLC yes But the need to feel safe and secure remains. |
|
@ClareVeigh
05 July 2016 20:28
|
|
@WeEOLC Clare from @NIHEducation, often patients and families want to be at home but when receive pall care in hospital feel safe #WeEOLC |
|
@LearnPEOLC
05 July 2016 20:28
|
|
@cewalshe @elleysowerby @heblau #WeEOLC without seeming trite...it is about what matters! |
|
@PamStoney1
05 July 2016 20:29
|
|
RT @WeEOLC: What do others think -will hospital always provide a "safety net' for some ppl who feel vulnerable at home #WeEOLC https://t.co… |
|
@cewalshe
05 July 2016 20:29
|
|
Would be good to explore, but intuitively, yes. @WeEOLC #WeEOLC |
|
@WeEOLC
05 July 2016 20:30
|
|
One interesting finding - pts judged whether they were getting better by their blood/scan results rather than whether feeling better #WeEOLC |
|
@LearnPEOLC
05 July 2016 20:30
|
|
@WeEOLC @cewalshe @elleysowerby @heblau #WeEOLC yes and even with plans in place hospital can be safest place |
|
@BridgetJohnst
05 July 2016 20:30
|
|
RT @learnhospice: @WeEOLC @cewalshe @elleysowerby @heblau #WeEOLC yes and even with plans in place hospital can be safest place |
|
@LearnPEOLC
05 July 2016 20:31
|
|
@WeEOLC #WeEOLC good q! I think context is everything: culture, services, family circumstances, hospital set up etc etc etc |
|
@marie7732
05 July 2016 20:31
|
|
Hospital r often appropriate place 4 people 2 die Getting culture, environment & timely care is the issue @IrishHospice #hfh2016 #WeEOLC |
|
@LearnPEOLC
05 July 2016 20:31
|
|
@ClareVeigh @WeEOLC @NIHEducation #WeEOLC from your exp Clare does diagnosis make a difference? |
|
@ClareVeigh
05 July 2016 20:32
|
|
@WeEOLC @NIHEducation due to 24/7 care and support, sitting with a nurse at 3am with a cuppa #WeEOLC |
|
@LearnPEOLC
05 July 2016 20:32
|
|
@WeEOLC #WeEOLC hmmmm putting thinking hat on |
|
@WeEOLC
05 July 2016 20:32
|
|
Home asks a lot from carers (admission for all pts was for clinical reasons, respite was a side effect) #WeEOLC https://twitter.com/PamStoney1/status/750411582304296960 |
|
@LearnPEOLC
05 July 2016 20:33
|
|
@marie7732 @IrishHospice say more Marie? #WeEOLC |
|
@WeEOLC
05 July 2016 20:33
|
|
.@learnhospice @ClareVeigh @NIHEducation Good question - in this study most had cancer #WeEOLC |
|
@LearnPEOLC
05 July 2016 20:33
|
|
RT @ClareVeigh: @WeEOLC @NIHEducation due to 24/7 care and support, sitting with a nurse at 3am with a cuppa #WeEOLC |
|
@WeEOLC
05 July 2016 20:33
|
|
RT @learnhospice: @ClareVeigh @WeEOLC @NIHEducation #WeEOLC from your exp Clare does diagnosis make a difference? |
|
@BridgetJohnst
05 July 2016 20:33
|
|
RT @WeEOLC: Home asks a lot from carers (admission for all pts was for clinical reasons, respite was a side effect) #WeEOLC https://t.co/oj… |
|
@Becbaines
05 July 2016 20:34
|
|
#WeEOLC Hello, sorry to be late. Think I may have missed link to paper. |
|
@WeEOLC
05 July 2016 20:34
|
|
It seems ppl are agreed that this paper challenges the assumption that home is always best - is that right? #WeEOLC |
|
@WeEOLC
05 July 2016 20:35
|
|
@Becbaines http://linkis.com/wecommunities.org/ePXT7 #WeEOLC |
|
@LearnPEOLC
05 July 2016 20:35
|
|
RT @WeEOLC: Home asks a lot from carers (admission for all pts was for clinical reasons, respite was a side effect) #WeEOLC https://t.co/oj… |
|
@LearnPEOLC
05 July 2016 20:35
|
|
RT @Becbaines: #WeEOLC Hello, sorry to be late. Think I may have missed link to paper. |
|
@WeEOLC
05 July 2016 20:36
|
|
.@Scottish_Banana ppl w/ dementia important population that were not studied in this paper...why do you think that was? #WeEOLC |
|
@MCPCIL
05 July 2016 20:36
|
|
New Unit @RoyalLpoolHosps for complex #palliative #eolc needs with aim to discharge to pref place of care https://t.co/5Jh4dmPZDl #WeEOLC |
|
@ClareVeigh
05 July 2016 20:36
|
|
@learnhospice @WeEOLC I don't think the diagnosis itself makes a difference however palliative service provision may differ #WeEOLC |
|
@BridgetJohnst
05 July 2016 20:37
|
|
RT @WeEOLC: .@Scottish_Banana ppl w/ dementia important population that were not studied in this paper...why do you think that was? #WeEOLC |
|
@MCPCIL
05 July 2016 20:37
|
|
RT @heblau: I am interested in the idea of hospital as helping people to "feel safe" - resonates w/ my experience but why is this? #WeEOLC |
|
@LearnPEOLC
05 July 2016 20:37
|
|
@WeEOLC #WeEOLC I'm 'coming out' home should not be assumed PPD far more complex including turning domestic space into clinical space |
|
@LearnPEOLC
05 July 2016 20:38
|
|
RT @WeEOLC: @Becbaines http://linkis.com/wecommunities.org/ePXT7 #WeEOLC |
|
@LearnPEOLC
05 July 2016 20:38
|
|
RT @WeEOLC: .@Scottish_Banana ppl w/ dementia important population that were not studied in this paper...why do you think that was? #WeEOLC |
|
@LearnPEOLC
05 July 2016 20:38
|
|
@MCPCIL @RoyalLpoolHosps #WeEOLc great link TY! |
|
@LearnPEOLC
05 July 2016 20:38
|
|
@ClareVeigh @WeEOLC #WeEOLC as in access? |
|
@heblau
05 July 2016 20:39
|
|
@ClareVeigh I think diagnosis does make a difference - all participants knew they had a life-limiting illness- not always the case #WeEOLC |
|
@marie7732
05 July 2016 20:39
|
|
@IrishHospice we intro staff eolc training;design & dignity prog 4 env & bereaved rel survey 2 support QIP #WeEOLC https://twitter.com/learnhospice/status/750412249223823360 |
|
@WeEOLC
05 July 2016 20:39
|
|
RT @learnhospice: @WeEOLC #WeEOLC I'm 'coming out' home should not be assumed PPD far more complex including turning domestic space into cl… |
|
@LearnPEOLC
05 July 2016 20:39
|
|
RT @marie7732: @IrishHospice we intro staff eolc training;design & dignity prog 4 env & bereaved rel survey 2 support QIP #WeEOLC https://… |
|
@PamStoney1
05 July 2016 20:39
|
|
#WeEOLC indeed, & uncontrolled symptoms cause great stress to Carers. Cycle of anxiety for both carer & pt? https://twitter.com/weeolc/status/750412142453620736 |
|
@WeEOLC
05 July 2016 20:40
|
|
RT @PamStoney1: #WeEOLC indeed, & uncontrolled symptoms cause great stress to Carers. Cycle of anxiety for both carer & pt? https://t.co/N… |
|
@ClareVeigh
05 July 2016 20:40
|
|
@learnhospice @WeEOLC patients with nonmalignant disease may have had different experience due to services available for non-cancer #WeEOLC |
|
@LearnPEOLC
05 July 2016 20:40
|
|
@PamStoney1 @WeEOLC #WeEOLC and persistent caring |
|
@CElliumK
05 July 2016 20:40
|
|
RT @learnhospice: @WeEOLC #WeEOLC I'm 'coming out' home should not be assumed PPD far more complex including turning domestic space into cl… |
|
@researchospice
05 July 2016 20:41
|
|
RT @PamStoney1: #WeEOLC indeed, & uncontrolled symptoms cause great stress to Carers. Cycle of anxiety for both carer & pt? https://t.co/N… |
|
@cewalshe
05 July 2016 20:41
|
|
Study from @ioelc explored these disruptions between home and care: http://www.sciencedirect.com/science/article/pii/S1353829216000228 #WeEOLC |
|
@researchospice
05 July 2016 20:41
|
|
RT @marie7732: @IrishHospice we intro staff eolc training;design & dignity prog 4 env & bereaved rel survey 2 support QIP #WeEOLC https://… |
|
@WeEOLC
05 July 2016 20:41
|
|
Interesting - discussion of positive aspects of care in hospital often actually just avoidance of negative aspects of care at home #WeEOLC |
|
@researchospice
05 July 2016 20:41
|
|
RT @learnhospice: @ClareVeigh @WeEOLC #WeEOLC as in access? |
|
@researchospice
05 July 2016 20:41
|
|
@MCPCIL @RoyalLpoolHosps #WeEOLC oh like this TY |
|
@researchospice
05 July 2016 20:41
|
|
RT @learnhospice: @WeEOLC #WeEOLC I'm 'coming out' home should not be assumed PPD far more complex including turning domestic space into cl… |
|
@ClareVeigh
05 July 2016 20:41
|
|
@heblau in my PhD research patients with nonmalignant respiratory disease often did not know they had a life limiting illness #WeEOLC |
|
@researchospice
05 July 2016 20:41
|
|
RT @WeEOLC: .@Scottish_Banana ppl w/ dementia important population that were not studied in this paper...why do you think that was? #WeEOLC |
|
@WeEOLC
05 July 2016 20:42
|
|
Thanks for this link Catherine #WeEOLC #EBP https://twitter.com/cewalshe/status/750414242008932353 |
|
@researchospice
05 July 2016 20:42
|
|
@ClareVeigh @learnhospice @WeEOLC #WeEOLC excellent point & borne out again and again in evidence IMO |
|
@heblau
05 July 2016 20:42
|
|
.@ClareVeigh Indeed - therefore would not necessarily have same views as participants in this study #WeEOLC |
|
@researchospice
05 July 2016 20:43
|
|
@cewalshe @IOELC #WeEOLC excellent paper and also see @AileenCollier15 work on this |
|
@WeEOLC
05 July 2016 20:43
|
|
So do we think the study's findings would be different if it were carried out with a different population? #WeEOLC https://twitter.com/ClareVeigh/status/750414119128428544 |
|
@ClareVeigh
05 July 2016 20:43
|
|
@heblau One carer said, "I did not know my mother was palliative until after she died." Very 1st interview and I never forget words #WeEOLC |
|
@cewalshe
05 July 2016 20:44
|
|
@WeEOLC Other publications from study too https://t.co/FpCMg6kS1R #WeEOLC |
|
@researchospice
05 July 2016 20:44
|
|
@ClareVeigh @heblau say more Clare? Do u have link to paper? #WeEOLC |
|
@researchospice
05 July 2016 20:44
|
|
RT @WeEOLC: Thanks for this link Catherine #WeEOLC #EBP https://twitter.com/cewalshe/status/750414242008932353 |
|
@marie7732
05 July 2016 20:44
|
|
Yet more people with cancer die at home and in hospice. Noncancer is common blind spot in many eolc studies #WeEOLC https://twitter.com/weeolc/status/750412301568712704 |
|
@WeEOLC
05 July 2016 20:44
|
|
That is very sad #WeEOLC https://twitter.com/ClareVeigh/status/750414886069497857 |
|
@PamStoney1
05 July 2016 20:44
|
|
#WeEOLC exactly. Especially if uncertain as how long caring will 'have to' last. Cognitive dissonance with here/not https://twitter.com/learnhospice/status/750414119732387841 |
|
@WeEOLC
05 July 2016 20:44
|
|
RT @PamStoney1: #WeEOLC exactly. Especially if uncertain as how long caring will 'have to' last. Cognitive dissonance with here/not https:/… |
|
@LearnPEOLC
05 July 2016 20:45
|
|
@cewalshe @WeEOLC fabulous #WeEOLC |
|
@bigbaddoctor
05 July 2016 20:45
|
|
RT @marie7732: @IrishHospice established hospice friendly hospital prog 10 years ago see http://hospicefoundation.ie/healthcare-programmes/hospice-friendly-hospitals/ for full info #WeEOLC |
|
@lgoodbu
05 July 2016 20:46
|
|
RT @WeEOLC: That is very sad #WeEOLC https://twitter.com/ClareVeigh/status/750414886069497857 |
|
@LearnPEOLC
05 July 2016 20:46
|
|
@ClareVeigh @heblau #WeEOLC is it also about definition confusion of terms? |
|
@ClareVeigh
05 July 2016 20:46
|
|
@researchospice @heblau Almost ready for submission to journal so hopefully soon ?? #WeEOLC |
|
@WeEOLC
05 July 2016 20:46
|
|
@Scottish_Banana challenges doing research with people with dementia - how can we capture experiences of EOLC with research? #WeEOLC |
|
@LearnPEOLC
05 July 2016 20:46
|
|
RT @cewalshe: @WeEOLC Other publications from study too http://www.research.lancs.ac.uk/portal/en/projects/unpacking-the-home%28b3e1a1ae-23f4-4cf5-ab29-d9883e9c481f%29.html #WeEOLC |
|
@lgoodbu
05 July 2016 20:46
|
|
RT @PamStoney1: #WeEOLC indeed, & uncontrolled symptoms cause great stress to Carers. Cycle of anxiety for both carer & pt? https://t.co/N… |
|
@LearnPEOLC
05 July 2016 20:46
|
|
RT @researchospice: @ClareVeigh @learnhospice @WeEOLC #WeEOLC excellent point & borne out again and again in evidence IMO |
|
@LearnPEOLC
05 July 2016 20:46
|
|
RT @PamStoney1: #WeEOLC exactly. Especially if uncertain as how long caring will 'have to' last. Cognitive dissonance with here/not https:/… |
|
@lgoodbu
05 July 2016 20:46
|
|
RT @learnhospice: @WeEOLC #WeEOLC I'm 'coming out' home should not be assumed PPD far more complex including turning domestic space into cl… |
|
@ClareVeigh
05 July 2016 20:46
|
|
RT @WeEOLC: So do we think the study's findings would be different if it were carried out with a different population? #WeEOLC https://t.c… |
|
@LearnPEOLC
05 July 2016 20:47
|
|
@PamStoney1 @WeEOLC #weeolc yup |
|
@heblau
05 July 2016 20:47
|
|
@ClareVeigh Often patients labelled as "palliative" - increasingly meaningless - patients are people on a (sometimes rocky) journey #WeEOLC |
|
@cewalshe
05 July 2016 20:47
|
|
@WeEOLC Doubt it, to be honest. Still about safety, symptom management etc.?? #WeEOLC |
|
@elleysowerby
05 July 2016 20:47
|
|
RT @marie7732: Yet more people with cancer die at home and in hospice. Noncancer is common blind spot in many eolc studies #WeEOLC https:/… |
|
@LearnPEOLC
05 July 2016 20:47
|
|
@ClareVeigh @researchospice @heblau excellent! #WeEOLC |
|
@ClareVeigh
05 July 2016 20:48
|
|
@learnhospice @heblau from my research I didn't find that but I do still think there is a lot of confusion amongst public & HCPs #WeEOLC |
|
@heblau
05 July 2016 20:48
|
|
@cewalshe I wonder whether their experiences of "feeling better" would be replicated #WeEOLC |
|
@MCPCIL
05 July 2016 20:49
|
|
.@ClareVeigh @heblau Sad. Shows importance of good communication. Interesting use of 'palliative' ie to mean 'imminently dying'? #WeEOLC |
|
@LearnPEOLC
05 July 2016 20:49
|
|
@ClareVeigh @heblau #WeEOLC wonder if it is about the evolvement of defs as much as anything ie defs dont keep up with service development |
|
@ClareVeigh
05 July 2016 20:49
|
|
RT @researchospice: @ClareVeigh @learnhospice @WeEOLC #WeEOLC excellent point & borne out again and again in evidence IMO |
|
@Scottish_Banana
05 July 2016 20:50
|
|
@WeEOLC it's tricky. Maybe qual interviews, focus groups etc determining what person wants then compare with what actually happens? #WeEOLC |
|
@WeEOLC
05 July 2016 20:50
|
|
What was your main learning point from this paper? #WeEOLC |
|
@LearnPEOLC
05 July 2016 20:51
|
|
@ClareVeigh @heblau #WeEOLC similar in mine in that talk about dying ppl understand, talk medical defs e.g ACP less understanding |
|
@PamStoney1
05 July 2016 20:51
|
|
@ClareVeigh @heblau #weEOLC Guess it's why we need to talk more about compassionate communities, have the conversations in all walks of life |
|
@WeEOLC
05 July 2016 20:51
|
|
@Scottish_Banana Often ppl w dementia lose ability to speak in the last year of life - perhaps longitudinal study #WeEOLC |
|
@heblau
05 July 2016 20:51
|
|
RT @PamStoney1: @ClareVeigh @heblau #weEOLC Guess it's why we need to talk more about compassionate communities, have the conversations in… |
|
@WeEOLC
05 July 2016 20:51
|
|
RT @PamStoney1: @ClareVeigh @heblau #weEOLC Guess it's why we need to talk more about compassionate communities, have the conversations in… |
|
@heblau
05 July 2016 20:52
|
|
RT @WeEOLC: What was your main learning point from this paper? #WeEOLC |
|
@ClareVeigh
05 July 2016 20:52
|
|
RT @PamStoney1: @ClareVeigh @heblau #weEOLC Guess it's why we need to talk more about compassionate communities, have the conversations in… |
|
@LetsTalkDeath
05 July 2016 20:53
|
|
@WeEOLC For me it was to challenge the assumptions that home is good & to reflect on how vulnerable people & their families can feel #WeEOLC |
|
@marie7732
05 July 2016 20:53
|
|
Uk eolc intel report 30% p w dementia die in hospital ev year much more needs to be done to support pwd #weEOLC https://twitter.com/weeolc/status/750415473326559232 |
|
@swaydemfriend
05 July 2016 20:53
|
|
@WeEOLC @Scottish_Banana #WeEOLC even with advanced dementia u can still observe, ask and listen. Do not assume PWD can't participate |
|
@marie7732
05 July 2016 20:55
|
|
RT @swaydemfriend: @WeEOLC @Scottish_Banana #WeEOLC even with advanced dementia u can still observe, ask and listen. Do not assume PWD can'… |
|
@WeEOLC
05 July 2016 20:55
|
|
#WeEOLC [oops] https://twitter.com/WeEOLC/status/750417711793053696 |
|
@BridgetJohnst
05 July 2016 20:55
|
|
RT @marie7732: Uk eolc intel report 30% p w dementia die in hospital ev year much more needs to be done to support pwd #weEOLC https://t.c… |
|
@Becbaines
05 July 2016 20:55
|
|
Sorry forgot # #WeEOLC https://twitter.com/becbaines/status/750417694906781696 |
|
@WeEOLC
05 July 2016 20:56
|
|
Ok last few minutes - what have you learnt from this paper? #WeEOLC |
|
@WeEOLC
05 July 2016 20:56
|
|
RT @Becbaines: Sorry forgot # #WeEOLC https://twitter.com/becbaines/status/750417694906781696 |
|
@elleysowerby
05 July 2016 20:57
|
|
@heblau @cewalshe #WeEoLC I wonder if access to acute hospital would vary for those living in rural areas? Community support? |
|
@heblau
05 July 2016 20:57
|
|
RT @WeEOLC: Ok last few minutes - what have you learnt from this paper? #WeEOLC |
|
@NursingUoB
05 July 2016 20:57
|
|
RT @WeEOLC: Ok last few minutes - what have you learnt from this paper? #WeEOLC |
|
@LetsTalkDeath
05 July 2016 20:57
|
|
RT @WeEOLC: Ok last few minutes - what have you learnt from this paper? #WeEOLC |
|
@PamStoney1
05 July 2016 20:58
|
|
@WeEOLC #WeEOLC For me to have discussions w pts about what they gained from their hospital experience & provide feedback to ward & staff? |
|
@elleysowerby
05 July 2016 20:58
|
|
RT @swaydemfriend: @WeEOLC @Scottish_Banana #WeEOLC even with advanced dementia u can still observe, ask and listen. Do not assume PWD can'… |
|
@WeEOLC
05 July 2016 20:58
|
|
Yes - good point. We can all learn from patients about the positive/negative aspects of hospital admission #WeEOLC https://twitter.com/PamStoney1/status/750418522396880900 |
|
@ClareVeigh
05 July 2016 20:59
|
|
@WeEOLC highlighted the good palliative care that the hospital setting provides, this is often forgotten #WeEOLC |
|
@marie7732
05 July 2016 20:59
|
|
In Ireland you are more likely to die in hospital if you live in urban areas @IrishHospice #WeEOLC https://twitter.com/elleysowerby/status/750418268377276416 |
|
@Becbaines
05 July 2016 20:59
|
|
@heblau @cewalshe #WeEOLC Study done in ED (presented at #PCC2016) - cancer pts hated ED, those with COPD/CCF felt safe and secure. 1/2 |
|
@PamStoney1
05 July 2016 20:59
|
|
@WeEOLC #WeEOLC I have heard from (SAS) colleagues in hospital that sometimes they don't get feedback so with permission relay thanks |
|
@MoniqueLhussier
05 July 2016 20:59
|
|
RT @cewalshe: Study from @ioelc explored these disruptions between home and care: http://www.sciencedirect.com/science/article/pii/S1353829216000228 #WeEOLC |
|
@WeEOLC
05 July 2016 20:59
|
|
@marie7732 @IrishHospice Interesting - yet time for community services to reach you may be longer. More cohesive community support? #WeEOLC |
|
@WeEOLC
05 July 2016 20:59
|
|
#WeEOLC what's coming next in our future chats? https://t.co/Y5AZQJYOWo |
Stats
Total contributers:
21
Total tweets:
180
Total reach:
930,185
