#StomaNursesAddingValue - Monday 4th February 2019 8pm (GMT Standard Time) Coproduction & What Matters To Me

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Hosted by WeNurses using #StomaNursesAddingValue

This chat is guest hosted by @StomaCareVision

Co-production and ‘what matters to me’ are key initiatives from NHS England to change the ‘them and us’ dynamic in health and social care,coaching and empowering patients to become the experts in the management of their longterm condition and also using their insights and expertise to redesign services.

In this tweet chat we will be exploring how, as Stoma CareNurses, we empower ostomates within this framework to facilitate not only their own stoma management and quality of life with a stoma, but also inform the care and follow up services that we deliver.

    

Here are some links to background information that you may wish to take a look at:

Patients as Partners – The Kings Fund 

Good care needs to be a coproduction – Martin McShane NHS England 

Joining up ‘co-production’ and ‘patient leadership’ for a new relationship with people who use services – David McNally NHS England 

Always Events – NHS England

A co-production model – Coalition For Collaborative care

Experts of experience – Louise Watson NHS England


We will be exploring the following questions during the tweetchat:

  1. In reality, few Stoma Care Nurses have or have had a stoma. How can/do we learn from the lived experience of ostomates and how do we ensure other ostomates can learn from this experience?
  2. Promoting independence not dependancies the aim of our services and in reality it can be a difficult balance to find. What strategies or services do you use which enable your patients to be as independent as they can be?
  3. Thinking of ‘patients as partners’ changes the dynamic and traditional model of service design and delivery. How might we adopt this mindset within stoma care? 
  4. ‘What Matters to Me?” Means that services need to be responsive and flexible - if we consider younger ostomates and their different expectations about how care, information and support will be available to them, How do we signpost ostomates to the resources they want at the right time? 





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Here are some of the tweets that stood out to us during this tweetchat:

QUESTION 1


QUESTION 2


QUESTION 3


QUESTION 4


Thank you and well done to everyone who took part 





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 #StomaNursesAddingValue transcript

 
@StomaCareVision
04 February 2019 20:00
Hello and welcome to our very first #StomaNursesAddingValue Tweetchat ! How is everyone this evening ?? https://t.co/enZz5XxTdz
@rocking2stomas
04 February 2019 20:00
RT @NatashaRolls1: You are a win for the whole Stoma community @rocking2stomas well done #ExpertsByExperience #StomaNursesAddingValue https…
@Larder72
04 February 2019 20:00
Hi everyone #StomaNursesAddingValue
@rocking2stomas
04 February 2019 20:00
RT @StomaCareVision: Hello and welcome to our very first #StomaNursesAddingValue Tweetchat ! How is everyone this evening ?? https://t.co…
@gbtpo
04 February 2019 20:01
@StomaCareVision great thank you - excited and hope I can keep up! #stomanursesaddingvalue
@AgencyNurse
04 February 2019 20:01
Hello Teresa here - hope everyone is well ?? #StomaNursesAddingValue
@Corinne1809
04 February 2019 20:01
@StomaCareVision nervous and excited #stomanursesaddingvalue
@KarenDick
04 February 2019 20:01
#StomaNursesAddingValue interested to see how this all works
@SarahSquire73
04 February 2019 20:01
@StomaCareVision Hello! Hope you don’t mind patients looking in too? #StomaNursesAddingValue
@rocking2stomas
04 February 2019 20:01
@StomaCareVision Hi @StomaCareVision and everybody on #StomaNursesAddingValue Tweetchat. I am feeling better after a few days of resting ??
@StomaCareVision
04 February 2019 20:01
@gbtpo great to see you here Terri #StomaNursesAddingValue
@gbtpo
04 February 2019 20:01
@Larder72 Hey you made it Sarah - well done #StomaNursesAddingValue
@StomaCareVision
04 February 2019 20:02
@SarahSquire73 not at all - everyone is welcome #StomaNursesAddingValue
@StomaCareVision
04 February 2019 20:02
@Corinne1809 Hi Corrine - great to see you #StomaNursesAddingValue
@StomaCareVision
04 February 2019 20:03
@rocking2stomas thats great news :) #StomaNursesAddingValue
@KarenDick
04 February 2019 20:03
Hoping I can follow along #StomaNursesAddingValue
@gbtpo
04 February 2019 20:03
@AgencyNurse ?? a value adding wave! #StomaNursesAddingValue
@NatashaRolls1
04 February 2019 20:03
@gbtpo @StomaCareVision Good thanks, confess haven’t done ALL my homework so hope I get it right! #StomaNursesAddingValue
@gbtpo
04 February 2019 20:03
@StomaCareVision wouldnt miss it for anything! #stomanursesaddingvalue
@gbtpo
04 February 2019 20:04
@StomaCareVision Got it! #stomanursesaddingvalue
@WeNurses
04 February 2019 20:05
#StomaNursesAddingValue Tweetchat on now ... not just for stoma nurses ... all welcome :)
@Larder72
04 February 2019 20:05
#StomaNursesAddingValue
@gbtpo
04 February 2019 20:05
@chris_mo_90 @RoyLilley @MuziekGeluk @Coloplast_UK still here doing the #stomanursesaddingvalue tweetchat now!
@JudyPullen56
04 February 2019 20:05
@StomaCareVision #StomaNursesAddingValue having problems accessing
@Larder72
04 February 2019 20:06
prior to me becoming a stoma nurse my mum had a stoma so saw the service many years ago from a relatives perspective #StomaNursesAddingValue
@AgencyNurse
04 February 2019 20:06
As with any nursing the first step is listening ... i mean really listening #StomaNursesAddingValue
@Corinne1809
04 February 2019 20:06
#stomanursesaddingvalue real life experiences and problems
@AgencyNurse
04 February 2019 20:07
@Larder72 gosh i expect that gave you some real insight ... and also i bet times have significantly changed #StomaNursesAddingValue
@rocking2stomas
04 February 2019 20:07
RT @AgencyNurse: As with any nursing the first step is listening ... i mean really listening #StomaNursesAddingValue https://twitter.com/StomaCareVision/status/1092514126839013376
@Larder72
04 February 2019 20:07
we have 2 local support groups that are run by patients and we support as our service allows #StomaNursesAddingValue
@StomaCareVision
04 February 2019 20:08
@JudyPullen56 Hi Judy - you seem to be sending tweets ok .... see if you can click on >> #StomaNursesAddingValue <<< to find the tweetchat
@StomaCareVision
04 February 2019 20:08
@VanZvik82 its great to have you here #StomaNursesAddingValue
@Larder72
04 February 2019 20:08
yes but I have to say that when I look back the care that my mum received was amazing. #StomaNursesAddingValue
@StomaCareVision
04 February 2019 20:08
@NatashaRolls1 @gbtpo coming through loud and clear #StomaNursesAddingValue :D
@Larder72
04 February 2019 20:09
I agree getting staff to wear a pouch during a training day is very effective #StomaNursesAddingValue
@rocking2stomas
04 February 2019 20:09
@KarenDick @StomaCareVision That is a really good idea that some nurses do this to have a little insight #StomaNursesAddingValue
@WeNurses
04 February 2019 20:09
Oh wow what an experience #StomaNursesAddingValue https://t.co/bGMCanoy8S
@StomaCareVision
04 February 2019 20:10
Are you ready for QUESTION 2? Here it is .... what are your thoughts?? #StomaNursesAddingValue https://t.co/gvhIeA55bI
@gbtpo
04 February 2019 20:10
@StomaCareVision #stomanursesaddingvalue acknowledging we don't have lived experience, it's not a criticism or lac… https://twitter.com/i/web/status/1092515698973257729
@Larder72
04 February 2019 20:10
we have some patients that are happy to speak to other patients especially in preparation for stoma formation too #StomaNursesAddingValue
@rocking2stomas
04 February 2019 20:10
RT @WeNurses: Oh wow what an experience #StomaNursesAddingValue https://twitter.com/KarenDick/status/1092515126299840513
@StomaCareVision
04 February 2019 20:10
Do other people do this ?? #StomaNursesAddingValue
@rocking2stomas
04 February 2019 20:11
RT @StomaCareVision: Are you ready for QUESTION 2? Here it is .... what are your thoughts?? #StomaNursesAddingValue https://t.co/gvhIeA55…
@rocking2stomas
04 February 2019 20:11
RT @gbtpo: @StomaCareVision #stomanursesaddingvalue acknowledging we don't have lived experience, it's not a criticism or lack of clinical…
@StomaCareVision
04 February 2019 20:11
Great point Terri #StomaNursesAddingValue
@NatashaRolls1
04 February 2019 20:11
#StomaNursesAddingValue embracing social media feels like a good place to start, one of my #ExpertsByExperience sta… https://twitter.com/i/web/status/1092515998178119681
@gbtpo
04 February 2019 20:11
@KarenDick @StomaCareVision a great idea Karen #stomaNursesAddingValue
@StomaCareVision
04 February 2019 20:12
#StomaNursesAddingValue
@rocking2stomas
04 February 2019 20:12
RT @NatashaRolls1: #StomaNursesAddingValue embracing social media feels like a good place to start, one of my #ExpertsByExperience started…
@StomaCareVision
04 February 2019 20:12
You are most welcome to join us #StomaNursesAddingValue
@gbtpo
04 February 2019 20:12
@Larder72 thats a great resource Sarah - is it hard to organise? #stomanursesaddingvalue
@WeNurses
04 February 2019 20:12
Question 2 incase you missed is #StomaNursesAddingValue
@RoyLilley
04 February 2019 20:13
#StomaNursesAddingValue forgive an interloper,may I say, 4 me its inconceivable that we should be helping people wi… https://twitter.com/i/web/status/1092516446574391297
@AgencyNurse
04 February 2019 20:13
Love this #StomaNursesAddingValue
@WeNurses
04 February 2019 20:13
RT @Larder72: I agree getting staff to wear a pouch during a training day is very effective #StomaNursesAddingValue
@gbtpo
04 February 2019 20:13
@NatashaRolls1 thats brilliant Natasha - #ExpertsByExperience #stomaNursesaddingvalue
@gbtpo
04 February 2019 20:13
RT @NatashaRolls1: #StomaNursesAddingValue embracing social media feels like a good place to start, one of my #ExpertsByExperience started…
@StomaCareVision
04 February 2019 20:14
Everyone welcome and thank you for your thoughts Roy #StomaNursesAddingValue
@StomaCareVision
04 February 2019 20:14
Hello and welcome :) #StomaNursesAddingValue
@gbtpo
04 February 2019 20:14
@RoyLilley Totally agree Roy - start with the#ExpertByExperience and work backwards #stomanursesaddingvalue
@RoyLilley
04 February 2019 20:15
#StomaNursesAddingValue Q2 There cannot be a substitute for having new users spend time with successful users of your services.
@claire15000
04 February 2019 20:15
@StomaCareVision Hello. The chats looking good so far. #StomaNursesAddingValue
@rocking2stomas
04 February 2019 20:15
RT @RoyLilley: #StomaNursesAddingValue forgive an interloper,may I say, 4 me its inconceivable that we should be helping people with such a…
@rocking2stomas
04 February 2019 20:15
RT @gbtpo: @RoyLilley Totally agree Roy - start with the#ExpertByExperience and work backwards #stomanursesaddingvalue
@vikkipalmer68
04 February 2019 20:15
RT @gbtpo: @StomaCareVision #stomanursesaddingvalue acknowledging we don't have lived experience, it's not a criticism or lack of clinical…
@rocking2stomas
04 February 2019 20:15
RT @AgencyNurse: Love this #StomaNursesAddingValue https://twitter.com/KarenDick/status/1092515529842135045
@RoyLilley
04 February 2019 20:16
#StomaNursesAddingValue I would imagine new users will be in a state of shock, and can't see what normal might loo… https://t.co/vPT1Hmn7se
@NatashaRolls1
04 February 2019 20:17
@LadyTVE So good to have you @LadyTVE a real #StomaNursesAddingValue
@StomaCareVision
04 February 2019 20:17
QUESTION 3 (we are over 1/2 way through - well done everyone) #StomaNursesAddingValue https://t.co/XZzp8Wo5Ke
@WeNurses
04 February 2019 20:18
RT @RoyLilley: #StomaNursesAddingValue I would imagine new users will be in a state of shock, and can't see what normal might look like. T…
@gbtpo
04 February 2019 20:18
@WeNurses Q2 #stomanursesaddingvalue - signposting ostomates to support networks where they can learn from… https://twitter.com/i/web/status/1092517818220855296
@StomaCareVision
04 February 2019 20:18
Sounds like good practice #StomaNursesAddingValue
@WeNurses
04 February 2019 20:19
Here is Question 3 .. just incase you blinked ;D #StomaNursesAddingValue
@NatashaRolls1
04 February 2019 20:19
#StomaNursesAddingValue the principles of Motivational Interviewing in that nurses bring expertise but patients are… https://twitter.com/i/web/status/1092517992670380033
@gbtpo
04 February 2019 20:19
@knitknitqueen @StomaCareVision #stomanursesaddingvalue - hello Efua - well you've met a network of stoma nurses wh… https://t.co/pcKTNFsksS
@RoyLilley
04 February 2019 20:19
#StomaNursesAddingValue Q3 This creates a pressure for the nurse. On-call, is intrusive into family life and on th… https://t.co/mvkm2Pjm1i
@gbtpo
04 February 2019 20:21
@RoyLilley #stomanursesaddingvalue - when you see if written like that it does amplify the importance of peer suppo… https://twitter.com/i/web/status/1092518464722485249
@RoyLilley
04 February 2019 20:21
fascinating conversation going on at #StomaNursesAddingValue One for every clinician to have a look at and any pat… https://twitter.com/i/web/status/1092518594385186816
@Corinne1809
04 February 2019 20:22
@Larder72 #stomanursesaddingvalue @Larder72 sounds like a good idea!
@rocking2stomas
04 February 2019 20:22
RT @RoyLilley: #StomaNursesAddingValue Q3 This creates a pressure for the nurse. On-call, is intrusive into family life and on the days yo…
@RoyLilley
04 February 2019 20:22
RT @gbtpo: @knitknitqueen @StomaCareVision #stomanursesaddingvalue - hello Efua - well you've met a network of stoma nurses who will happil…
@StomaCareVision
04 February 2019 20:22
Great points Ian #StomaNursesAddingValue https://t.co/uvRP7xnwkG
@rocking2stomas
04 February 2019 20:22
RT @gbtpo: @knitknitqueen @StomaCareVision #stomanursesaddingvalue - hello Efua - well you've met a network of stoma nurses who will happil…
@rocking2stomas
04 February 2019 20:22
RT @gbtpo: @WeNurses Q2 #stomanursesaddingvalue - signposting ostomates to support networks where they can learn from #ExpertsByExpereince…
@RoyLilley
04 February 2019 20:23
RT @Corinne1809: @Larder72 #stomanursesaddingvalue @Larder72 sounds like a good idea!
@SarahSquire73
04 February 2019 20:23
RT @RoyLilley: fascinating conversation going on at #StomaNursesAddingValue One for every clinician to have a look at and any patients, to…
@StomaCareVision
04 February 2019 20:23
Yes indeed #StomaNursesAddingValue https://t.co/uAWFgrNi4a
@StomaCareVision
04 February 2019 20:23
#StomaNursesAddingValue https://t.co/9uvCLTTyMk
@StomaCareVision
04 February 2019 20:24
Our final question for this evening is QUESTION 4 #StomaNursesAddingValue share your thoughts and experiences ... https://t.co/60sxuhQZW2
@knitknitqueen
04 February 2019 20:24
@LadyTVE Instagram videos....? #StomaNursesAddingValue
@WeNurses
04 February 2019 20:24
Question 4 - and tonights final question #StomaNursesAddingValue
@SarahSquire73
04 February 2019 20:24
I felt very alone but gained amazing support from other ostomates #StomaNursesAddingValue
@AgencyNurse
04 February 2019 20:25
In the first instance it's really important to be well informed and aware of those resources #StomaNursesAddingValue
@StomaCareVision
04 February 2019 20:26
Thats brilliant to hear #StomaNursesAddingValue
@RoyLilley
04 February 2019 20:26
#StomaNursesAddingValue just a though; do 'support groups' institutionalise care when we should be trying to non-me… https://twitter.com/i/web/status/1092519716848103430
@knitknitqueen
04 February 2019 20:26
@StomaCareVision Perhaps by having a buddy? #StomaNursesAddingValue
@RoyLilley
04 February 2019 20:27
#StomaNursesAddingValue referring this group to each other is one way. There are cancer groups for young people, t… https://t.co/yTIIz9FySF
@gbtpo
04 February 2019 20:27
@SarahSquire73 #StomaNursesAddingValue - its so important for us to ensure we signpost people to the support networks that are out there
@littlemissileo
04 February 2019 20:28
@ColostomyUK offer a 24/7 helpline manned by trained volunteers. #StomaNursesAddingValue https://t.co/GBO8411jHG
@StomaCareVision
04 February 2019 20:28
GReat points #StomaNursesAddingValue
@StomaCareVision
04 February 2019 20:28
Brilliant to hear #StomaNursesAddingValue
@WeNurses
04 February 2019 20:29
A great idea - anyone done this ? Any top tips ?? #StomaNursesAddingValue
@SarahSquire73
04 February 2019 20:29
RT @littlemissileo: @ColostomyUK offer a 24/7 helpline manned by trained volunteers. #StomaNursesAddingValue https://twitter.com/larder72/status/1092518720004599808
@RoyLilley
04 February 2019 20:29
@Larder72 #StomaNursesAddingValue I think giving people another reason to meet up is a good idea. Learn something,… https://twitter.com/i/web/status/1092520618413772801
@RoyLilley
04 February 2019 20:30
@KarenDick WhatsApp groups work and they are private #StomaNursesAddingValue
@StomaCareVision
04 February 2019 20:31
ooops - spot the "deliberate" mistake ... we forgot the hashtag !! #StomaNursesAddingValue
@AgencyNurse
04 February 2019 20:32
What a fab 1/2 hour ... well done everyone ... some really great points made and certainly some things to reflect on #StomaNursesAddingValue
@NatashaRolls1
04 February 2019 20:32
#StomaNursesAddingValue I presented at the local chapter of ACPGBI about needs of the younger patient, shocked at h… https://twitter.com/i/web/status/1092521241142018048
@StomaCareVision
04 February 2019 20:32
RT @NatashaRolls1: #StomaNursesAddingValue I presented at the local chapter of ACPGBI about needs of the younger patient, shocked at how li…
@rocking2stomas
04 February 2019 20:32
RT @NatashaRolls1: #StomaNursesAddingValue I presented at the local chapter of ACPGBI about needs of the younger patient, shocked at how li…
@NatashaRolls1
04 February 2019 20:34
My #ExpertbyExperience did not want to present but worked the presentation with me a real collaboration #StomaNursesAddingValue
@gbtpo
04 February 2019 20:35
@StomaCareVision wow that went quickly - what a thought provoking 30 minutes #StomaNursesAddingValue but my fingert… https://twitter.com/i/web/status/1092521929452544000
@RoyLilley
04 February 2019 20:35
#StomaNursesAddingValue well done everyone and thank you for letting me dip in https://t.co/9DvwtMxsUW
@carylevans_123
04 February 2019 20:35
RT @NatashaRolls1: #StomaNursesAddingValue I presented at the local chapter of ACPGBI about needs of the younger patient, shocked at how li…
@gbtpo
04 February 2019 20:35
@NatashaRolls1 coproduction - brilliant Natasha #StomaNursesAddingValue
@NatashaRolls1
04 February 2019 20:36
@rocking2stomas It was their story to tell and (not yet) being as brave as you I was privileged to tell it #StomaNursesAddingValue
@gbtpo
04 February 2019 20:37
@RoyLilley well done Mr L and thank you for joining us #StomaNursesAddingValue #ßtartWithThePatientAndWorkBackwards
@gbtpo
04 February 2019 20:42
@rocking2stomas @Larder72 Lets Do It! #stomanursesaddingvalue
@StomaCareVision
04 February 2019 20:44
Thanks for joining us Roy - great to see you #StomaNursesAddingValue
@StomaCareVision
04 February 2019 20:44
RT @gbtpo: @StomaCareVision wow that went quickly - what a thought provoking 30 minutes #StomaNursesAddingValue but my fingertips are smoki…
@StomaCareVision
04 February 2019 20:45
@Larder72 it was only 1/2 an hour ... just a taster ... next tweetchat will be an hour thought ;D #StomaNursesAddingValue
@StomaCareVision
04 February 2019 20:46
@VanZvik82 @gbtpo both perfectly acceptable .... you did wonderfully :D #StomaNursesAddingValue
@RoyLilley
04 February 2019 20:46
RT @gbtpo: @RoyLilley well done Mr L and thank you for joining us #StomaNursesAddingValue #ßtartWithThePatientAndWorkBackwards
@StomaCareVision
04 February 2019 20:46
Thanks for tweeting in - great points #StomaNursesAddingValue
@StomaCareVision
04 February 2019 20:49
RT @StomaCareVision: Thanks for joining us Roy - great to see you #StomaNursesAddingValue https://twitter.com/RoyLilley/status/1092521961215922177
@gbtpo
04 February 2019 20:51
If you missed the tweetchat #StomaNursesAddingValue you can catch up on all the discussions here ??????
@gbtpo
04 February 2019 20:56
@LadyTVE totally agree - an new opportunity not a threat #stomanursesaddingvalue
@WeNurses
04 February 2019 20:58
RT @gbtpo: If you missed the tweetchat #StomaNursesAddingValue you can catch up on all the discussions here ?????? https://twitter.com/stomacarevision/status/1092524213104193536
@LadyTVE
04 February 2019 20:58
RT @gbtpo: @LadyTVE totally agree - an new opportunity not a threat #stomanursesaddingvalue
@titikorie_
04 February 2019 20:58
RT @gbtpo: If you missed the tweetchat #StomaNursesAddingValue you can catch up on all the discussions here ?????? https://twitter.com/stomacarevision/status/1092524213104193536
@StomaCareVision
04 February 2019 20:58
We feel the same way ;D #StomaNursesAddingValue
@StomaCareVision
04 February 2019 20:59
Wow how amazing is this ... good luck :) #StomaNursesAddingValue
@LadyTVE
04 February 2019 20:59
RT @StomaCareVision: Wow how amazing is this ... good luck :) #StomaNursesAddingValue https://twitter.com/lynnmarie7t3/status/1092526327897444352




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 Total contributers: 19
 Total tweets: 133
 Total reach: 1,972,041

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